I'm now home but with no babies after 2.5 weeks in the hospital. I was discharged Saturday evening but I was actually not ready to come home just yet.
So to recap - Baby A's water broke Monday morning at around 1:30 AM. The doctors were hoping that the antibiotics would put off labor for at least one week if not many more. Unfortunately it didn't happen that way. Almost exactly 48 hours later true contraction started and this time it couldn't be stopped. They were monitoring me closely and then the doctors came in and told me that Baby A wasn't tolerating the contractions well and her heart rate was dropping. I would need an emergency C Section immediately to get her out.
I was then wheeled to the delivery room where I was so scared that my entire body wouldn't stop shaking. My worst nightmare had come true. There I was, at exactly 24 weeks on the dot, going to deliver my babies.
What happened in the next 24 hours was a blur. There must have been at least 10 doctors that came to talk to me after I came to, but I was still so heavily sedated and extremely exhausted to comprehend anything they were telling me. Most of the details were filled in by DH just recently.
My babies were born at 4:05 AM on June 3rd. Both babies were taken to NICU immediately. We named Baby A Paige and Baby B Kyle. Paige was significantly smaller than Kyle at a little over 500 grams whereas Kyle weighed in at 920 grams.
Apparently Paige was very under developed and had a lot of bruising from both my contractions and the birthing process. Her heart rate was initially only 60 but they were able to bring it up to 90 (still extremely slow). She was also unable to keep oxygen in. At one point I thought one of the doctors came in and told us that she was doing better. However, 10 hours after she was born, we were told that Paige was dying and it wouldn't be fair to keep her going like that and we had to let her go. They brought her into my room and we got to hold her for a little while before she died in my arms.
Kyle was doing very well the first three days. They were able to ween his oxygen level down to 24-26% and thought they could take him off of his ventilator and put him on a bubble CPAP instead. That was a big mistake. He didn't like the transition and they had to put him back on his ventilator. The process really stressed him out and he ended up needing more help than before. Then around midnight last night I noticed that he was moving his arms and legs like crazy. It was cute for the first 5 minutes but then I saw that he was still doing it 5 hours later I knew something wasn't right. We still don't know if it was seizures or he's just aggitated from being on several additional machines but he's now also on a pain medication to see if it would help. Then this afternoon we were told by the nurse that the doctor wanted to talk to us about the head ultrasound they did last night. I immediately knew it was bad news if the nurse couldn't fill us in himself (the nurses always gave us a complete update every time we go in). Kyle had a Grade IV brain bleed in his left brain. They aren't sure about his right brain but it was most likely at least a Grade III on the right.
We were told that he will probably have some type of cerebral palsy when he gets older and most likely will have delays as well. They told us some families would decide not to continue aggressive treatments if the baby's quality of life is compromised like that. It sounds like he might never be a normal kid but how can we give up on him?
He seems to be a little better tonight. The nurse put him on his side when we were there earlier and he's now barely moving around anymore. We also watched the nurse change his diaper for the first time. It was pretty cool to see such tiny diaper being put on. I wish it was me who was changing the diaper though. He also opened his eyes for the first time yesterday and I was able to give him a little swab of breastmilk on his mouth. Trivial things like that I'm sure most people take for granted are now highlights of my day.
Sorry for the late update. It was too painful to write down everything that happened because it was like re-living the nightmare all over again. I still can't believe I lost my little girl. She was so perfect at every single check up. I can't believe she's gone. There's no more movements, no more checking on her heart tones. I thought I would come home with either two babies still in my belly, or two babies in my arms. Instead I'm now home with no babies. It's incredibly hard.
Please pray for my little Kyle to get through this. I have to focus all my positive energy on him now.