PAL after Recurrent Losses - come join us!

[ttc126]

Congrats Mitchi ❤️❤️❤️ Enjoy your precious baby!

 

[nessaw]

Ttc126 I am sorry for your loss.x

Mitch congrats.x

Hi to all. We're now starting to think about ttc a sibling for our rainbow but lots of conflicting thoughts. X

 

[Squig34]

Congratulations Mitchi!

Yes of course you're welcome to lurk around ttc

Good luck with making your decision nessaw. We plan to start TTC again for no. 2 next March. After 5+ years of TTC/pregnancy, it's really strange to be in a place where it's not our focus for now!

 

[nessaw]

Squiggle that's where I am. 5 years of timing bing taking various things and always knowing which cd it is. So nice not to think about it. We're thinking of starting around Nov time as if it works will take me through a whole school year. X

 

[floridamomma]

Nessaw after we loss our baby from iui(an uneeded iui) last March we took a break that turned into 14 months of no ttc. I was upset the first month but by month two I was glad as overdone a lot of healing and growing since then. We started trying in May(praying it was God's will) only using an app to figure out my o day, which is crazy in our world but we caught the eggy. And for the lady who never made it past 5-6 weeks except once to 8 in now 14 weeks so sometimes that break helps.

 

[floridamomma]

Well ladies I got my genetic testing back. I was really worried as dh's aperm tested fine 18 months ago and my eggs were never checked. I thought maybe I had damaged eggs or something. Glad to report baby is 100% genetically normal and we are having a beautiful baby girl . I am just in shock to be here. Some of you ladies know my journey so you know the pain my heart has felt. I guess this is lucky #7!

 

[SweetV]

This baby was a surprise and it was very strange to not even know the exact date of my last af. Zero effort and after 5+ years of trying and so many losses it was such a weird feeling of shock.

Good luck on your TTC journeys!

Florida congrats again on the test results and your bundle of pink!!

 

[Squig34]

Great news Florida & congrats on

 

[InVivoVeritas]

Mitchi, huge congratulations on the early and easy arrival! Enjoy all those newborn snuggles.

Florida, so glad that everything is looking so well with your baby girl. Time for you to relax for a little while.

TTC, I'm so sorry to hear about your bad news. Hope the specialist can shed some light for you.

Nessa, thinking about ttc again is exciting and terrifying. Sending good thoughts for a laid back experience this time.

Newly, great to hear that all was well at the anatomy scan. That's always when I start to breathe a little bit easier.

Me, I finished work on Friday and I'm looking forward to a few weeks of putting my feet up. I've had everything thrown at me this pregnancy -- GD, pre-e, cardiac issues (me, not the little ones) and polyhydramnios. I'd really love a week of no stress before these babies threaten to make their arrival.

 

[floridamomma]

Thank you sweetv, squig, and invitro!

Invitro- I hope you get a couple weeks to relax! You've bee through a lot.

 

[Squig34]

IVV will you be taken in to deliver early after all that then?

 

[Smiler75]

So I have stumbled upon this forum nearly 6 and a half years into my recurrent miscarriage hell...how have I missed you??

Hope you don't mind me jumping on board now.

A bit about me...2 healthy pregnancies in 2006 - 7 and 2008 and then 8 consecutive miscarriages
1. Oct 2010 13 weeks - little girl - chromosomally normal

2. July 2011 6 weeks

3. Oct 2011 12 weeks - chromosomally normal - got standard RMC testing, fell through the sysytem on NHS and was forgotten about, had to chase results, very despondent consultant. Decided to see Prof Q myself, travelled over in March 2012, uNK cells were normal, then discovered, after waiting 6 months for results that karotyping had not been done (they 'messed up' and 'put the wrong blood into the wrong tubes'..hhmmmmm...so blood had to be taken again. Got an email 2 weeks later saying karotyping normal. Discovered that cytogenetic testing of my baby had not been done, despite givng consent. Went private to see 'the' RMC consultant in N Ireland...promised me he would "get me a baby" at first consultation. ubby not happy. But he did a hysteroscopy on Aug 2012 and offered me a better treatment plan. I took a whole year off waiting for results and thought this would give me the best chance....

4. Jan 2013- 12 weeks - little girl - chromosomally normal - first pregnancy with a treatment plan clexane, aspirin, high dose folic acid and progesterone. Prof Q advised to add in steriods next time anyway, consultant here agree to do so. Prof Q thought I may be hyperfertile so put on progesterone from OV. Messed cycles up. Took 7 months to conceive. Had DNA sperm fragmentation done...waste of money...but all normal.

5. Nov 2013 - 10 weeks - little boy - suspected structural abnormality but cytogenetics found normal chromosomes - was on clexane, 150mg aspirin, progesterone, high dose folic acid and 20mg prednisolone. Then followed a year of bfn's and a struggle to be referred to fertility with an increasingly unhelpful consultant (who had previously been exactly the opposite) as 2014 (and 2015) progressed.

