Recurrent Miscarriage Thread

[Hope39]

I see, it's because you said the specialist everyone talks about, I thought you meant who we talk about on this thread xx

 

[Squig34]

Tasha - I hope your dream was a prediction of your future

Glad you're beginning to feel better Hope. Wishing you speedy success when you start to TTC again. 27 miles, wow - when do you plan to do that?

Broken - sorry for your loss.

hi to all you other ladies.

 

[LPF]

I've just finished my most recent miscarriage am about cd7.

I really want to do the uNK test with prof Q asap....does anyone know if you have to wait after a miscarriage or whether you can just go for it straight away? I've emailed but no reposnse yet.

 

[Hope39]

I've just finished my most recent miscarriage am about cd7.

I really want to do the uNK test with prof Q asap....does anyone know if you have to wait after a miscarriage or whether you can just go for it straight away? I've emailed but no reposnse yet.

You have it around time you ovulate I think or just after so you let them know when cd1 is then they get you booked in x

 

[Squig34]

Sorry to hear that LPF Hope is right, you have to contact them when you ovulate, having monitored ovulation with OPKs. But, you also have to wait at least one & preferably two cycles after your m/c. (I only waited one). I think it's to allow your lining to build up or something, they can't/won't do the biopsy if it's less than 7mm (3.5 each side). Mine was only just at the cut off point. Good luck

 

[LPF]

That's a shame....

I've only got till Christmas before dh is working away and we have to stop TTC for the long term. I was hoping to get the test done soon and have 1 try before Christmas (I concieve really easily).

It's just pointless us carry on without more answers as I miscarry exactly the same every time. It's just a waste of time.

Oh well, as least I've saved myself £360

 

[Hope39]

Maybe double check with Prof Q but I'm sure that's what I did

What other testing have you had x

 

[LPF]

Maybe double check with Prof Q but I'm sure that's what I did

What other testing have you had x

All the usual suspects - clotting, thyroid, general health type stuff, diabetes, liver etc. karotyping just been done and gynae has offered a lap and dye but firmly believes neither structural or genetic will be a reasons as I've had one child easily.

He won't offer any treatment without empirical evidence of a problem so that's it. I just have to keep trying and I'm out of time. 18 months, 4 miscarriages, a million blood vials...for nothing

 

[Hope39]

Maybe double check with Prof Q but I'm sure that's what I did

What other testing have you had x

All the usual suspects - clotting, thyroid, general health type stuff, diabetes, liver etc. karotyping just been done and gynae has offered a lap and dye but firmly believes neither structural or genetic will be a reasons as I've had one child easily.

He won't offer any treatment without empirical evidence of a problem so that's it. I just have to keep trying and I'm out of time. 18 months, 4 miscarriages, a million blood vials...for nothing

I had my nk cells tested with Mr Shehata via blood, that was after my 6th miscarriage.

I tested positive and was prescribed the steroids, i made it to 27w with isaac

Dont rule out the blood test option , appointments with his clinic come through within about a week of them getting the referal and you only have to wait about 4-5 weeks

My GP refered me, i only told the hospital i had seen him when i was giving my history when i had the placental abruption

Dont bother telling your gynae xx

 

[Hope39]

LBP have they ruled out uterine anomalies??

xx

 

[LPF]

Maybe double check with Prof Q but I'm sure that's what I did

What other testing have you had x

All the usual suspects - clotting, thyroid, general health type stuff, diabetes, liver etc. karotyping just been done and gynae has offered a lap and dye but firmly believes neither structural or genetic will be a reasons as I've had one child easily.

He won't offer any treatment without empirical evidence of a problem so that's it. I just have to keep trying and I'm out of time. 18 months, 4 miscarriages, a million blood vials...for nothing

I had my nk cells tested with Mr Shehata via blood, that was after my 6th miscarriage.

