Cystic hygroma and CVS....waiting for results

[lizlemon]

Just to say my little girl arrived yesterday safe and sound. She was in nicu but got move to Hdu and hopefully will be in a bay with me today as she's doing really well. Thank you for all your support over the last 12 weeks xxx

 

[gigglebox]

Congratulations!!! Pictures when you can

 

[Xuxa]

lizlemon - Congratulations!!!!!!!!!!!!! Can't wait to see one photos!! I am so so so happy for you...
Last stretch for me. Looking forward to meeting this little guy.

How is everyone?

 

[christineliza]

lizlemon - Congratulations!!!!!!!!!!!!! Can't wait to see one photos!! I am so so so happy for you...
Last stretch for me. Looking forward to meeting this little guy.

How is everyone?

Hi everyone,

I know I am a little late to joining this thread, I am 30 years old (31 on Oct 20th) in my first unplanned pregnancy with my partner (unmarried, not engaged, had just been seeing one another about 5 months and I
was on the pill and didn't think I could even have children due to some other condition I have, so this truly was a shock, and to me
A little miracle baby) and I am now 12 weeks along. About a week ago, I found out my little one had a 6.4 cf measurement. A MFM picked it up because my rheumatologist who treats me for my other condition suggested I see one because I am high risk due to my autoimmune problem (which is currently in remission). I had a CVS done on Wednesday, which came back negative as of yesterday, and am waiting on the two week result. Everything else looks fine as of the last scan where they caught it. He is currently almost done with Med school (not obgyn or MFM), and thinks I should abort because "this baby could still very well be very sick and we haven't known each other that long", oh and even though he won't say it, I know it is partly due to the fact that he will be doing his residency next June and would be absent for a while and miss a bit of the beginning of the baby's life. Financially, if
The baby is healthy or has no major problems, I have the means to care for it without any help from
him, and to make things wors, after I got this first round of positive news today, he started sending me some kind of Brazilian medical journal article that made the situation feel so grim that I barely slept last night. I have told him over and over that I am just not ready to let go YET, if I did find there was something horribly wrong, I most likely would terminate. But the pressure and stress alone from him is driving me mad. I keep telling him, I just need a little more time, and it's like I'm talking to a wall. Anyone who reads this, any words of encouragement would really help right now, I'm in tears as I write this. Thanks so much for listening, xoxo

 

[gigglebox]

The cvs testing is the biggest hurdle, in all the cases i've read. Once that's clear, a better outcome can certainly be expected. The statistics on this condition are horribly skewed. When the calculate how manybabies have an "adverse outcome", they include all women who blindly terminate by recommendation of family or doctors.

Keep hope. It sounds to me like your boyfriend just isn't ready for a child. I think you should consider losing him, not the baby. Think really hard about what you yourself want to do and if you are up for single motherhood, and let that be your decision.

 

[gigglebox]

This thread helped me a lot when i was pregnant: https://community.babycenter.com/po..._success_stories_for_all_those_that_need_hope

Hope that gives you some hope

 

[christineliza]

The cvs testing is the biggest hurdle, in all the cases i've read. Once that's clear, a better outcome can certainly be expected. The statistics on this condition are horribly skewed. When the calculate how manybabies have an "adverse outcome", they include all women who blindly terminate by recommendation of family or doctors.

Keep hope. It sounds to me like your boyfriend just isn't ready for a child. I think you should consider losing him, not the baby. Think really hard about what you yourself want to do and if you are up for single motherhood, and let that be your decision.

