Team 'Pingu' is changing/relocating

[hope&faith09]

Im so sorry petitpas x your in my thoughts x

 

[Cocobelle]

Thinking of you Petitpas

 

[LittleMermaid]

petitpas ... im so sorry to hear your news hunni ... big coming your way xxx

 

[Lyns]

Bad news, I'm afraid. Had a scan today and there was no baby. They think it's a molar pregnancy so I'm off the list for the mo and looking at google (not confirmed by doctors as they avoided speaking of the aftermath) it may be a while until I am allowed to TTC again.

I'm so sorry for your news petitpas.

Try and keep positive....the docs are notoriously often wrong about Molar Pregnancies. This time last year I was given exactly the same news, was hurried into a D&C, and had an agonising wait for test results.....only to find out it wasn't molar.

What gives them reason to think its molar hun? What have your symptons been like? Do you knw what your HCG level is? Is it based on scan appearance only? Have they said partial or complete molar? Sorry for the questions...I just know how awful it was for me and if I can help by putting your mind at rest at all, I'm happy to xxx

 

[petitpas]

Bad news, I'm afraid. Had a scan today and there was no baby. They think it's a molar pregnancy so I'm off the list for the mo and looking at google (not confirmed by doctors as they avoided speaking of the aftermath) it may be a while until I am allowed to TTC again.

I'm so sorry for your news petitpas.

Try and keep positive....the docs are notoriously often wrong about Molar Pregnancies. This time last year I was given exactly the same news, was hurried into a D&C, and had an agonising wait for test results.....only to find out it wasn't molar.

What gives them reason to think its molar hun? What have your symptons been like? Do you knw what your HCG level is? Is it based on scan appearance only? Have they said partial or complete molar? Sorry for the questions...I just know how awful it was for me and if I can help by putting your mind at rest at all, I'm happy to xxx

Hi Lyns,
I don't mind answering questions and the fact that you were suspected and cleared gives me some hope that my current 'suspected' diagnosis could very likely be wrong.
In answer, I didn't have much in terms of symptoms. I had bad nausea from 6.5 to 8.5 weeks and then everything lightened up a lot. Haven't had much in terms of stretching pains, just the odd stabbing in the boobs. Over the last few days I thought some of my discharge was funny coloured and then Sunday night (at supposedly 11+2) I had a bit of brown/pink goo. We went to hospital where they just took some standard bloods (not hcg) and asked me to come back during the day on Monday to have a scan. The scan lady was very very fast. She had barely put the scanner on my belly when she already told me that she could not see a pregnancy. It did not make sense to me (must be something to see otherwise why would I have positive pregnancy tests, nausea and no af?) so I asked her what she could see and she said that the pregnancy was over. I asked whether she could tell since when and she said no, that the sac was in the process of collapsing and so she couldn't tell anymore. That's when I burst into tears. She then told me to get dressed and had someone take us to the 'quiet room'. All in all, from entering the room to leaving it was less than five minutes!
We waited for a long time in the 'quiet room' until a doctor came in. His English was very difficult to understand and I was a little embarrassed to have to ask him a few times to repeat himself. He asked me whether I understood the results of the scan and I said well I'm having a miscarriage. He asked did I understand that they suspected it was a molar pregnancy. News to me! No, I asked him what that meant and he tried to explain and then gave me loads of forms to sign, saying that I had to have everything surgically removed and tested. I asked about the repercussions of this molar pregnancy but he said that another doctor would go through it with me.
We waited a long time again and then got to see another doctor. He explained a bit more, but still wouldn't answer questions like 'when can we try again?', 'does this have an effect on my fertility?', 'what happens after the operation?'. He mentioned something about a grape-like aspect in the scan which in retrospect with google-goggles leads me to believe that they think it could be a complete molar? And about the follow-up mentioned that they would test the tissue they take out and within 7 working days have an answer as to whether it is molar or not. If it is, there would be some follow up with Charing Cross Hospital. I have to say that despite the avoidance of some of my questions, this doctor was very caring and understanding and gentle.
They took more blood and said they would call me the next day (today) to see when they could fit me in for the ERPC. Right now I am in limbo. I would like to get the operation out of the way but they are struggling to fit me in. I have private insurance and am provisionally booked in at the Nuffield for Friday afternoon. My local NHS hospital has a spot in surgery for me tomorrow but no bed and due to my history they want me to come in the night before and probably stay the night after the op, too. So basically, I am sitting here waiting for the phone call and trying not to think about the long term until I know more about what is happening.

 

[NickyT75]

Nicky,
Bad news, I'm afraid. Had a scan today and there was no baby. They think it's a molar pregnancy so I'm off the list for the mo and looking at google (not confirmed by doctors as they avoided speaking of the aftermath) it may be a while until I am allowed to TTC again.

