Reflux Help & Support Thread

[HelenFS]

Stardust - I'm so sorry to hear what you are going through. Sending you huge hugs. Xxx

 

[stardust599]

Thanks everyone. I think I'm going to have to go private to get the help we need.

Does anyone know how much it costs? I have £500 savings that I can use.

I gave her the omeprazole mixed in with the teeniest bit of carrot and apple puree this morning and it went down a lot better and stayed down - usually she spits it all out or promptly projectile vomits, she even went for a nap an hour later and so far has been sleeping 45mins! Got my DR Brown's bottles in the post this morning so going to use them today.

I need to get her to gain 200grams by Monday so will be stuffing her up with as much milk as I can get down her all week. She was sick a few times after her morning bottle but I kept her upright until her nap and she hasn't been sick since.

Will let you all know how I get on xx

 

[Samemka]

Hi ladies, I'm really hoping someone can help. Took Katie to drs today & he prescribed infant gaviscon as I'm convinced Katie has silent reflux. I'm pretty sure he said use one sachet but reading the box now, it says for infants over 10lbs use two sachets. It also says not to use with milks containing a thickening agent....well Katie is on comfort milk, is this ok? I can ring drs to check but wanted to ask here first as if I hadn't mentioned reflux the dr was happy to just tell me 'some babies are just fussy' so I'm not his biggest fan! Oh the sachets say one dose on each sachet & there are two sachets attached to each other. 30 doses per box. Thanks!

.

 

[bathbabe]

Hi ladies, I'm really hoping someone can help. Took Katie to drs today & he prescribed infant gaviscon as I'm convinced Katie has silent reflux. I'm pretty sure he said use one sachet but reading the box now, it says for infants over 10lbs use two sachets. It also says not to use with milks containing a thickening agent....well Katie is on comfort milk, is this ok? I can ring drs to check but wanted to ask here first as if I hadn't mentioned reflux the dr was happy to just tell me 'some babies are just fussy' so I'm not his biggest fan! Oh the sachets say one dose on each sachet & there are two sachets attached to each other. 30 doses per box. Thanks!

.

You can, but just use one sachet, otherwise even with the comfort it will cause constipation x

 

[fifie123]

Emily had terrible reflux but ladies it gets better! Emily was constantly throwing up all day she was on sma staydown but she still sicked it up, I was fed up of getting us both changed all day everyday, I thought there's no way this is getting better but she is 8 and a half months old now and not sick one bit!!! We have beaten reflux, she was getting less and less sick at about 5 months, so jut remember there's a light at the end of the tunnel ladies x

 

[stardust599]

Hi ladies, I'm really hoping someone can help. Took Katie to drs today & he prescribed infant gaviscon as I'm convinced Katie has silent reflux. I'm pretty sure he said use one sachet but reading the box now, it says for infants over 10lbs use two sachets. It also says not to use with milks containing a thickening agent....well Katie is on comfort milk, is this ok? I can ring drs to check but wanted to ask here first as if I hadn't mentioned reflux the dr was happy to just tell me 'some babies are just fussy' so I'm not his biggest fan! Oh the sachets say one dose on each sachet & there are two sachets attached to each other. 30 doses per box. Thanks!

.

Hey hun

I would stick to one sachet in each bottle, I'm sure it's a maximum of 6 sachets a day so if she has 6 bottles you can put 1 in each. Someone might know more than me though.

I think it's fine to put it in comfort milk.

Be warned Gaviscon causes constipation so try and get your LO to drink some cooled boiled water between feeds. You can also try SMA Staydown which works for us until the reflux started getting severe, it's the same price as normal formula xx

 

[stardust599]

Oops someone beat me to it! xx

 

[anna matronic]

Hi ladies, I'm really hoping someone can help. Took Katie to drs today & he prescribed infant gaviscon as I'm convinced Katie has silent reflux. I'm pretty sure he said use one sachet but reading the box now, it says for infants over 10lbs use two sachets. It also says not to use with milks containing a thickening agent....well Katie is on comfort milk, is this ok? I can ring drs to check but wanted to ask here first as if I hadn't mentioned reflux the dr was happy to just tell me 'some babies are just fussy' so I'm not his biggest fan! Oh the sachets say one dose on each sachet & there are two sachets attached to each other. 30 doses per box. Thanks!

.

You can, but just use one sachet, otherwise even with the comfort it will cause constipation x

I hate my doctor for telling me to give Evan two sachets, even a week on lactulose he still isn't pooing properly

 

[Samemka]

Thanks girls, I really appreciate the quick reponses!! Trust you all more than my Dr - says a lot doesn't it!

 

[Worrisome]

Aw stardust, just seen this, HUGE GIANT I hope today is better hun

 

[SilasLove]

All your LO's sound a like Madelyn in some way. I officially feel like a horrible mom because when Madelyn is like this sometimes I would tell her "Madelyn, nothing is wrong with you, now stop it!" And you know, I am convinced this baby would hardly ever cry if it wasn't for this reflux crap.

My son had a small reflux problem, he still does. It acts up if he drink juice that is not diluted. He also can't have cows milk because it gives him horrible diarrhea. If he eats too much his reflux will act up. But it was never as bad as it is with Madelyn. She is a great poo'er, which my Joseph was always once every two days and Mady can poo 2 or 3 times a day .. anyhow I got completely off my original topic lol.

