Recurrent Miscarriage Thread

[ClaireH]

I'm really pleased you got your appt with Siobhan Quenby, LeeC - and so soon! My GP was suprisingly impressed with my determination and gladly agreed to refer me. I just hope it's all worth it, I don't want to pin all my hopes on getting steriods for her then to say there's nothing wrong with me. But on the other hand, the thought of my body killing my babies everytime is horrendous. And I will keep trying, just trying to be patient and wait for my next cycle (or I could be naughty and not wait!!!).

xxx

 

[brillbride]

I am recently diagnosed with elevated nk killer cells (in London) after 3mc's, have my results here but im waiting for my apptment to see what the next steps are, still have to get our other results back and th1 and th2 etc....
next apptment is in 2 weeks 2mor........my 50:1 ratio is 19, results show that prednisone is the most effective-moreso than intralipid

my thyroid is grand and all those other tests they do on NHS were perfect, blood clotting etc....so we are so glad to have found this out

 

[LeeC]

That's great ClaireH, I got my appt within 2 weeks, so was really quick.
Even though they aren't doing NK Cell Testing, I have explained my situation ro the clinic and told them I already have progesterone prescription. They said def still worth going to clinic as they would still prescribe prednisone if my history etc warranted it.
When did you get your referral, you should get appt through fairly quickly too.
I am on 2ww so started progesterone just in case I get BFP.

Brillbride, thank you for the post, it's great you are getting some answers, please keep us posted.

 

[LeeC]

Sorry BrillBride, meant to ask. Did you have biopsy before you were diagnoses with elevated NK cells.
I've heard people mention bloodwork but I've heard it's diagnosed by biopsy.
Just looking fir clarification really. Thanks and good luck x.

 

[mandy1971]

I am recently diagnosed with elevated nk killer cells (in London) after 3mc's, have my results here but im waiting for my apptment to see what the next steps are, still have to get our other results back and th1 and th2 etc....
next apptment is in 2 weeks 2mor........my 50:1 ratio is 19, results show that prednisone is the most effective-moreso than intralipid

my thyroid is grand and all those other tests they do on NHS were perfect, blood clotting etc....so we are so glad to have found this out

It must be a weight off getting a diagnosis.. all the best of luck and let us know what your next step is xx

 

[mandy1971]

Thanks Petitpas. Nice to catch up. I ov'd Saturday, so guess that makes me 4dpo, I HATE the 2ww.
I started taking Cyclogest 400mg on Sunday night and have my appt with Siobhan Quenby soon also, so keeping my fx'd.
I'll def take a look at your journal, when I figure out how to lol...
Hope all is going well with you and yep def keep up with the pma (easier said than done sometimes) xxx

Maybe this will be your last 2 ww for another 9 months fxd!
Lee is it just an appointment with dr Quenby or will you be having the biopsy also on the 15th? I wonder how long it'll take for the results...

 

[9babiesgone]

I feel a lot better than this morning. did some meditation and some grounding exercises, and I think I am a lot more at peace with my loss. Yes it is tragic, but I must move on, and keep thinking positive.

sending lots of light and blessings to everyone in this thread for their losses!

 

[petitpas]

9babies, so so sorry
I truly hope that you can see a specialist before your next pregnancy so that you get your take-home baby!

 

[9babiesgone]

thanks. I have blood tests I am waiting on!!!

I hope they come up with something that is wrong.

 

[cindersmcphee]

9babies I am really sorry. I really hope you can find some answers with blood tests.

 

[9babiesgone]

thanks I hope so too!

 

[lynnb]

9 babies, so sorry for your loss

How long do you have to wait for the results?

 

[LeeC]

9babies, I hope you get some answers soon, it would be good for you to know what exactly is going on, hoping it works out.

ClaireH, it is my first appt on Friday, but I think I am going to have to cancel as something as come up, gutted

I am about to call clinic now to see if I get another appt for an alternative date.

