Hoping, Always, and Sharp- good.luck. Fingers crossed for you all!
No real updates here. We decided on a name: Evan Alexander. My DS, Owen, picked the middle name. Evan is doing great and they have been able to wean some treatments and were actually able to discontinue one of the meds. I know we are going to have some bad days but si far he has amazed us all! It stinks to feel like we are waiting for the bad news but I just want to get them over with so we can move forward. He does have some things wrong, but nothing the docs seem overly concerned with. We are waiting for a genetic text to come back because his ears are low in his head so they want to rule out chromosomal conditions. It could be due to being squished due to no fluid. He also has a dislocated knee, a hole in his upper palate in his mouth, a hole in his heart but the docs don't seem overly concerned about any if it. I'm going with if they aren't worried I wont either. He is such a miracle and so perfect to us! I haven't even held him yet but I love him more than life already! Thank you all for your thoughts and prayers. It makes such a difference to know I have you all here!
Ibelieve, I cant wait to hear the results of your next scan! Very soon!