Developmental disorders/learning disabilities/genetic syndromes & more support group

[essie0828]

I'm pretty excited about going to the CP clinic. I hope it becomes our home base of operation, lol. It feels like we are so scattered about with her specialists.

Her receptive language has really blossomed recently and I'm hopeful for her cognitive abilities. She is coming along with the picture communication and chooses the toys she wants to play with in outpatient therapy by pointing at them. It's always bubbles first Her OT is helping us address feeding and biting issues, along with helping us to reach independence goals like self soothing, helping to dress herself, brush her hair, ect. They really break it down and go at each goal a step at a time. Love it! Hayley is starting to move her arms to help get into her shirts and coats. She stands independently with her heals down for up to a min. Her walking in a gait trainer is getting better and she has a good chance of walking on her own. She may need crutches and braces or a walker but the ability to step is there I'm proud of her She trys so hard.

 

[essie0828]

It will be CIO based. He wouldn't have any comforts because they don't use 'props'.

We will be going down the OT route. I don't know why it wasn't suggested to us before to be honest

Oh no! I'm not a fan of CIO. I wouldn't do it either. OT will be much more relaxed, it's all about finding what stimulus does comfort him. Well besides sleeping on mom And reducing sensitivity to stimulus that bothers him or wakes him.

 

[RachA]

Hooray for Esther going to mainstream school I really hope she enjoys it and they offer her any help she needs. I'm sure you will make the right decision for her.

Thanks. It kind of is but kind of isn't mainstream depending on the school. 2 that we looked at are 100% main stream but she would do a lot of small group work. The 3rd school we looked at has a special speech class that she would be in. This would be small group most of the time and then mix with the 'normal' classes sometimes.

Really hope we make the right decision-it's so hard lol

 

[RachA]

It all sounds really good Essie

 

[bumpin2012]

Essie: that's fantastic progress!

RachA: it sounds like the decision was made with a lot of consideration. I think you've made the right one

 

[essie0828]

Bumpin when you finding out if Gabe's getting a baby brother or a baby sister? You're getting so close to half way.

 

[essie0828]

RachA the school I went to had smaller special needs classes that mixed in depending on the childs needs. There was very little bullying and the special needs kids integrated very well. I think, if we get the chance, I would like to do something like that for Hayley. I like the idea that if she gets overwhelmed with the social aspects that she can retreat into a smaller part of the population. I know that there will be days she's tired or sore and may want the comfort of a small class and more one on one attention.

 

[bumpin2012]

Essie, our ultrasound is booked for December 19th. they won't tell us during, but the radiologist forwards the report to my OB. She'll probably see the report on the 23rd. so we're getting it written down in a sealed envelope to open on Christmas day together

I was hoping hubby would want to stay team yellow, but he's pretty adamant that we find out.

it's insane how fast this pregnancy is going!

 

[aliss]

2nd is always fast, you don't get to sit around and daydream!! Plus you think more about the reality than nursery colours

 

[essie0828]

2nd is always fast, you don't get to sit around and daydream!! Plus you think more about the reality than nursery colours

 

[essie0828]

Essie, our ultrasound is booked for December 19th. they won't tell us during, but the radiologist forwards the report to my OB. She'll probably see the report on the 23rd. so we're getting it written down in a sealed envelope to open on Christmas day together

I was hoping hubby would want to stay team yellow, but he's pretty adamant that we find out.

it's insane how fast this pregnancy is going!

Lol, you better close your eyes during the ultrasound! That sounds like an amazing Christmas present.

 

[RachA]

I really can't imagine finding out the sec at any time other than the birth. We were team yellow for both. Finding out wouldn't if changed anything as the nursery was always going to be bright primary colours.
We very nearly wavered with our first and I'm so glad we didn't as I was dead set against having a boy. Then when we had him I was just glad he was ok cos I had a very dodgy birth and was close to loosing him. So knowing he was a boy when he was born didn't bother me lol.


I think opening the envelope if Christmas Day is a really cool thing to do

 

[bumpin2012]

thanks

the reality of having 2 is certainly on my mind often... and I really wish it wasn't... Lol

 

[aliss]

I find two so much easier than one. Obviously in the beginning it's harder but it's well worth it. Sometimes emotionally it is difficult when you realize that your developmentally normal child can do things easier/better than their older sibling (they both said mama within 2 weeks of each other) but at the same time it is relieving that they can help each other out with things, such as physical or language development.

Philippe is advanced beyond other kids physically and verbally while Alex is very behind due to autism but for some reason they are like a ying and yang to each other, it's hard to describe. I know you are probably nervous moreso than any other 2nd time mom, but I promise it is actually an amazing thing.

 

[sun]

I had the opposite experience as my son had a really hard time with his sister once she became mobile at 6mo. He balances towers of things around the house and organizes things very specifically, and she would crawl by and knock it over or destroy it. It was a huge issue for us and they still fight alot because of it as he wants everything just so and she couldn't care less. But it has gotten much better and they will now play together occasionally! He even started letting her touch him a few months back though it's still rare. The first 6mo were a breeze though as he just ignored her.

 

[bumpin2012]

lol..oh dear Sun! That sounds like a frustrating thing!

 

[essie0828]

Sun have you found out the sex #3 yet??? .

RachA there's no way I could wait to find out. I am too impatient. I knew with DD at 14weeks!

 

[sequeena]

Does anyone feel like they put people on a downer? I see threads on here about what's normal at what age, what our kids are doing at a certain age etc and I reply to them but I do worry that people don't like when I comment because of T's problems.

I dunno, just seems to be a vibe I'm getting recently

 

[aliss]

Maybe we are the pink elephants in the room and people just don't know what to say.

All I want to yell is DON'T PITY US!!!!!!!!! Seriously, not bitter. Just because my 3.5 year old can't talk doesn't mean you should be ashamed if your 2 year old does!

 

[sequeena]

Maybe we are the pink elephants in the room and people just don't know what to say.

All I want to yell is DON'T PITY US!!!!!!!!! Seriously, not bitter. Just because my 3.5 year old can't talk doesn't mean you should be ashamed if your 2 year old does!

Yes exactly

Though I'm not ashamed to admit I have gotten very upset (irrationally) that kids younger than Thomas are doing things he is nowhere near to doing. I just have to remember that he is getting the extra help he needs and there is a light at the end of the tunnel.

As I type this he is pretending to unlock our living room door with our house keys so he does pick stuff up