PAL after Recurrent Losses - come join us!

[Hope39]

Had a call from my GP today. They will refer me to St Mary's (but I think it takes about a year) and as for Dr Shehata, he isn't listed as a consultant to whom referrals can be made on the NHS - so basically he is only taking private referrals. But even for privates, I can't even get through to his line

So basically, chances of getting any answers on the NHS are close to zero.

That's nonsense hun, your gp would have gone on to the choose and book service and St Mary's would have shown up but epsom didn't

I can guarantee Mr Shehata is taking referrals, he just took me on again, all my gp did was write a letter to them.

Ring his secretary chrish wood at Epsom hospital and she will confirm .

Xx

 

[Hope39]

God his waiting times have got loads longer, when I first seen him in 2013 I only had to wait 4 weeks

I've not heard of dr Yau Thum before, does he have a good rep?

Xx

I don't know whether it would actually take 18 weeks (or longer) but that was the aim according to the GP. I haven't tried his secretary at Epsom. Tried to call his private practice and both phones say they are upgrading IT systems and all staff are in training. Very weird in itself.

Dr Yau also does immunological issues/ NK killer cells and also they do IVF and have andrology specialists. I could be totally wrong but think that once DNA fragmentation results come back they will show that is at least part of the problem. OH going for test today and then 2-3 weeks for the result to come back.

I am really angry with OH, because he didn't want children with me when he wasn't taking the methotrexate. And that is a known cause of DNA fragmentation/ poor morphology. So he was basically happy with the two children he had and wasted 4 years of my life on not being sure and now I am paying for it. Maybe I could have some random bf and get pregnant by him

I think most private clinics do immune stuff,must very expensive when the NHS does some of the same tests. Mr Shehata does the Nk cell test on the nhs which no one else does on the NHS plus a full thrombophilia screen and thyroid.

You seen quite convinced it's your other half spermies. What makes you think that , just the methotrexate? What was he taking it for?

Xx

 

[Mitchi]

congratulations ginny! Sorry to hear it was traumatic for you though. Thankfully you are both well.

Florida- as methotrexate depletes your folic acid stores severely its advised in the uk to have 2 complete cycles off ttc and to take high foes folic acid once the ectopic completely gone to replenish folic acid stores, which are important for dna replication and therefore baby development. Just be careful hun! Wishing you all the best with this pregnancy-keep us update.

Xx

 

[floridamomma]

Thanks mitchi. I haven't taken any in over 1 1/2 years but I just don't recall being told to hold off. Though there are a lot of things that are acceptable in the us that's illegal in other countries

 

[Squig34]

Congratulations Ginny! Sorry to hear the birth was such a traumatic experience for you though. Good news that your little boy has done well & out of hospital now. Good luck to you all!

 

[Sweetkat]

Had a call from my GP today. They will refer me to St Mary's (but I think it takes about a year) and as for Dr Shehata, he isn't listed as a consultant to whom referrals can be made on the NHS - so basically he is only taking private referrals. But even for privates, I can't even get through to his line

So basically, chances of getting any answers on the NHS are close to zero.

That's nonsense hun, your gp would have gone on to the choose and book service and St Mary's would have shown up but epsom didn't

I can guarantee Mr Shehata is taking referrals, he just took me on again, all my gp did was write a letter to them.

Ring his secretary chrish wood at Epsom hospital and she will confirm .

Xx

I have got the e-referral letter. Epsom is showing up but my GP added a note to say Dr shehata isn't listed as a consultant.

I actually called his private practice and his PA there said he does still do certain days for the NHS but very few, so it's his team that does the appointments. I am not holding out hope for ever seeing him on the NHS because even in his private practice the first available appointment is mid August!!

I will try though. And having looked at the referral St Mary's isn't listed - have St George's in Tooting and some other random hospitals

Maybe if you have seen him previously it is much easier to get a new appointment?

 

[Sweetkat]

God his waiting times have got loads longer, when I first seen him in 2013 I only had to wait 4 weeks

I've not heard of dr Yau Thum before, does he have a good rep?

Xx

I don't know whether it would actually take 18 weeks (or longer) but that was the aim according to the GP. I haven't tried his secretary at Epsom. Tried to call his private practice and both phones say they are upgrading IT systems and all staff are in training. Very weird in itself.

