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Just want to bang my head against the wall...

laurenelyse

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Hello ladies,

I've been lurking for a few weeks, taking heart from other people's journey's, but I'm so frustrated right now I needed a place to rant.

My DH and I have 3 beautiful kids. Each and every one is a miracle, and I'm incredibly grateful. My DD #1 was born at 30 weeks due to unexplained preterm labor. She is now 16, very healthy, and as happy as any teenager can be. My DS was full term, after many years of infertility and an ultimate diagnosis of PCOS. I had a lot of bleeding during my pregnancy and spent most of it on bed rest, but he is now a perfectly normal 10 year old. My DD #3 was a complete surprise. I was breastfeeding, not having regular periods, and I think we DTD once that month. I had a great pregnancy with her, but I went into labor at 29 weeks due to an unidentified infection. She had no lasting complications, and just turned 8.

We never quite felt like our family was complete, and we spent many years talking about it. I had MANY conversations with my OB, who was always very supportive of my decisions. She never saw any reason not to try again, as long as I was carefully monitored. 3 years ago my IUD came out and for a while it was NTNP, but for the last 16 months we've been actively TTC. I knew it wouldn't be an easy journey, with my PCOS, and being over 35 when we started, but I felt like I would always regret it if we didn't try. It was such a deeply personal decision for us that we haven't shared it with anybody and it's getting to be a pretty lonely road.

While my OB is nice, she doesn't really do anything fertility related, and my GP just tells me to talk to her when I bring it up. Last month, I finally harassed my OB into referring me to a RE, and I had my first appt. this morning. It's been years since I've had any CD3 blood work, and my DH has never had an SA, so I was looking to start with the basics. If his count was off, my OB thought IUI might be a good option for us. I was feeling so hopeful that we might finally get some tests done, even if they didn't show a whole lot. At least I could rule some things out. Imagine my surprise when the RE spent a total of 5 MINUTES with me, and he told me based on the history I'd given the nurse that I could either make peace with only having 3 or go straight to ICSI/IVF. Those were my only 2 options. Every time I tried to speak, he cut me off. He refused to consider clomid or femara on the slim chance of multiples, he glossed over my PCOS and said we were dealing with MF because we'd been trying so long. WTH? No sense in checking my tubes because they aren't needed for IVF. Huh? Blood work doesn't matter because my charts say I ovulate. Um, okay. He implied I shouldn't even be trying on my own in case I get twins. Then he tried to placate me by telling me 3 of his 6 kids were IVF babies. Like I gave a shit at that point. I don't even know how much that would cost, because they were too busy to discuss it with me. They'll just send me a letter. Gee, thanks.
Realistically, we just couldn't afford IVF anyway.

I got in my car and started yelling I was so mad. I have jumped through every hoop I can find to make this happen, and no one wants to cooperate. I take supplements and vitamins to try and control my PCOS. I begged my GP to give me thyroid meds based on my symptoms, and not my bloodwork (which he did), I've done acupuncture, meditation, charting up the wahzoo, bd'ing when I'm sick, when I threw my back out and couldn't walk, when I had to beat my DH upside the head because he was too tired, and I could build a house with all the sticks I've peed on. I've gone through clinical depression and anxiety, been on a dozen anti-depressants along the way, and searched my soul to make sure this was what I really wanted. And now I feel like crap, like I'm a bad person for wanting this, and worse, like I'm stupid. I know all the risks, I've done so much research it's coming out my ears, and all my doctors just want to pat me on the head and send me on my way. Sooo frustrating.

