Hip Babies / Hip Dysplasia

[MrsWatson]

Wow! Go Ellie Go!!!!

So, we are putting Sophie to bed as normal between 6.30-7, and then at 10 we are changing her nappy and giving her another feed - she's not a big milk drinker, so I've always given her a dream feed at 10 anyway.

Night 1, she slept through until 7.45! Night 2, she woke up at 4 and seemed really unsettled, but after milk and calpol he went back to sleep until 8, and again, last night she slept through until 8!

After the 1st night, she was really dry in the morning, so the 2nd night, I didn't think about changing her nappy in the night - without thinking that she'd had an extra bottle of milk - woops! Her cast was soaking wet in the morning! We dried most of it with a hair dryer, and stuffed kitchen roll up there for some of the day to draw some more moistue out. Problem is, she now smells alreay! Luckily you can only smell it when you take her nappies off. We're using talc to take away the smell - anymore suggestions, or is this something we just need to get used to?

I feel so guilty for not changing her in the night.

She's generally been really happy, but has had a right grump on this afternoon, and flatly refused an afternoon nap, we think she might be teething.

So, so far it's not as bad as I thought it would be, just pissed off about the wetness!

 

[Snuffy]

Hi ladies. I've just come across this thread - not read all of it yet but though I would say hi from an ex-Pavlik mum.

I had clicky hips as a baby, so Amy, being the first born, a girl and with a family history, didn't really stand a chance bless her. Her DDH was diagnosed at a day old, but then the hospital managed to mess up her referral and she didn't get seen again until she was 6 weeks old (and boy did the hospital get a rocket from me). I was so upset, I remember the day we took her to have the harness fitted, my HV was sitting with me all morning while I sobbed. She got used to it so quickly though.

Both her hips were affected and she was in a Pavlik for nearly 5 months, she finally came out of it in January 2009.

Since then she has come on in leaps and bounds. She had 6 monthly check ups for the first year, then her consultant was happy enough with her progress to change this to annually. She was a late walker - although I have heard that you generally need to add how long they were in the Pavlik to when you would expect then to start walking. Amy was a day short of 19 months when she took her first steps unaided. Although she took full advantage of this non-walkng stage to develop her speech instead - she has an amazing vocabulary for a 3 year old, so I guess every cloud lol.

One thing her physiotherapist told me was that the cloth nappies we used were probably helping her massively, as the bulk between her legs was helping her hips into position as well as the harness, although obviously the harness by itself would also do the job well enough. Still I figured a little extra help couldn't hurt

 

[hel_5]

Arhh dont worry it happens to us all - what size/brand nappy are you using? we have always used pampers size 2 but recently got some tesco size 2 and although they were slightly harder to get in but they do hold a lot more wee - no suggestions about the smell but i think you tend to get used to it after a while.

Teething is a real pain, she cut her 1st two over the week that she had her cast change - i tend to give her calpol a bit more now than i used to - i think i just feel guilty about it all and i hate to see her in pain xx

And i second the WOW go ellie go - i think she should definately get an award for sheer determination!!! she is just brill!

 

[xxClaire_24xx]

aw girls came on here cause ive been so tearful all weekend just get like that sometimes and realised that Ellie will still be in cast on her 1st bday!!! bu you have made me feel so much better with your "go Ellie" comments, happy tears instead of sad tears

As for the leaky nappy been there lol except we were poop, yeah proper runny poop lol, not sure if you read all the comments but my dr handed me coputer screen wipes lol to clean the poo off the cast!!! hahaha lucky it was just the padding round the the edge and we could change it, even if they dont leak I think that they do all smell towards end of cast change!!! We use size 4 pampers now and had no leaks this time xx

 

[xxClaire_24xx]

Wow! Go Ellie Go!!!!

So, we are putting Sophie to bed as normal between 6.30-7, and then at 10 we are changing her nappy and giving her another feed - she's not a big milk drinker, so I've always given her a dream feed at 10 anyway.

Night 1, she slept through until 7.45! Night 2, she woke up at 4 and seemed really unsettled, but after milk and calpol he went back to sleep until 8, and again, last night she slept through until 8!

