Recurrent Miscarriage Thread

[Hope39]

I'm also waiting too, only till January which isn't that far away

I can't wait for Xmas to be over and done with

Don't think I be getting into Xmas too much this year, although I am trying

The charity that supports my local nicu unit where Isaac was have asked me if I have any spare time tonhelp get all the Xmas presents ready for the nicu mum admissions, about 400 of them :/

Isaac and I are also on their Xmas card design this year along with some other nicu babies xx

 

[confuzion]

I also have this nagging feeling! I seem to have no problem getting pregnant it's just keeping it. They won't do genetic testing for baby, they say even if it's positive it's a fluke. They test the parents and mine has all come back normal. I hate having to wait! I also need to wait to try again until after the holidays due to appt to check uterine cavity. I was suppose to have it last week but fell pregnant again in August only to mc again last week.

I just hope our nagging feelings are wrong! Getting pregnant hasn't been an issue for us either. Sorry you have to wait for the appointment but sounds like it's worth if it can help shed some light.

Your username seems so familiar. Though not sure where I've seen you before!

I'm also waiting too, only till January which isn't that far away

I can't wait for Xmas to be over and done with

Don't think I be getting into Xmas too much this year, although I am trying

The charity that supports my local nicu unit where Isaac was have asked me if I have any spare time tonhelp get all the Xmas presents ready for the nicu mum admissions, about 400 of them :/

Isaac and I are also on their Xmas card design this year along with some other nicu babies xx

So a few of us RPL ladies trying again in the new year then . January for us too. Hope the next year is better than the last two.

Are you going to help? That must be difficult to handle

 

[SweetV]

Confuzion, most of my m/c's have been later first tri so I've joined a few due date groups over the years. I feel like I spend more time pregnant than not and I have (somewhat seriously) joked to my husband that I am doomed to repeat the first trimester over and over and over again.
Hope, I don't know how you do it. The nicu where Alexander was born is the scariest place in the world for me.

 

[confuzion]

Painfully funny that you say that sweetv. I've "joked" that first tri was my purgatory on more than one occasion. It must have been a due date group then.

 

[Hope39]

I don't have to go to the nicu unit to do it, not sure i would be able to go back there quite yet, that would be too painful, although i might be doing a sponsored walk that ends up at the nicu unit.

I'm assuming it will be at the lady house that runs the charity. I've met them a few times now, i helped out on their stall when they were short at an asda store, the following week i took adam to meet them and donated them some printed mugs and coasters to sell. They went down an absolute storm and placed an order for 50 the next day!

They want my help at a craft fair too, i don't mind any of it tbh, i'm quite enjoying having something different in my life, i dont get out much, lol

Helps pass the time to January xx

 

[petitpas]

SweetV, imo it's actually more interesting and useful when you get a normal result with foetal karyotyping. Here, they usually only offer testing with or after your fourth loss although it is possible to arrange for the test privately. You have to be far enough along, though.
Did you ever find out what caused your stillbirth?
Also, do you know if your new doctor treats for immune issues (for example, if all your other tests and scans come back without an answer)?

Alexander is a lovely name, btw. We chose it as a middle name for our son.

I can't stand going through first tri again. I told my Dh that even if this one doesn't work out that's it for me. I have reached my limit.

 

[confuzion]

Hope - makes total sense to me. I don't normally get out much either lol. And time goes by so much faster when you're busy. Been busy with a lot of family stuff the last couple of months and it really helped take my mind off things. Now that things are winding down, it seems like time is slowing back down again . Maybe I should get into crafts.

petitpas - I think if we already had a child, I might have reached my limit at this point too. But the urge to make my husband a father (he would be such a great one) is the only thing that really keeps me putting myself through it over and over again. Well of course I would love to be a mommy too but I could live with failing myself more than I can stand failing him.

 

[Hope39]

My latest venture is printing, well OH venture but i seem to work on it daily to get it up and running. I get to go shopping online and buy all the samples then make him print on them, lol

I will let you all know the facebook page once its live, if any of you have had a professional photographer take pictures or someone with a really good camera then we can print them onto aluminium panels, the effects are stunning if we get the print right

Currently on a 3rd attempt of a particular photo

xx

 

[SweetV]

Hope that does sound like it would be a great activity to put energy into!
Petitpas my RE was determined to discover the genetic results as she said it would change treatment plan if they came back normal. The hospital however said they have changed their policy and won't do it any more. My stillbirth was caused by pprom (my waters broke at 25 weeks). I had spontaneous labour about a week later but as he was breech he got stuck and oxygen was cut off. I have had D&C's and for one pregnancy had to have 2. They think I have an incompetent cervix due to all the miscarriages I have had. It seems almost cruel that after 2 miscarriages I finally made it to the second trimester only to lose him due to the previous miscarriages. I got pregnant 3 months later and lost that baby at 7 weeks and I found out 2 weeks ago the pregnancy I'm currently carrying has no heartbeat. I am 13 weeks but the baby passed at 8. I absolutely refuse to have a D&C even though the doctors are pushing. I have been spotting for a week but no heavy bleeding yet. I go back tomorrow for a check up.
I keep fluctuating between never going through this again and being determined to succeed. Confuzion I agree, I just can't let my DH down. We have one child together and he is such an amazing father. The older my DS gets the more I feel this longing to have another.

 

[petitpas]

SweetV, how sad I suppose that the next time you get to second tri you might be getting a cerclage or similar?
I've had 5 D&Cs (three of them alone for my first loss - urgh) but luckily it doesn't seem to have caused too much damage to me although one of the doctors I saw did mention that it could cause issues.

Still, an incompetent cervix wouldn't explain your current loss. Would you consider another surgery if they promised you karyotyping in exchange?

