Recurrent Miscarriage Thread

[GingerPanda]

Fingers crossed, Tasha!

Razcox and Dan-o,

Hope, that's so sweet! I teared up just seeing the beautiful, thoughtful gifts!

 

[ginny83]

You're very much loved hope xx

Tash thinking of you xx

 

[dairymomma]

Tash-Hoping all goes well.

Hope-what lovely gifts from lovely friends. Glad you had a good visit with them.

 

[Tasha]

Hope they are beautiful, just like your boy.

 

[Tasha]

Looks like this isn't going any where

Almost negative today. Looks like I caught the tail end of a chemical pregnancy (yesterday was my first).

I know it's just a chemical but I'm so bloody fed up. Why can't my body do what it's meant to?

 

[GingerPanda]

So sorry, Tasha.

 

[babytots]

Tasha I'm so sorry to hear that. Sending big hugs your way

Hope those are such lovely gifts and so thoughtful of your bnb friends.

Still not sure which way to go from here, can't seem to process the last miscarriage properly, it's like I was never pregnant at all.

Thats exactly how I feel at the moment dan-o My first 2 miscarriages and Jessica I grieved and processed and well soildered on like you do. This time round I just don't know how to act or feel. When I think to myself I was pregnant and lost my baby. It doesn't feel real it doesn't feel like I was ever pregnant. Sending some big hugs your way.

Ladies have any of you gone private for testing? The epu wouldn't run tests and my doctor said there wasn't really much she could test for either. I'm already awaiting on bloods from when I was pregnant that showed antibodies but I've been told to get re-tested for Lupus (by a lady who's husband works in pathology) and I'm pretty sure from reading online when I was tested for Antiphospholipid after Jessica they didn't repeat the test 6-12 weeks afterwards. I'm hoping that when I get the results of my antibodies I can get a referral to a consultant and then try and get re-tested and if that doesn't happen then go private. I need to do something pro-active and I know I'm probably never going to get answers but how can it be one of those things. 4 times now twice where my babies heart has just stopped and twice where my babies have been fine but my body miscarried them regardless Anyways waffling here. Having a bit of a crappy week. x

 

[Squig34]

So sorry, Tasha

Hope, those gifts are gorgeous. Glad you have so many lovely and supportive friends

I'm too far behind to comment individually on all the other ladies, but sorry to see so many new people or people having to come back here. Good luck for getting your rainbows very soon.

 

[GingerPanda]

Had more bloods drawn on Friday, for thyroid testing this time. That's 15 vials of blood this week. My veins aren't very happy. So now I just have to wait and see if my thyroid testing suggests hypo, then wait even longer for my lupus anticoagulant retest results to come back.

 

[petitpas]

Babytots, I went private after St Mary's ran out of treatment options for me and blamed bad luck (despite fifth loss being tested and coming back as healthy!). I went to the miscarriage clinic in London. Maybe Professor Quenby in Coventry is closer to you?
As for the antiphospholipid test, they only retest if the first test comes back as positive. As far as I know you need two positive results in order to be diagnosed with antiphospholipid syndrome. If your first result was negative they wouldn't have wanted to retest.
Some clinics like to retest anyway, though, as the test conditions are quite strict and not all doctors (especially GP practices) conform.

If you post a list of tests you've already had maybe you can get some suggestions from ladies on here.

For me, I tried all the NHS tests and treatments and then adding steroids on top of them were what worked. Good luck with whatever way you decide to go ahead!

 

[babytots]

Thanks for your reply petitpas. I'm not 100% sure of what tests I had done though I have all my notes from when I lost Jessica right through to all the tests they did. I know they did karyotype and antiphospholipid and I had a scan to check ovaries and my womb. I'll have a look through my notes later and see if I can find out the tests that they did.

I've had a look into St Marys but yes quite far from me I'll take a look at the one in Coventry though. x

 

[loeylo]

Hope you don't mind me joining. - I have posted a few times in the past after my second miscarriage.

I have now got an ectopic pregnancy to add to the mix. Currently going down the medical management route as I cannot face surgery, but may have no choice.

