PAL after Recurrent Losses - come join us!

[Hope39]

I forgot to add that waiting times for new referals i slightly longer now because he has a lot more patients. I have had another referal to him and they received it at the end of April, i must have spoke to his secretary every week from the end of may chasing my appointment and it came through for 1st july.

xx

I am even considering going privately, although I am guessing it won't speed things up that much, as I have to wait for my period to come back anyway.

With my second loss, they said the yolk sack was enlarged (and the baby never developed post 4-5 weeks) and with this one the consultant said the nuchal fold may be enlarged. I wonder whether that would point to th fact that there is some egg/ sperm issue rather than an immune issue??

I am off to my GP to get a referral to Dr Shehata tomorrow and will send my OH for sperm fragmentation test this week (even for that takes 4 weeks to get the results).

And in the meantime I will sit here and drive myself absolutely crazy and Google non stop

I would ring shehata secretary at Epsom and ask her how long the waiting times are for new referrals. She told me when I rang to make sure they had received my referral . You could then decide whether to wait or go private. Going private will hit your bank balance hard! You have to wait 6w pat mc anyway

I've done the whole google frantically , I was first pregnant in 2010 and didn't have Oscar till 2015!

 

[Hope39]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

 

[Sweetkat]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

Are you still seeing Dr Shehata now? Yes very worrying re costs of going privately / looks like tests alone are about 2k but then every appointment will be more .

Will try to be patient and wait for my referral .

As it is will have to pay for OH's fragmentation test, as don't think the NHS even does it unless you are having IVF. Well I am not having IVF and not entitled to it either

Sigh sigh sigh.

Will you try for more children now that you have a diagnosis and a rainbow? So scary getting pregnant after MCs and without any knowledge re why

 

[Hope39]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

Are you still seeing Dr Shehata now? Yes very worrying re costs of going privately / looks like tests alone are about 2k but then every appointment will be more .

Will try to be patient and wait for my referral .

As it is will have to pay for OH's fragmentation test, as don't think the NHS even does it unless you are having IVF. Well I am not having IVF and not entitled to it either

Sigh sigh sigh.

Will you try for more children now that you have a diagnosis and a rainbow? So scary getting pregnant after MCs and without any knowledge re why

I'm seeing mr shehata on Friday , he wants to repeat blood tests before we try for baby no2.

I take the medications whilst breastfeeding so I've got to decide when I want to stop but getting tests done ASAP. We will probably try September

Xx

 

[Sweetkat]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

Are you still seeing Dr Shehata now? Yes very worrying re costs of going privately / looks like tests alone are about 2k but then every appointment will be more .

Will try to be patient and wait for my referral .

As it is will have to pay for OH's fragmentation test, as don't think the NHS even does it unless you are having IVF. Well I am not having IVF and not entitled to it either

Sigh sigh sigh.

Will you try for more children now that you have a diagnosis and a rainbow? So scary getting pregnant after MCs and without any knowledge re why

I'm seeing mr shehata on Friday , he wants to repeat blood tests before we try for baby no2.

I take the medications whilst breastfeeding so I've got to decide when I want to stop but getting tests done ASAP. We will probably try September

Xx

That's brilliant news that he wants to retest you and that you are seeing him so soon. I wish I could at least do the tests but looks like I have to wait until I have no pregnancy hormones left in my body.

After my MCs I got period back after 3 weeks, no idea if it will be the same this time. I hate this period of not being able to do anything and not even having testing or anything

I might have to sneak in in your bag and see him on Friday.

 

[floridamomma]

Was having pain today and had to go to ER. I didn't see the baby but they did a scan and bubs was measuring 8+1 (I am 8+2) and hb of 155. We've only ever got this far one other time and I just know I'll be ok. They found a 2cm cyst like thing on my left ovary. So I have to have a follow up scan in 6 weeks. So I'm going to go see my ob in 4 weeks and I'll go from there.

 

[Squig34]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

Took me 5 years to have my rainbow as well; I'm just over 37 & I was 35 when I got pregnant with my son, who was chromosomally normal. You're by no means out of time or hope yet

Florida, great news!

 

[newlywedtzh]

Awesome news Florida!

 

[Sweetkat]

Could my age (35) be the cause? Although would seem odd that all of my eggs (3 pregnancies in a row all first or second cycle trying) would be bad cos of my eggs???

I am worried that I am running out of time and no closer to getting answers

Very unlikely hun, I was 38.5 when I had Oscar x

Took me 5 years to have my rainbow as well; I'm just over 37 & I was 35 when I got pregnant with my son, who was chromosomally normal. You're by no means out of time or hope yet

Florida, great news!

Thanks, am becoming very obsessed re babies and why it's not happening.

OH is going for a sperm fragmentation test tomorrow and we have a private appointment which Dr Yau Thum at Lister next week.

Have also asked for a referral with Dr Shehata on the NHS but apparently it can take 18 weeks to get an appointment. So maybe will see him for a second opinion if no answers and no pregnancy by then.

It's ironic that the day before what would have been my 12 week scan I have an appointment with a recurrent miscarriage specialist

 

[Hope39]

God his waiting times have got loads longer, when I first seen him in 2013 I only had to wait 4 weeks

I've not heard of dr Yau Thum before, does he have a good rep?

Xx

 

[Sweetkat]

God his waiting times have got loads longer, when I first seen him in 2013 I only had to wait 4 weeks

I've not heard of dr Yau Thum before, does he have a good rep?