Confuzion, I totally understand. The only reason I could bear to give up is because I have a son and he is absolutely amazing! I was feeling so guilty for not being up to scratch when going through my last pregnancy and then losing it (blighted ovum). This time ms and fatigue hit me hard and I couldn't look after him properly. The thought of going through this again and again and missing out on mothering him properly is what frightened me the most.

I was much more determined to have a baby when I didn't already have one! Quite rightly so. It was also a bit of a challenge to find the right treatment. Immune treatment was our last resort (although to be fair, I would have given it a few tries, too, had it not succeeded immediately as there are several levels to it and we started with the lower dose of steroids).

Everyone has their own limits and sometimes we reach them but decide that actually, we are stronger than we thought - we can go a little further... It isn't an easy path but I do think most of us here will have our happy ending!

 

[cutieq]

Popping in here for some prometrium guidance.....

I started two days ago (I'm assuming that's why AF is late and my temp rose this am). I took a digital and an ic, both are negative. Should I stop taking the prometrium an let AF come or keep taking it until she comes? One lady told me to test at 14dpo and stop taking it if I'm negative. Just getting some opinions because my doctor told me nothing!

 

[GingerPanda]

Sorry, I'm not much help, but didn't want to read and run. My doctor told me not to even start it until I got a BFP. But my shortest pregnancy made it to 6.5 weeks, so I think my situation might be different than yours. Can you call your doctor's office?

 

[bunyhuny]

petitpas- What did they do for you for steroids? I did 5mg daily of prednisone this past spring doing IVF (turned out to be ectopic) and this coming FET cycle, I'll be on 5mg again plus daily Fraxiparine injections (blood thinner). My RE is saying I'd be on both until 12 weeks. Is this about what you did? Or did you take different meds entirely? Were you taken off them at the end of first tri? I'm concerned about what would happen if I stopped taking the immunosuppressant then and I can't find much info on it at all.

(My RE hasn't done any testing to find out why I'm having miscarriages- 3 so far, 1 from a boyfriend seven years ago and 2 from IVF and FET with my husband- but since my ectopic was my only pregnancy with normal betas and that's the cycle my RE had me on prednisone, I guess she's figuring it's immune?)

 

[bunyhuny]

cutieq- I do IVF, so they put me on progesterone every cycle and I always get an hCG blood draw at 14"dpo" before being allowed to stop taking it.

I've gone through two pregnancies where I didn't get a positive on the HPT on 14dpo, but I got a positive blood draw (one ectopic, one miscarriage). The ectopic had normal, healthily progressing levels- more than doubling in 48 hours, so it wasn't because it was ectopic that it didn't show up- just something about how my body was processing the hCG. My hCG was up around 25 at 14dpo, the HPT's were supposed to be positive at anything over 10, and I couldn't get a positive until my hCG was up around 75 two days later.

I guess what I'm saying is that I'd ask to have hCG draws on 14dpo if I were you. There's always a chance that an HPT won't pick up a pregnancy just based on how your kidneys filter things or how hydrated you are.

 

[cutieq]

Thanks ladies. My doctor is worthless. I wish they would offer more guidance instead of us having to beg for it. I asked him what next with the progesterone and he said "we wait until you're late".

GP, I can't make it past 4 weeks so my issue is implanting which is why I think he wants me to take it before BFP.

 

[GingerPanda]

Yeah, I knew you lost yours super early, so that's why I said I think my situation is different than yours. I'd want you taking them from O until a negative 14dpo blood draw (like bunyhuny said), if I was your doctor. But I'm not your doctor. (If I was, my office would be like my actual doctor's office, where they have a 24/7 hotline I can call to ask the nurses questions, or get put in touch with the doctor on call.)


Have you done any research on the endometrial scratch? It sounds really uncomfortable, but it's supposed to help with implantation issues, too. I think Squig got it done, if I'm remembering correctly?

 

[Squig34]

Yes you are right GP, I did. It was very uncomfortable but only lasted about 10 seconds, so if it does the trick for implanting this time, I think it's well worth it!

 

[Hope39]

Bunyhuny - I took 25 mg steroids from ovulation, stopped if negative or carry on if positive test. I weaned off at 12w. A lot of uk girls are prescribed 20 or 25

I got past my 6w hurdle with the steroids then had an abruption at 27 w

Xx

 

[petitpas]

Cutie, I took progesterone from just after ovulation and was told to stop if I didn't have a positive sensitive test (like FRER) by about 12dpo.

Buny, this seems to be my personal magic formula:
Progesterone - start after ovulation - 400mg cyclogest daily - until 14 or 16w (I think it was supposed to be 16 but I got it wrong and stopped early )
Prednisolone - 25mg from ovulation until 12w, then slowly wean off
Fragmin - high dose twice/day (I have a clotting gene and have suffered blood clots in the past so this will probably not apply to most) from bfp until six weeks after birth/miscarriage
Aspirin 75mg/daily
Vitamin D - 50microg/daily
Folic acid - 5mg in first tri, have been taking less since
Pregnacare Plus (the one with a vitamin pill and an omega 3 capsule) although with ms I had to temporarily stop taking the omega 3 capsule.
I think that's it

 

[dairymomma]

Cutie-I always take it from bfp but even though I seem to have issues with implantation, I don't miscarry right away which is why I think it works for me. I have a friend though who (after 5 consecutive miscarriages) was told to take it from ovulation, take a sensitive test (first response usually) at 14dpo, and go from there. If bfn, stop the meds and try again next cycle. If bfp, keep taking it til 12 weeks. She did that for 7 months I think before she got her bfp. Her little girl is now 4 and she's due this winter with a little boy. And oddly enough, she didn't need the progesterone this time. Sometimes it can be a one time thing.