The LTTTC thread for everyone.

[peacebaby]

Well done Milty

LL some immune dr's believe that the suppression necessary for fertility only kicks in at 20mg of pred which is why the standard dose is usually 25mg. Having said that non-specialist fertility dr's sometimes prescribe 10mgs. I completely understand why anyone, myself included would be reluctant to take such doses and in fact to take it at all. Doing everything I can to avoid it really, even though I've got the pills.

A prof here (Dr Siobhan Quenby) is doing a study on pred and she found that it can affect ovulation so she changed her protocol so the ladies on her study only start the pred once they have a bfp.

Crystal there is a good thread here called something like "the steroid junkies perfectly unscientific thread" lots of graduates there with happy healthy babies now after doing the immune treatment.

 

[alison29]

Wow milty your dh sure is nice! My dh doesn't do housework or cooking takes care of the pool and yard. SO if i work late I come home and everyone is starving. I will take the cooking and cleaning over the yard work any day although sometimes i do feel like a maid.

 

[LLbean]

well yeah... I was only on 5mgs too... I'm no expert so just repeating what I heard

 

[peacebaby]

Peace- I can only get 20 Clexane injections at a time, its one of the drugs that has to be monitored are you nervous about starting your meds? I'm still nervous with the prednisolone, for obvious reasons I guess the positive is I feel like I'm doing something, I think I'll take your advice and not start steriods in any cycle until right before I O like a day or so. I'm scared it might mess things up for me so I might stick with it in the TWW only, we'll see but for right now that's my plan. We didn't get the opening ceremonies for the paralympics bit sad, they've worked just as hard. Is the guy from SA..bladerunner I think they call him he was in the regular olympics, will he be in the paralympics? I felt so bad when he didn't get to run in the relay

Milty- OMG..you lost your DH? FInd that man he's got a job to do

Crystal, I'm very nervous! DH couldn't believe I have to take the injections daily for the next few months really. I start everything tomorrow with a 3 hour intravenous drip of intralipids. Prednisolone is the one I'm most unhappy about. Ironically, it is the cheapest of all the meds. There are various treatment plans here, my dr says to start the pred before OV, his reasoning being that the environment has got to be clear before the egg is released or else it can affect the maturation & quality of the egg & the immune response must be suppressed before conception. Another dr here starts his patients just 1-2 days after OV but before implantation. A third professor, Dr Quenby starts only after bfp. Who knows? They've all had success with their patients.

Yeah Oscar is "bladerunner". He did get to run the relay because the video showed that the SA runner had been pushed down so they were allowed in the final. He is really awesome, i really hope he does well at the Para's.

 

[peacebaby]

well yeah... I was only on 5mgs too... I'm no expert so just repeating what I heard

I agree with you!

 

[LLbean]

hehehe

 

[Jennifer01]

So anyone seen the latest thread that made you go? I don't want to say too much for fear of starting an online riot but I know the ltttc girls will understand

Oh good grief!!

I would cut off a few toes from each foot to be that blissfully ignorant and confident about my fertility! It must be nice.

Do you guys remember when you had only been ttc for a few months? I was still confident even after my previous experience with primary infertility. Actually, it was about 10 months into this that I started to feel all panicky. I knew what ltttc was about. It's deep, dark, lonely and effing sucks. I had a feeling it was headed in that direction again and that scared the crap out of me.

Alison my son had lice once. He was 3 and I was pregnant with my dd. I found one on him when we were at an amusement park. He was scratching his head saying that these "naughty critters" kept biting him. We stayed in a tent all 4 of us for the next 3 nights. I ended up getting lice too and my mom helped me. Yes.....fun, fun times.

Hi justhoping.

Suki- I love the room. So cute.

Yes!!!! I remember it well! I even remember thinking "well..,I'm not sure I wanna get pg this month or that month because then I can't drink at new years or go to that party blah blah blah" ya no worried there I had many a new years eve FULL of drinks! I didn't even consider medical intervention till I was close to 2 years ttc because I was that confidant! Man those days were bliss!

Ready how are you?

 

[Bravemom]

Peace baby I am really excited ,happy, hopeful about your treatment starting ,everything crossed it works out

 

[Jennifer01]

Crystal you have a nice looking chart !

Milty good work hunting that man down! You should make him wear a bell during O season so you can keep track of him!!

Peace you are my hero doing those injections! I'm so sorry you have to do all this but of course it will be worth it in the end. My dd is in the process of seeing a rheumatologist for suspected autoimmune disorder. We have been to specialists for the last couple years and different weird things keep coming up. It's very stressful, and so hard to diagnose. Bigto all the ladies that are dealing with that!

Hello everyone I am enjoying my last few days off, by enjoying I mean laying on the couch watching trash tv Actually looking forward to fall-summer is my favorite season but it has been so freaking hot here that it will be nice to cool down a bit. Plus I am lucky enough to live in a part of the world that looks gorgeous in the fall! Damn I'm getting corny in my old age

 

[peacebaby]

Bmom thank you I'm not expecting much to be honest. I think it will be a long time before my body is in a healthy, happy state.

Jen, how are you feeling? Tiredness kick in yet? I feel for your DD but at least you've got the ball rolling because yes, it is so difficult to diagnose. What symptoms is she getting? I love fall/autumn too but in England the colder months go on forever so it gets too much. I'll take the heat anyday.

