The Hammersmith Kisspeptin IVF'ers :)

[spacebunnyx]

Wells, I'm so sorry to hear this. I would have thought they would jump at the chance to have a young(er) person on board. It also said they would do tests like HSG if you hadn't already had one. Could you request tests via your gp and then get back to them?

space xxx

 

[clefairy]

Hi everyone, sorry I haven't been about the last couple of weeks, things have been hectic!

Wells I'm so sorry to hear this as well. Good idea Spacebunnyx about the HSG, its worth a try perhaps?

Has anyone here got PCOS? I hope they'll accept me, with PCOS. Less than 2 weeks to my appointment. Rather nervous about the whole thing.

By the way, when they do the EC are you awake or asleep? That part frightens me the most. Also the injections, do you give them to yourself or do you have to go to the hospital every time for one? I live over 200 miles away and it could get rather expensive, travelling backwards and forwards.

Sorry for all the questions, I just don't know much about the whole IVF process.

 

[babybell]

Oh no wellsk
Really sorry to hear that

Clefairy - I don't know about the PCOS as I am unexplained
You will do all injections yourself except the kisspeptin trigger shot which will be done at the hospital and you will need to stay overnight as you need blood taken the following morning too.

The thought of the injections is worse than actually doing them. I quite looked forward to them each day!!

I was really worried about the egg collection too as it is under light sedation. However I don't remember a thing and slept through the whole procedure! The fact it was only sedation meant that I was up and awake straight after which was great.

I had a call from the hospital today and all 9 of my embryos are still going strong! 1 is not as good as the others but the rest are doing amazing and she said there are some perfect looking embies

We are set for a 5dt on tues at 1pm!!!

My boobs are sooooooo sore from the progesterone, I can't wear a bra with wire and have had my friends toddler jumping all over me this afternoon so they really hurt
But I'm not complaining

 

[clefairy]

Hi Babybell - Thanks for the information. I feel better about the EC now, especially when you said you slept through it. Do you know how long the whole thing took?

Where do the injections go? Into your arm, tummy, bum? I presume they show you how to do them?

That's amazing about the 9 embryos!!

What does 5dt mean?

 

[babybell]

It only took about 20 mins and I had 11 eggs collected in total
The injections go in your tummy - you will have a co ordination appt with the nurse who will show you what to do.
I injected for 11 days

5dt - 5 day transfer. They transfer the embryos back after 3 or 5 days depending on quality. By day 5 they can pick out the best quality and the chances of success increase

 

[cass86]

Wellsk I am so sorry to hear that. That really sucks Stay positive though.

My scan went really well. He said that I have a lot of follies there so I will only need to lowest dose and he said with what he can see, it is very very unlikely that my amh will come back as bad. So hopefully I can start next cycle. It is slightly annoying because my cycle starts Friday and it is not enough time to get all the tests done so it will be next cycle now. But I have been waiting 4 years so another month is fine.

I love reading everyones stories on here. It really helps the time pass. I can't wait to start seeing

Babybell that is so good.

Do the injections make you more emotional? I am already quite an emotional person and think this may make me a wreck haha.

 

[spacebunnyx]

Great news Babybell!! I found this part the hardest last time - waiting for the call to say how they are getting on. 5dt is excellent and maybe even some frosties amongst them...?!!

Cass- excellent news about your scan.

Clefairy - Last cycle I got told I had PCOS and cycled just fine with a good number of eggs. They will watch you closely and adjust meds as appropriate. Apparently I don't have it any more!

Nightmare start to day today - car broke down on the M4 whilst I was on my way for my day 5 scan - I was distraught! Anyway, finally made it in.. scanned and bloods done. Had 6 follies on one side and 2 on the other. I have fewer on one side because I have no tube there. happy with that number of follies as for me its about quality - last time my eggs weren't very pretty but they're go-ers! Next scan on Wednesday - hope its not quite a stressful!

xxx

 

[babybell]

Cass glad the scan went well - I was fine with the injections until day 10. I called my boss to tell him I needed the rest of the week off and he was a real sh*t about it!! I completely broke down and cried for ages!!

Space - what a nightmare, glad you got there in the egg. That's a good number of follies
Good luck for weds - let us know how u get on

AFM I am officially PUPO!!! I have 2 beautiful blasts on board - Bert and Ernie
The embryologist said they were very good quality and I think they were a 4AA and 4AB
We have 2 more that will def be frozen and they will check the last 2 tomorrow.
I cannot believe that we still have 6!! I was really worried about having none!
And to get at least 2 in the freezer is amazing!!

OTD is 6/4 but no way will I be able to wait till then!

 

[wellsk]

Thanks all, I'm going back to my GP very soon to demand they refer myself and DH to a specialist. DH also needs a second SA done in the hope the trial may change their mind. I agree space, you think they'd be really interested in the impact on those who are younger than the limit for IVF on the NHS. I know they're looking out for me I guess, but it's so frustrating when they know as well as I do that due to DH's sperm morphology IVF is probably our only shot!

