Recurrent Miscarriage Thread

[LPF]

Yeah, I'm not going to bother taking baby aspirin again - it's not helped in two pregnancies so don't see the point.

 

[Hope39]

I was advised not to take it by one consultant, advised to take it by another ... I decided not to take it but next time I am to start it at 12w x

 

[hopeful23456]

I took baby aspirin even before bfp, throughout ttc, mc's, etc. seems like I was on it for 2 years off and on. then stopped at 20 weeks or so. not sure if it helped but didn't seem to hurt.

 

[loeylo]

Yes it was Lee I was meeting! I also got a picture of a double rainbow and immediately thought "twins" - my mum lost twins at 13 weeks so I have always thought I would have twins for some reason!

Petitpas - thanks for reminding me about the cod liver oil/omega 3! I totally already knew that, but I had forgot! I knew there was a reason I used to buy the Pregnacare with omega 3, but I forgot why (it was over 2 years between my pregnancies) so I just bought a whole set of vitamins that I thought would be good.

I am taking vitamin d as well, it would make sense if I was deficient as my mum actually is deficient in lots of vitamins (though I think hers is mainly b vitamins) due to a hormonal issue, she lost multiple pregnancies before me and my sister then went on to have another loss.

I am trying to get a doctors appt to get hormonal bloods done - I am waiting on clotting results from recurrent miscarriage clinic - but it is proving to be a pain in the bum! I am changing doctors and no new ones have out of hours times to suit!

 

[eme]

I've been on this site on and off for about a year now. I had two mc's this year and needed to take some time off from the site to heal. I feel bad because I feel like I come and go from here selfishly.

Right now there are 13 women in my life that are either pregnant or have recently given birth.........it's hard to find someone sympathetic to my current status. My husband and I have been through every test humanly possible and just received word yesterday to the final results.

It's funny.....when you don't have an answer or a reason as to why you've had mc's all you can think of and fixate on is "WHY!". My reaction to getting an answer has surprised me. Apparently I have insulin resistance as well as naturally low progesterone (which we kind of already knew about the progesterone but it was the whole ....is it just a deficiency or is it low because it's not a viable pregnancy debate)

Come to find out, it was a deficiency and even though I was put on suppositories for the progesterone, mine is so low that apparently it needs to already be elevated before conception happens for it to do any good.

So even though we have a "course of action" it hit me pretty hard last night that.........it could have been prevented. My baby that would have been born some time this past week, or the baby that would have been due in four months.....both could have been prevented. It's a hard pill to swallow. I don't blame myself....it's just sad.

Anyways......we're on to the treatment phase now. I'm going to be on metformin for a month before starting the FSH/LH injections, etc. The mix of emotions I've been dealing with for the past 24hrs is insane. I hope you'll have me back in this group (even though some of you may not know my screen name at all) and allow me to join along with your journey's as well.

 

[cutieq]

I'm so pissed. I had my progesterone tested on 5dpo and the lab has never called with my results. I will be 10dpo by Monday and too late to take the meds, if needed. I wish ttc was as urgent to them as it is to us.

 

[Hope39]

I'm so pissed. I had my progesterone tested on 5dpo and the lab has never called with my results. I will be 10dpo by Monday and too late to take the meds, if needed. I wish ttc was as urgent to them as it is to us.

Its not to late cutie, a lot of us don't start it till a bfp which is around 10dpo x

 

[petitpas]

Eme, I try not to think what would have been had I not been so sceptical of immune testing/therapy for so long. It helps now that I have an amazing son. You did the right thing in seeking testing and once your lo is in your arms you'll know what happened was all so that you got just the perfect child for you Good luck with your treatment and a speedy sticky baby conception!

 

[dairymomma]

cutie-I agree with what hope says. I've never taken progesterone before a bfp and unless I have leftovers on hand from a prior pg, I can't get my dr to give me a prescription until my bfp is confirmed with a blood test. With my successful pregnancies, I've taken progesterone starting at 6 weeks (blood test came back negative according to the dr at 14dpo so I just waited for AF to come. She never did so I tested.), 15dpo, and 13dpo. I think you'll be fine if it's a day or two later than you planned.

 

[vietmamsie]

Eme - Sorry you are feeling so down. Being able to pin point what the problem is can sometimes be even more difficult to get your head around than not being able to find a 'problem' causing miscarriages.

Since the birth of my daughter a few months ago I sometimes catch myself thinking back to the 4 losses I had in the 1.5 years before I got pregnant with my dd. I wonder who they were and what my life would be like if one of them had made it. I think about their little souls and can't get my head around the fact that each one of them had the possibility of being a little person that I love as much as my daughter. But then I am faced with the thought of not having MY daughter, who I love more than anything. She is the most amazing little creature and I wouldn't trade the world for her. She never would have been if I hadn't gone through my losses. I know it is really hard to look at the past and wonder what could have been, but its the past and its best just to move forward with the present/future. I am a firm believer that things are as they should be and everything happens for a reason. Even if it is really hard to see what the reason is during hard parts. When you get your take home baby and fall in love with him/her, you will understand why THIS is the one your were supposed to have all along.