Dr Yau also does immunological issues/ NK killer cells and also they do IVF and have andrology specialists. I could be totally wrong but think that once DNA fragmentation results come back they will show that is at least part of the problem. OH going for test today and then 2-3 weeks for the result to come back.

I am really angry with OH, because he didn't want children with me when he wasn't taking the methotrexate. And that is a known cause of DNA fragmentation/ poor morphology. So he was basically happy with the two children he had and wasted 4 years of my life on not being sure and now I am paying for it. Maybe I could have some random bf and get pregnant by him

I think most private clinics do immune stuff,must very expensive when the NHS does some of the same tests. Mr Shehata does the Nk cell test on the nhs which no one else does on the NHS plus a full thrombophilia screen and thyroid.

You seen quite convinced it's your other half spermies. What makes you think that , just the methotrexate? What was he taking it for?

Xx

I know the main thing is to have patience, but me, I would rather pay a fortune and know than have to wait up to a year.

He has rheumathoid arthritis, for which methotrexate is the most common medicine. The reason am convinced it's the medication is that it says in the leaflet man has to be off it for at least 3 months before conceiving (used to be 6). His consultant though said no evidence it causes any issues and go ahead.

He was off it for a year and DD was born no problems. Now he is on it have had 3 MMCs in a row . Could be a coincidence. With first MMC he gave it up and then started taking it again so looks like it didn't help.

I have also read research papers that say it causes DNA fragmentation in the sperm and as is his morphology is 6% (low morphology can indicate fragmentation).

The sperm stuff could be a red herring and there could be an unrelated issue with me.

Just wanted to say a big thank you for everyone on this thread for listening and replying. Been a really tough time, especially with the third MMC, as having seen the hb 4 times and after being told all looked perfect, I started to hope it would be ok

Can't talk to anyone in RL either. Seems a bit too much to discuss OH's health and my MMCs. My parents don't understand why I am baby obsessed and can't be happy with one. They actually suggested I see a psychiatrist. They only have me so they don't understand the desire to have 3 (that's me).

As for OH, I can't talk to him without blaming him for taking his medication (he was off it for 3 years when we met and didn't want more children).

So basically am stuck with my own thoughts and endless questions.

Thank you again.

 

[Hope39]

Had a call from my GP today. They will refer me to St Mary's (but I think it takes about a year) and as for Dr Shehata, he isn't listed as a consultant to whom referrals can be made on the NHS - so basically he is only taking private referrals. But even for privates, I can't even get through to his line

So basically, chances of getting any answers on the NHS are close to zero.

That's nonsense hun, your gp would have gone on to the choose and book service and St Mary's would have shown up but epsom didn't

I can guarantee Mr Shehata is taking referrals, he just took me on again, all my gp did was write a letter to them.

Ring his secretary chrish wood at Epsom hospital and she will confirm .

Xx

I have got the e-referral letter. Epsom is showing up but my GP added a note to say Dr shehata isn't listed as a consultant.

I actually called his private practice and his PA there said he does still do certain days for the NHS but very few, so it's his team that does the appointments. I am not holding out hope for ever seeing him on the NHS because even in his private practice the first available appointment is mid August!!

I will try though. And having looked at the referral St Mary's isn't listed - have St George's in Tooting and some other random hospitals

Maybe if you have seen him previously it is much easier to get a new appointment?

His clinic at Epsom is only on a Friday, I've only met him once and been to clinic 3 times. Seeing someone in his team Is good enough as they still do the same bloods and follow the same protocol.

I don't think it makes to much of a difference having been already , I had to get a new referal from my gp

X

 

[newlywedtzh]

Just checking on everyone! Florida how are you feeling?

Uneventful over here. Having a toddler to chase around leaves little time to worry which is SO nice. Boy do I make a miserable pregnant woman though. My body hates it! But all is well. Busy prepping for a natural home birth by reading a ton and trying to stay active.

 

[floridamomma]

Hi newly. I remember those days. My first 3 before mc started are 9,7,6 so by the time the oldest was barely 3 I had 3!!! It was so bad I didn't even know I was pregnant with the lady one because I constantly got no sleep and barely ate. The good old days lol. 16 weeks!! You're getting there. Are you getting movement?