 

[muffin918]

hi everyone! i am so sorry for everyone's losses...it breaks my heart to always see so many women going through the pain of a miscarriage...it is refreshing however, to see so many women be able to talk about it and not feel alone...please feel free to take a look at my new blog about my struggles with miscarriages...i am welcome to new followers anytime. you can find me at www.everydayisacountrysong.blogspot.com

 

[ClaireH]

Hi LeeC, shame about your appointment, hopefully they will just reschedule you for the following week. My GP referred me earlier this week so I am hopeful of an appointment soon. Brillbride, I am really interested to know how you get on. I've read on the net about testing for NK cells using blood tests but that they aren't v accurate - my understanding of Dr Q is that she'll make a diagnosis based on history rather than doing more tests. Good thing about not being able to get the biopsy on NHS is that you don't have to delay TTC!

9babies, still thinking about you. I too am awaiting test results (on the "products" they collected from my MC last week). It's never ending isn't it!

xxxx

 

[ClaireH]

PS - I realised today that I have actually been pregnant for a total of 41weeks. Totally sucks that it was 5 pregnancies not just the one

 

[brillbride]

Sorry BrillBride, meant to ask. Did you have biopsy before you were diagnoses with elevated NK cells.
I've heard people mention bloodwork but I've heard it's diagnosed by biopsy.
Just looking fir clarification really. Thanks and good luck x.

Hi Lee and thanks, I just had one very expensive blood test in the Lister hosp, London so didnt have a biopsy,, I had NK killer assay test or something like that...xxx

I am recently diagnosed with elevated nk killer cells (in London) after 3mc's, have my results here but im waiting for my apptment to see what the next steps are, still have to get our other results back and th1 and th2 etc....
next apptment is in 2 weeks 2mor........my 50:1 ratio is 19, results show that prednisone is the most effective-moreso than intralipid

my thyroid is grand and all those other tests they do on NHS were perfect, blood clotting etc....so we are so glad to have found this out

It must be a weight off getting a diagnosis.. all the best of luck and let us know what your next step is xx

Thanks Mandy-- yea we almosy cried for joy when we found out because our heart has been broken like the rest of you, xxx

Hi LeeC, shame about your appointment, hopefully they will just reschedule you for the following week. My GP referred me earlier this week so I am hopeful of an appointment soon. Brillbride, I am really interested to know how you get on. I've read on the net about testing for NK cells using blood tests but that they aren't v accurate - my understanding of Dr Q is that she'll make a diagnosis based on history rather than doing more tests. Good thing about not being able to get the biopsy on NHS is that you don't have to delay TTC!

9babies, still thinking about you. I too am awaiting test results (on the "products" they collected from my MC last week). It's never ending isn't it!

xxxx

Thanks Claire and sory for the recent loss..xxx

 

[padbrat]

Ooo ladies. I hoped this one would be different. I even convinced my HUsband to have a little hope.... but as usual I was wrong.

The scan showed the baby's heart has stopped beating.

I will have surgery on Monday.

My Consultant is very determined for us and says if the baby didn't die of chromosomal problems she will prescribe steriods and other stuff....

Problem is that I really don't know if I am strong enough to continue this. It has sucked the life from me and now my Husband says he can't bear anymore pain for us.

I am so frikin stupid. Why did I believe that for once we may have a miracle??? STUPID STUPID ME. That happens to others and never me.

Sorry for the rant. Guess my frikkin hormones are still making me crazy cos my lying body is still full of pregnancy symptoms.

 

[LeeC]

OMG Padbrat.

I am absolutely devastated for you honey.
Life is just not fair, I was really hoping for good things for you this time, I really don't know what to say.
I know how you are feeling and wish I could give you a big hug.
It's such a hard fight to keep going but I'm really hoping you don't give up.
After my last loss, I struggled, really struggeld and was offered anti-d's by gp, I couldn't leave the house without crying.
I figure I'm going to try 1 last time with steroids, so this may be an option for you like you say, as I think you told me you had tried aspirin and progesterone.
How many weeks pg were you?

I am just so sad for you today, sending lots of love xxx

 

[stardust22]

Oh no Padrat, so so so completely heartbroken for you. I just hope you will find the strength to carry on, once you have taken time to heal.

I send you hugs but I wish i could give you a real life one!!