PAL after Recurrent Losses - come join us!

[Hope39]

Kat I'm very sorry. Don't be fobbed off with NHS only do clotting disorders. There's a lot that can be tested for on the NHS which then will leave money for should you not get answers and want further furthering testing.

Congrats Madrid! Delighted for you. 4kg is an amazing weight xx

Thank you for your reply. I have spoken to the hospital where I had my DD and where I am having surgery tomorrow and they said no testing of the father unless it's assisted conception and we aren't entitled cos we have a child together.

Thing is, unless it's sth glaringly wrong with me (which there could be) I think it's his sperm that's causing this but every time I ask anyone (sonographers, consultants they just fob me off and say it's not a known reason for MC). But I read that 30-40% of miscarriages are caused by the man.

And aside from blood clotting and a scan of the uterus, how do I get them to test me for other things? Dr Shehata privately has a list of hormones, autoimmune issues, killer cells etc (like 10 things) and the NHS does one a and no testing of the man? And no karyotype testing

Sweetcat - I seen mr Shehata on the NHS , my GP referred me

Appointments come through very quickly too

Xx

 

[Sweetkat]

Kat I'm very sorry. Don't be fobbed off with NHS only do clotting disorders. There's a lot that can be tested for on the NHS which then will leave money for should you not get answers and want further furthering testing.

Congrats Madrid! Delighted for you. 4kg is an amazing weight xx

Thank you for your reply. I have spoken to the hospital where I had my DD and where I am having surgery tomorrow and they said no testing of the father unless it's assisted conception and we aren't entitled cos we have a child together.

Thing is, unless it's sth glaringly wrong with me (which there could be) I think it's his sperm that's causing this but every time I ask anyone (sonographers, consultants they just fob me off and say it's not a known reason for MC). But I read that 30-40% of miscarriages are caused by the man.

And aside from blood clotting and a scan of the uterus, how do I get them to test me for other things? Dr Shehata privately has a list of hormones, autoimmune issues, killer cells etc (like 10 things) and the NHS does one a and no testing of the man? And no karyotype testing

Sweetcat - I seen mr Shehata on the NHS , my GP referred me

Appointments come through very quickly too

Xx

Thank you for letting me know.

I am in London, will my GP still refer me? Was he good? Did you do the whole panel of testing? Did you get any answers?

I get an automatic referral to recurrent MC clinic at local hospital. Will they still refer me to Dr Shehata? Really hope so.

 

[floridamomma]

So I made it to 8 weeks today and I've had no scans or betas. Sometimes I'm sitting here thinking who am I and what have I done with my worrying self? Lol. I still get nervous some days and my faith gets shaky but I'm doing ok. Waiting 7 or more weeks to get my first scan. I'm skipping the 12 week. I may get the 20. I'm just coasting for now.

 

[newlywedtzh]

Wow Florida. Kudos to you. But keep the calm and relaxing vibes flowing!

 

[Tasha]

Kat I'm very sorry. Don't be fobbed off with NHS only do clotting disorders. There's a lot that can be tested for on the NHS which then will leave money for should you not get answers and want further furthering testing.

Congrats Madrid! Delighted for you. 4kg is an amazing weight xx

Thank you for your reply. I have spoken to the hospital where I had my DD and where I am having surgery tomorrow and they said no testing of the father unless it's assisted conception and we aren't entitled cos we have a child together.

Thing is, unless it's sth glaringly wrong with me (which there could be) I think it's his sperm that's causing this but every time I ask anyone (sonographers, consultants they just fob me off and say it's not a known reason for MC). But I read that 30-40% of miscarriages are caused by the man.

And aside from blood clotting and a scan of the uterus, how do I get them to test me for other things? Dr Shehata privately has a list of hormones, autoimmune issues, killer cells etc (like 10 things) and the NHS does one a and no testing of the man? And no karyotype testing

Sweetcat - I seen mr Shehata on the NHS , my GP referred me

Appointments come through very quickly too

Xx

Thank you for letting me know.

I am in London, will my GP still refer me? Was he good? Did you do the whole panel of testing? Did you get any answers?

I get an automatic referral to recurrent MC clinic at local hospital. Will they still refer me to Dr Shehata? Really hope so.

I'm in London too, not far from Heathrow. I got a referral to him so it's no problem. People as far away as Scotland got one.

It's actually your GP choosing to automatically send you there but ultimately it is your choice. Just tell them you require a referral to dr shehata at epsom

 

[Squig34]

Congratulations Madrid! Glad all was well with his legs what have you called him? & was a sturdy boy at 4kg!