Anyway, Madelyn gets so stiff and rigid - I should have known before honestly. I had an idea. But on the bad days its so rough. Sometimes I feel like I am being forced to choose one child over another - I really don't know how Joseph feels on those days when I am completely devoted to Madelyn because I have no other choice. He gets really whiny. OH is crap, doesn't help with anything when he gets home from work.

 

[anna matronic]

Well I had Evan weighed today he is 13lbs 5oz at 12 weeks. That is a 2lbs 12oz gain in 5 weeks which is way down on previous gains. He went from 8lbs 9oz to 10lbs 9oz in 3 weeks. So his weight gain has definitely slowed. but he has jumped from the 30th centile to the 50th.

I am still gonna go to the doctors anyways

Hope your days are good! We just had one major chucking up incident resulting in a change of clothes BEFORE we even went out. Just fed and so far no sick apart from a teeny bit of spit up with a burp

 

[AP]

Stardust u sound like you are having a rough time. In regards to milk, NG tube feeding wint make any difference to either reflux or weight gain.

High calorie milk is out there but i imagine you'd need a referral to a dietician or paed? Or maybe just a bloodu nicer and more understanding doc. Even we didnt get high cal milk (all the other preemies did so we r stumped there...)

Timr to change docs hun because that idiots blocking you from getting further help.

 

[stardust599]

Stardust u sound like you are having a rough time. In regards to milk, NG tube feeding wint make any difference to either reflux or weight gain.

High calorie milk is out there but i imagine you'd need a referral to a dietician or paed? Or maybe just a bloodu nicer and more understanding doc. Even we didnt get high cal milk (all the other preemies did so we r stumped there...)

Timr to change docs hun because that idiots blocking you from getting further help.

Hey, we're already under a consultant paediatrician but he's awful. I think they're going to push for the NG tube feeding when I go back on Monday as her milk intake is really poor still - approx 1-2oz every 3-4 hours and he wanted her to gain 200grams by Monday or be tube fed. That's impossible on the amount of milk she's taking.

She hasn't been grumpy at all today, she doesn't scream when she's being fed anymore but just refuses to drink it in the first place. I think she's worked out that it hurts so just refuses altogether now. She'll take a few sucks (maybe a half ounce, I think just enough to satisfy the hunger pangs) and then pull away fussing and grumping, if I gently keep the teat in the mouth and try to tempt her with it she just chews it or sucks it like a dummy for a min and then screams if I keep encouraging her or if I squeeze a little onto her tongue.

Not sure how I can encourage her as today she hasn't really seemed in any pain from the reflux and has slept well but she just never seems hungry and isn't interested, I think her little tummy is used to being empty now.

I don't want her to be tube fed, I'd rather we work out something to either get her to take more milk or add more calories and nutrients to the milk she does take.
xx

 

[AP]

I think you're right , that makes so much sense!! xxx

 

[lauzie84]

Can I join you ladies too please? Amy has suffered too with reflux and was diagnose at about 8 weeks. We went through gavison, ranitidine, and losec along with Enfamil AR milk, and finally seem to have it under control, although we still have bad days. To be honest I'd never even heard of reflux before she got diagnosed with it. Really good to have a place here to chat to other ladies about it xx

 

[Worrisome]

I'm sorry your all having a tough time, Millie's problems see quite trivial to wards your little ones.

We have had a bad chuck up day and she was constipated again, resulting in me having to help her have a poo again. Spoke to hv but she said nothing we can do and if she is still being sick of gaviscon to take her off. Said not a lot else we can do as she is doing ok weight wise. She originally said mucus was from the section but now says we all make mucus, does that mean she will always sound like she has smoked 80 fags today She did say its the mucus probably making her sick.

 

[babyjiva]

aliss
a very late response but hugs to you... your poor LO. so sad in that picture. my LO gets like that too but just off and on, not too often!

i also wanted to say to everyone that if you breastfeed you might want to consider food allergies. the symptoms are exactly the same and i'm on a super elimination diet and LO finally seems better. It's like I have a new baby.

 

[anna matronic]

I'm sorry your all having a tough time, Millie's problems see quite trivial to wards your little ones.

We have had a bad chuck up day and she was constipated again, resulting in me having to help her have a poo again. Spoke to hv but she said nothing we can do and if she is still being sick of gaviscon to take her off. Said not a lot else we can do as she is doing ok weight wise. She originally said mucus was from the section but now says we all make mucus, does that mean she will always sound like she has smoked 80 fags today She did say its the mucus probably making her sick.

I have been told twice now (by chemist and HV) to go back to the doctors about getting something other than gaviscon as the sickness is till bad so it clearly isn't working. But Evan is gaining weight. Yet how can a doctor leave him having painful attacks during the day if something like ranitidine could potentially stop that.

I have no idea what my new docs are like as I only ever saw the mw when I was pregnant. My old doc was fab re the reflux and very supportive.

If they don't help I might go to mums and temp register him again and see the doctor, beg for something else and then go back to my normal doctor.

Evans sick is like milky slime sometimes is that what you been by mucusy? He was a section baby and still gags at times and brings it up (but not often) He's sicked every type of milky sick going

Also it affects his sleep. He settles so well but has woken twice since 9 screaming in pain.

 

[Samemka]

Hi ladies - can I ask what ranitidine does? Did you ask your Drs to prescribe it or did they do it off their own backs? I get the impression mine will, but it's always me asking for stuff! TBH I think he thinks I'm a bit neurotic!