Hey girls.
I know I didn't really post a history, was just a quick post last time, but was struggling hugely at the time. Nothings really any better right now but feel more in the frame of mind to give my story more time.
When I was born I was born with a twisted stomach and uterus, it was a right old mess and took months for my body to right itself, thank fully no operation needed then, but life itself was a battle, and the idea of ever having children due to the damage done by the twisting was very very low. But I did have a small chance, or so the dr's said.
When I finally started my periods they were extremely painful and heavy and almost as soon as they started they were stopped via the pill for the first few years and later on the Mirena coil.
When I was in university, after years of heavy, painful periods, and a few other medical issues they operated to find out why I was in a lot of pain and discomfort in my stomach nearly permanently. They discovered a lot of tissue from endometriosis all over my stomach and did their best to remove it, as well as removing a lot of cysts from my poly cystic ovaries. Both these conditions were first diagnosed by the operation and it was such a relief to finally know why exactly I had been in pain and what the cause was. I became hopeful that the conditions can be treated.
At the same time I was in a very bad relationship, although I didn't see it at the time, with someone controlling dominating and demanding. We were getting close to getting married and while he knew I would have difficulty having children he knew it was something I would fight for to get. After coming around from the operation though, he told me and managed to convince me not to speak to the Dr, and that what the Dr's had found meant I would never be able to have children. I believed him, and totally heartbroken discharged myself early without seeing the Dr.
Surprisingly about 4 months later I found the strength to walk away from this relationship after 8 years of being controlled and dominated. It helped when I made friends with one of the 4 women he had gotta pregnant during the time we had been together. But thats a different story.
Almost a year later one of my closest friends decided to let me know he was in love with me
This year we have been together 10 years and got married in August 2012.
In 2008 I was diagnosed with Myofascial Pain syndrome (my skin becomes super sensitive and any touch from clothes, people etc, burns and hurts) Fibromyalgia (constant widespread pain and fatigue) Chronic Fatigue Syndrome (any exercise/activity wipes me out and causes memory loss and mental fatigue) and am waiting on results to see if I have Multiple Sclerosis. On top of this I suffer from Bells Palsy (part of my face droops and becomes numb and speech gets slurred and confused) I'm a royal mess medically, but apart from the MS if I have none are passed on, if/when we do have children they aren't at risk. I need crutches just to get around and a wheelchair on any distances over 100 yards.
In 2009 with most of my conditions pretty much under control as long as I am careful, we approached the Dr's as my now husband wanted to be sure I couldn't have children before we started investigating adoption. He's as desperate as I am for a child. My Dr checked me over, read back through my notes and, surprise, surprise, my ex had lied to me. I can have children, all my notes say is it will be difficult and may need outside intervention to assist me.
Cue our TTC journey. We tried everything to assist us in the first 2 years, temping, charting, O packs, everything you can think of. After the first 2 years (our policy before starting assistance despite previous history and diagnosis of 2 issues to fertility) we approached one of the new Dr's at our practice. She ran all the usual tests and after 4 months of collecting 21 day bloods she told us we were fine and over reacting and to come back at 3 years ... (this is against policy and we had to make a formal complaint)
Any way the next month we got an appointment to see my normal Dr who was away the first few months hence evil woman Dr. He took one look at my notes and decided to add to our formal complaint.
My progesterone levels were nearly 0. I wasn't ovulating most months and on the ones I were the progesterone levels were so low the eggs were barely viable.
Because of previous diagnosis of PCOS and Endo I didn't need to go through all the testing and the Dr put us straight on to Clomid.
The first 2 cycles of Clomid did nothing but cause me extra discomfort, we hoped and prayed this was a good sign.
The 3rd cycle was a success!! We couldn't believe it, it was such a shock and at christmas too! We hadn't told anyone and were happily plodding along with our own little glow.
Boxing day 2011 I woke up in pain and had cramping, I didn't think much of it as first as I had been cramping for most of the period since :BFP: until I went to the bathroom. There was so much blood. I screamed for my husband and we called the emergency Dr. They confirmed it was an early stage MC :'( We were heart broken. We hadn't even told anyone we had a secret and before we could blink it was gone
Due to its very early stage, I was spared the heartache of a D/C and left to myself to deal with the loss.
On returning to the Dr in the new year he referred us to a fertility specialist, but warned us it was a long waiting list ... Bot was he not joking. We got refered in the January and finally got to see the specialist in the December!!!! One my 30th Birthday no less. The year had been spent still trying, although un assisted as our Dr was unwilling to try Clomid again.
We got to the clinic and were kept waiting for 3 hours after our appointment and when we finally got in to see the specialist, it wasn't even them we were seeing but one of his secretaries!!!!! Who informed us rather coldly and nastily, that due to my records and health our only option was IVF ... That our Dr had been "wrong" to give me clomid due to me being "obese" and that all they can do for me was to keep my records open until I lost around 50kgs ...
Well that made me angry I can tell you but was too shocked at her coldness and the news she was giving us to do anything. My husband was totally livid but too concerned about me to say anything to her. We have made a complaint since though over her manner and our treatment at the time. They didn't even examine me after making me strip off and didn't even give me a gown to cover up with.
And yet these are the people we still have to go back to, when I have lost the weight! Although given our hospitals turn over of staff and training staff we should have all new by then.
So that our status right now NTNP while I focus on weight loss and hope and pray I get it off to begin IVF.
I am so far, despite my mobility issues and health issues, 15.7kgs down out of the 50 I need to lose.
I have since gotten married and apart from the fertility am blissfully happy!
The fertility issues though leave a nasty black cloud on my back and every facebook announcement from our friends, most who are on their second or third child since we have been trying, cuts deep and leaves me hurting.
I struggle around babies and still have yet to meet my brothers youngest due to both distance and pain on my part.
I feel no one understands, apart from on here.
My sister in law keeps extolling the virtues of IVF though as their first was through IVF and they had a second naturally after that.
I remain focused on the goal and try to keep positive but its oh so hard ..
Well thats my story so far girls.