I hope this somehow helps.

 

[dairymomma]

Eme-^^ This. I've had 8 losses and at least 4 of them had a chance of being viable since there was a hb but I wasn't on the meds (or on all the meds) I should have been on and I lost the baby. And I do wonder about those babies. I wonder alot. Who they would have been, what they would have looked like, where life would have taken them. But, as Vietmasie says, if I had had any of those angels, I wouldn't have the 3 beautiful babies that I have been blessed with. It's hard not to wonder what my life would have been like if my other babies were born but it's even harder to imagine a life without my DS or my DDs. I'll always think of my angel babies and a part of my heart will always mourn for them but I also look at their part in my life as being a learning/growing experience. I see how far I've come and how much I've grown after being tested and it's made me appreciate and love my kids all the more.

 

[amazingLife]

Hi, did anyone here..had situation like me.i already had 2 chemical naturally concieved before ivf..now second miscarriage this year with good growing embryos..feel like all doors are closing.I have read about immune issues and havent yet tested them All other standard RPl tests are negative .please anybody with similar experience .or success share your experience or a piece of advice

 

[kelly1973]

ladies that are taking progesterone are you taking them after ov or only if you get a bfp?

 

[bunyhuny]

amazingLife- I just found out I'm losing my forth pregnancy- (one ectopic, 3 m/c). My first m/c was with a boyfriend years ago, but the other two have been after IVF/FET- though I haven't done PGS. I had a 10th week m/c last October after fresh cycle IVF, a failed FET, a failed IVF, then an ectopic after PICSI in April. I got another BFP last week, but found out yesterday that my beta didn't rise and I'm having a chemical/early miscarriage.

The clinic I go to treats recurrent miscarriage with Prednisone and aspirin. (They had me on it for my ectopic cycle and that was the only time I've ever had normally rising betas.) They didn't have me on it this cycle because it raised my blood sugar when I was on it before. Next FET, they're putting me back on Prednisone and also adding in daily injection of a stronger blood thinner. They don't test for antibodies or clotting issues, just go ahead and treat for them since it's cheaper than running all the recurrent miscarriage tests. If I miscarry again, I think they start looking for genetic issues.

 

[Hope39]

ladies that are taking progesterone are you taking them after ov or only if you get a bfp?

im sure you ask this every month, lol. from bfp for me huni xx

 

[petitpas]

ladies that are taking progesterone are you taking them after ov or only if you get a bfp?

I was told to take them after ovulation and think that makes most sense as it thickens the lining nice and early. Still, some doctors prescribe it from bfp and it works for many ladies, too, so it isn't the end of the world to start later. Especially, if you aren't even sure that you have a problem with your progesterone levels.

 

[ginny83]

This is what I've been on in the past:

1st pregnancy: on nothing full term boy
2nd pregnancy: on nothing mmc discovered at 12 weeks measuring correctly, normal boy
3rd pregnancy: on nothing mmc 15+4 measured correctly, normal boy
4th pregnancy: got prescribed aspirin to take all the time which I started 2 days before bfp, ended in chemical
5th pregnancy: had already started blood pressure medication even though my bp isn't that bad and doesn't look related to the miscarriages, still on aspirin, also start clexane and progesterone from bfp. Mmc discovered at 14 weeks baby measured 13 weeks, normal boy
6th pregnancy: still on bp meds. New fs has me on 10mg steroids all the time, I start clexane, aspirin and progesterone at bfp also have 5 transfusions of intralipids over first tri. Also from bfp I increase steroids to 20mg. I'll be 29 weeks tomorrow and its a boy

 

[Hope39]

This is what I've been on in the past:

1st pregnancy: on nothing full term boy
2nd pregnancy: on nothing mmc discovered at 12 weeks measuring correctly, normal boy
3rd pregnancy: on nothing mmc 15+4 measured correctly, normal boy
4th pregnancy: got prescribed aspirin to take all the time which I started 2 days before bfp, ended in chemical
5th pregnancy: had already started blood pressure medication even though my bp isn't that bad and doesn't look related to the miscarriages, still on aspirin, also start clexane and progesterone from bfp. Mmc discovered at 14 weeks baby measured 13 weeks, normal boy
6th pregnancy: still on bp meds. New fs has me on 10mg steroids all the time, I start clexane, aspirin and progesterone at bfp also have 5 transfusions of intralipids over first tri. Also from bfp I increase steroids to 20mg. I'll be 29 weeks tomorrow and its a boy

Ginny are you on the steroids still?

 

[ginny83]

Sorry nope weaned off them from 13 weeksish

 

[SweetV]

Hi Ladies,
I hope it's alright that I join the thread. I'm in the midst of my 4th miscarriage (5th loss including a stillbirth at 25 weeks at the beginning of this year). I go back and forth from thinking I can't possibly endure this again to waiting for AF so I can try again. Appt to see the high risk Dr. in December and really, really hoping to take home a baby in 2015.