Just had to get all that off my chest so my DH doesn't come home to a madwoman.
 
laurenelyse - what a jerk of an RE... I am sorry you had to have a visit with that guy... very unfortunate...
I feel the same way about my RE - basically told my hubby and I we have a 5% chance of every getting pregnant on our own and he would only entertain IVF or IUI... he just wouldn't listen to us... what we wanted...
I don't know - it wasn't a good experience for us... so we are just going to try on our own with supplements/etc...
I have two children myself and would LOVE to give my husband his first... and yes I hear all the time - at least you have two... yes I have two - but my husband doesn't have any - people don't want to hear my reply... grrrr...
Im sorry this crap is happening to you... feel free to vent anytime!! I'm here to listen (or read I guess LOL)
 
That is crazy! I would see another doctor for sure! My DH and I have been TTC for almost 3 years now and after 3 different doctors and a butt load of non ovulating cycles I'm finally now on meds that are actually working! And we just barely got our SA done! I also have PCOS. We have 3 girls from DH's first marriage but I desperately want a baby of my own. I totally understand the need for ranting! I've made loads of friends on this site in my long journey. This past week I officially became the only person left in my main thread to not be pregnant....most have already had their babies! And today I'm spotting. AF should arrive by this evening. And I have to go to a best friends baby shower tonight. Ugh! I'm totally happy for how far we've come and that we're finally seeing results, but I'm also very tired of te whole thing. Having a hard time today keeping positive. Anyway, now I'm venting!

The point is I'm with ya honey! Rant away! This journey can be such a difficult road. And idiot doctors make it so much harder than it should be!
 
Thanks, Ladies!

Wish4another1- Gotta love when the doctors know our own minds better than we do. I've made peace with only having 3, but that doesn't make my desire for another one any less legitimate. As if the TTC journey isn't hard enough, the endless round of doctor hopping just makes everything worse. Unfortunately that RE is the only one in my area, so it looks like we'll just keep going on our own, using supplements and probably more acupuncture. It's nice to have someone in the same boat!

MamaMac123- I've been very fortunate that for the past year I've been ovulating on my own most cycles, but I can only assume my eggs aren't the best. I wish they would do the bloodwork so I could have an idea of my reserve or quality, but I can't seem to get any doctor to listen. I think I've found a few supplements that are helping, but PCOS makes my ovulation all over the place, which makes it so hard to time anything, on top of DH's crazy work schedule. My OB's advice was just to pee on more sticks, as if I don't have a secret stash of a bazillion anyway, lol.

Guess we'll just take it a day at a time :)
 
Yeah OPKs have never worked for me. Just pissing my money away...literally!
 
OPK's are hit or miss for me, but I'm eternally hopeful and can't seem to stop myself. It only took me 37 years, but I finally discovered my cervix a few months ago, lol. That's pretty reliable for me.
 
Thanks, Ladies!

Wish4another1- Gotta love when the doctors know our own minds better than we do. I've made peace with only having 3, but that doesn't make my desire for another one any less legitimate. As if the TTC journey isn't hard enough, the endless round of doctor hopping just makes everything worse. Unfortunately that RE is the only one in my area, so it looks like we'll just keep going on our own, using supplements and probably more acupuncture. It's nice to have someone in the same boat!


Laurenelyse - wow I am so glad to meet someone that is in the same boat as my husband and I!!!

I am testing next week - we shall see!!! GL to you too
 
Hi Ladies,

I hope you don't mind me joining you.:wacko:

I haven't long left now as cut off for me is 47, 7 cycles to be precise :cry:, I so wanted to give my partner a child of his own and was looking forward to being able to enjoy the baby years. with my first two it was straight back to work and i didn't really enjoy them or appreciate them as I should have done:blush:

I have just been discharged by my RE, he was such a waste of time anyway!! He really wasn't interested with us, I think the nurse explained more after the appointments than he ever did. So frustrating as with my age and lack of funds I don't have any other options open to me.

I've had all the tests done and have been told nothing really amiss although I'm not overly sure what any of the test means 100% ?