6.Dec 2014 - 6 weeks - clexane, 150 aspirin, high dose folic acid, progesterone, intralipid infusion...didn't get started on pred in time. By Jan 2015 was being told I had diminished ovarian reserve and function and would find it very difficult to conceive. Consultant's attitude and unwillingness to help me was very distressing. Lots of other stress in my life in spring 2015 as my mother nearly died..very difficult. Consultant seemed to be scrabbling around for reasons to get me stop trying and so suggested I may have adenomyosis and ordered an MRI...basically said I would need a hysterectomy if I had this. I don't!

7. June 2015 - 8 weeks - baby boy - trisomy 10 found in testing - clexane, aspirin 150, high dose folic acid, progesterone, 25mg pred, intralipid infusion. Left through no fault of my own with no consultant care after this loss. had to make arrangements for the pelvic MRI myself direct with radiographers - Womb is absolutely fine.

8. February 2016 - 11 weeks - baby girl - chromosomally normal - clexane, 150 aspirin, crinone progesterone gel, progesterone injections (ouch!), high dose folic acid, 25 prednisolone, 2 intralipid infusions.

I am at a loss. Noone knows what to do with me. Despite 8 consecutive losses I have not been referred to Mr Shehata and St Marys wont see me as I have two children already...but I have lost 8 and I wanted every one of those eight babies!! We do not have any expertise in recurrent miscarriage Northern Ireland - just a few doctors who tack it on to their general gynae clinics and who are clueless when their one treatment plan doesn't work. I have been involved and have lead some work to improve psychological care for women in Northern Ireland who suffer recurrent miscarriage and miscarriage...but we have a long way to go....

...special 'hello' to you Squig34...you probably have a fair idea of what I mean ^^^

 

[Smiler75]

Sorry for typos ^^^...

Should also mention that my mother died at the end of June and nine days later my husband had a stroke so I am fit for the hills now!

I have a new consultant who is lovely but not a RMC doctor..very skilled though, deals with very high risk pregnancies..she is suggesting 'relaxing' for 8 months and only taking metformin and aspirin next time...I am clueless.

I need expert help. If i were in GB I would have had it by now.

i went to a clinic in Dublin in Autumn 2014 and they told me I had high levels of peripheral NK cells migrating to my womb and high levels of B lymphoctes so I need steriods and intralipids in pregnancy...but I did that and it hasn't worked. So my uterine NK cells were normal but my peripheral NK cells were elevated... The clinic also told me I had an elevated ROTEM result and so needed clexane. I think ROTEM is the same as a TEG that St Marys do... Clinic in Dublin are now talking about donor eggs and in the absence of that, DHEA for 4 -5 months, cytokine testing to see if I need humira and neupogen...roads I don't want to go down....heart is broken as I know in my gut that I will never get a rainbow baby.

 

[Squig34]

Sorry to hear of what you've been through Smiler, not only with the miscarriages but the loss of your mother & your husband's ill health.

This thread is for the pregnant after loss ladies, but there is a recurrent miscarriage one:
https://babyandbump.momtastic.com/miscarriage-support/127351-recurrent-miscarriage-thread-2317.html. There's a lady who keeps an eye in there called Tasha who had 16 (I think) losses before getting her rainbow; she was on everything & might be able to give you some advice - if I recall correctly she has MTHFR. My issue didn't turn out to be as complex as yours although I only finally got referred to England after my 6th loss as it was second tri. I do feel that the consultants here were willing to help, but as you say, lack of expertise in the more complicated cases is an issue.

I wonder though if you might be able to get referred to the new Tommy's miscarriage clinic?

 

[Hope39]

So I have stumbled upon this forum nearly 6 and a half years into my recurrent miscarriage hell...how have I missed you??

Hope you don't mind me jumping on board now.

A bit about me...2 healthy pregnancies in 2006 - 7 and 2008 and then 8 consecutive miscarriages
1. Oct 2010 13 weeks - little girl - chromosomally normal

2. July 2011 6 weeks

3. Oct 2011 12 weeks - chromosomally normal - got standard RMC testing, fell through the sysytem on NHS and was forgotten about, had to chase results, very despondent consultant. Decided to see Prof Q myself, travelled over in March 2012, uNK cells were normal, then discovered, after waiting 6 months for results that karotyping had not been done (they 'messed up' and 'put the wrong blood into the wrong tubes'..hhmmmmm...so blood had to be taken again. Got an email 2 weeks later saying karotyping normal. Discovered that cytogenetic testing of my baby had not been done, despite givng consent. Went private to see 'the' RMC consultant in N Ireland...promised me he would "get me a baby" at first consultation. ubby not happy. But he did a hysteroscopy on Aug 2012 and offered me a better treatment plan. I took a whole year off waiting for results and thought this would give me the best chance....

