Hi everyone. Sorry to keep you waiting. I didn't mean to. This week has been rough for me. I'll cut to the chase...went to my ob/gyn on Monday for the scan and baby was all balled up and the tech (same one) started with her head and stopped and said "I'm gonna go get the dr. Baby is in a difficult position." and walked out of the room. Meanwhile I tried turning onto my side to get her to unball herself but that didn't work. Then the dr came in and took one look at the screen and said we have a problem and I am concerned. He pointed out the darkness and said that is fluid and there is more of it than I'm comfortable with. I'm not sure what it is or if we have a condition here that is incompatible with life but I'm sending you right now across town to the perinatologist and he will work you in and find out what is going on and then pretty much left the room leaving both DH and I in shock and me distraught and in tears. So he calls the peri who says he will get me right in and sends us over there. So we get there and we sit in the waiting room while I'm in shock and fighting back tears. They finally call us back about 30 minutes later and have me on the table scanning me. Thankfully we see much more brain than in the scan at my ob but the baby was still curled up in a ball at this time. However she was moving and wiggling and moving her hands and arms and such. They looked her over closely head to toe (at one point she hid one of her legs up under her but we finally got her to free that leg so they could make sure that was ok). After what seemed to take forever the dr came in and looked and said that the lateral ventricles in her brain were dilated to 15mm and 17 mm and that the baby has hydrocephalus.
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He tells us we don't really know the extent yet so we cant make an accurate prognosis just yet. First he said we can terminate if we want to. I told him no, I'm a christian and I am pro life. That is NOT an option! Then he tried to push to do an amniocentesis but after that he realized we did the first tri screen which came up clear he wound up pretty much saying the amnio wasn't needed but he did want us to have a fetal mri done. So that is booked for next Tue evening. In the meantime as you can imagine, I've been busy researching and learning all that I can about this and want to know what I'm looking at, what the very best treatment options are so we can give our baby girl the best start in life possible and we want to make her first hours in the world as easy for her as possible since she will likely have enough to overcome to begin with as it is. But I AM encouraged by what I've been reading that other babies with worse measurements than mine have done better after birth than predicted and after having shunts put in and cord blood infusions that these kids are living pretty much normal lives and are doing beautifully and even ahead of their peers on milestones and intellect.
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So now at this point we wait for MRI results and pray that this does not worsen between now and 36 weeks (which is when they will likely deliver her by c-section). If it doesn't worsen then she will be stable and her prognosis improves even more. So we will see but it's been a tough emotional week and my feelings aren't even for me really. They are mostly being heartbroken, concerned and worried for my daughter's health and long term well being and happiness and abilities and her own feelings about things she might or might not be able to do like her peers so my feelings are more me being her Mommy and feeling very protective of her and wanting her to be able to be healthy and happy. I do know that no matter what she looks like at birth (including if she has a big head) that she will still be perfect and beautiful to me and I will love her no less for it!
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So I ask that you all please keep her in your thoughts and prayers on Tuesday that the MRI goes well, they are able to get the images they need and that we get good news from them that the dilation is smaller than what it seemed to be on ultrasound (which I have read has happened with the cases I read about). So I feel hopeful but at the same time guarded and fearful. Sigh. And I have another ultrasound to check on her in 4 weeks. OH! Good news is that I'm finally feeling her move and kick everyday a few times a day. It's mostly in the evening/early night when I lay on my back but a couple times when on my side so that's a good sign too.
That's about it for now since I've written you all a book.
StillP, so glad baby was ok after your fall! I hope your back feels better and heals quickly.
Button, yay for halfway and good luck with DS.
Akn, that sounds wonderful!
Ummi, I hope your appt goes well and you get to see baby on scan soon and that all is perfect!
Mowat, oh no! I am so thankful that my dr's office always gets us in and out usually in about 45 mins time, total. Poor you having to wait till Monday but hopefully will be worth it!