Positive for Downs

[Nessicle]

I have a DS auntie who is severely down syndrome. My other Aunt (her sister of course) has had 4 children all perfectly healthy but she was a higher risk because her mother had had a child with DS.

She had the amnio 4 times and there was no harm to any of her children. I say do what feels right for you, don't feel pressured in to having the amnio but if you'd rather know whether you need to prepare for a child with DS then I would definitely go ahead with it and not worry about the risks. Yes there are risks but these days they are minimal and they're guided by ultrasound these days so they can see where they are drawing the fluid from.

For me personally I decided that if I came back as high risk then I wouldnt bother because I'd keep the baby anyway and like the others have said it's not a diagnostic test just a risk factor based on age and many other things.

Take a few days to think about what is right for you for sure xx

 

[moomin_troll]

i never tested for downs as i really didnt see the point. my mum and sister thought i was mad n made comments about i should get rid if the baby had problems. i hated them so much for it. one of my sisters mates had this test at 5 months and get the same results as u and aborted her baby.

even if ur child does have downs is it really so bad? i dont see how anyone can say hope ur baby is fine after all ur baby will still be fine even if it does have DS.

good luck deciding whether to go for more testing or not, but i would suggest doing research about downs just so u are prepared for if u get the result u dont want

 

[Nessicle]

i never tested for downs as i really didnt see the point. my mum and sister thought i was mad n made comments about i should get rid if the baby had problems. i hated them so much for it. one of my sisters mates had this test at 5 months and get the same results as u and aborted her baby.

even if ur child does have downs is it really so bad? i dont see how anyone can say hope ur baby is fine after all ur baby will still be fine even if it does have DS.

good luck deciding whether to go for more testing or not, but i would suggest doing research about downs just so u are prepared for if u get the result u dont want

Definitely not, DS children can be so loving and make you feel so rewarded and can live a virtually normal life with a few learning difficulties and obviously having the facial features of a DS child. It's not often DS children have such severe disabilities as my auntie has.

 

[moomin_troll]

i never tested for downs as i really didnt see the point. my mum and sister thought i was mad n made comments about i should get rid if the baby had problems. i hated them so much for it. one of my sisters mates had this test at 5 months and get the same results as u and aborted her baby.

even if ur child does have downs is it really so bad? i dont see how anyone can say hope ur baby is fine after all ur baby will still be fine even if it does have DS.

good luck deciding whether to go for more testing or not, but i would suggest doing research about downs just so u are prepared for if u get the result u dont want

Definitely not, DS children can be so loving and make you feel so rewarded and can live a virtually normal life with a few learning difficulties and obviously having the facial features of a DS child. It's not often DS children have such severe disabilities as my auntie has.

i have met some gorgeous lovely children who just happen to have DS, so this is why i really dont see it has a bad thing and i dont understand why ppl are upset about the possibility.
i have a brother with DS and i also have another brother with many mental health issues, so not alot bothers me i guess. but i do understand how the unknown is scary thats why i always believe knowledge is power

 

[lottie77]

Hi my result came back with a result of a 1 in 28 chance of a baby with downs which was a bit of a shocker to begin with but ive accepted it now, I also refused the amnio and as all the other ladies have said it is just a diagnostic test giving you a rough number and most people give a high risk number go on to have perfectly healthy babies and also other ladies who get a low risk number have a child with downs, I wish I had never botherd getting the test done cause the more I researched it the more I realised just how unreliable the test is the only way to get a positive result for downs is to get an amnio done What was the risk number you were given ??

 

[bigbetty]

It is very much personal choice but I don't agree that there is no point in having the blood tests if you aren't going to have the amnio as well. As I said earlier my blood test put me at high risk but we decided against the amnio because we want this baby no matter what. Despite this I feel that should my little girl be born with ds then it won't be such a massive shock - had I not had the blood test I would be completely unprepared.

But that is just my opinion - everyone should do what is best for them and their baby.

 

[Nessicle]

i never tested for downs as i really didnt see the point. my mum and sister thought i was mad n made comments about i should get rid if the baby had problems. i hated them so much for it. one of my sisters mates had this test at 5 months and get the same results as u and aborted her baby.

even if ur child does have downs is it really so bad? i dont see how anyone can say hope ur baby is fine after all ur baby will still be fine even if it does have DS.

good luck deciding whether to go for more testing or not, but i would suggest doing research about downs just so u are prepared for if u get the result u dont want

Definitely not, DS children can be so loving and make you feel so rewarded and can live a virtually normal life with a few learning difficulties and obviously having the facial features of a DS child. It's not often DS children have such severe disabilities as my auntie has.

i have met some gorgeous lovely children who just happen to have DS, so this is why i really dont see it has a bad thing and i dont understand why ppl are upset about the possibility.
i have a brother with DS and i also have another brother with many mental health issues, so not alot bothers me i guess. but i do understand how the unknown is scary thats why i always believe knowledge is power

Yeah I know what you mean - I suppose it's easy for those of us who aren't in this situation to say this but it's definitely the unknown that is scary. I think for like you and I we have grown up with a relative having DS so perhaps for us it's a little easier to come to terms with

 

[moomin_troll]

Very true Nessicle, but my sister has totaly different views to myself and would test for downs and would not continue with the pregnancy which i do not understand at all.
Its all down to the person and how they cope with things

 

[Incubator]

Hi.

