Cystic Hygroma (large NT@12 weeks)--not a good scan--Updated :)

[gigglebox]

Thank you! And congrats on yours having just past! It's exciting, isn't it?!

 

[Mommy2be20]

Thanks hun It's such an amazing feeling! It felt like I could take a huge sigh of relief and almost feels like I've let myself bond that last little bit But it's an even greater milestone for you and your boy after what you've been through xxx

 

[KendraNoell]

Gigglebox, every time I get an update from you I am so happy that this is happening this is an amazing little boy

 

[gigglebox]

Thanks Kendra! It's been a long journey! I just wish I could finally enjoy ultrasounds. I mean I enjoy them, but I still get nervous every time I go! Hubby is still scared to go because he thinks he's bad luck

 

[Tasha]

I have been watching this thread from afar from the beginning and really hoping for you. I am so pleased for you

 

[smilesX3]

I read through this whole post last night and decided to join after pouring over the internet trying to find info about cystic hygroma. I had a scan last week at 9 weeks 6 days and my midwife called my tuesday to tell me that they have spotted a hygroma. I am going for another scan tomorrow for a more thorough check on it. I asked if there were ever false alarms with this kind of thing and she said occasionally but mine doesn't appear to be a false alarm (I think I can see the hygroma in the pictures after looking at others online) We are so scared of what comes next. Because of the holidays its alot of waiting time to hear from the doctors as well I do have three healthy children for which we are very thankful but this is still so hard to hear! I would love to hear an update on you gigglebox and if you know any other support sites that would be so great!

 

[Zxcasd]

Hi there, im just starting my long journey with a Cystic Hygroma, which they discovered this week at 12 weeks. It is fairley large, going from the top of the head down to the bottom of the bum.

I have an amnio next week.

Just wondering if your still having any issues with yours?

I have my hopes up, and am hoping for the best, but doctors are making it seem like its a definate bad outcome.

Did yours go away completely?

 

[Ayates]

Thank you very much. It was so weird, Bun was measuring well as far as we could tell (didn't get an official measure but saw at least 11 weeks on the screen), and his/her heart beat was perfectly at a rhythm of 173bmp...no skips or anything...the fetus just seemed so...normal! healthy and strong even! moving and grooving...and to think our little bun is messed up in some way is just so devastating, especially when it looked so normal.

*sigh* I hate waiting. This makes the 2ww feel like a piece of cake...I just hope I don't have to go through THAT again any time soon! what a week.

regardless of what profesionalls say if u feel in your heart your ready for this child disabilities or not then u go for it hun no one can make your mind up for you its a mothers instinct in the end im sure u will make the descision thats right for u and your unborn child x

 

[Chester1]

glad to see everything is going ok gigglebox. havent been on in a while. not long to go now! one of my sons had a big head, his father does but the others have had my shape. i think a lot is down to genes....

 

[KendraNoell]

GB lets have an update! How are you and baby?!?

 

[gigglebox]

HI ladies!!! I hope you are all doing amazing! I am so sorry I haven't updated this in forever. It's a good thing though--this lack of updating has been due to a pretty uneventful last couple of months :thumbsup:

Everything has been going great with out little guy's scans so I'm very excited! We felt comfortable putting the nursery together (just some finishing touches needed now) and my baby shower is the weekend after next.

The only "negative" now is that he is measuring a couple weeks ahead and they think he's going to be a very big boy. Doctors keep asking how my gestational diabetes test came back (it was totally normal, thank you very much!) because they can't figure why he's so big! sometimes they just are, doc!!!

Zxcads--so, SO sorry you are going through this. I don't know if you'll be following updates on this post but the doctors were EXTREMELY doom & gloom with me. They said even if he survived (they expected I would naturally miscarry by 14 or 15 weeks) I had a 15% chance of a "normal" pregnancy (normal being not a chromosomal problem and not a heart defect) and his CVS and two cardiologist appointments have proven that he looks like a totally normal baby. Also in the beginning at that scan he had fluid from the top of his head to his rump.

For you, and anyone else who needs support, this thread was a godsend and helped me make the decision to get every test done possible before deciding to terminate--and thank god I didn't. https://community.babycenter.com/po...ose_that_need_hope?cpg=18&csi=2369940339&pd=1 The left hand column has a link to the "cystic hygroma support" section of the site; but the success stories were all I could read at first.

Well I think that's it! I'm always open for questions and support/advice should anyone need it. feel free to private message me any time ladies.

 

[KendraNoell]

Sooo happy for you gigglebox! Can you imagine, what might have happened had you gone through with terminating the pregnancy like the first idiot doctor suggested? I couldn't

 

[gigglebox]

No! Not at all and it makes me very sad to think about it. In the support group (and occasionally on here in the ethical prenatal loss section), I sometimes see women on there who decide to just do it without further testing due to the recommendations from their doctors. It's so upsetting; so many children are born perfectly normal and healthy with this diagnosis but the doctors don't seem to ever tell patients that.

The normal doctor at my diagnosing ultrasound spoke to me as if he was telling me my baby was dying. He said, "It's almost certainly Turner's syndrome." I asked if there was a chance of a good outcome, to which he said, "I don't want to give you any false hope."

The specialist that did my CVS test said, "i've seen worse than this get better and I've seen better than this get worse. It could go either way. We have to test to really get any answers". That was the best thing I could have heard from a professional and enough to keep me hoping it could be OK. And it is!

 

[KendraNoell]

Ack and now you're so close, I can't wait to see pictures of him! You have given a LOT of women hope on this page. *hugs*

 

[gigglebox]

HI ladies! Just dropping in quickly to update! Well, I am almost at my due date and can't wait! I am really excited to meet my little guy! He is still measuring large which they are worried about (for delivery purposes) but I don't care how he enters the world, as long as he's healthy! I had my very last appointment with the high risk doctor yesterday and consequently my very last ultrasound! Next time i see my boy will be in the flesh! He is measuring at 9lbs 8oz at 38 weeks bet he'll have a happy appetite

I am going to go thread stalk you ladies now to see how others with high NT measurements are coming along; hopefully I see a ton of good news!

Love you ladies and hope you are all feeling well these days!

 

[paigeypoo]

make sure you know all he risks of genetic testing before you do it. from what ive seen the diagnosis can be very vivid in ulrasound, deffinatly get a second opinion. what ive learned is that no amount of geneic testing can prove or prevent the diagnosis until after birth. where the child can be easily reviewed.
i wish you the best of luck for your little bun.

 

[KendraNoell]

Gigglebox I've been thinking of you! Soooo happy that he is almost here! And holy crap how come they haven't induced you yet because of how big he is?!?

 

[gigglebox]

they say size isn't a medical reason to induce they are going to discuss an induction date with me at my next OB appointment, but I'm REALLY hoping he comes some time next week before that appointment happens!

 

[Jadeblue18]

they say size isn't a medical reason to induce they are going to discuss an induction date with me at my next OB appointment, but I'm REALLY hoping he comes some time next week before that appointment happens!

You are the most courageous person I have ever seen. I just finished reading all 30 pages of posts and I've been balling my eyes out. Balling because my heart was aching for you and your LO... balling because it was up and down and balling out of pure happiness that it has gone the way it has (in your favour)

I sincerely hope there are no more complications for you guys. I couldn't imagine what it would be like to go through something like this. It really is heart wrenching The original DR sounds like such an asshole!

I look forward to reading about your upcoming experiences with your LO. I think you've captured the hearts of everyone who has read this thread and/or knows what you are going through xx

 

[gigglebox]

Jadeblue that is so sweet if you to say! I'm sorry I brought you to tears though! Thank you for your very kind words