The Hammersmith Kisspeptin IVF'ers :)

[cass86]

Wow babybell it all sounds very good. I keep checking to see if you have had your BFP yet. When will you know?

Space - how exciting. I really hope we all get our BFP's with this trial.

I am waiting to hear from Ali today about my blood results. So hopefully that is all ok and I can start next cycle.

3Wishes - Welcome. Good luck with your appointment. When is it?

x

 

[wellsk]

Same as you Cass! Wait for some blood results... Hurry up Ali!

 

[cass86]

I know I keep checking my emails. I hope he comes back to us today.

 

[spacebunnyx]

Hi, I saw him on sat for my trigger and I know he has a deadline today. He was worried about finding the time to fit it in the analysis of the bloods from sat. So don't worry so I'm sure he'll get back to you ASAP - just probably snowed under!

Fingers crossed for you both xxx

 

[wellsk]

I did email last night, and he replied straight away which surprised me! And said that he'd be in touch tomorrow (today)... So hopefully he'll remember!
Cass, is this what you have to pass to get on to the trial?
I've still got to go back to my GP, both myself and DH
I think that if we did get on, we won't start the trial again until July time, boo!

Thanks space, hope you're doing well

 

[cass86]

That's good to know that he is definitely there this week. I am sure he will come back as soon as he can. I emailed him this morning so I am sure he will. He is really lovely isn't he.

Yes this is it. As long as my AMH is ok I am all set to go ahead. I just hope it is. Getting nervous now. That is a shame that you have to wait but hopefully you can get it all done and then they will accept you.

Space - so are you waiting now to go back and have the eggs put back? Did they talk to you about freezing some of them? Do you know how much this cost ?

Thanks,

 

[spacebunnyx]

Hiya,

Good luck with the AMH result. Tomorrow get the call about how many we have/quality etc and whether transfer will be tomorrow or saturday. REALLY nervous. On my last cycle I had 13 eggs, 10 embies and by day 3 it was apocalyptic and the quality went downhill (grade 3 and only 5 left). The 5 embies perked up a bit by day 5 and we transferred 1 good blast. However on day 3 I was distraught. I'm bracing myself for that. We had none to freeze as the quality wasn't good enough - so haven't a clue about that!!

xxx

 

[cass86]

Wow it is all so nerving. FX for you. It is so hard when you are just waiting for a call. I bet the TWW is a nightmare with IVF. This will be my first try. I really hope it works as I am not entitled to NHS IVF as I have children with my previous partner but my partner now doesn't have any. It is just to expensive to fund privately. Was your last cycle with the trial as well?

I have just heard from Ali and all is well. My AMH is 14.5 which he said is good. So hopefully everything will start now. Just have to wait until next cycle. It is annoying as I am just finishing one now.

Best of luck to you for tomorrow.

 

[wellsk]

I'm glad everything came back okay... hopefully I'll get my email soon too
I'm sorry that you're not entitled on the NHS, it's such a minefield! I think they'll try and find anything to get out of it!

At least it won't be too long for you now

 

[cass86]

Thank you. Yes I am sure he must be going through them all now. I just hope this works. It is going to be a very nervous time.

It really is a postcode lottery with the NHS. I think if I lived in a different part of the country they would have given it to me. It is bad really. Just because I have bad tubes my partner can't have kids.

 

[wellsk]

I can't imagine, it just seems so unfair and cruel. It's like all those 'keyboard warriors' who say 'having children is not a right', but when you look at their facebook or whatever they have several children
I'm not quite sure why those who have no experience over fertility and such matters feel they have the right to make judgement.

I'm lucky where I live (DH and I have no other children), I believe I'm entitled to three rounds of IVF on the NHS. However, at the moment I am too young!

Best of luck and babydust to you... really hope you get your BFP!

 

[spacebunnyx]

great news about the AMH!

My one and only cycle was at Hammersmith and was NHS... let me tell you - being on the trial is WAY better than NHS treatment. It shouldn't be but it is.
We had no more goes as we only get 1 in our area so we were looking at doing a cycle at the Lister (£££) this summer before I heard about the trial.

xxx

 

[cass86]

Wellsk - You are right some people really don't get how hard it is. That is really good that you get 3 tries. What is the age they want you to wait until?