Me. FSH 6, LH 3.5 PROGESTERONE 37
OH, Low count 7.6

Just hoping for a miracle..baby dust to you all
 
Hey Lauren

I know the feeling. I am now on my FOURTH specialist. The first one pretty much dismissed me after my HSG...saying that I had to have IVF, or I was going to have ectopic pregnancy and lose my tubes, then she left the room...gee thanks. The second one, I only saw the doc once, and then they wouldnt let me see him again, only a nurse...umm, she didnt go to med school rite? The third told me that I cant safely do an IUI so she recommends IVF, put it into insurace and it said I needed 6 cycles with exposure to sperm first...which I had done...but she said I needed 6 IUIs and proceeded to do 1...wait, did you just tell me this wasnt safe? I am not on my fourth specialist and he agrees that IVF is my best option...however its not my ONLY option. He is taking care of the root problem...my PCOS. He says I have a clubbed left tube and blocked right tube and while it will take awhile to get pregnant, its not impossible as everyone else was making it seem, also he is willing to fight my insurance to get it covered.

Do you live in the U.S.? Some states REQUIRE that Health Insurances cover Infertility Services, including IVF. I would look into it. My state requires it (massachusetts) so I am waiting for my insurance to accept it now. They, of course, have their limitations, but my insurance allows 6 IVF cycles per 'delivery.' Meaning that I have 6 tries to get pregnant. If i get pregnant and then want to have another, I get another 6 tries. I would really look into whether or not your insurance would cover it. That way, instead of $10,000, you may only have to pay $250-$500.

I hate RE's that are asses. I mean why the hel are you going to go into a profession where women and men are VERY sensitive and then be a total dick to them (excuse my french). Its ridiculous!! Wishing you luck!!

P.S. I would find a new RE and demand a couple clomid cycles. I have a friend who is 35, and has PCOS. She got pregnant with her first after the first clomid cycle, and pregnant with her second after the second clomid cycle. It works!! (Not for me cuz I'm blocked..yippee :growlmad: )
 
Well, af found me once again, so I decided to force someone to listen to me. There's a great nurse practitioner that I've seen at a local walk-in clinic a few times, so I went to her and begged her to run CD3 bloodwork so I can figure out where my pcos is at. She was very nice and let me do it, even though it's not her specialty, I won't have the results until next week, but at least it's somewhere to start. I found a urologist that can give my husband a work-up, and we decided to travel the hour and a half to a new RE with a really good reputation. Our appointment is Feb. 6.

Our insurance doesn't cover fertility beyond medication, but they will pay for diagnosis and treatment of underlying condition, including ultrasound monitoring and an hsg, so I'm thankful for that, at least.

JViti, the previous RE said I could do clomid, but he made it quite clear I would be a total fool if I did. It increases the risk of twins, which would be terrible for me because of my history of preterm labor. I was under the impression that's what the monitoring was for, to make sure there weren't too many eggs. I've done tons of research, and under supervision I would be willing to try, but I don't think he really cared much. The waiting room was so full, I'm sure my money didn't much matter. I'm glad you found one who was willing to work with you. If we had to do IVF, I would, but I would at least like you to spend more than 10 seconds with me to explain why.

Felicity45- I am so sorry your journey is such a hard one. It is so easy to take things for granted when we are younger, isn't it? I don't know how much longer we will continue to try, but I am trying very hard not to lose hope, I'm not doing very well at the moment, but tomorrow is another day. Your numbers all look good. I'd actually kill for numbers like that, but I know good numbers don't always mean much.

I'm praying very hard that everyone gets their thb very soon.
 
I'm so glad you found a doctor that will work with you, even if she isn't a specialist. AFter all, she is being more helpful than your specialist was at this point.

I have an amazing 3 yo daughter. When pregnant with her I had to have chemotherapy treatment which pretty much ruined my fertility. My cancer is gone at this point and we would really like to have another baby. Basically I have premature ovarian failure and my doctors say my only option would be donor eggs or having a miracle conception. At this point I'm going for the miracle ;) I'm doing acupuncture, herbs, and a clean diet. I had one miracle a few months ago but miscarried. Since then my body hasn't done a thing; I don't usually ovulate on my own.

I understand your frustration. You are not wrong for wanting another baby. There is always some risk to having a child and only you know the ins and outs of your life and what is best for you. Trust me (the young woman with cancer history), I understand weighing the risk!!!