I tested positive and was prescribed the steroids, i made it to 27w with isaac

Dont rule out the blood test option , appointments with his clinic come through within about a week of them getting the referal and you only have to wait about 4-5 weeks

My GP refered me, i only told the hospital i had seen him when i was giving my history when i had the placental abruption

Dont bother telling your gynae xx

I can't get to london unfortunately. I do all childcare and have no one to help. That on top of working just makes it too complicated to travel anywhere. Coventry is my best bet for nk testing.

 

[LPF]

LBP have they ruled out uterine anomalies??

xx

No. Consultant is happy to a lap and dye to rule it out 'if I want to take it that far' but feels that it won't be a problem because I had ds. I am going to have that done but it will be a while before I get an appointment.

 

[petitpas]

Fingers crossed that Prof Quenby comes through for you

 

[Tasha]

I had to wait a cycle too.

I'm back there in a few weeks x

 

[Squig34]

LPF by my counting, if you wait one cycle, you could go next month which would give you one last hurrah around Christmas? The endometrial scratch (the biopsy but without the testing!) Is apparently helpful in itself. Also, the results of the PROMISE trial for progesterone will be out soon.

Spoiler

I had testing at Coventry in August & have just gotten my BFP so am on that protocol this time. I've heard some recent siuccesz stories, so hopefully it'll work for me too - I've had 5 losses.

 

[LPF]

LPF by my counting, if you wait one cycle, you could go next month which would give you one last hurrah around Christmas? The endometrial scratch (the biopsy but without the testing!) Is apparently helpful in itself. Also, the results of the PROMISE trial for progesterone will be out soon.

Spoiler

I had testing at Coventry in August & have just gotten my BFP so am on that protocol this time. I've heard some recent siuccesz stories, so hopefully it'll work for me too - I've had 5 losses.

You might be right as long as I don't have long post MC cycles. My last couple of cycles had really calmed down to 28-30 days but after 3 MCs prior to that they were 40+ days so I'm really hoping!!!!

How quickly to the results come back? I've heard 5/6 weeks and I've heard 2!

Congrats for you - fingers firmly crossed for you. Did they find high nk cells?

 

[Squig34]

Thanks mine only took 4 weeks & my understanding is that that is fairly standard - there was a while before the summer I think when it was 6-8 weeks but that was unusual. However you can start TTC the next cycle even if your results aren't back - just contact them if you get a BFP before results. No, my NK cells were normal. I really thought I'd disvover that they were high as I have endometriosis. So my protocol is just progesterone & clexane.
I hope your cycles stay on the shorter side to give you a chance! I also really recommend a b vitamin complex - 3 of the 4 TTC cycles that I've been taking them got a BFP...

 

[LPF]

Well, I contact prof Q about the nk test and they were very adamant they wouldn't see me until I've had 2 full cycles after my miscarriage which pushes it to Christmas or just after to have the test and dh will be long gone with work. Gutted.

Even if I didn't have high nk cells I just hoped she would have some advice and maybe some leverage for me to get progesterone / clexane or something. I have no treatment plan with my gynae and the only thing I can have from him is baby aspirin which I already took on MC 3 and 4.

I'm so fed up. At a meeting today with a colleague who is on her third pregnancy since I had my first. It's so unfair

 

[cutieq]

thanks for all of your input ladies. I marched into the doc's office and pretty much said I'm here to get you to recommend I get tested for progesterone issues.

He approved and I should have my results back in the next day or so.

 

[Squig34]

LPF, that's so disappointing, sorry to hear that. I was referred by my consultant and she told me one or two so I just waited one and didn't tell them how many it had been at Cov although I guess I did give the date of my last m/c and period. I would caution about the aspirin though, studies are showing that it's not good to take unless you have a clotting disorder. I'd been told that by one of my consultants, another recommended it to me and I was taking it in my last pregnancy, and Coventry is against its use. I think there's more information on the Miscarriage Association website, someone somewhere posted a link. I totally get how you feel. People are having their second who started after me...

Cutie - great news! Will pop over to your journal.