Afm- I'll be 10 weeks tomorrow and I'm honestly just chugging along. No major symptoms. I still get nausea if I don't eat and my breast are sensitive always(nipples) but just site here and there. My next scan is supposed to be at my initial appt on 7/28 so 3 more weeks. I've never made it this far so ive wanted to be stressed as I've last and only seen bubs 2 weeks ago. I never really am though. The kids are home for the summer so I don't have time as I'm a cook/maid/chauffeur at all times lol. I'm also back in school after 3 weeks off finishing my RN license/AA degree. So definitely keeping busy.

 

[youngmamttc]

Cautiously popping in. Got my BFP today at 8dpo. 4 recurrent losses no rainbow yet, unexplained losses. Hoping this is my time!

 

[Squig34]

Good luck youngmama!

Glad things are going well for you both, newly & Florida

 

[blueblue]

Newly and Florida - glad things are going well! x

Youngmamttc - good luck and welcome, you'll find lots of support here x

 

[wookie130]

Madrid- I'm late to the party, but I see you've had your little man! Congrats! Did I miss what you chose to name him?

Florida- Glad it's all going well.

Ginny- Congrats! I'm sorry everything went haywire during the birth...thank goodness you're all doing fine now.

 

[Razcox]

Hi everyone! Hoping I can join your group as I am due on the 31st of Dec, not been active on here for a while which is a long story!

Anyway I am pregnant following our 3rd and last round of ICSI with PDG, my EED is based on the date of ET even though at my dating scan it put me as the 28th Dec. So we will see what happens

We have suffered 4 losses in the past but now I am in the 2nd trimester and can here Noodle I am feeling much more confident and happy to join a group if you will have me.

 

[floridamomma]

Welcome razcox!!! Glad you've made it so far in your pregnancy. You are definitely welcome anytime.

Thanks everyone. I'm 10 + 3 today and this lo has been kicking my butt. I'm more tired than I was initially. It's worse now because my bloat belly is gone do now I just seen cranky and crazy for no reason lol. I'm starting to have morning sickness more often which I thought should be slowing down but what do I know? It's still weird feeling all these symptoms without using progesterone. 17 days until my next scan at 12+ 6. We still won't be announcing as we are waiting until our 20 week Eva to tell anyone. It's hard though not having anyone to talk to about it. Not hat I'm nervous but I always seem to have to catch myself when talking. Also two of my friends will be due by the time I announce and I feel like I haven't been the best support to them as its both of their first child but some days I'm just so consumed in my own life I find myself not worrying about them. I do check in at least once every 1-2 weeks, but other than how's it gong I don't know what to say. I am still in very early days myself so it's hard to talk on much to someone about their pregnancy.

 

[Hope39]

Hi everyone! Hoping I can join your group as I am due on the 31st of Dec, not been active on here for a while which is a long story!

Anyway I am pregnant following our 3rd and last round of ICSI with PDG, my EED is based on the date of ET even though at my dating scan it put me as the 28th Dec. So we will see what happens

We have suffered 4 losses in the past but now I am in the 2nd trimester and can here Noodle I am feeling much more confident and happy to join a group if you will have me.

Awe Razcox, I remember you hun, we were on the Rmc thread at the same time many years ago.

So chuffed to see you are expecting,now many weeks are you x

 

[Squig34]

Welcome Razcox & congratulations!

Hope it's nice to see that you've updated your signature now

 

[Razcox]

Hi everyone! Hoping I can join your group as I am due on the 31st of Dec, not been active on here for a while which is a long story!

Anyway I am pregnant following our 3rd and last round of ICSI with PDG, my EED is based on the date of ET even though at my dating scan it put me as the 28th Dec. So we will see what happens

We have suffered 4 losses in the past but now I am in the 2nd trimester and can here Noodle I am feeling much more confident and happy to join a group if you will have me.

Awe Razcox, I remember you hun, we were on the Rmc thread at the same time many years ago.

So chuffed to see you are expecting,now many weeks are you x

I am 15+3 or 15+6 depending on if you go by ET or my dating scan!!

We were indeed on the RM thread, I had to leave as it was getting me down seeing everyone else get pregnant while just got failure after failure. TBH we were beginning to face the idea of not having children when the last round worked

 

[newlywedtzh]

Welcome Razcox and congrats! We are due around the same time! I am Dec. 22!

Florida - I had all those same thoughts in the first tri too. I was miserable! I know everyone always says it but you do start to feel a Lot better (even mentally) in the second tri which I know you will make!