Developmental disorders/learning disabilities/genetic syndromes & more support group

[emyandpotato]

He's around 90cm but not certain exactly? I think our GP said he was just under 90 at his last check.

 

[nicki01]

I'm to having a buggy problem! I spend £700 on a brand new double 11 months ago! Only Charlie has outgrown the weight limit!! I've now got to sell it for half the price and buy another double only problem it needs to be big enough for her as she is tall, have a high weight limit as the current one is 15kg max but needs to have a low handle as I'm only 5ft and I need to be able to lift it up kerbs with Charlie in the main seat as she won't sit in the back, also needs to be a double tandem not a side by side!
I've haven't actually found anything that suits all my needs lol!
Its such a nightmare. I'm at a total loss.

 

[moggymay]

Moggy ty for the link! I really like the look of that stroller We looked at a bunch of reviews of the BOB series of strollers and after some digging found out the seat back height on those are shorter than the Joovy. Huge bummer. I need to look into their other styles. I mainly looked at the 3 wheeled ones. I've yet to find a website that posts seat back heights for their products! It's usually hid in the reviews. I think I need to go to some shops and try some displayed models out.

Emy how tall is Rory? If he's taller than DD your buggy may work for us.

Ladies thanks for the info. We really need something that fits in a small car but is long enough for DD to use for a while until her walking gets better. Dh and I are both 6ft tall so handle height is also an issue for us.

DH is over 6ft and he can comfortably push the agile, it also fits in the boot of a micra, the rear wheels come off really easily too, last holiday we had it stored in the rearseat footwell under DS2's feet

I have loved ours, would recommend purchasing the optional bumper bar as we tend to use the lap portion of the harness and not the shoulder ones and he used to sit in and lean on the bar to watch what was going on around him.

What measurement are you looking for as happy to measure our buggies...

 

[essie0828]

Awesome! Yes please measure the seat back. From where their lil bottoms sit up until the seat ends. DD has a long torso so she's very tall when sitting up and most strollers with a shorter seat and canopy won't work for us. That's awesome news that your DH can push it and be comfy. Most strollers, especially umbrella style, are back breakers for us. Can I get that at a costco? Lol. That's the only store here that I have heard some of you UK ladies reference. There is a new one about 20mins drive from us and it's on the way to DD therapy, be a good excuse to check it out

 

[essie0828]

Emy, DD is a bit bigger than your little guy. She's about 99cm if I did the conversion right. She's so tall and thin that finding anything to fit her is a nightmare.

 

[essie0828]

I'm to having a buggy problem! I spend £700 on a brand new double 11 months ago! Only Charlie has outgrown the weight limit!! I've now got to sell it for half the price and buy another double only problem it needs to be big enough for her as she is tall, have a high weight limit as the current one is 15kg max but needs to have a low handle as I'm only 5ft and I need to be able to lift it up kerbs with Charlie in the main seat as she won't sit in the back, also needs to be a double tandem not a side by side!
I've haven't actually found anything that suits all my needs lol!
Its such a nightmare. I'm at a total loss.

What about umbrella style strollers? I can't remember seeing a tandem double but this style usually fits DD well but is so low to the ground that Dh and I practically have to push it bent over. I've seen some that are pretty nice, some really nice side by sides but I am clueless on the tandem.

Im like you, I have yet to find a stroller that meets all our needs. I have 4 sitting in the spare room and one awaiting shipment back to the seller. Btw I had to take a burn on that. Buyer to pay return shipping I hate internet shopping.

 

[RachA]

Essie-I've been using a Bebe Confort Loola and Loola Up for Esther. She's too tall for it now to lay back comfortably. Have just checked when she would of measured 39in and it was back when she was 3 1/2 or 4 and I know she could lay down in it then and she was fine.


Nicki-not really much help for you as you don't want a side by side but I had the same problem-Daniel was tall and over the 15kg weight limit and I couldn't find a tandum one so ended up with a side by side which I did actually prefer.
One thing to consider though is that the 15kg weight limit is how much they test the buggy to here in the UK. I've heard some of the mums on here saying that in the US the exact same buggy is tested to a higher limit that 15kg.

 

[moggymay]

B Agile seat back is about 21 inches (it is a little more but then the hood becomes a factor)

Rach our other buggy is a loola Defo agree about it fitting a taller child, ours is now almost 7 years old and still looks ok, new pair of wheels and new hood and it would pass for a year old! (Hood is faded from sun and wheels worn through years of walking!)

How go the school socialising sessions for you guys? Can't believe we have just 12 more days of pre school left

 

[RachA]

B Agile seat back is about 21 inches (it is a little more but then the hood becomes a factor)

Rach our other buggy is a loola Defo agree about it fitting a taller child, ours is now almost 7 years old and still looks ok, new pair of wheels and new hood and it would pass for a year old! (Hood is faded from sun and wheels worn through years of walking!)

