PCOS Club!

[yellowyamyam]

I've decided to take Soy-iso for 3rd cycle. I thought I would take them throughout the day because I don't want to overload my system at night with so many types of pills! So I took 2X40mg this morning and URGH I am so regretting it right now! I took them after breakfast ... with EPO too.

Clobo -- I've not seen the FS yet. My appointment is on 02 Aug. I thought I would get Clomid in time with a new cycle because for the last 2 cycles, there were 38-40 days and this cycle, decided to show on CD25!

johnson4 -- My cycles are somewhat regular too (>40days) but I've never had a clear thermal shift and positive OPKs. I know I have mini polycysts in both ovaries ... I don't know why do I still bleed regularly. Low progesterone, I guess.

 

[ann89]

I've decided to take Soy-iso for 3rd cycle. I thought I would take them throughout the day because I don't want to overload my system at night with so many types of pills! So I took 2X40mg this morning and URGH I am so regretting it right now! I took them after breakfast ... with EPO too.

Clobo -- I've not seen the FS yet. My appointment is on 02 Aug. I thought I would get Clomid in time with a new cycle because for the last 2 cycles, there were 38-40 days and this cycle, decided to show on CD25!

johnson4 -- My cycles are somewhat regular too (>40days) but I've never had a clear thermal shift and positive OPKs. I know I have mini polycysts in both ovaries ... I don't know why do I still bleed regularly. Low progesterone, I guess.

I've read your not suppose to take soy with pcos? Or am I wrong? Because I'd like to try soy one time.

 

[ann89]

I was just diagnosed with PCOS last week when my cycles and ovulation completely stopped. Before my daughter my cycles ranged from 26-46 days. And it only took us two months to concieve. Now ttc the next we started in April and we're having to luck since I wan't even getting an af. Went to the dr and she ran some tests to find out I have pcos. I've always been spotting for about 20 days now.. :/

Has anyone else had problems with your cycles completely stopping? And spotting for long period of time?

For years I would have 1 or 2 periods a year, but wasn't diagnosed with PCOS until May 2011(previous tests never showed), I was already 13 weeks pregnant with my 3rd son when I found out with him because I had no clue, I always expected no periods lol. After him I had a 1month depo shot and spotted for a year then went back to irregular periods, even with provera(?) they didn't show up, but metformin seems to be helping now, but still no ovulation (no luck by September will add on Clomid) Best of luck to ya

My Dr. that referred me to the specialist said they would prob. start me on metformin and then maybe try clomid. I might turn down clomid tho because I think I would like to loose some weight first. Since it seems to be what making mine act up. And then maybe after I loose weight I'll try clomid if I can wait that long... But I know it will prob. be better in the end.

 

[jessicalou]

i was told the news i had PCOS when i was 18 which was 4 years ago but i suspect iv had it for longer than that ,, i was constantly at the doctors due to not having a period and because i was young and had a bf they would just make me do a pregnancy test in one year i did over 30 tests , i finally changed doctors and they where really helpful to start with i had the internal examitation which was horrid hurt like hell at the same time i had the scan of my womb i started crying half way through because i was in the same place as other women with bumps and i found it devastating to be told there and then i had this awful thing that id never even heard off , since then iv been on a course of tablets which i took once a day for 5 days every two months which forced me to realise an egg , i can not describe the pain i was in while on them pills i cannot remember the name of them and the doctors took me off them and didnt put me on anything else since then iv had no treatment and no help of the doctors , iv been in but due to me being 22 they dont seem to take what im saying seriously im desprate to be a mother iv been with my partner nearly six years why cant they understand that ? .. my partner also has problems with his sperm he had a hernia in his testicale as a baby so he only has one tube that works and his sperm isnt the healthiest or quickest movers anyway ,, i have cysts on bother my ovaries the gynacoligist drew me a nice little picture of them -_- ,, im at a loss at what to do next , iv looked into adoption but due to us being in a small flat we cant even apply till we move ,, my heart is breaking everytime i see a baby iv pushed my family away because at the time of me being diagnosed my mum found out she was having a baby , so i couldnt talk to her about it while she was sat there with a huge bump and my younger sister has recently had a little boy she also has PCOS and all i can think is why did she get pregnant so easily when iv been trying for 5 years and nothing has happened !!!! sorry for the long post theres loads more i could say but i dont feel ready to tell everyone how this truely makes me feel and im not even sure this is the right forum for this so sorry if it isnt .. thanks for reading

 

[lolageorgia]

Hi Jessicalou,
Has your doctor not referred ou for more tests? PCOS and infertility is (in theory) straightforward to treat with Metformin and Clomid etc. It doesnt work for everyone but I dont see why you cant be referred. I would go back to the doctor and show them that you are really serious, do your reseach and tell him what you want.
How have you left it with your doctor? Do you think that they are not taking you seriouly becuase of your age?
Dont give uphun, it may be a long road or you might get lucky and something works for you first time but you cant give up yet

 

[jessicalou]

i saw a gynacoligist at age 18 and he put me on the pills i where taking and told me to come back in 3years time since then iv been to the doctors alot but i feel im being fobbed off tbh ,, i have a friend who is with the same doctors and she is a year older than me and has a child and PCOS and they have given her a dietritution and put her on all sorts of pills and things but they have just ignored me basically , i hate going to the doctors now as i feel im not being treated right and im being judged and i cant changed doctors either as the only other doctors in my area is the one i was with that didnt want to no either ,, also iv never seen the same doctors twice so its really difficult to make a bond and feel comfy with that person as you have to sit there and tell them whats wrong with you and by the time youv done that times up and your all but pushed out of the door

 

[Clobo]

Hi Jessica

Im so sorry that you feel like you do, this is exactly the right forum for you, you can get advice, dump your feelings in a post, make friends and feel encouraged by others. Lola is right, dont give up now chick, it will happen, you just need a little help.