Thank you so much for your kind words. I was over the moon when I found out, and he has been nothing but negative and unsupportive. I couldn't believe he had the nerve to send me such a grim article from a medical journal to "remind me" that this baby still has a long way to go in terms of its health because of the rare condition. I was able to enjoy that phone call with the negative result for oh about two hours before receiving that text with the link from him. I am completely aware that I am in no means completely out of the woods, but that was just cruel. I don't need him, nor does my baby need the stress he is putting on the both of us. I have not asked him for one thing except to help me pack some boxes because I just had the CVS done and I am moving next weekend (alone, thank goodness and not with him), and he wouldn't even help with that. And to think when I originally found out two weeks ago, before knowing about the Cystic Hygroma, that I actually wanted this man in mine and my unborn child's life. And I truly feel that I am ready for motherhood and this baby, even without him. I've thought a lot about it, and I truly would never be able to forgive myself if I let him/her go at this point after leaping past this huge hurdle. This may not have been planned, but I truly feel like I am meant to be this baby's mother.

 

[christineliza]

The cvs testing is the biggest hurdle, in all the cases i've read. Once that's clear, a better outcome can certainly be expected. The statistics on this condition are horribly skewed. When the calculate how manybabies have an "adverse outcome", they include all women who blindly terminate by recommendation of family or doctors.

Keep hope. It sounds to me like your boyfriend just isn't ready for a child. I think you should consider losing him, not the baby. Think really hard about what you yourself want to do and if you are up for single motherhood, and let that be your decision.

My next ultrasound is in 3 weeks, and in a little less than two weeks I get the results for that other screen that I opted for... The microarray test that an outside company, Counsyl, does? I just finished registering on their site because I got an e-mail saying they got my sample, and wow, does that check for a lot of things. I don't even know what most of them are. I am currently being cared for by the MFM dept at Columbia Presbyterian Hospital in NYC since I found out this news, so I do feel like I'm in good hands. I just can't help this feeling and this attachment I already have to this child that I am not in any way ready to let go yet - I've already decided that I don't want him at my next Ultrasound appt and I am debating whether I want to tell him about the microarray results even. I feel like I need some peace, rest, and solace, and so does my baby. It's been way too stressful the past two weeks for me and baby as it is.... I've had pretty much no appetite (I'm forcing things) and sleep has been hard to come by. And I couldn't agree with you more - when the genetic counselors were shoving those papers with percentages and statistics in front of me, I could tell they did not want to commit to any of them verbally. It was just over and over, let's get through one hurdle at a time. So like you, I too question the studies I've read so far about it. There just isn't enough information out there, the only way with this it seems is to play the waiting game and see how it unfolds, unfortunately.

 

[gigglebox]

Please keep us updated! I'm sending you positive vibes i have a feeling it'll all be ok. Do take a break from all things stressful, as you don't want to pass those stress hormones along to baby! The cool thing about the CVS test is, since you get the sex chromosomes checked too, you'll be finding out the sex of the baby early. Take that information and embrace it. Celebrate all the good news. It'll help you get through.

Hope your move goes smoothly.

 

[Andypanda6570]

The cvs testing is the biggest hurdle, in all the cases i've read. Once that's clear, a better outcome can certainly be expected. The statistics on this condition are horribly skewed. When the calculate how manybabies have an "adverse outcome", they include all women who blindly terminate by recommendation of family or doctors.

Keep hope. It sounds to me like your boyfriend just isn't ready for a child. I think you should consider losing him, not the baby. Think really hard about what you yourself want to do and if you are up for single motherhood, and let that be your decision.

My next ultrasound is in 3 weeks, and in a little less than two weeks I get the results for that other screen that I opted for... The microarray test that an outside company, Counsyl, does? I just finished registering on their site because I got an e-mail saying they got my sample, and wow, does that check for a lot of things. I don't even know what most of them are. I am currently being cared for by the MFM dept at Columbia Presbyterian Hospital in NYC since I found out this news, so I do feel like I'm in good hands. I just can't help this feeling and this attachment I already have to this child that I am not in any way ready to let go yet - I've already decided that I don't want him at my next Ultrasound appt and I am debating whether I want to tell him about the microarray results even. I feel like I need some peace, rest, and solace, and so does my baby. It's been way too stressful the past two weeks for me and baby as it is.... I've had pretty much no appetite (I'm forcing things) and sleep has been hard to come by. And I couldn't agree with you more - when the genetic counselors were shoving those papers with percentages and statistics in front of me, I could tell they did not want to commit to any of them verbally. It was just over and over, let's get through one hurdle at a time. So like you, I too question the studies I've read so far about it. There just isn't enough information out there, the only way with this it seems is to play the waiting game and see how it unfolds, unfortunately.

