heart valve not developing properly at 20 week scan. is there any hope?

Discussion in 'Baby Club' started by Sarah lo, Nov 15, 2011.

  1. Sarah lo

    Sarah lo mum of 2 little monkeys!

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    I'm posting for a friend. At her 20 week scan the doctors found that one of her baby's heart valves hasn't developed as much as it should have. They told her that if the baby survives to term they will have to operate on the heart straight away and she may still need a transplant.

    Has anyone else been through this and have success stories?
     
  2. isabelsmummy

    isabelsmummy Well-Known Member

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    No advice but I can't even imagine what your friend is going through, my thoughts and prayers are with her xx
     
  3. Siyren

    Siyren Guest

    hey sweetie, if you pm me, i'll give you my email address to give to her, unless she's joining bnb
    im mummy to a 2 year old girl named Alyssa, who has absent pulmonary valve syndrome,
    at 20 weeks they said we'll scan again in 10 weeks, but she might not be operable at all,
    and 30 weeks they said, if she can breathe at birth an her heart doesnt compress her lungs we can operate
    at birth they said she'd need operating on by 6 months
    by six months, they were calling her a miracle baby- she's still not needed anything doing, and im hoping she'll make it significantly further without surgery.

    i dont usually talk much about the explicit details of lyssa's heart on here, so if your friend would like to email me, drop me a pm and let me know

    but i hope this helps x
     
  4. Sarah lo

    Sarah lo mum of 2 little monkeys!

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    Thank you. I feel so awful for her, she had such a hard time TTC and now this. :cry:
     
  5. Siyren

    Siyren Guest

    is your friend being tranferred to a specialist hospital by the way?
     
  6. little_lady

    little_lady Mum of two

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    No advice but big hugs to your friend :(
     
  7. Sarah lo

    Sarah lo mum of 2 little monkeys!

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    Thank you that's really good news for your LO, and I'm sure it will give my friend some hope. I will ask her if she'd like you email, thanks.
    She's also been told they'll scan again in a few weeks. Really hope its a better result at the next scan.
     
  8. Sarah lo

    Sarah lo mum of 2 little monkeys!

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    Yes, Newcastle I think she said. I've heard they're pretty good..?
     
  9. Siyren

    Siyren Guest

    send my best to your friend, im hoping she gets a great outcome at her next scan :)
     
  10. Babyface179

    Babyface179 Well-Known Member

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    My thoughts and prayers are with your BF and her baby. It's lovely you are on here trying to find information out for her. Hugs to you all x
     
  11. midori1999

    midori1999 Well-Known Member

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    I can't really help but my 7 year old had open heart surgery at the Freeman in Newcastle at 6 months old and they were absolutely excellent!
     
  12. satine51

    satine51 Well-Known Member

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    My sister's little boy had something similar, she was told he may not survive and will need to be operated on straight away. He was operated on a week after birth and we have just celebrated his 1st birthday! He may need 2 more surgeries, but it is amazing what modern medicine can do nowadays. You would not tel there is anything wrong with him, he is such a cheerful little boy!
     

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