Giraffes -- Oh no!! They'll definitely be in my thoughts. I think it's rare for them not to see it on your ultrasounds.
Unfortunately, one of my good friends from the website Cris and I know each other from had a baby 6 weeks before before Maisie was born. He had a very severe form and they hadn't found it on either of her scans, either.
Didn't discover it until they noticed a murmur the day he was born. His was very, very serious and a very, very rare form of defect. He was actually missing his pulmonary artery among other things. He beat all odds and survived several surgeries to repair his defect. He did so well he even got to go home! But he did go into cardiac arrest and passed away just before he turned 6 months old.
So awful. I'll never forget reading the message from his mom. It took me forever to process it and then I felt really guilty for having such a healthy baby of my own. Some days it's still hard for her to even talk to us.
The rates of CHD are scary. You just have to keep in mind CHDs that severe are super rare. Of course we don't want our children to be sick at all, but there are many CHDs that are perfectly treatable and repairable with amazing survival rates. And even as terrible as Gabe's condition was, good came from it -- her family has started a nonprofit organization raising awareness for CHD and providing care packages for families with children in the hospital with CHD. I've donated blood twice in the last 6 months
SOLELY because Gabriel needed so many transfusions in his short lifetime. Selfish, but I don't think I ever would have started donating blood if it wasn't for that little boy.