Another suspected Autism post.. Please reply

ashley_gee89

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So my son will be 3 in November. I'll be totally honest, I've always thought my son was different, but he was my first born & I figured he was just like his Daddy. However, 3 months ago, my husband was diagnosed with high functioning Autism, so this got me thinking.

When Kyle was younger he used to bang his head off his cot a lot, I'd go in, make sure he was ok & within 10mins he'd be doing it again.. He'd do it most of the night. When he got moved into a big bed, he sat in the corner of the room and bashed his head off the wall instead. Luckily, he has stopped this.

Kyle won't play with other kids, he seems to be in his own wee world most of the time. He still wears a bib now, he slavers something terrible! He never looks at people in the face unless specifically (literally) asked to, for example if I want him to look at me I HAVE to say "Kyle, look at mummy". He goes mental at hand dryers, hoovers, anything that makes a lot of noise. He was slow to walk, 17 months, slow to talk, we got about 4 words out of him until he was about 23 months, even now, I think his speech is behind, no full sentences, it's "juice" for a drink not like my friends kid who says "drink please mummy" or "can i have a drink". He sits for ages engrossed in lining things up, usually blocks or cars and if I touch one he will say "oh no", put it back and if I do it again he will throw all the cars/blocks away and throw himself on the floor. He doesn't seem to like playing with anyone, sure my husband can throw him about etc and he loves it, but you can't play with him with his toys because you don't play the way HE wants you to play. He refuses to eat "messy" food (I say refuse, he doesn't communicate that with me, he just doesn't eat it) and gets very upset if he has dirty hands yet hates me cleaning his face with a baby wipe or whatever.

For a while I thought he was extremely ignorant and scolded him for not listening to me/family, I think now that that's just another sign of him having Autism, you can repeat his name up to 10 times and he will still not look at you, or even acknowledge that you're talking to him, I have to literally go up to him and as said earlier say Kyle look at mummy, he will then look at me & I can then tell him what I want to say.

I want to know what others think.. Sure I'm his mum, I know him best but I don't know much about Autism so I would like your opinion. I have my Health Visitor coming out on Monday afternoon to assess him but that's 6 days away and I can think of nothing else. Please reply, any thoughts are much appreciated. Also, sorry this is a book!
 
He sounds a lot like my son. I would say it certainly sounds like autism. I have a 6 1/2 year old son, who was dx with "classic autism" just after his 3rd birthday.
 
Have him assessed. Speech, OT...he is quite young too...and lots sounds normal, but if you are concerned...ask to see a developmental pediatrician
 
I took these videos this morning.. I'm terrible at explaining things so maybe this will help ?

https://www.youtube.com/watch?v=lCeBxGBzuhM&feature=plcp
https://www.youtube.com/watch?v=RLXJZYRXw3k&feature=plcp
https://www.youtube.com/watch?v=z0lMhHDRCvg&feature=plcp
 
My son is very similar to yours in the videos! It also takes quite a bit of work to get him to notice that someone is trying to get his attention. He has been seen by a dev.ped. since about 18 months due to GDD (gross developmental delay). He was very late with most of these skills, but only a little late with walking. He hasn't been diagnosed with anything else though. Our kids are almost the same age and it's been getting difficult with my son now that my daughter can get at his things and move them around!

I would definitely get your son assessed if you are concerned. xx
 
WoW! Yeah I would certainly get the evaluation done asap. He has a lot of the markers for autism. The evaluation takes about 3 hrs. When my son had his done, they told me the same day he was going to get an ASD dx. But I didn't get the paperwork with the exact classification of autism for about 3 weeks.
 
Well my hv is coming on Monday and from all the research I've done, friends with autistic children I've spoken to ad the videos I've watched on YouTube I think his diagnosis is a mere formality. I've already started trying to play wih him in a different way to try and keep him calm and so far it's working. Does anyone know what the chances are of my daughter having it? She's only 6 months so I haven't noticed anything I was just curious
 
Really depends on if there is a genetic link or not. If not her risk is only slightly higher than anyone else. Plus it's less common in girls.
 
