Hi...
I'm 10 pages behind (which I will probably read) but this is the first time i've been on since the beginning of one of the worse ordeals in my life.
I thought I'd keep you all informed since the support on bnb is always a blessing.
On the 18th, Silas had just woken up for his roundabout midnight feed. He fed for only 5 mins, (which he does sometimes, then another 5 mins in an hour or so) then wouldn't settle. He had little intermitant cries but they didn't last for long and I dosed beside him till about 3.30am, when I decided he should probably take some more feed.
I noticed him arching himself to breathe, and he cried a little, it sounded weak. The scariest thing I've ever been through was to pick his little body out of his crib whilst his chest worked so hard to breathe, eyes half open, white as a sheet. The bit that got me was how floppy he was and I started crying, rang up my maternity ward to check with them - they said to ring an ambulance.
I rang my parents in a state of tears, who rang me the ambulance (I guess I refused to believe whatever was wrong with him could be so serious) and I held him (for the last time so far since) whilst the ambulance arrived.
He was given Oxygen and rushed to the childrens hospital. It seemed like ages before I got to see him, I was a wreck and in my PJs, slippers and a coat.
He had Xrays and I was told he most likely had Bronchitis. He had an IV in his head and was being given a high percentage of oxygen via a mask, I was told he was too sick to stay on a normal ward and he went off to intensive card.
It took the guts of two hours to get him set up on a million lines and a ventilator, also sedation. At a later stage he also got a catherter. The problem had been with his little nose - they couldn't get the tube up it for his air so it had to be strapped in his mouth. His little face is all covered in tape to hold it in place
, they had managed to get a feeding tube in however and it wasn't long before I expressed and they started giving him my milk (I was leaking everywhere by that stage and expressed 8oz of milk
).
So he has physio twice a day to help get the gunk out of his lungs, one on one care and lots of machines all hooked up to him. There was another little 4 week old baby who had the same thing, he had actually stopped breathing when he was bought in...I'm so glad we were in when we were, Silas was tiring quickly. The other baby had been there a week, but was going down to a normal ward that day - which is encouraging.
He had two ultrasounds donw of his brain yesterday (through the soft spot) because he had some worrying movements apparently, so now the neuro people are involved. The scans looked normal though, which is good - but he's still on precautionary meds for meningitis. I'm hoping they won't have to do a lumbard puncture or a CT scan but it could happen. You spend all the time wishing it was you and not your baby.
I've been down as much as I can, I can't stand being away from him. I feel like a cold zombie and stupidly tired despite having more sleep than i'm used too. I'm going down again now - I'm sure you can imagine what i'm going through. I'm a wreck. A bloody wreck. The only comfort I have is that he's getting my milk so I keep on expressing, I just want to hold him but I am grateful I can touch him and kiss his head. They are taking him off one sedative this morning so the neuro team can observe his movements - I'm just hoping it'll be good news today.