I think Tom had a seizure:(

[Emmea12uk]

He hasn't been right since friday, screaming randomly and then going back to his normal self. I put it down to teething but today i had him on my lap and was playing with him and he went rigid ans started wiggling and screaming, he looked like he had fallen asleep but he was still wriggling and his eyes were wide, but the pupils contracted, his eyes started rolling and moving independently of one another like they do when he is asleep, but he was still wriggling, the he started screaming again and concked out in a deep sleep for 20 mins.When he woke he was right as rain, but still randomly crying.

he has also been banging his ears and around them. We are going to hospital tomorrow morning to see the neuro team.

Deb or anyone who has experience of seizuers help!

 

[isil]

sorry, I don't have any experience of this stuff but I just wanted to send and hope you get some answers tomorrow.

 

[Tegans Mama]

Tegan does the thing with her head - she randomly started hitting her head with her fists a few days ago and she does it all the time now. That does sound like a seizure to me, I hope things go oka tomorrow. Tegan's only ever had two and we were in the hospital when she had them so I'm not sure if I'd even know she was having one!

 

[clairebear]

aw x hope you get answers tomorrow x

 

[Vickie]

Hope you can get some answers tomorrow

 

[AppleBlossom]

to tommy x

 

[Deb&Matilda]

It could be a seizure but wouldnt like to say definately xxx
Its good that you are going to the hospital as not to worry it it could also be his shunt xxx
If is shunt is fine tho they are likely to not do anything just yet as they dont like just giving medicines out xxx
They could possibly refer him for an EEG xx
But I would not worry, if these continue the best thing to do and I know this sounds strange is to try and catch it on camera ie your mobile phone xx I know this isnt your first thought but it helps the doctors understand and they will prob ask you to try and do this. Keep a record of exactly when these are happening how long for and exactly what happens and I mean in great details xxx

But honestly try not to worry xxx

Even when Matilda as them now which at the moment is often due to her medicine needing increasing I get told just to sort it out only if she as a long one which last more than 20mins does anyone need informing. I know this sounds harsh but they are very unlikely to harm a baby unless he is having big ones and I mean throwing himself arounds, losing control of bowels and bladder foaming etc regularly. xxx

Hope thid helps.

I will keep my computer on for a while incase you need me.


Debra

 

[Booksmart]

I saw this thread and feel like I really have to post a reply.

I have had Epilepsy since I was very young, my mother noticed it too while I was an infant. Today there are many wonderful doctors and specialists that will be able (hopefully) to provide you with the best care and support. As scary as it was to see that happen it is best you caught it early so he can receive the proper care right away.

I am able to function like a normal person today although on meds and I believe that your son will have the same luck. Hoping for the best. x

 

[claralouise]

firstly hun im sorry it must have been so scary for you i hope hes ok.xx

i have no experience with children having sezious but i work with dogs and have delt with a breed that have a lot of sezios and that what you described sound just like one, when they come out of the seziur they either get up as if nothing has happned or go to sleep for a bit. i know hes not a dog but it just sound similar.

if it happens agiain make sure you stay quiet and calm and just stroke his head for reasurance that you are there.
good luck at the hospital xx

 

[sam's mum]

Hope everything goes ok tomorrow x

 

[princess_bump]

just wanted to send you some x x x

 

[Mamafy]

Good luck for today

 

[Donna79x]

Hope all as gone ok today xx

 

[Emmea12uk]

He went in this morning and he had a CT scan within an hour. His shunt seemed fine, if not working too well! But that didnt seem to concern them. They think it is most definately epilepsy and to be expected with all he has been through really. He has to go for an EEG tomorrow to see if they can catch some funny waves going on.

 

[clairebear]

AWWW hunni huge for you mike and mr T xxx

 

[Tegans Mama]

Sorry to hear that hun but like they say is really is more likely people with SB and hydrocephalus will have epilepsy than it is that they won't. When Tegan was still in the hospital she had two in one day but I haven't noticed her having one since, watch quite carefully for it. Hope things get sorted soon.

 

[sam's mum]

Hope the EEG goes ok tomorrow x

 

[claralouise]

good luck with the EEG tommorow

 

[reallytinyamy]

big to you, mike and little tommy. i've worked with children with epilepsy and SB and hydrocephalus and I know you'll be fine, but I know its scary too.
xxxxxxxxxxxxxxxxxx

 

[Mamafy]

Good luck for tomorrow hun xx