Sweetkat, I got karyotyping on the NHS after 3 losses, but I'm in NI. I think it's worth asking about your pattern of loss & getting blood thinners, even if your tests come back clear for blood clotting (as in my case). Getting tested for NK cells by Dr She hats could help too altho I went to Prof Quenby's in Coventry to get tested. My levels weren't elevated but I feel that simply getting the biopsy done was helpful, as my next pregnancy went to 21 weeks (i'd never got past 8 before). However the blood clotting problem was untreated so the biopsy on its own wasn't enough. Incidentally I was treated in my 5th pregnancy for a blood clotting disorder, but I still miscarried & I think it's because I also had a hostile womb environment for implantation, which the NK cells biopsy corrected. RMC is so complex! Good luck.

 

[Sweetkat]

Kat I'm very sorry. Don't be fobbed off with NHS only do clotting disorders. There's a lot that can be tested for on the NHS which then will leave money for should you not get answers and want further furthering testing.

Congrats Madrid! Delighted for you. 4kg is an amazing weight xx

Thank you for your reply. I have spoken to the hospital where I had my DD and where I am having surgery tomorrow and they said no testing of the father unless it's assisted conception and we aren't entitled cos we have a child together.

Thing is, unless it's sth glaringly wrong with me (which there could be) I think it's his sperm that's causing this but every time I ask anyone (sonographers, consultants they just fob me off and say it's not a known reason for MC). But I read that 30-40% of miscarriages are caused by the man.

And aside from blood clotting and a scan of the uterus, how do I get them to test me for other things? Dr Shehata privately has a list of hormones, autoimmune issues, killer cells etc (like 10 things) and the NHS does one a and no testing of the man? And no karyotype testing

Sweetcat - I seen mr Shehata on the NHS , my GP referred me

Appointments come through very quickly too

Xx

Can I just ask roughly how long it took to get referred and how long all the testing took? I am not even sure when they can test me - I had the D&C yesterday so will still have pregnancy hormones in my body. Wonder if that means I have to wait for a while?

Did you get any answers from him?! Just seems so many losses are unexplained. I suspect my OH's sperm is the reason - but I want to have testing done for me too as have had 3 losses now

 

[Sweetkat]

Congratulations Madrid! Glad all was well with his legs what have you called him? & was a sturdy boy at 4kg!

Sweetkat, I got karyotyping on the NHS after 3 losses, but I'm in NI. I think it's worth asking about your pattern of loss & getting blood thinners, even if your tests come back clear for blood clotting (as in my case). Getting tested for NK cells by Dr She hats could help too altho I went to Prof Quenby's in Coventry to get tested. My levels weren't elevated but I feel that simply getting the biopsy done was helpful, as my next pregnancy went to 21 weeks (i'd never got past 8 before). However the blood clotting problem was untreated so the biopsy on its own wasn't enough. Incidentally I was treated in my 5th pregnancy for a blood clotting disorder, but I still miscarried & I think it's because I also had a hostile womb environment for implantation, which the NK cells biopsy corrected. RMC is so complex! Good luck.

They are sending the baby off for karyotyping, but I don't know if that's the same as having mine and OH's karyotyping done. Aside from that NHS is doing blood clotting and that's it.

I think ours is male factor, but could be wrong.

Congrats on your rainbow

 

[Squig34]

Florida I meant to say I'm glad things are going well for you! I don't know how you're managing without scans good for you keeping your anxiety under control & good luck!

 

[Tasha]

It's not the same Kat because you can have baby who is chromosomally fine and you guys not be or vice versa.

It doesn't take long for Dr Shehata. Think it was about six weeks at most for me. NHS does clotting, thyroid, liver and a few other things.

 

[Tasha]

You'll need six weeks after the pregnancy any way for pregnancy hormones to go, so by the time you get there then you'll have that. Then it'll be another four to six weeks for the next appointment for the results.

Shehata also tests for low things like vitamin d.

The cause of my sixteen miscarriages and two stillbirths was very sticky blood due to clotting disorders (standard amounts of blood thinners wasn't enough) and elevated natural killer cells.

 

[Sweetkat]

It's not the same Kat because you can have baby who is chromosomally fine and you guys not be or vice versa.

It doesn't take long for Dr Shehata. Think it was about six weeks at most for me. NHS does clotting, thyroid, liver and a few other things.

Thank you so much. I have been pregnant non stop since September and no baby . I am desperate to try again as soon as I get my period but u am also scared will have a loss number 4

It's amazing that they found the reason for your losses and that you got your rainbows. You are one amazingly strong lady!!

