Twin 2 with hydrops

Discussion in 'Twins, Triplets & Multiples' started by megamummy, Jun 1, 2011.

  1. megamummy

    megamummy mum to 5

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    Hiya ladies, Im expecting non id twin boys in september. We had our 20 week scan 2 weeks ago and had some horrible scary news. Twin 1 was perfectly healthy but twin 2 was really poorly. He had hydrops, which is basically fluid around his organs and under his skin. I got referred to a hospital in liverpool to be seen by a specialist. She told us our baby was severely anamic which was causing the build up of fluid. Because they were twins we were told decisions were going to effect both of them and I could lose them. She said he urgently needed a blood transfusion to live but would involve invasive surgery by piercing his sac and drawing out amniotic fluid (amniocentesis to test for chromosone disorders which can often cause the problem) and to transfuse him through his cord. She said she "thought" but wasnt definate that I had contracted parvo virus (slapped cheek syndrome) and this had caused his problems. This meant it wouldnt be a lasting problem once fixed but had made my baby seriously ill. She also said that there was a risk to twin 1 as it was very invasive. We pondered for ages then I asked what the success rate on it was and she said "ive done it on triplets before and they were born healthy". That was it, we decided to go for it. We had to wait a day as they had to order the blood from manchester but he survived the night. We had the procedure done 2 days after the 20 week scan and we just had to wait. I was in hospital for a week on bedrest too. Anyways, went for a check up yesterday to see if he needed another transfusion and the consultant said we had a miracle baby as the problem was near enough resolved. I cant believe that 2 weeks ago we were being told to prepare for the worst and now our baby is near enough better. Thought id share and ask if anyone has heard of/experienced this problem before as id never heard of it and its quite common!!! xxxx:baby::baby:
     
  2. lizziedripping

    lizziedripping Well-Known Member

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    Sorry for your very traumatic few weeks hun, but thank you for sharing such an inspirational and wonderful story of courage and strength - I am tearful as I type this message :cry:

    I have never heard of this, but know that slapped cheek can cause problems in pregnancy. You are all so brave, and your LO already very, very special. Good luck and I sincerely hope everything is plain sailing for you all from now on :happydance: xxx
     
  3. megamummy

    megamummy mum to 5

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    Thankyou, is very emotional still. Slowest 2 weeks of our lives xx
     
  4. chetnaz

    chetnaz Have 3 boys + girl on way

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    So glad to hear you and your babies are fine hun. I've never heard of this before. One of my twins had slapped cheek syndrome a few weeks ago and I was given some cream for it and when I asked the doctor if it was serious he said no, so I'm really shocked by how it's affected your unborn baby.
     
  5. knitbit

    knitbit Well-Known Member

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    So glad things are looking better. I have blood antibodies to the babies' blood and if the concentration goes up it could cause something similar. Transfusions are scary and I am relieved for you that it worked. Huge hugs.
     
  6. Mea

    Mea Mum to 3 miracles.

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    So glad to hear your little ones are both okay I can't imagine what you have been through. Fingers crossed the rest of your pregnancy runs smoothly now and you can enjoy being pregnant with your little miracles.
     
  7. BlessedX2

    BlessedX2 Well-Known Member

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    I cannot imagine how tough it must have been for you. Soo happy for you that LO is doing better. Hope they both stay healthy. :hugs:
     

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