After the 1st night, she was really dry in the morning, so the 2nd night, I didn't think about changing her nappy in the night - without thinking that she'd had an extra bottle of milk - woops! Her cast was soaking wet in the morning! We dried most of it with a hair dryer, and stuffed kitchen roll up there for some of the day to draw some more moistue out. Problem is, she now smells alreay! Luckily you can only smell it when you take her nappies off. We're using talc to take away the smell - anymore suggestions, or is this something we just need to get used to?

I feel so guilty for not changing her in the night.

She's generally been really happy, but has had a right grump on this afternoon, and flatly refused an afternoon nap, we think she might be teething.

So, so far it's not as bad as I thought it would be, just pissed off about the wetness!

not to make you feel worse but do want to warn you lol I was fine at the beginning but you do gett pissed off when its been on a while and its just crappy lol

also did you LO get her tendon cut to open her legs further, Ellie did and that was why she was in so much pain at the beginning of the 1st cast change, she was on 3 painkillers for 1 week and calpol and ibrofen for another 2 xx

 

[Alias]

With DD's first and last casts, they were rotten from leaks. The first with poop, the last with pee. You just get used to it. The nurse recommended a baking soda paste on the outside of the cast for a bit, then wipe it off. I didn't try it though.

I went through phases of guilt, anger, grief and acceptance with the cast... not in that order. It is hard and it sucks!

We are away visiting family and ellie is doing great without her cast. Her hip is still very stiff but she doesn't complain about the brace, and she is making efforts towards moving (bum shuffling). And it is great to be able to take the brace off! She is two weeks out of the cast, and this week she's managed longer sitting without the brace. So she can now sit in the bath again, and has great fun splashing. I love my braceless baby cuddles

 

[MrsWatson]

We're using size 3 nappies - Tesco own, I've always found them better than any of the branded nappies. I was using the active fit ones, but I bought ultra dry at the weekend, they don't seem to cover her bottom as well, so I'm going to go back to the active fit ones - all trial and error, I've got so many packs of nappies hanging around, as I bought 1s, 2s, 3s, 4s and 5s, we are putting a 4 on the outside - jut using tecso value for the outside!

Claire - thanks for the warning, I was the same with the pavlik harness. At first I was fine, but after a few weeks I got really angry and pissed off, so expecting the same this time. I have a reallly close group of other Mums - there are 10 of us, and I know that when I see them all tomorrow (first time since being in cast) I will feel sad that Sophie isn't "normal" too. Already had an email from one of them to say that her daughter is now sitting on her own.

For now, I'm going to try and remain positive, still enjoying having my husband at home, and we're off to Devon next week - first family holiday, although realised today that it wouldn't be a good idea to take Sophie on the beach. Can you imagine getting sand in the cast???!!!!

 

[xxClaire_24xx]

We're using size 3 nappies - Tesco own, I've always found them better than any of the branded nappies. I was using the active fit ones, but I bought ultra dry at the weekend, they don't seem to cover her bottom as well, so I'm going to go back to the active fit ones - all trial and error, I've got so many packs of nappies hanging around, as I bought 1s, 2s, 3s, 4s and 5s, we are putting a 4 on the outside - jut using tecso value for the outside!

Claire - thanks for the warning, I was the same with the pavlik harness. At first I was fine, but after a few weeks I got really angry and pissed off, so expecting the same this time. I have a reallly close group of other Mums - there are 10 of us, and I know that when I see them all tomorrow (first time since being in cast) I will feel sad that Sophie isn't "normal" too. Already had an email from one of them to say that her daughter is now sitting on her own.

For now, I'm going to try and remain positive, still enjoying having my husband at home, and we're off to Devon next week - first family holiday, although realised today that it wouldn't be a good idea to take Sophie on the beach. Can you imagine getting sand in the cast???!!!!

aw I remember when I had this experiance with Ellie I cried all day lol and tbh I still get like that too and on all the hot days I hated that I couldnt just go to her wardrope and pick out any clothes!!! as for the nappies it is trial and error but we have got there xx

 

[MrsWatson]

Sophies getting really cross being woken at 10 for a nappy change (she always stays asleep when I dream feed her normaly) Do you think it's going to be ok to leave her in the same nappy from 7pm-8am? Thinking I'll change her in the night if she wakes, but her nappy is hardy wet at 10 anyway.