I am in New York also.. CVS is a good sign about the baby,....Try not to stress out.And please get rid of this moron.. How he can be so cruel is beyond me..You don't need this, you need support. Sending prayers and much love xoxo

 

[Xuxa]

lizlemon - Congratulations!!!!!!!!!!!!! Can't wait to see one photos!! I am so so so happy for you...
Last stretch for me. Looking forward to meeting this little guy.

How is everyone?

Hi everyone,

I know I am a little late to joining this thread, I am 30 years old (31 on Oct 20th) in my first unplanned pregnancy with my partner (unmarried, not engaged, had just been seeing one another about 5 months and I
was on the pill and didn't think I could even have children due to some other condition I have, so this truly was a shock, and to me
A little miracle baby) and I am now 12 weeks along. About a week ago, I found out my little one had a 6.4 cf measurement. A MFM picked it up because my rheumatologist who treats me for my other condition suggested I see one because I am high risk due to my autoimmune problem (which is currently in remission). I had a CVS done on Wednesday, which came back negative as of yesterday, and am waiting on the two week result. Everything else looks fine as of the last scan where they caught it. He is currently almost done with Med school (not obgyn or MFM), and thinks I should abort because "this baby could still very well be very sick and we haven't known each other that long", oh and even though he won't say it, I know it is partly due to the fact that he will be doing his residency next June and would be absent for a while and miss a bit of the beginning of the baby's life. Financially, if
The baby is healthy or has no major problems, I have the means to care for it without any help from
him, and to make things wors, after I got this first round of positive news today, he started sending me some kind of Brazilian medical journal article that made the situation feel so grim that I barely slept last night. I have told him over and over that I am just not ready to let go YET, if I did find there was something horribly wrong, I most likely would terminate. But the pressure and stress alone from him is driving me mad. I keep telling him, I just need a little more time, and it's like I'm talking to a wall. Anyone who reads this, any words of encouragement would really help right now, I'm in tears as I write this. Thanks so much for listening, xoxo

Hello! I am so glad you got your CVS results back and it was good news. Here is a bit of my story, hope it helps...

As you can see from my previous posts on this thread, I was painted a pretty bad picture just based on the NT measurement I got at 13 weeks. Still, like you, I refused to let go... And I am so glad I didn't!!
My CVS results also came back negative, and at the time I looked at that as the first obstacle. Then it was on to the 20 weeks scan for me.
My drs still made it very clear that while there was no chromosomal abnormalities (that the CVS picked up), there were still huge possibilities of structural problems picked up at 20weeks.
I tried my best not to get to attached to my baby or bond too much with him, but how does a mother do that?? I wanted so badly to get good news...
At 20weeks, there was absolutely nothing wrong with my baby. The Specialist couldn't see anything wrong and couldn't tell us what had caused the thick NT measurement. Still I kept being told by people around me that I would only know for sure once he was born.

Jasper was born on the 11th September @ 12:45pm. He measured 51cm and weighed 3.9kg. He is absolutely 100% perfect!!! I am so so so so grateful to have him here. I am so thankful that I was never pushed to terminate my pregnancy.

Until they can show you something wrong, believe in your heart that they will find nothing. And if they do find something, first try figure out if it is something that can be fixed or something you could live with. I found it so hard to even imagine ending my little one's life... I will be thinking of you! Have fingers crossed that it will all be fine. Let us know how it goes.
xxx Xuxa