SB and bum dimple!

[Tegans Mama]

I agree Deb, we have seem babies a lot worse off than tegan when she was in hospital. It isnt a reason to kill a child - they are still beautiful!

 

[sweetnSimple]

So very true i know my mom took it and so did I..but i have it and so does my daughter..mine is rare as it is in 5 different spots and my daughter has in the same spot 2 vertebrae My doc just told me one form was heriditary and one wasnt but then again he isnt a specialist many children with SB can lead very good lives and have parents who love them and make their lives amazing...And Deb you are so right just because a child has SB or anything else doesnt give a hospital a right to terminate or anything...I work on a Neuro unit and there is always someone Children or adult worse off..

An u r so right everyone derserves a chance no matter what!!!

 

[Deb&Matilda]

Im glad no one took it the wrong way about other people being worse as I didnt mean it nasty but as I lady in the hospital told me after her son had a brain tumor and was completely paralysied from the head down and could move you always look around the room and see someone worse xxx

 

[sweetnSimple]

Well it is true in life in general there is always someone worse off than you..and how you said it was perfect..When my daughter went in for brain surgery i was terrified as she was 22mths old and in our room we had a lil baby 8 weeks old going for his 2nd heart surgery and was not expected to make it...my girl was fine in the end andthis lil boy made it through but it really hit me that there are always someone else that is worse off..and love what you have and be thankful for all that you have!!

 

[Tegans Mama]

Nah hun it is a very genuine statement, At one point in time I will admit Tegan was the worst on the ward, When Tegan had her infection (Staphylococcus aureus) that is also when she had her fit (or 2 or 3, they are not sure how many it was) but she almost died, it was horrible, and when they put that horrible EVD in.. And we weren't allowed to hold her for a whole week! Until we told them the surgeon said we could clamp the EVD and pick her up.. then they took it out yay!

 

[Emmea12uk]

they way i look at it is, if your child was born and it couldnt move its legs, or its heart didnt beat properly, you wouldnt write it off - so why do it before it is born??

ESPECIALLY if as they told me, they had no way of knowing exactly how bad it was going to be - or put another way - how mild?

 

[Deb&Matilda]

Oh I know them bloody EVDs are horrible Matilda pulled one out herself even tho she pulled her Hickman line out of her chest which she shouldnt have been able to as it was stitched in and she laughed xxx It was funny but not funny she really doesnt like tubes in her xxx but even tho I loved her Hichman line was so nice not to have to watch people trying to find Veins xx
So sorry to hear Teagan nearly died them infections can be soooo nasty xxx

 

[Tegans Mama]

Yeah.. I knew from the start we would 'keep' T (sounds like there was another option for us doesn't it?) but even after that, when I was 24 weeks the doctor said "After today you won't be able to do anything about it, if you want a termination we have to do it soon"... WHAT? I have said everytime I saw him I did not want to terminate!!!!!! Idiots

 

[Samantha675]

Brennan and I both have sacral dimples. Interesting.

 

[louise1302]

sorry to gatecrash

my son is nearly 11 and when he was bor the doc said he had a scahral dimple and pin point hole and this was a indicator of sb he got a consultant to come and see him and he shone a torch in the hole and told me as the hole was closed off at the bottom it was nothing to worry about and nothing more was mentioned
does this mean my son carries sb or is he fine am a bit confused
thanks in advance
xx

 

[Deb&Matilda]

Oh I think everyone is noticing something that isnt always there a dimple is one sign but the big one is apparantly a hairy spot xx please can everyone try and stop worrying Im sure we are all seeing enough doctors that if there was something to worry about they have told you xx

 

[Emmea12uk]

mine is hairy - and it is nothing to worry about! not occulta! If you worry about it, make sure you take your folic acid!

 

[Samantha675]

Oh I am not worried. I have never had any problems and they did loads of checking when Bren was born at the hospital. I just never knew that sacral dimples were so common.

 

[louise1302]

im not worried about it as i said he is nearly 11 and has no issues i was just wondering and have noticed that they seem to be pretty common