I would say there was a genetic link. From the research I have done, if autism in girls is left undiagnosed and untreated it can develop into mental illnesses such as psychosis and schizophrenia. My husbands mum has schizophrenia but from the info his grandparents have given me, she sounded more autistic as a child tbh. My husbands grandparents noticed with both their daughter and my husband that as children they just weren't right (his grandparents brought him up due to his mum's inability to) yet admit that they didn't have them diagnosed because they would have just put them on pills. They are two of the nicest people you have ever met but I can't help but feel a bit angry at them, my husband could have been so much better than he is had they bothered to get him checked out, instead he got himself help at 23 and it took over a year to diagnose, also my daughter is the first girl to be born since my husbands mum. So yeah, I think there's a genetic link there.

Sorry for the book lol, venting
 
They should offer genetic testing when he gets his dx. There are certain chromosome abnormality's that are known markers for autism. if they don't have them than it's considered unexplained autism. (which is most cases) My son had the testing done, and was a chromosomely normal little boy. So they can give no explanation as to why he has it. It is sad when parents/caretakers don't want to do what they can to help their children. It's good that your hubby took it upon himself to get checked out. When you speak with the genetic specialist they should be able to give you a reoccurence risk for your exact situation.
 
So my son will be 3 in November. I'll be totally honest, I've always thought my son was different, but he was my first born & I figured he was just like his Daddy. However, 3 months ago, my husband was diagnosed with high functioning Autism, so this got me thinking.

When Kyle was younger he used to bang his head off his cot a lot, I'd go in, make sure he was ok & within 10mins he'd be doing it again.. He'd do it most of the night. When he got moved into a big bed, he sat in the corner of the room and bashed his head off the wall instead. Luckily, he has stopped this.

Kyle won't play with other kids, he seems to be in his own wee world most of the time. He still wears a bib now, he slavers something terrible! He never looks at people in the face unless specifically (literally) asked to, for example if I want him to look at me I HAVE to say "Kyle, look at mummy". He goes mental at hand dryers, hoovers, anything that makes a lot of noise. He was slow to walk, 17 months, slow to talk, we got about 4 words out of him until he was about 23 months, even now, I think his speech is behind, no full sentences, it's "juice" for a drink not like my friends kid who says "drink please mummy" or "can i have a drink". He sits for ages engrossed in lining things up, usually blocks or cars and if I touch one he will say "oh no", put it back and if I do it again he will throw all the cars/blocks away and throw himself on the floor. He doesn't seem to like playing with anyone, sure my husband can throw him about etc and he loves it, but you can't play with him with his toys because you don't play the way HE wants you to play. He refuses to eat "messy" food (I say refuse, he doesn't communicate that with me, he just doesn't eat it) and gets very upset if he has dirty hands yet hates me cleaning his face with a baby wipe or whatever.

For a while I thought he was extremely ignorant and scolded him for not listening to me/family, I think now that that's just another sign of him having Autism, you can repeat his name up to 10 times and he will still not look at you, or even acknowledge that you're talking to him, I have to literally go up to him and as said earlier say Kyle look at mummy, he will then look at me & I can then tell him what I want to say.

I want to know what others think.. Sure I'm his mum, I know him best but I don't know much about Autism so I would like your opinion. I have my Health Visitor coming out on Monday afternoon to assess him but that's 6 days away and I can think of nothing else. Please reply, any thoughts are much appreciated. Also, sorry this is a book!

My god I cannot tell you how much similarities he has to my DD! She is nearly 6! The dribbling stopped only at 4, she didn't walk until 21 months, she likes to line things up, throws things, was only one worded in sppech for a long time I.e. Buggy, doesn't like loud noises! My dd hasn't been diagnosed yet, she has a special needs statement and will be attenting a special needs school in september, she is currently seeing genetic clinician to see if they can get her a diagnosis! They do say she has autistic traits though! I really hope kyle gets the help he needs, remember to keep pushing for help, on Aaliyahs SEN statement it says she got referred Feb 08, she got her statement July 12! So you can see things take a long time, so keep pushing for appointments! Hope things go okay xx
 
Wow, I hope this doesn't take that long! He's getting worse by the day, today alone I've had a toy car thrown at my head, he's hit me twice and headbutted me when I grabbed his hands to stop him hitting me.. I'm so so stressed out with him & it's doing none of us any good.. I dunno how to handle it, I really don't :(

Just a wee update too.