Space - That is really bad that you only get 1. I would have thought that NHS and Private for this sort of thing would have been the same?? That is really bad. We was looking in to paying for it at the end of the year. I just hate that it is not 100% and it costs so much. I would happily pay the £5000 if I new it would work but to see that money just go if it doesn't would be horrible. If this doesn't work though it will be our only option. What was different about the treatment? It's funny isn't it as it is the same hospital.

xxx

 

[wellsk]

I have to wait until I'm 23, which is great in a way, as I'm 23 in October... however I've been having problems with, the only way to describe it as 'age discrimination' and not being put forward for testing or being referred to specialists that I should have been, basically because of my age. And I don't believe for a second that it will change when I'm 23. Although as far as I'm aware, the wait isn't very long for IVF when on the waiting list in this area.

The doctors think that 'I've got plenty of time, and shouldn't worry about it'. But that doesn't help someone who's desperate to start a family and can't! I don't understand what they're waiting for, we know that DH has a problem... it seems like they're waiting for me to develop a problem and then they'll deal with it.


Still no email from Ali

 

[spacebunnyx]

Cass, On the trial you are followed closely with bloods and scans etc, you're first for EC, you get called earlier for updates etc and I got the feeling they checked up on me more and took their time with things such as scans. I don't want to say anything negative about my previous cycle and I know people who had a BFP from Hammersmith with a regular NHS cycle. It's just for us if we were going to fork out the money anyway we wanted it to be the best place possible.

xxx

 

[cass86]

Wellsk - That does seem silly if you are turning 23 soon anyway. Specially if your DH has low SC they should get it all sorted. You should defo see a different dr. I emailed him back straight away and haven't had a response yet so he must be very busy. I just want to know now when I can go for the next part. I know they just have to do a ECG and another blood test. I am trying to limit my time off work so hopefully they can offer me a convenient time.

Space - I see what you mean. Yes if I was going to pay for it I would want a nice private hospital. The price is all the same anyway. Do you know when you would get your BFP? I will be terrible testing early but I know that is not good. It would be really disheartening to see a BFN. I will try and hold out. I just want to get the ball rolling. I hate that I have to wait. I am so impatient lol.

 

[wellsk]

I wish they'd just get on with it, but nope!
DH has a low morphology, rather than a low SC. So there are plenty of them, but most of them are abnormal (99% of them). However the fact that the trial uses ICSI would be absolutely perfect for us as they could find the right sperm, if only I could get accepted!
Because of the bank holiday it's been difficult getting appointments... might try to book tomorrow!

I can imagine it's a nightmare work wise... It would've been perfect if I could've started this month as I would've been primarily free (okay, so I have a dissertation to write! But I would've worked harder given this opportunity!). I don't know how I'll fit it in working

How have you explained it/ intend to explain it to your work?

 

[cass86]

That is quiet bad then 99% they really should be helping more. At least you know that there is something they can do. Hopefully you can get accepted on here.

I haven't said anything yet and not really sure. I don't think I will tell them what it is for. They are very good and understanding so it shouldn't be a problem. It's only because I already have 2 holidays booked this year so haven't actually got much holiday time left. I will find a way though for this.

 

[clefairy]

Hi i am new I have just made an appointment for the trial. I have pcos been trying for 2 years I have a 9 year old son and I am just on my 6th and last round of clomid. Don't think this round will work so hoping I get accepted for the trial

Hi 3wishes! You sound very similar to me, I've got PCOS and just finished my 5th round of clomid. It didn't do anything at all. I am now being referred for IVF on the NHS, just waiting for my appointment to come through. Are you regular or irregular? My appointment for the trial is this Friday, when is yours? x

 

[wellsk]

Good luck with your appointment clefairy and 3wishes! You'll have to let us know how it goes
I finally got an email back from Ali, my AMH was 16.73. Which I've read isn't that great in general considering my age, but is good for IVF.

He said he's going to speak to Dr Carby again about whether she's happy to accept me on the trial, but I think she'll still say no until I've had more tests on the NHS.