Xx

I don't know whether it would actually take 18 weeks (or longer) but that was the aim according to the GP. I haven't tried his secretary at Epsom. Tried to call his private practice and both phones say they are upgrading IT systems and all staff are in training. Very weird in itself.

Dr Yau also does immunological issues/ NK killer cells and also they do IVF and have andrology specialists. I could be totally wrong but think that once DNA fragmentation results come back they will show that is at least part of the problem. OH going for test today and then 2-3 weeks for the result to come back.

I am really angry with OH, because he didn't want children with me when he wasn't taking the methotrexate. And that is a known cause of DNA fragmentation/ poor morphology. So he was basically happy with the two children he had and wasted 4 years of my life on not being sure and now I am paying for it. Maybe I could have some random bf and get pregnant by him

 

[Sweetkat]

Had a call from my GP today. They will refer me to St Mary's (but I think it takes about a year) and as for Dr Shehata, he isn't listed as a consultant to whom referrals can be made on the NHS - so basically he is only taking private referrals. But even for privates, I can't even get through to his line

So basically, chances of getting any answers on the NHS are close to zero.

 

[Mitchi]

Hi sweetcat

Sorry to hear of your problems. Have you thought about going to see Prof Quenby in Coventry? She sorted me out! After 3 mc and 1 ectopic, 2 years of trying and then 35 and getting worried I went see her. All my routine investigations for rmc on NHS were normal but had biopsy done by prof Quenby and found to have high NK cells in my uterus (shetata does bloods for this and debated which method is best). She prescribed prednisolone and had my DS successfully after taking them. I am currently 33 weeks with a DD after taking the steroids again. Only successful pregnancies for me have been when I took the drugs. It costs about £300 to have the test done. Hope this helps lovely. Time has not run out for you and lots if us started out where you are but gone on to have successful pregnancies.

xx

 

[Sweetkat]

Hi sweetcat

Sorry to hear of your problems. Have you thought about going to see Prof Quenby in Coventry? She sorted me out! After 3 mc and 1 ectopic, 2 years of trying and then 35 and getting worried I went see her. All my routine investigations for rmc on NHS were normal but had biopsy done by prof Quenby and found to have high NK cells in my uterus (shetata does bloods for this and debated which method is best). She prescribed prednisolone and had my DS successfully after taking them. I am currently 33 weeks with a DD after taking the steroids again. Only successful pregnancies for me have been when I took the drugs. It costs about £300 to have the test done. Hope this helps lovely. Time has not run out for you and lots if us started out where you are but gone on to have successful pregnancies.

xx

Thank you and so glad you have a rainbow and another on the way.

I am going to see Dr Yau Thum at Lister who also does NK and immune issues (next Tues). I suspect I won't be able to have the tests for a while as only had the D&C last Friday.

Hoping to have some answers soon. Literally losing the plot

 

[Mitchi]

I know it's so hard having to wait but it will be worth it I promise. I actually had an enforced wait as had to take methotrexate for my ectopic and you really can't ttc for 3 months after that. the fact you have an appointment next week means the ball is rolling. Just try your best to relax and enjoy the summer months. September will be here before you know it. xx

 

[Sweetkat]

I know it's so hard having to wait but it will be worth it I promise. I actually had an enforced wait as had to take methotrexate for my ectopic and you really can't ttc for 3 months after that. the fact you have an appointment next week means the ball is rolling. Just try your best to relax and enjoy the summer months. September will be here before you know it. xx

The ironic thing is that my OH is on methotrexate for an autoimmune condition which I think is running his sperm. Bad morphology (6%) and having test done for DNA fragmentation today. So even if sth is wrong with me, I think there could be a bigger issue with him.

 

[ginny83]

Sweetkat - so sorry

Madrid - congratulations!

I also welcomed my little one almost 2 weeks ago. Due to the fact he had stopped/slowed growing, my BP was continuing to rise and he had poor cord blood flow he had to be delivered at 35 weeks and weighed 4lb 14oz. He's been spending time in special care nursery learning how to feed properly - but the great news is we're bringing him home tomorrow!

Unfortunately for me, the delivery had to be a csection as he wasn't in the best position to be induced and I had a very severe anaphylactic shock from the IV antibiotics they gave me at the start of the section. I ended up in ICU for 2 days due to needing to be intubated - it was extremely scary for my husband and also for me waking up missing on my baby's first 2 days and also not having any idea what was going on. After the breathing tube was able to come out I recovered quite quickly from that side of things and just have been on the normal csection recovery path now. I think emotionally it's going to probably take a bit longer to get my head around it all. It's been a very long and rocky journey to completing my family but our new little bubba and his older brothers are 100% worth it!

(will be very happy when DH gets the snip though!!)

 

[floridamomma]

Thanks for all the support ladies

Ginny- that is quite the journey you and baby had! So glad you're both ok

 

[blueblue]

SweetKat - I hope you get some answers soon

Hope for you and Isaac

Ginny - congratulations, glad you are both ok, sorry you have had a tough time

 

[floridamomma]

Sweetkat- still thinking of you

Mitchi- I didn't know you had to air after methotrexate! I took that in 1 or 2 mcs because on progesterone it was like my just didn't get that the pregnancy was over. That's scary to think of as I've always falling pregnant quickly after mc.