Blood clotting disorder.

[kayleigh89]

Hey all i lost my Angel in May at 24-25 weeks due to my blood clotting to much in and out of pregnancy,I couldnt have no further investigations done as i fell pregnant as i got told either way i would be put on asprin and clexane.

Is there anyone out there that suffers from this aswell?

What more scans,appointments do they do throughout pregnancy?

Thanks xxx

 

[fluffyblue]

Hi hun,

I had 5 miscarriages before I got pregnant with Ollie - during the testing i was diagnosed with APS - Antiphosphilid (sp) Syndrome aka sticky blood, simple rational, the cord has two channels one up one down and the blood wasnt flowing well between the two hence the clots and blood not reaching baby.

So I was put on aspirin till 36 weeks and daily injections of clexane from BFP to 6 weeks after my section and hey presto Ollie is now a very healthy 10 month old.

The injections are hard work but you do get used to it.

Good luck hope it works for you xxx

 

[mtnprotracy]

Diagnosis is the key, and it sounds as though you have been diagnosed. So, you're pregnant now? If so, I'd think the doctors would have already prescribed the baby aspirin and a blood thinner--I did heparin injections. With proper treatment, as fluffyblue stated, you can have healthy pregnancies .

Good Luck!

 

[Justkeeptryin]

Hi, Ive suffered two miscarriages this year and blood tests have revealed that clotting is my problem too. For my next pregnancy I will be on low dose apsirin, heparin injections and also progesterone to support the pregnancy.
My first miscarriage was very early at 5 weeks, the second time around I was taking low dose aspirin and it got me to 9 weeks with a heartbeat but it obviously wasnt enough to thin my blood.
The encouraging thing is the amount of success stories that Ive read when people start the injections. It seems a bit scary to me the thought of injecting but Im willing to do anything.
Good luck x

 

[Justkeeptryin]

Hi hun,

I had 5 miscarriages before I got pregnant with Ollie - during the testing i was diagnosed with APS - Antiphosphilid (sp) Syndrome aka sticky blood, simple rational, the cord has two channels one up one down and the blood wasnt flowing well between the two hence the clots and blood not reaching baby.

So I was put on aspirin till 36 weeks and daily injections of clexane from BFP to 6 weeks after my section and hey presto Ollie is now a very healthy 10 month old.

The injections are hard work but you do get used to it.

Good luck hope it works for you xxx

Hi, your story is really encouraging that after 5 miscarriages you had success with the injections, that is brilliant x

 

[kayleigh89]

Hi hun,

I had 5 miscarriages before I got pregnant with Ollie - during the testing i was diagnosed with APS - Antiphosphilid (sp) Syndrome aka sticky blood, simple rational, the cord has two channels one up one down and the blood wasnt flowing well between the two hence the clots and blood not reaching baby.

So I was put on aspirin till 36 weeks and daily injections of clexane from BFP to 6 weeks after my section and hey presto Ollie is now a very healthy 10 month old.

The injections are hard work but you do get used to it.

Good luck hope it works for you xxx

Thanks chick,yeh the injections are going okay thanks x

 

[kayleigh89]

Diagnosis is the key, and it sounds as though you have been diagnosed. So, you're pregnant now? If so, I'd think the doctors would have already prescribed the baby aspirin and a blood thinner--I did heparin injections. With proper treatment, as fluffyblue stated, you can have healthy pregnancies .

Good Luck!

Yeh im pregnant now,an ye ive been on apsirin since bfp also injections....no i didnt get diagnosed with it lols they just said when my angel had a post mortem that i lost him due to growth restriction,and they found my blood clots to much.....but i didnt get diagnosed as i tried for my rainbow

 

[Melissa123]

Hi, I lost my son at 23 weeks 4 days due to clotting also, however I also had PE and HELLP syndrome. I'm currently on aspirin & 5mg folic acid. I start clexane this Friday. So far I've had 1 scan, my next is this fri, I will be having an app with my consultant early December to outline my careplan, will be having the 12-13 week scan a week or so later. I've been told that from 20 weeks I will be scanned every 2 weeks & apps every week to check for growth and the health of the placenta. Xx

 

[kat2504]

I'm another one on the injections and the aspirin after two miscarriages. Like you, I conceived before they had finished their investigations so they decided to treat me anyway. Have got to 20 weeks now on the injections which is better than I have done before.

I will have three extra scans (24, 28 and 32 weeks) and fortnightly blood pressure checks and probably two more consultant appointments. Hopefully that will be it unless there are any problems.

 

[kayleigh89]

I'm another one on the injections and the aspirin after two miscarriages. Like you, I conceived before they had finished their investigations so they decided to treat me anyway. Have got to 20 weeks now on the injections which is better than I have done before.

I will have three extra scans (24, 28 and 32 weeks) and fortnightly blood pressure checks and probably two more consultant appointments. Hopefully that will be it unless there are any problems.

Ah hopefully they do the same for me to hunni,i know that ive got my consultant apptmnt in January as i just turn 22 weeks,there going to investigate more after bubs is here hopefully i will get a diagnose for what im suffering with,Good luck hunnie.

How you feeling so far? xx

 

[beckyfletcher]

Hi ladies i have 2 sons n 4 angels n recently been diagnosed with APS. Am awaiting consultant appointment but my understand ding from the nurse is I will be on baby aspirin n injections when pg. just hoping apt comes through quickly xx

 

[Angelkissiz]

Hi, I am on baby number 3, with my last pregnancy I developed an ovarian vein thrombosis, and I fell pregnant again soon after,I found a Dr. who sent me to a specialist, I am now on a baby aspirin a day and 5000ml heparin 2 times daily.. my dr. fired me as a patient,for being high risk,so I am going to be seeing fetal maternal medicine, and having growth scans every 3 weeks!!