4. Jan 2013- 12 weeks - little girl - chromosomally normal - first pregnancy with a treatment plan clexane, aspirin, high dose folic acid and progesterone. Prof Q advised to add in steriods next time anyway, consultant here agree to do so. Prof Q thought I may be hyperfertile so put on progesterone from OV. Messed cycles up. Took 7 months to conceive. Had DNA sperm fragmentation done...waste of money...but all normal.

5. Nov 2013 - 10 weeks - little boy - suspected structural abnormality but cytogenetics found normal chromosomes - was on clexane, 150mg aspirin, progesterone, high dose folic acid and 20mg prednisolone. Then followed a year of bfn's and a struggle to be referred to fertility with an increasingly unhelpful consultant (who had previously been exactly the opposite) as 2014 (and 2015) progressed.

6.Dec 2014 - 6 weeks - clexane, 150 aspirin, high dose folic acid, progesterone, intralipid infusion...didn't get started on pred in time. By Jan 2015 was being told I had diminished ovarian reserve and function and would find it very difficult to conceive. Consultant's attitude and unwillingness to help me was very distressing. Lots of other stress in my life in spring 2015 as my mother nearly died..very difficult. Consultant seemed to be scrabbling around for reasons to get me stop trying and so suggested I may have adenomyosis and ordered an MRI...basically said I would need a hysterectomy if I had this. I don't!

7. June 2015 - 8 weeks - baby boy - trisomy 10 found in testing - clexane, aspirin 150, high dose folic acid, progesterone, 25mg pred, intralipid infusion. Left through no fault of my own with no consultant care after this loss. had to make arrangements for the pelvic MRI myself direct with radiographers - Womb is absolutely fine.

8. February 2016 - 11 weeks - baby girl - chromosomally normal - clexane, 150 aspirin, crinone progesterone gel, progesterone injections (ouch!), high dose folic acid, 25 prednisolone, 2 intralipid infusions.

I am at a loss. Noone knows what to do with me. Despite 8 consecutive losses I have not been referred to Mr Shehata and St Marys wont see me as I have two children already...but I have lost 8 and I wanted every one of those eight babies!! We do not have any expertise in recurrent miscarriage Northern Ireland - just a few doctors who tack it on to their general gynae clinics and who are clueless when their one treatment plan doesn't work. I have been involved and have lead some work to improve psychological care for women in Northern Ireland who suffer recurrent miscarriage and miscarriage...but we have a long way to go....

...special 'hello' to you Squig34...you probably have a fair idea of what I mean ^^^

Hi smiler

I recognise your story so think we actually know each other from the recurrent miscarriage group Facebook page

You would be better off heading over to the recurrent miscarriage forum Hun x

 

[Hope39]

Sorry to hear of what you've been through Smiler, not only with the miscarriages but the loss of your mother & your husband's ill health.

This thread is for the pregnant after loss ladies, but there is a recurrent miscarriage one:
https://babyandbump.momtastic.com/miscarriage-support/127351-recurrent-miscarriage-thread-2317.html. There's a lady who keeps an eye in there called Tasha who had 16 (I think) losses before getting her rainbow; she was on everything & might be able to give you some advice - if I recall correctly she has MTHFR. My issue didn't turn out to be as complex as yours although I only finally got referred to England after my 6th loss as it was second tri. I do feel that the consultants here were willing to help, but as you say, lack of expertise in the more complicated cases is an issue.

I wonder though if you might be able to get referred to the new Tommy's miscarriage clinic?

I think she knows Tasha from Facebook

Such a small world yet we all stumble across each other xx

 

[Squig34]

Isn't it??

 

[blueblue]

Florida - congratulations on team pink!

IVV - hope you are having a lovely rest and everything is going well for you x

Nessaw - good luck for ttc no.2 x

Smiler - I'm so sorry for your losses, I hope you get some expert help soon x

Mitchi - Congratulations!

 

[floridamomma]

Thank you blue! I'm 17 weeks tomorrow. I think I'm feeling little movements there's this part of me saying nope no way. I had been using my Doppler daily for about 2.5 weeks now I'm doing it every 3-4 days. Really just having a hard time believing this is happening to me without intervention. Still just coasting.

Mini rant:
So I am not able to be seen at a birth center which I really want because of my history of recurrent unexplained miscarriages. And the one palace that will see me doesnt accept my dh's insurance but will accept my secondary if o get rid of my dh's insurance and only use that one. Upset and feel like infertility once again is controlling my life but I may just be stuck with a hospital birth

 

[SweetV]

Insurance sucks! Honestly I've had two hospital births and they weren't all that bad. Goodness 17 weeks already! I bet you are feeling a little movement it will be sure soon enough!

NT scan tomorrow and I received my referral to MFM yesterday. I can't believe how quickly the first trimester seemed to go by. I've also been using my doppler but around once a week which is pretty impressive for me.