Molar and Partial Molar Pregnancy Support Group

[Lottelotte]

Oh i almost forgot Mrs wag great news on the normal levels - thats fabulous news!

X x

 

[Lottelotte]

And because my brain seems to be on another planet.....

Jacky b where abouts are you based, are you in the uk? I hope your appt this week goes well. Xx

 

[B&LsMom]

Sorry about being mia. I have been feeling pretty rubbish the last few days. I am so fed up with this, i just wish is was over. I just feel like was losing my baby not enough, and i have to continue to suffer even now, almost six months on. I am going to cx on friday, which i am dreading.

Tina, sorry about your bfn. Lifes a b***h. Hopefully next month you'll catch the egg. When is your af due?

Laura sorry your feeling crappy. Its natural to think about the what ifs. I was talking to linda from cx and she said you need to stop doing it and just take each day as it comes. Its not easy and i really feel for you and am sending your way.

Xx

I expect AF on the 24th or 25th--FF predicts the 27th---darn long cycles!!

 

[jacky b]

Big hugs Mummy2Corban. My thoughts are with you. I have to stop myself thinking how many weeks I would be right now. I have a really good friend who is due at the same time I was. Makes its hard to catch up with her without being reminded how big I would be getting. I just have to keep thinking it just wasn't my time yet.

My fingers are crossed for next month Blakesmom.

Lottelotte, I'm based in Australia, in the country so very limited knowledge and expert experience in my area which I am finding hard. I am lucky to have doctors in the family who have helped get me into the best available specialist but its a 5 hours drive. Bonus is I have to at least stay for the weekend so get to do a weekend of shopping in the city. Retail therapy is always helpful to lift the mood.

Hoping tomorrow is a good day, the good ones have got to start out-numbering the bad ones. Wishing everyone a good day xx

 

[dan-o]

Hi ladies Just popping in to show my face Hope everyone is well! xx

 

[dan-o]

Big hugs Mummy2Corban. My thoughts are with you. I have to stop myself thinking how many weeks I would be right now. I have a really good friend who is due at the same time I was. Makes its hard to catch up with her without being reminded how big I would be getting. I just have to keep thinking it just wasn't my time yet.

The same thing happened to me. My sister in law announced her pregnancy to the family the week after I lost my little PMP baby, made it very hard to come to terms with, especially when she came to visit 9 months gone while I was having chemo. I felt like I was never going to have a baby I do occasionally feel sad when I see her little girl, it reminds me that we should have one the same age.

The oddest thing was the same thing happened again 2 years later, but this time I didnt lose the baby and we both gave birth within a couple of weeks of one another! Guess it was meant to be

Sadly we don't really get on that well now though, as my grief drove a bit of a wedge between us xx

 

[B&LsMom]

AF is here--its officially been OVER 5 months since my PMP so when I call next Wednesday for my lab results I plan to ask what the protocol will be when I do get a BFP.

 

[Lottelotte]

Tina that sounds like a great plan. I am going back to cx tomorrow and plan to ask similar questions. I think throughout all of this you have to stay looking to the future otherwise you just spiral into depression. Hope this month is your lucky month

Hey dan-o nice to meet you. I love the pictures of your baby, how old is he now?

Jacky wow in australia. I'm glad you have found a good dr even if it is a long way. In england there are two places i think, charing cross (cx) and sheffield. I go to cx which is about 2 and a half hrs from me. When are you seeing them?

Mummy2corban i hope you are doing ok. My thoughts are with you


Afm, i'm off to the hospital tomorrow to see my consultant. I'll get the results of my mri, and i also want to discuss trying again. We shall see what he says!

Take care everyone
Love lotte x

 

[Mummy2Corban]

Lotte - Ill be thinking of you tomorrow! I have my fingers crossed your mri results are all good. When we spoke about ttc at my appointment i was just honest and said we are thinking about trying again at 6 months and not waiting a year....they were so lovely about it all they never made me feel horrible! Im so glad i asked. They also said any question i can email, call or even visit! Let us know how it all goes hunny xxx

Tina - Rubbish AF showed her face! Charring cross said i need to call them as soon as i know im preggo otherwise they will wonder my levels have gone up! Then i guess i book with my doctor then midwife?!? Cannot wait until you tell us all of your BFP!!!!