Oh no!!!

such heartbreaking news Im so so sorry hunni wish there was something I could do

massive we are all here for you xxx

 

[petitpas]

Nicky, you just go ahead and pop out that new little pingu! Good news like that would really cheer me up!!!

I've made a decision to go all private on this. I had a think and despite maybe getting in earlier on the NHS, I think the follow-up will be easier privately. I'll get the results faster and I'll get to see the consultant quickly, too. My insurance covers treatment for molar pregnancy so if it does come to that I can continue going the private route even at Charing Cross. Hell, I've never used this insurance cover so might as well try it out and guarantee myself a private room. I wouldn't normally be too worried but I'm in a bit of a state right now and the last thing I want is to end up in a giant mixed ward like I did a year ago (they don't currently have a bed for me so they couldn't say where I might end up).

 

[Lyns]

Petitpas....that is all so incredibly similar to my story, its unbelievable. Right down to the doctor that i couldn't understand to start with! Only I was 9 weeks not as far on as you. They told me mine was a suspected partial molar...and that was from a bunch of grape appearance on the scan. Partial Molar is 6 months off TTC I was told, from the time your HCG returns to normal.

I think you have reason to still hope that its not molar....at 11+2 your HCG would be through the roof, and your pregnancy symptons should be very heavy....not light!

I think you've done the right thing going private. I'm not convinced that my NHS ERPC was handled that well, as I bled for a long time after and didn't get a return to a normal cycle for nearly 3 months. I was on the emergency list, so got a standby general surgeon. I had previously had a ERPC for MMC, and that time was scheduled surgery with a gynae surgeon and feel that one went far better (I hardly bled at all, adn my cycle was back to normal immediately).

Please understand when I say, I hope and pray for you now that it is just a failed pregnancy, but I do know how stupid and empty that sounds, as you should be able to grieve for a failed pregnancy, not hope for it Molars are so cruel.

Please give me a shout if you want to know anything else. There is quite a good Molar pregnancy support forum, which I can't post the address to here, as understandably our Mods don't like us directing people to other forums, but you will find it by googling it.

Lots of love n hugs to you....my fingers will be crossed for the best outcome for now xx

 

[petitpas]

Lyns, thanks for all the support and all the information! I totally understand what you mean when you say you hope it's actually a 'real' miscarriage.
At first, when I heard about the molar, I was a little relieved that I hadn't lost an actual baby, although in reality that doesn't really make any difference to our change of situation and plans. Now, knowing all the possible implications of a molar, I am hoping exactly what you said that it is in fact a 'normal' miscarriage (no disrespect to any ladies who have gone through this!).
I managed to ask my doctor on the phone earlier what my hcg level was yesterday and he said 5,564. That doesn't sound like much at all so in my very amateur opinion I am hoping that either it is a miscarriage where my hcg levels are dropping naturally along with the end of the pregnancy. If it is a molar, I am hoping that again naturally it is resolving itself somewhat so after evacuation my levels will drop quickly back down to normal.

Sorry, ladies! I don't mean to spread all my doom and gloom on here. I will probably keep a lot of the details to my own journal and just give you the highlights (i.e. operation complete, histology results etc.). Things are not all bad! One of my best friends came by this afternoon with tons of ice cream and we watched a funny film together. All cuddled up and comfortable. My DH stayed in bed with me until 2pm setting up our new notebook while I hung out on here and project managed my operation. He's a star!!!

 

[Lyns]

My HCG levels at 9 weeks were 55,000 and it wasn't molar, so that sounds very encouraging! xxx

 

[sam*~*louize]

LYns - your experience and response to petitpas just makes it more wow, that we ARE all still her helping each other. SHould we all be newly TTC/newly given birth, we couldnt help in a way that you just did. I hope you know what I mean by that, that I'm soo sorry for what you went through, but happy that everyone is still in here, offering advice to all x

 

[majm1241]

I went to my doctor today! First appt. If you are interested, I posted a pic and a note in the First Tri and in my journal! I didn't want to hurt anyone in here about it!

 

[NickyT75]

im interested April babe will pop into your journal for a little look xx

 

[majm1241]

Thanks!

 

[noja]

4 days to go Nicki!! COOOOL!!

 

[noja]

I'm sorry petit pas, just catching up on what has been happening, so sorry for what you're going through. Thinking about you.

 

[123Deirdre]

check out the change i had to make to my signature! Was a bit of a shock at my scan yesterday!

 

[sam*~*louize]

sorry deidre what were you before? *slaps hand for not taking note*

 

[majm1241]

A BOY! Is that what it is!? Your status says Girl but it says BOY next to the due date!

 

[petitpas]

Haha. Now that is funny. What a surprise indeed! Are you going to have to paint over the princesses in the nursery? where did the earlier girl prediction come from?