I've been meaning to ask, you said you'd bash your head on the toilet seat if you got two lines, so how bad did it hurt

 

[Milty]

Crystal I know your only 7DPO but I think you need to test

 

[crystal443]

Morning ladies

Jen- thanks but FF has changed O day a few times so I might only be 5DPO so we'll see I remember having the testing done when I was 12 and I was so so lucky it got picked up right away. We were first told it was most likely rhuematiod arhtritis or lupus because of my joints swelling and skin rashes but it wasn't Autoimmune disease is so hard to diagnose but once you get the diagnosis life becomes much much easier

Peace- The last IVF cycle I had was when steriods were used but stopped when nothing fertilised I still think that helped me out to get pregnant with DHEA that first BFP I think what I might do is take 15mg before I O and then I'll up it when I O and try that because FS seemed to think the eggs/ovaries were being hit I have one piece of advice when you start your steriods though.....DOn't take them in the evening because you won't sleep I was awake until 2 am last night, I took the last pill at 10 pm, I've noticed I haven't been sleeping well and last night confirmed it I haven't puffed up at all and my weight is still coming down, I think the extra energy helps with that

Liz- Good morning How are you today?

Alison- Your DH and my DH sound very similiar

Bmom- good morning

Milty-Glad you found him do you think you O'd yet?

 

[crystal443]

Milty- would it even show up?

 

[peacebaby]

Crystal I think you're doing it right and its best to follow your dr. The only thing to watch is whether it affects ov in the long run, over a few cycles. Just be aware of it and observe any changes. Oh yes, I know about the sleepless nights, my friend suffered badly with that. I was told to take everything first thing in the morning. Lucky you no pred moonface Well done with your weight loss plan,it's working well for you! I'm exercising loads more, but the scale hasn't come down yet

Everyone's excited about your temps this cycle, sounding great!

 

[peacebaby]

Wow even to my totally inapt eye your chart looks good! Looks like you started pred at a good time 4dpo. Fingers crossed

 

[crystal443]

yeah its still early lots of time for temps to drop that's for sure see how it goes

 

[Jennifer01]

Bmom thank you I'm not expecting much to be honest. I think it will be a long time before my body is in a healthy, happy state.

Jen, how are you feeling? Tiredness kick in yet? I feel for your DD but at least you've got the ball rolling because yes, it is so difficult to diagnose. What symptoms is she getting? I love fall/autumn too but in England the colder months go on forever so it gets too much. I'll take the heat anyday.

I've been meaning to ask, you said you'd bash your head on the toilet seat if you got two lines, so how bad did it hurt

I know I can't believe still that I don't have a concussion! I did zombie walk over to DH and hand him the test while I just kind of stood there gaping!!

So, for about 2 years now dd has been sick alot. There are days she is too tired and achy to get out of bed. She was diagnosed with anemia but the iron was not a fix all. Then she went to a kidney specialist because she had protein in her urine, to be told she is fine but they hear something weird in her arteries that they can't identify. She was also sent to a heart specialist after weird heart sounds that she was cleared from after extensive testing. Really it's been a bit exhausting, and she gets frustrated. It's the never knowing if you will wake up able to function or not. At the beginning of it all she was losing her hair in a couple spots also, that has since resolved itself. First doctor said she is just depressed-dd said "of course I'm depressed wouldn't you be if you felt like crap half the time?!". Now we are waiting for the specialist, have been waiting a while and I'm sure we will wait longer! Luckily she has had a pretty good summer and has felt well 75% of the time. I don't know how you guys do it, it is just awful to watch never mind to feel!

 

[crystal443]

Wow even to my totally inapt eye your chart looks good! Looks like you started pred at a good time 4dpo. Fingers crossed

I hope so!!

 

[Jennifer01]

Morning ladies

Jen- thanks but FF has changed O day a few times so I might only be 5DPO so we'll see I remember having the testing done when I was 12 and I was so so lucky it got picked up right away. We were first told it was most likely rhuematiod arhtritis or lupus because of my joints swelling and skin rashes but it wasn't Autoimmune disease is so hard to diagnose but once you get the diagnosis life becomes much much easier

Peace- The last IVF cycle I had was when steriods were used but stopped when nothing fertilised I still think that helped me out to get pregnant with DHEA that first BFP I think what I might do is take 15mg before I O and then I'll up it when I O and try that because FS seemed to think the eggs/ovaries were being hit I have one piece of advice when you start your steriods though.....DOn't take them in the evening because you won't sleep I was awake until 2 am last night, I took the last pill at 10 pm, I've noticed I haven't been sleeping well and last night confirmed it I haven't puffed up at all and my weight is still coming down, I think the extra energy helps with that

Liz- Good morning How are you today?

Alison- Your DH and my DH sound very similiar

Bmom- good morning

Milty-Glad you found him do you think you O'd yet?

Thanks crystal I hope you're right! It's been a tough haul for the poor kid!!
I'm interested to see what happens with that chart!

 

[crystal443]

Jen- I feel for your DD its hard especially at that age, I test + for wierd things when I have a relapse last time I tested + for ecoli but I've tested positive for hep, and TB noneof which I have or had by the way None of my vaccines worked and i've had whooping cough, measles, mumps, etc. when I was a child

Autoimmune is a strange disease to have because anything can happen at time but my best advice is to take her to the doctor everytime she gets sick, one of these times something will show upMy kidneys were the first thing to act up along with a bruise like rash and joint swelling, common autoimmune response

I really hope she feels better because it can be depressing and hard to treat at times, I think as we get older we accept it more but being young is a tough one Tell her to hang in there