I have looked into my chances of success and after an ectopic apparently there is a 60% chance of carrying a pregnancy naturally. Add in two miscarriages, and my chances definitely don't look too good!

I am totally heartbroken just now - I really thought this would be my rainbow baby, instead it was a potentially life threatening situation!

 

[babytots]

Loeylo I'm so sorry to hear of your ectopic sending you the biggest of hugs. I hope that the medical management work so you can avoid surgery. x

 

[petitpas]

Loeylo, sorry for your losses. I hope you don't need surgery on top of everything else. Don't lose hope, though. Statistically, even for a healthy woman with no history of losses the success rate of a new pregnancy is only around 75% so you aren't far off. Also, I think the statistics after ectopic include women who lost a tube, which hopefully won't happen to you. Maybe, ask to be referred to a recurrent miscarriage clinic for a consultation. Normally, you are eligible after three losses. In the meantime, rest up and look after yourself

 

[LeeC]

Hi all. I've not been around for a while so thought I'd dip my toe back in this thread following on from my two losses earlier in the year. I am taking a break from TTC at the minute have had a whole load of crap going on a with friend and in-laws, so trying to concentrate on my marriage and of course my gorgeous rainbow boy.

Raz, I remember you too from when I first joined this thread.

How is everyone? I have some serious catching up to do on here.

Loeylo, I can see your post without reading back..... I have had 2 ectopics, one in Jan 2011, I lost my right tube and one ruptured in Feb this year also resulting in surgery(baby had attached to stump of right tube). Don't give up, despite only having one tube I carried my rainbow baby to term in April 2013. I have since been pregnant twice, so it's def possible. I assume you are having the Methotrexate shot, hope you're ok and can avoid surgery, they will keep an eye on your HCG levels as a safety precaution but if you have any questions please ask, maybe I can help x.

 

[loeylo]

Thanks for the replies ladies.

I have been referred for testing. The doctor who was dealing with my case doesn't think I need testing, but the midwives and nurses agree that something isn't right because my last Pregnancy looked perfect, we got to see heartbeat etc. technically they don't count an ectopic as a third loss, but they are willing to refer me anyway as there is a family history on my mums side of recurrent miscarriages.

Lee - yes it was methotrexate which I was treated with. I have to go back to hospital on Thursday I have my hcg checked. They were over 3000 on Sunday, so they were encouraging me to go for surgery but I really didn't want to go to surgery. Lee, I noticed you are based in Scotland - where abouts? I am in the central belt.

 

[LeeC]

I am in Glasgow, south side. Yes if you can avoid the surgery it's best but tbh it may be reassuring to know there is no damage to your tube. How many weeks pregnant?
I've actually been pregnant 4 times since my 1st ectopic (2 of those were after my 2nd ectopic) hope that makes sense. Which hospital are you with? I used to be with Princess Royal but am now with Wishaw as they had a fantastic consultant there, unfortunately he is now on long term sick.

It really is heartbreaking hun but try and stay positive if you can, You can get lots of advice and support on here and feel free to email me with any questions about the Scottish NHS process. I just need to clear my emails down first. It may save you some time researching x.

 

[loeylo]

I am sure they would test for damage when I have my testing? I was 5+2 when the pain started. The thing which is confusing me is that it feels so like my first miscarriage, I only ever had right sided pain but I didn't know I was pregnant at the time, so didn't go to hospital for a few days. They never scanned me, not really sure why but my levels did drop naturally. My second miscarriage was so different, so I am curious if it is actually two ectopics and one miscarriage rather than the other way.

It is Wishaw which I have been treated in for my most recent two miscarriages, I was treated at Hairmyres for my first but they weren't helpful in my opinion. I didn't know they did testing at Wishaw!

Email help would be great!

 

[LeeC]

I will email you later today. x

 

[kelly1973]

hi ladies hope you are ok xx
so sorry for what you have been through loeylo xx
ladies has anyone heard of dhea? someone was tlking about it on another thread and wondered if you guys knew anything about it im already on q10 and heard you can take them together