Jackie - Days do get better and you dont get upset every 5 minutes! I used to cry at seeing a pregnant woman/ newborn but now its only on occasion. My friend said to me yesterday you didnt really have a due date cause you never had a baby just nasty old cells....Im used to comments like that but from her it kinda hurt! How are you anyway??

Dano - hey, hope your doing ok!

My levels are still normal ladies and im nearly at my 3 month after chemo mark....which is good as im most likely to relapse in the 1st 3 months! What have you all got planned for the weekend?

xxxxx

 

[B&LsMom]

Tina that sounds like a great plan. I am going back to cx tomorrow and plan to ask similar questions. I think throughout all of this you have to stay looking to the future otherwise you just spiral into depression. Hope this month is your lucky month

Hey dan-o nice to meet you. I love the pictures of your baby, how old is he now?

Jacky wow in australia. I'm glad you have found a good dr even if it is a long way. In england there are two places i think, charing cross (cx) and sheffield. I go to cx which is about 2 and a half hrs from me. When are you seeing them?

Mummy2corban i hope you are doing ok. My thoughts are with you


Afm, i'm off to the hospital tomorrow to see my consultant. I'll get the results of my mri, and i also want to discuss trying again. We shall see what he says!

Take care everyone
Love lotte x

I have definitely had to just focus on looking forward and realize that having a sad/bad attitude isn't going to change things that aren't in my control so just have to accept and keeping moving forward. Some days its harder than others Let us know how it goes tomorrow--I hope they have boring results to share and tell you to start making babies!!

Laura--I'm so sorry that your friend said that to you you did have a due date and should have had a baby here now, that is so unfair. No big weekend plans here--playdate with Blakes friend tomorrow and sis in law is in town now so will probably do something with her over the weekend. Any big plans for you--still working on your house??

 

[Mummy2Corban]

we are going on a playdate today, tomorrow we are looking at a wedding venue and having dinner with our friends grandparents then Sunday chill. We Will be starting the dining room and kitchen next probably in a few weeks. Thank you i think i should have been pregnant so it is upsetting. I agree you need to stay positive (even though Im a bit wobbly about next week) it Will happen when it happens. Just keep the image of your rainbow in your mind it helps so much! Xxx

 

[Mummy2Corban]

goodluck for today lotte xx

 

[tung]

Hi ladies! Sorry I haven't been on in a few weeks! how is everybody?

A lady I work with just announced that she was pregnant. She's only 3 weeks along... I wanted to tell her that she really shouldnt say anything yet... But I guess when you're pregnant with your first it's exciting... and she couldn't help but tell us.

I'm kind of jealous... =(

The doctor says that I need 4 more normal monthly's before I can try again. That would make it June... do you think if we started trying in April or May, it would make a difference? =S My husband and I really want to try again... and we feel emotionally ready....

Anyone here try earlier then their doctor's recommended time? Though.. my doctor did say that since I got my d&c done in October, and the levels have been normal since December, that he would be very surprised if the molar came back at this point...

I hate being jealous of other women... but i can't help it!! =( I feel horrible because I should be happy for her...

 

[ladykara]

Hey guys, my name is Kara and I was told last week I had a partial molar pregnancy, got told the day we were going to start trying again for a baby..I am gutted, don't know how I'll get through the next 6 months.. Seems like forever !!


. My kit arrived yesterday and just wondering is it as simple as getting doctor to take blood sample and I send it off with urine sample ?

 

[Lottelotte]

Hey everyone,

So i am now home from my appt at cx. Overall it went very well. As i may have mentioned back in october i had an mri which i was told was clear in fact they said it was a text book perfect. So i pretty much assumed that my mri last week would also be clear. Well today i found out that the mri back in oct had not been clear and there were some cells in the uterus they could see. The good news is that these cells have pretty much all gone now and also almost six months on i finally have an answer as to why my hcg is elevated. Prof Seckl thinks this is placenta accreta where the placenta is too firmly embedded in the wall of the uterus. He thinks its highly unlkley to be something sinister which is good. We also talked about trying again. He advised me to wait till hcg is normal and then wait for two clear monthly samples. I said i wanted to try again now and he said that it was totally my decision and he supported that. They would have liked me to go back for another consultation in three months, but i asked if this was essential and they said no, so we agreed that provided the hcg continues to fall i would not need to go back to cx. I am happy about this, although scared that my hcg will plateau ago and then i will have to go back. But i'm looking to the future and seeing what happens. I have my next blood test on sunday so we wil see waht that brings!