I've just posted in gestational complications forum about this - we came back high risk for downs and our consultant was convinced we should go for an amnio. It took 4 attempts over a two week period to get the sample and I've been put on antibiotics and bed rest until next week. We get the results in 12 days. I'm absolutely terrified that we've put the baby through too much but I also could not have coped with not knowing - I haven't slept since we were told we were high risk and I've been a complete wreck emotionally.
My SIL had to have an amnio with both her pregnancies and she now has two beautiful, healthy kids.

Good luck with whatever you decide.
x

 

[Nessicle]

Very true Nessicle, but my sister has totaly different views to myself and would test for downs and would not continue with the pregnancy which i do not understand at all.
Its all down to the person and how they cope with things

That's very sad to think she would do that having a DS brother

 

[Nessicle]

Hi.

I've just posted in gestational complications forum about this - we came back high risk for downs and our consultant was convinced we should go for an amnio. It took 4 attempts over a two week period to get the sample and I've been put on antibiotics and bed rest until next week. We get the results in 12 days. I'm absolutely terrified that we've put the baby through too much but I also could not have coped with not knowing - I haven't slept since we were told we were high risk and I've been a complete wreck emotionally.
My SIL had to have an amnio with both her pregnancies and she now has two beautiful, healthy kids.

Good luck with whatever you decide.
x

You sound like you've really been through it the last few weeks - good luck with your results FX all is well x

 

[moomin_troll]

Very true Nessicle, but my sister has totaly different views to myself and would test for downs and would not continue with the pregnancy which i do not understand at all.
Its all down to the person and how they cope with things

That's very sad to think she would do that having a DS brother

yes it makes me angery.
shes a very selfish person tho and says she couldnt cope it would be too hard, little does she no how hard it is having a child in the first place, its not a walk in the park either way.

 

[Nessicle]

I am ashamed to admit that before I was pregnant I used to say that having watched my grandma struggle with a severely downs daughter I wouldnt be able to bring a severely disabled child in to the world such as those with spina bifida or brain damage etc mainly due to the fact that I would feel guilty for their poor quality of life and thinking I wouldnt be able to cope....but now that I'm carrying my baby I can't believe I ever said anything like that as it's not something I would ever consider having felt her move and seen her kicking around on the scans. Also having known people on this forum who have lost babies who were born sleeping or haven't had chance to live very long, I seriously can't believe I was that selfish.

But I agree having a child is definitely no walk in the park regardless of whether they have a disability or not that's for sure!

 

[moomin_troll]

I am ashamed to admit that before I was pregnant I used to say that having watched my grandma struggle with a severely downs daughter I wouldnt be able to bring a severely disabled child in to the world such as those with spina bifida or brain damage etc mainly due to the fact that I would feel guilty for their poor quality of life and thinking I wouldnt be able to cope....but now that I'm carrying my baby I can't believe I ever said anything like that as it's not something I would ever consider having felt her move and seen her kicking around on the scans. Also having known people on this forum who have lost babies who were born sleeping or haven't had chance to live very long, I seriously can't believe I was that selfish.

But I agree having a child is definitely no walk in the park regardless of whether they have a disability or not that's for sure!

i totaly agree with this, even when i was pregnant i did worry about if zane would be born with any problems as id hate for him not to have a "normal" life, it is diffinaltly not selfish to worry about not coping once uve seen how hard it can be so dont beat urself up.

i have spoken to my oh afew times about if we had another baby and while preg we found out the baby would have no arms or legs what would we do.....and oh just says wed cope end of. he gets to act so calm about it cuz it would be me doing all the looking after lol

the known and unknown is very scary but i think for those women who are high risk (which i think the name should be changed) they should read up about ds just incase

 

[Nessicle]

Aw thanks hun - I've always felt so guilty for my thoughts before becoming pregnant!



My OH is the same - I said to him "what if the risk factor comes back high?" he said "what about it? we carry on and live life with your beautiful baby" bless him!!

 

[moomin_troll]

Aw thanks hun - I've always felt so guilty for my thoughts before becoming pregnant!



My OH is the same - I said to him "what if the risk factor comes back high?" he said "what about it? we carry on and live life with your beautiful baby" bless him!!

bless him lol
being a mum is constantly worrying about what ifs so u have nothing to feel bad about.
i think weve taken over the thread hahaha

 

[Nessicle]

I know lol sorry to the OP!! xx

 

[rcbrown08]

I had the tests with my daughter because like you, I was made to feel they were normal. Had positive results and they wanted me to have further tests but I declined. My daughter is 7 now and is perfectly fine. This time I opted not to have the tests done because I knew it would just cause stress and unnecessary worrying. I'm sure your baby is fine, good luck!

 

[cryingtrying]

i have been offered these test by my doctor for the downs syndrome.. I have decline them all.. Ive heard of women getting false positves or being in a "high risk"category when the babies came out fine. and i also heard the opposite. This test would personally make me worry through my whole pregnacy. Me and Dh feel that whatver god gives us is a blessing and we will love and care for the baby no matter what.

 

[katsina]

I just had the blood tests done last week and I already regret it. I am 41 years old and have faced the reality of complications this late in the game. This is my first pregnancy and I was unsure of the standard tests vs. optional. I thank all of you all for sharing your past experiences and stories. I will not allow any further tests as we feel committed to whatever we are blessed with. I agree it is a very personal choice, but the only reason I could think of to have the amnio would be to fully prepare or take other action and we have fully committed to this child...takes a lot of unnecessary stress off our shoulders. I went through amnio with my sister and it was nerve racking. Her baby boy is 17 y/o and fine! Tough decisions...