The health visitor came out on Monday. Kyle came to the door with me & as soon as she entered, threw himself on the floor. It's pretty much safe to say she saw exactly what I meant the minute she walked in the door. She was here for about an hr and in that hour, Kyle showed almost every symptom that I was telling her about, he was NOT happy she was there (new person I guess).

So she's referred him to the doctor (not sure what kinda doc LOL) - but she said that may take a couple of mnths so in the mean time she's referring him to a speech therapist, a special needs early years teacher (I guess even high functioning autism would come under "special needs"?) and also a general support person, to which I think they will all come to the house as she said she was going to recommend to the doc that she come out to do an assessment as she thought they wouldn't really get much at a doctors office, which makes sense because he just screams in there LOL.
 
Hi, Thanks for sharing vids. My son was diagnosed at 5 but it was a long process and I knew he had autism when he was about 2. He is now 8 (eeek) feel free to PM me x
 
Wow, I hope this doesn't take that long! He's getting worse by the day, today alone I've had a toy car thrown at my head, he's hit me twice and headbutted me when I grabbed his hands to stop him hitting me.. I'm so so stressed out with him & it's doing none of us any good.. I dunno how to handle it, I really don't :(

Just a wee update too.

The health visitor came out on Monday. Kyle came to the door with me & as soon as she entered, threw himself on the floor. It's pretty much safe to say she saw exactly what I meant the minute she walked in the door. She was here for about an hr and in that hour, Kyle showed almost every symptom that I was telling her about, he was NOT happy she was there (new person I guess).

So she's referred him to the doctor (not sure what kinda doc LOL) - but she said that may take a couple of mnths so in the mean time she's referring him to a speech therapist, a special needs early years teacher (I guess even high functioning autism would come under "special needs"?) and also a general support person, to which I think they will all come to the house as she said she was going to recommend to the doc that she come out to do an assessment as she thought they wouldn't really get much at a doctors office, which makes sense because he just screams in there LOL.

Its hard work hun, many a time ive sat there in tears so stressed out but we are the supermummies :) we soon get ourselves together and carry on. If we didnt who would? Although i do feel guilty at times when i feel like i resent her as i cant do anything with her without her ruining it, unintentionally most probably but i know she is sneaky and sometimes knows how to play me lol.

Is he going through a bad phase atm? he sounds more hard work than my dd but she too can be a super handful, usually only with me and people close to her though, yesterday a lady came out to sort our transport for her special needs school in sept and she didnt make a noise, she was so shy.

So glad that hes getting some help now though, just keep pushing them! And my daughter hasnt got a diagnosis and is classed as special needs so autism. Keep me posted on how things go for you xxx
:hugs:
 
I teach older HS age kids with Autism/Asperger's, early diagnosis helps.
 
God bless parents with kids that have Autism or Asperger's, not easy to deal with
 
I have no personal experience but everything you have described sounds strongly like the autism traits I have read about.good luck with his assessment.x
 
Thanks !!

It's good to know I'm not alone, he is going through a bad phase atm, he's whingy all day everyday at the min, I have to leave the room a few times a day to calm myself down, the stress is overwhelming sometimes.

Just a waiting game now I guess but I know it isn't a quick process, which is good, I don't want him "labelled" if he doesn't have it but it's positively doing my head in, I need to know but as long as he's some support in the mean time I don't mind!

It's not just children that are hard work with Autism, my husband has it too! - He's like a child because of it lol. But I love my family to bits, Autism or no Autism I wouldn't change a thing.
 

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