I hope we all find ourselves holding a little baby soon :flower:
 
Laurenelyse,

Sorry AF arrived :hugs: Good luck with your results and pleased you have found another RE, I really wish we had done more in the beginning and looked for help while my age wasn't such a factor. Don't lose hope you have many years left yet!!:thumbup: you all sound amazingly strong with what you have been through in your journey to have children.

I have been to my local GP and he has made me an appointment to have an ultrasound to see if previous fibroids have returned and to check my ovaries and lining, he was a really nice guy and I'm so pleased I went, I explained about seeing the RE and his lack of interest and said that he had prescribed me unmonitored Clomid even though I explained my cycles had changed and I wasn't sure it would be safe to take it or effective for the matter. I really didn't want to waste the medication as you can only have it for so many cycles. He agreed and said about the ultrasound, and if all Ok I will start taking it for my last few cycles...fingers crossed :flower:
 
How many cycles can you use clomid? My ob said there's no limit, which I know is just plain wrong. I went through at least 3 cycles 10 years ago. I don't know if the new RE would even consider it anyway, but I can't seem to find a clear answer anywhere.

Felicity, I'm so glad your gp is being helpful. I hope clomid is the miracle drug for you like it has been for so many other women. The more I read about age and fertility, the more I'm convinced you're not out until you actually hit menopause. I'm willing to keep trying as long as we can,or until I've made peace with moving on.

Sara, what herbs are you taking? I'm taking DIM, inositol, EPO, Vit d3(my levels are low), b6 for my wacky luteal phase, and magnesium. I've heard a lot about coq10 lately, so I'm considering that as well. I'm going back to acupuncture in the next couple of weeks. I use softcups, too.

It really is a wonder anyone stays sane on this journey.
 
I take a prenatal and vit D regularly. All my herbs come from my acupuncturist. I started on right side replenishing tea pills and now she has me on fertility ones. The pills are a blend of a bunch of different herbs. I've tried soft cups. I like them actually but I know the sperm are not our issue.
 
Laurenelyse, Thank you I hope so too.

I was told no more than 6 cycles due to the chance of cysts, whether that is due to my age he didn't say :wacko:

I've just started taking extra vitamins, Vit c, Zinc and cq10 thought at this stage it really can't hurt!! lol
I'm cycle day 18 today not sure when I o'ed, usually positive OPK day 13/14 but didn't use them this month and noticed ewcm day 10/11?? strange. Did some tests today and have devolped line eye as usual...I really must stop early testing I'm an addict :blush:
 
I wonder if that matters more for me, since I already have a gazillion cysts from my PCOS. Hmm. I never test. Seeing a BFN hits me harder than AF, and my lp is usually only 12 days, 13 if I'm really lucky. I'm waiting for that magical number 15 so I can actually use one of the hundreds of hpt's I have stashed away, lol.

I'm not sure if hubby's sperm is an issue, but he'll be having an sa as soon as I drag him there. I would hope it hasn't tanked since we had our last one, but I guess you never know. I'm willing to consider anything at this point.

Felicity- good luck with your testing. I really hope you get your BFP this month!
 
I wonder if that matters more for me, since I already have a gazillion cysts from my PCOS. Hmm. I never test. Seeing a BFN hits me harder than AF, and my lp is usually only 12 days, 13 if I'm really lucky. I'm waiting for that magical number 15 so I can actually use one of the hundreds of hpt's I have stashed away, lol.

I'm not sure if hubby's sperm is an issue, but he'll be having an sa as soon as I drag him there. I would hope it hasn't tanked since we had our last one, but I guess you never know. I'm willing to consider anything at this point.

Felicity- good luck with your testing. I really hope you get your BFP this month!

Ha ha your a very patient woman, I would have no chance waiting till then to test..I usually start about 6DPO :blush: I suppose the only good thing is I am so used to seeing BFN'S I don't expect to see anything else and If I do It's usually an evap:wacko:
My LP has varied a lot during the last few years anywhere between 11/14 I suppose its all down to age.
 

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