Thanks for all your well wishes guys. They mean so much to me. I don't think i would have got through the last couple months without you all.


This weekend i plan to rest relax and do not an awful lot. My work is manic at the moment so the weekend is my chance to loll around!

Love Lotte

Xx

 

[B&LsMom]

Hi ladies! Sorry I haven't been on in a few weeks! how is everybody?

A lady I work with just announced that she was pregnant. She's only 3 weeks along... I wanted to tell her that she really shouldnt say anything yet... But I guess when you're pregnant with your first it's exciting... and she couldn't help but tell us.

I'm kind of jealous... =(

The doctor says that I need 4 more normal monthly's before I can try again. That would make it June... do you think if we started trying in April or May, it would make a difference? =S My husband and I really want to try again... and we feel emotionally ready....

Anyone here try earlier then their doctor's recommended time? Though.. my doctor did say that since I got my d&c done in October, and the levels have been normal since December, that he would be very surprised if the molar came back at this point...

I hate being jealous of other women... but i can't help it!! =( I feel horrible because I should be happy for her...

We Took a NTNP approach 2 months ago and then actually tried last month and didn't fall pregnant. I know it historically takes us longer to TTC so I felt comfortable trying before recommended and I know your levels fell faster than mine--but I'm not a Dr....

 

[Lottelotte]

Welcome Kara. I'm glad you found this group, and am so sorry for what you are going through.

Six months does sound like a long time, and i remeber when i lost my baby they said to wait for two periods (before they knew that my hcg did n't fall).
I thought i can't wait two or three months, but its now been almost six months for me and you find ways to get through it. it is so so hard.

This thread is great because so many women now have their rainbow babies. One of the nurses from charing x (where i am being looked after) said that something lke over 90% of women which have this have a successful preganncy.

I take my box to my local hospital with a urine sample. They take blood and then send it to biochemistry to spin it before they send them off. Where abouts a you based? Whic hospital have you been referred to?

If you ever need anything, please just ask. We will all do our best to help.

Lots of love Lotte x

 

[Lottelotte]

Tung i feel exactly the same as you re pregnant women. There is a women who is due in june and i don't even want to look at her. That sounds so horrible but it just reminds me of my baby that i couldn't have.

Its so hard to be happy for them when your torn apart emotionally.

Xx

 

[B&LsMom]

Hey guys, my name is Kara and I was told last week I had a partial molar pregnancy, got told the day we were going to start trying again for a baby..I am gutted, don't know how I'll get through the next 6 months.. Seems like forever !!


. My kit arrived yesterday and just wondering is it as simple as getting doctor to take blood sample and I send it off with urine sample ?

I'm so sorry that you got news of a partial molar. That is what I also had I had been told on a Friday to wait 3 months to try again because I had a MMC and was mad about that and then was called on the following Monday to be told my pathology results showed partial molar and to wait 1 year-----I guess that's what I get for being mad about 3 months

I convinced my Dr. to be OK with 6 months wait as my levels fell on their own (didn't see a "negative" blood results until 14 weeks after my d&c, but I was on monthly draws so in my opinion I could have been "negative" anywhere between 10weeks and 14 weeks).

I'm in the states and my molar follow up protocols have been very different than a lot of the ladies on here, but several of the ladies on here have been doing follow up care with CX or Sheffield and can probably better answer questions about the protocol.

 

[Lottelotte]

Mummy2corban we will get through this. I started crying today thinking about my due date. We will get pregnant soon, and it will be all the sweeter for having gone through all of this.

Sounds like you have a nice weekend planned. Its so exciting thinking about getting married!

If you need us we will always be here for you

Xx