Ironically I've had more tests in ten minutes by the IVF trial, than I've ever been offered by the NHS about my fertility!

Thanks though, will ask about the HSG.

Awesome news about being PUPO babybel! Really hope Bert and Ernie are sticky beans!
Congrats on getting on the trial Cass! You had much better luck than I had!

 

[spacebunnyx]

Wells - I hope you get some answers soon.

Babybell - Yey!!! Great news! I've got such a good feeling for you and those are really really good blasts! I've heard that for blast transfer HH has a 60% success rate... and you have two in there!


xxx

 

[cass86]

Wells - I defo think you should go to the GP. They will refer you to a consultant and get the tests done and hopefully give you a shot of IVF on the NHS. They have to respect that you know what you want. Maybe see a different dr.

Babybell - That is such great news. I can't wait to hear your I love that term PUPO. It must be such a good feeling. So that is really good that they transfered them as blasts. Such a better success rate. Is that what they are doing with everyone? I really can't wait. I have to wait until after easter now to get the ok. I will be willing my cycle away more than ever. Is 2 the most they would put in? could be twins sorry for all the questions.

 

[spacebunnyx]

Hi ladies,

Quick question: did you stay in a hotel for trigger and EC? If so can you recommend one please?! I'm aware that my trigger and EC are coming up v soon (11 follies and E2 levels of 2000 yesterday - day 7) and I haven't even thought about how to organise things logistically!

xxx

 

[babybell]

Hi ladies

Cass they do 3 or 5 day transfers depending on how your embies are doing.
They only recommend putting back 1 blast but I told them I wanted 2
I wanted to give us the best chance of success

Space wow look at you go!!! Really excited for you
We stayed in a hotel for the night of the trigger, the following night and went home after egg collection.
We stayed at the ramada encore which was a bit of a trek away and was ok but I'm sure you can find something nicer closer. Westfield shopping centre is not far from there - make sure you check it out.
The nearest tube to the hospital is 10 mins away so as long as you get a hotel near the tube you can get there in no time
We parked the car up at the hotel and just jumped on and off the tube for a couple of days.

I am not doing so good. I am having cramps and have been spotting pink since last night. Last month I started spotting a week before my period so it's around the same time. I am 3dp5dt
I called the nurse and she didn't really say much just if it gets worse to call them and rest.
I am feeling really pessimistic and feel that it's over before my lil embies have had a chance

 

[wellsk]

I hope it's just the embie getting nice and snuggled in!

 

[spacebunnyx]

Babybell - do not panic - every positive story I have read in the last few months has had some spotting (even full on bleeding) and cramps. If it was AF the progesterone would not be doing its job... which is unlikely. I'm more worried about not having cramps and some spotting - my last natural BFP I had slight spotting.. my BFN on first cycle had no bleeding til 10 days past OTD. Hang in there.

Thanks for the advice - we decided on the Premier Inn in Hammersmith... OH was interested in the "full English" on offer for breakfast!!! I feel sick just thinking about it at the moment!

AFM - Scan on Friday revealed about 16 follies ranging from 9 -20 mm.. they had a bit of a growth spurt and I have 4 over the 17 mm line and a bunch at about 15mm - trigger is tonight! so excited. Am having bloods taken through the night tonight - anyone else had this? Bit spooked at the idea of spending the night at the clinic with no one else around!

Space xxx

 

[babybell]

Well the spotting and cramps seem to have eased off now. No sign of spotting at the moment so I'm hoping it was a good sign.
It's so hard not to panic.
I did have implantation bleeding last time I had a BFP so hopefully this is the same.

Space you can't go wrong with a premier inn! I love London - do you live far?
Wow that is great I am so excited for you.
So collection on Monday then. You will be first in I imagine as they like to do the kisspeptin study first.

I didn't have bloods through the night. Ali was in a conference and they didn't mention it again to me so we went for dinner with my sis instead.
When we went for the trigger it was literally us and the 2 docs in the unit! They met us outside the ivf bit and took us round to the posh part at the back of the hospital.

Let me know how you get on space. In my case the kisspeptin did a fine job as out of my 11 eggs 10 were mature! So it's definitely doing what they want it too and I had no signs of OHSS either
Good luck
Xxxx

 

[spacebunnyx]

ladies,

I got 10 Easter eggs! hoping they're good quality and are mature.

back to bed now.

Bluebell - thinking of you.

xxx

 

[spacebunnyx]

bluebell? I mean babybell

 

[3wishes]

Hi i am new I have just made an appointment for the trial. I have pcos been trying for 2 years I have a 9 year old son and I am just on my 6th and last round of clomid. Don't think this round will work so hoping I get accepted for the trial

 

[spacebunnyx]

hi 3wishes, good luck with your appointment. My advice would be make sure you put plenty of £ in the car park meter - I got stung at my appointment as I was there for hours! good luck.

xxx