What do you / did you all do??

 

[Deeni]

Hi ladies. I've just come across this thread - not read all of it yet but though I would say hi from an ex-Pavlik mum.

I had clicky hips as a baby, so Amy, being the first born, a girl and with a family history, didn't really stand a chance bless her. Her DDH was diagnosed at a day old, but then the hospital managed to mess up her referral and she didn't get seen again until she was 6 weeks old (and boy did the hospital get a rocket from me). I was so upset, I remember the day we took her to have the harness fitted, my HV was sitting with me all morning while I sobbed. She got used to it so quickly though.

Both her hips were affected and she was in a Pavlik for nearly 5 months, she finally came out of it in January 2009.

Since then she has come on in leaps and bounds. She had 6 monthly check ups for the first year, then her consultant was happy enough with her progress to change this to annually. She was a late walker - although I have heard that you generally need to add how long they were in the Pavlik to when you would expect then to start walking. Amy was a day short of 19 months when she took her first steps unaided. Although she took full advantage of this non-walkng stage to develop her speech instead - she has an amazing vocabulary for a 3 year old, so I guess every cloud lol.

One thing her physiotherapist told me was that the cloth nappies we used were probably helping her massively, as the bulk between her legs was helping her hips into position as well as the harness, although obviously the harness by itself would also do the job well enough. Still I figured a little extra help couldn't hurt

Thanks for posting your experience. Our LO is almost done with his pavlik treatment and we go for another ultrasound today to see how he is progressing. It is great to hear from another mom whose LO was helped by the pavlik.

 

[hel_5]

Sophies getting really cross being woken at 10 for a nappy change (she always stays asleep when I dream feed her normaly) Do you think it's going to be ok to leave her in the same nappy from 7pm-8am? Thinking I'll change her in the night if she wakes, but her nappy is hardy wet at 10 anyway.

What do you / did you all do??

I have never changed emma in the night she was sttn anyways and it never really crossed my mind

 

[hel_5]

Hi ladies. I've just come across this thread - not read all of it yet but though I would say hi from an ex-Pavlik mum.

I had clicky hips as a baby, so Amy, being the first born, a girl and with a family history, didn't really stand a chance bless her. Her DDH was diagnosed at a day old, but then the hospital managed to mess up her referral and she didn't get seen again until she was 6 weeks old (and boy did the hospital get a rocket from me). I was so upset, I remember the day we took her to have the harness fitted, my HV was sitting with me all morning while I sobbed. She got used to it so quickly though.

Both her hips were affected and she was in a Pavlik for nearly 5 months, she finally came out of it in January 2009.

Since then she has come on in leaps and bounds. She had 6 monthly check ups for the first year, then her consultant was happy enough with her progress to change this to annually. She was a late walker - although I have heard that you generally need to add how long they were in the Pavlik to when you would expect then to start walking. Amy was a day short of 19 months when she took her first steps unaided. Although she took full advantage of this non-walkng stage to develop her speech instead - she has an amazing vocabulary for a 3 year old, so I guess every cloud lol.

One thing her physiotherapist told me was that the cloth nappies we used were probably helping her massively, as the bulk between her legs was helping her hips into position as well as the harness, although obviously the harness by itself would also do the job well enough. Still I figured a little extra help couldn't hurt

Thanks for posting your experience. Our LO is almost done with his pavlik treatment and we go for another ultrasound today to see how he is progressing. It is great to hear from another mom whose LO was helped by the pavlik.

Good luck with the check up - my DD1 was in the pavlik harness and it did the trick for her - i think if its caught early enough it works really well x

 

[Alias]

Sophies getting really cross being woken at 10 for a nappy change (she always stays asleep when I dream feed her normaly) Do you think it's going to be ok to leave her in the same nappy from 7pm-8am? Thinking I'll change her in the night if she wakes, but her nappy is hardy wet at 10 anyway.