Why dont you try a different doctor, take your partner with you to really show them you are serious. Tell them that you want to be taken seriously and that you want something to help you ovulate. Can you go back and see the gyne rather than the doctor, GPs often cant do a lot and so just do the normal tests and then refer you to a specialist, ask for that too.

As for your family, we all completely feel your pain and understand why perhaps you pushed your family away, maybe its time to take the bull by the horns and make it up, apologise for the way you acted but tell them exactly how you felt and that you want to be friends again. You'll regret it if you dont.

Hope thats all not too blunt but i come here for honest answers so feel i need to give them too, stay positive and be proactive and your time will come.

 

[Clobo]

Hi Ann89, im sorry i havent had experience with spotting but my periods are always different, sometimes long and heavy and sometimes very short, i think its one of the problems with PCOS, maybe it depends on whether you ovulated or how long your cycles are. It might be worth losing a bit of weight before clomid as you only get about 6 cycles worth of clomid due to the long term side effects are larger doses, sometimes losing weight can help to kick start your body anyway.

Yellow, yep Soy can be taken with PCOS, i think a lot of women take it, good luck with it. And good luck with your appointment, hopefully they will give you clomid ready for the next cycle, or hopefully you wont need it at all!!



xxx

 

[jessicalou]

im still in contact with my family i see them every few months i just cant tell them how im feeling or anything they are desprately worried about me but cant do anything to help i speak to them via facebook and on the phone ,, i cant see the gyno without being reffered by the doctors and they dont seem willing to do that

 

[Clobo]

Thats a real shame, you need your family around you. Do they not know you are TTC or having problems?? Its good that you still see them though.

You should definitely try to see a different doctor then, keep going through them all untill they take you seriously, can you register with a different practice??

Massive hugs chick xx

 

[jessicalou]

no they no everything i just find it really hard being around them as they have both had babies since i was diagnoised ,, and my mum always comes out with things that hurt me so its better if i dont see them very often ..
i could but the only other practice is the one i was with in the first place that just made me do pregnancy test after pregnancy test even though id gone 18 months without having a cycle

 

[ann89]

Hi Ann89, im sorry i havent had experience with spotting but my periods are always different, sometimes long and heavy and sometimes very short, i think its one of the problems with PCOS, maybe it depends on whether you ovulated or how long your cycles are. It might be worth losing a bit of weight before clomid as you only get about 6 cycles worth of clomid due to the long term side effects are larger doses, sometimes losing weight can help to kick start your body anyway.

Yellow, yep Soy can be taken with PCOS, i think a lot of women take it, good luck with it. And good luck with your appointment, hopefully they will give you clomid ready for the next cycle, or hopefully you wont need it at all!!



xxx

I'm thinking the same thing. That I may and try to loose some weight first.

 

[lolageorgia]

JessLou you need to go back to your doctor, whichever one you like the most or you think will be most helpful. Go with your partner.
Some doctors will try and fob you off, expecially if you are young. My last doctor was so unhelpful and so I changed to find someone that would listen.

Have a list of things that you need to ask them. For starters:
1) Why are you not ovulating? do you have another undiagnosed condition?
2) Your partner needs a sperm analysis, has he had one recently?
3) You want to be REFERRED to a gyn who can help you.
4) Insist on seeing the SAME doctor each time, you can do this when you book your apponitments. Dont let them fob you off

What were the tablets you were taking? can you find out? why did they tell you to wait 3 years? Are you on anything for PCOS regularly? When you see the doctor you need to be calm and clear. Write down what they say and ask questions if you dont undersatnd, they are there to help you. Perhaps ask the receptionist for a double appointment so you dont feel rushed. And most of all dont take NO for an answer. It doesnt matter if you are young you are entitled to the same help as anyone else.

You have to stay positive, this could be a long battle or a short one but you need to keep strong!

 

[jessicalou]

thank you .. yea i will do that i think the gyno told me to not come back for 3 years because i was only 18 at the time , i really cant remeber the name of the tablets i was on but when i did some research about them some people took them to stop there cycles and other people to start , i will try and find out what they were called i no its a big long word

 

[sbl]

hi all,
so i posted earlier in the ttc forum about these weird bubble like feelings i've been having in my lower abdomen.
so i'm wondering if this is symptom of a cyst???
o and we've been ttc for 18 months.
thanks ladies!!
xx

 

[xkaylouisex]

i wish i got as far as some of you my dr just stuck me on metformin and that was about it i got my gyno appointment so hopefully they will do something for my none exsistant periods xx

 

[xkaylouisex]

i any body knows what sort of tests i may have or what will happen plese let me know ta xx

 

[Clobo]

Hi there

Aw sorry to hear you are having no luck, glad you have an appointment though, thats really good news. Um here are some of the tests they might do:

~ Scan your ovaries to look for cysts and perhaps PCOS
~ Blood tests for thyroid problems, hormones deficiencies etc
~ Sperm analysis on your other half

These are the most common ones and then they will see what that brings up and go on from there.

Good luck

 

[johnson4]

Ok after ranting about no ovulation, I think my OPK was actually positive today did the deed this morning incase it actually was....can I post a pic here to get opinions?

 

[Clobo]

Hiya

I got a +ve OPK today too!! Yay post a pic, i cant do mine as its now in the bin, was deffo +ve though!!

again tomorrow just in case, you'll most likely ovulate tonight now so tomorrow will still count!! xxx