How go the school socialising sessions for you guys? Can't believe we have just 12 more days of pre school left

I totally knackered my first Loola - the wheels got shredded lol. So we then got the Loola Up. Even though E doesn't use it that much now I'm glad we've got it.

We've got E's stay n play session tomorrow from 1.15-2.15. I don't want to go!!!! I'm fine with the fact she's going to be starting school even though a lot of things are still up in the air. I'm just dreading tomorrow because all the other parents are going to be there. OH is in Copenhagen for the day so I haven't even got his support (although to be fair to him he did say he'd stay if i wanted him to)

 

[annanouska]

rach it's going to be fine. Your children are old enough for you to know some parents are just idiots in general you might meet some nice ones but more importantly Esther can get to meet her peers

It is hard being the parent of "that child" the one just a little different and it's hard to not feel all eyes are on you like you are an alien family Im sure there will be other children there who have their own quirks and challenges. I know that won't help you but im sure other parents are worried too. I'm often the one with the biter, hair puller,grabbing crazy one....being non verbal ATM just adds to it

Itvwont belong before it's the Christmas play and she's taking part

 

[sequeena]

It's hard finding pushchairs for taller children T is around 98cm.

Sorry I've not been round I've been fundraising the last few days and raised over £250.

Thomas starts nursery.tomorrow I'm nervous rach good luck xx

 

[annanouska]

how did Thomas do at nursery and Esther at school ladies? X

 

[sequeena]

He did pretty well thanks. Leaving was hard he kept blocking my way. He did have fun though.

 

[nicki01]

Hope everyone is ok? I've got 2 grumpy hot girlies today! Charlie's new word is no way! Everything I ask her "get dressed no way, have lunch no way, bedtime no way" its driving me mad!!
I've sold my oyster pram and bought a phil and teds dot.
The max weight limit is 20kg and Charlie is 17.7 so hoping it will last us till the end of the year and then I've no idea what to do!
Currently waiting for it to be delivered

 

[sequeena]

Thomas is also saying a lot of no way he is cracking me up!!

Apply for a maclaren through wheelchair services x

 

[bananabump]

Hi everyone, I'm sure I've seen someone posting on this thread before about their son/daughter having seizures? I'm just looking for some guidance really. My son had an EEG today as he's had 4 in the last month so they think he could be epileptic. I'm trying to find other parents of epileptic children or children who have seizures with an unknown cause to share our journeys xx

 

[annanouska]

its me and Marcus!

I think one of the ladies hubby has night seizures too.

I always mean to ask does Leo have proper jerky type fits? My uncle had that type of epilepsy, my sister had juvenile epilepsy but she's ok now at 21. She's dyspraxic and dyslexic but can function brill and just finished her degree.interestingly tho it did affect her speech which I know you a struggling with ( again its fine now she never shuts up ). Her seizures are a lot of what I see in Marcus, he just sort of stops and completely zones off, you can't bring him around you have to ride it out.

I've noticed he seems to get more around developmental milestones and also when tired.

I know his first EEG was abnormal but the second I don't know yet, as you know they sit in and watch it and do the computer but won't tell you anything even tho they can prob see!!!

Sequeena, I wish I'd got a maclaren buggy, if he's asleep in his his head falls a bit off back I can't afford another now and when he's away he pulls forward and sits upright so its ok, plus he rarely sleeps anyway lol x

 

[nicki01]

That's my next step, we are seeing the paediatrician at the end of the month so I'm going to ask to be referred to the wheelchair company, I won't be able to use it on my own but when out with my partner we can have a pushchair each!

Breakfast seems to be a battle just lately! Think its a power trip as she knows I want her to eat breakfast before we do anything whereas other meals I'm more laid back and don't mind if it takes her 2 hours to pick at it.
Every time she excels with something I find another battle somewhere else! She has come out with a little attitude now she has more words! She is like a stroppy teenager its so funny!

 

[sequeena]

Popping in with hugs for everyone. How are we?

Thomas is doing well at his new nursery which is a relief. His other nursery breaks up for summer on Monday.

He is very sensitive right now and seems to be afraid of everything. I hope he feels better soon I don't really know how to help him

I am just so keen to get him to see the OT his sensory issues are so out of control and his behaviour is just getting worse. He's actually on 2 waiting lists for a pediatric OT. One at the children's centre and one at a different hospital. I'm not taking him off either having him on both means he shouldn't be waiting too much longer!

 

[sequeena]

Also T had another frigging growth spurt and has hit the 100cm mark