What do you / did you all do??

We never changed ellie during the night. We did make an effort to get a 4 or 4+ nappy on her at bedtime, same as we used pre cast. I found the baby dry ones best for her, the active fit ones leaked everywhere if we used them for overnight. When we couldn't get the bigger nappies on then we used a tena inside the nappy to absorb more. My DD wouldn't have tolerated being changed during the night, we'd have spent ages getting her back to sleep.

Deeni, good luck with the check up.

 

[MrsWatson]

The little monkey woke for a feed at 3, so I changed her. Fingers crossed for a quieter night!

 

[xxClaire_24xx]

yeah at 1st we changed Ellie at 11pm when we give her a dreamfeed but then she wouldnt settle again, we use pampers like ive said and we havent had a leak in ages xx

 

[Deeni]

Well we had our checkup the other day and the good news is that Mason's hips look normal!! Yay. We only have 4 more nights in the harness and then we go back in 4 months for an xray. I'm keeping my fingers crossed that he continues to look normal as the doctor said roughly 20% of babies do not continue to grow normally and need other treatment. Trying so hard to be positive and I cannot wait to get rid of the harness.

The doctor does want us to go to physical therapy for his torticollis which has gotten better but it still noticeable. He also wants us to see a cranial specialist since Mason has a flat spot on one side of his head. I will be so sad if he has to wear a helmut since he just go rid of the harness!! I was very upset at first that there are more doctor's appointments in our future but I am to get used to it. I am just hoping that everything is ok with Mason's head and that there is nothing serious going on. I read on the internet about craniosynostosis and now I am fearing the worst. Must stay off google!!!!!!!

 

[Alias]

Deeni, YAY!! Great news at your checkup. If you can conquer the hips, you can conquer everything. If Mason has to wear a helmet it will suck, but I saw a child in one just today, and it looks fine. Like a helmet, obviously, but like it won't impact a whole lot on daily life. Not like a brace or cast or harness.

DD is 3 weeks out of her cast, and today she managed to bum shuffle herself backwards a few feet across the room. She's 16 months today, and that's the most she's moved since she was born. She's been turning herself around in circles (she'd done that before the cast), and she sometimes wants to pull herself up, but her legs aren't nearly strong enough for that yet. She's also able to push herself up from her stomach, and stretch right down over her feet, so her flexibilty is fine in that direction. Her hip seems to be slowly loosening up, but sometimes I'm not sure if I'm imagining it. She can rotate is in the socket (to sit with her feet towards eachother) which she couldn't do when she got came out. Progress is slow, but it's definitely progress.

 

[hel_5]

Thats great news about her hips Deeni, sorry to hear though that you have to go through other things as well

Alias - thats great great news she sounds like she will be up and moving in no time - did you have a good hols? x

 

[homebirth]

Do you mind me gatecrashing?
Im glad to see your wee ones are doing well, its always nice to hear progress.

my 3rd child had DDH it was picked up at 11 months, she had a closed reduction at 13 months, boston brace for 3 months 24/7, then 6 months in the brace at nights only. It has been sucessful, she is 3 now and doing everything she should be.
My 4th baby, a girl called Eva is 7 months now, she had hip check at birth which was satisfactory, but has extra creases. the scan at 8 weeks came back borderline, so she had to return at 3 months old for another scan, which im told was fine.
I went to see the doctor on Monday because i'm concerned that the extra creases are still there, and her legs look different lengths.
the doctor confirmed there is at least 1cm difference, and her creases do not match at all. she also told me that they have not had the results through from the last scan!(thats 4 months ago now)
so we are off to the hospital on the 31st Aug to see the consultant, to see what he says.

 

[Alias]

Of course we don't mind, although hopefully you won't be staying! I can see why you'd worry, I'd want to get her checked out too. It could still be nothing, but I'm a worrier. I'm scared of when I have a second child that we'll have to go through all this again. It's great though that your older daughter is doing so well, I like to hear success stories!

Good luck with the consultant, let us know what he says.