Guess 12 weeks it is for any answers

 

[blueblue]

SweetKat

Florida, congratulations on 8 weeks x

 

[floridamomma]

Sweetkat- would you mind waiting a few weeks as to get answers and then try? I know it's not easy but it may help yo have a plan in place.

Thanks everyone. I had a proper wobble today and broke down. After talking to dh in feeling better and still holding off.

 

[Sweetkat]

Sweetkat- would you mind waiting a few weeks as to get answers and then try? I know it's not easy but it may help yo have a plan in place.

Thanks everyone. I had a proper wobble today and broke down. After talking to dh in feeling better and still holding off.

I admire all you ladies for keeping going and being so brave.

I guess I have no choice but to wait. I always fall pregnant straight away, so in theory could be pregnant in a month (if AF comes back) but the last pregnancy was awful - so much stress.

Florida - well done for not having scans. They only give you reassurance for that day. I have 4 good scans and then ended up having an MMC. Strong hb over 170, measured a bit behind but caught up by 8&5, cervix closed, no bleeding and then told no hb

 

[Hope39]

Kat I'm very sorry. Don't be fobbed off with NHS only do clotting disorders. There's a lot that can be tested for on the NHS which then will leave money for should you not get answers and want further furthering testing.

Congrats Madrid! Delighted for you. 4kg is an amazing weight xx

Thank you for your reply. I have spoken to the hospital where I had my DD and where I am having surgery tomorrow and they said no testing of the father unless it's assisted conception and we aren't entitled cos we have a child together.

Thing is, unless it's sth glaringly wrong with me (which there could be) I think it's his sperm that's causing this but every time I ask anyone (sonographers, consultants they just fob me off and say it's not a known reason for MC). But I read that 30-40% of miscarriages are caused by the man.

And aside from blood clotting and a scan of the uterus, how do I get them to test me for other things? Dr Shehata privately has a list of hormones, autoimmune issues, killer cells etc (like 10 things) and the NHS does one a and no testing of the man? And no karyotype testing

Sweetcat - I seen mr Shehata on the NHS , my GP referred me

Appointments come through very quickly too

Xx

Thank you for letting me know.

I am in London, will my GP still refer me? Was he good? Did you do the whole panel of testing? Did you get any answers?

I get an automatic referral to recurrent MC clinic at local hospital. Will they still refer me to Dr Shehata? Really hope so.

Sweetkat - i am based in the East Midlands so no where near Mr Shehata

I was under my local hospital initially and they carried out thyroid and blood clotting tests. After my 6th loss i asked to get refered to Mr Shehata, i think my appointment came through within a couple of weeks and i had to wait 4 weeks to see him and then it was 4 weeks for the test results.

My first pregnancy under Shehata (7th pregnancy overall) i took the steroids for nk cells but sadly he arrived at 27w because i had a placental abruption, we had 3 precious days with him before withdrawing his life support . It would have been his 2nd birthday tomorrow

My next pregnancy (No8) under Shehata i carried full term well 36+4) and he is nearly 10 months old. He prescribed me an anti malaria drug on top of all the other drugs i had been prescribed

I was diagnosed with high nk cells, thyoid antibodies, hypothyroidism and septate uterus.

Mr Shehata is very matter of fact and straight to the point, he had me in tears after i lost isaac! But i wouldn't have Oscar if it wasnt for him. He will not be too impressed if you get a referal to him and are then pregnant. Someone i know did this and he wasnt impressed at all! You must really try not to get pregnant whilst waiting to see him

Best of luck xx

 

[Hope39]

I forgot to add that waiting times for new referals i slightly longer now because he has a lot more patients. I have had another referal to him and they received it at the end of April, i must have spoke to his secretary every week from the end of may chasing my appointment and it came through for 1st july.

xx

 

[Squig34]

2 years Hope - hugs

 

[Sweetkat]

I forgot to add that waiting times for new referals i slightly longer now because he has a lot more patients. I have had another referal to him and they received it at the end of April, i must have spoke to his secretary every week from the end of may chasing my appointment and it came through for 1st july.

xx

I am even considering going privately, although I am guessing it won't speed things up that much, as I have to wait for my period to come back anyway.

With my second loss, they said the yolk sack was enlarged (and the baby never developed post 4-5 weeks) and with this one the consultant said the nuchal fold may be enlarged. I wonder whether that would point to th fact that there is some egg/ sperm issue rather than an immune issue??

I am off to my GP to get a referral to Dr Shehata tomorrow and will send my OH for sperm fragmentation test this week (even for that takes 4 weeks to get the results).

And in the meantime I will sit here and drive myself absolutely crazy and Google non stop

 

[Sweetkat]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers