LTTTC-after loss-TWW...

[Sis4Us]

Eabwhab I had a Mc when I was young and not ready for kids when I was 18 then had my ds1 when I was 21 had another MC was 26 and in a bad relationship so my stress was thru the roof!!
I got remarried and had ds2 when I was 30 we didn't really think we would have more kids after him but the earning for a girl hasn't gone away and we got PG 10/12 NTNP

After that loss I was TTC w great force for awhile and in 1/14 we gott a BFP w IUI on a medicated cycle saw a HB at 6wks and everything but I got strep throat from my Lil one and was put on antibiotics that is when the baby stopped growing I didn't know until my 8wks scan!!!

After all that my DH didn't want to force things anymore and we just stopped treatment and got a surprise BFP after a trip to Vegas but I barely made it to 5.5 wks I got more Chromosone testing that was all normal but i found out I have MTHFR after this loss cuz I wanted answers!!

We got another surprise in November w another natural BFP my numbers always look good they double like they should but then they slow down or drop this time they dropped they told me to expect to MC on Thanksgiving
I started all my Supps taking diet meds and doing my normal stuff even more than normal getting ready for a Bday and took a test that sat to see it faint but it was super dark my beta went up again
I will have to look back at my charts but I think my betas where
126
89
161
256
293
512
577
316
161
They seem to be dropping normally now and I have cramping like my period is coming
They still can't verify why my numbers did what they did or if I had an ectopic cuz they could never see anything via ultrasound!!

Having as many ectopic as u have had is very unusual did they give u a reason?? It sound like I may have Inflamation in Ur uterus it causes they baby to go elsewhere to implant!!

HTH if u have any questions about testing I've had them all so just ask !!

 

[eabwhab]

eabwhab, I am so sorry for all your losses. I can't fully connect with the age since DH and I are 'youngins' (26) but I know the pain of losses. First pregnancy BO/MMC (10 weeks) Second Pregnancy I had my daughter, third/forth chemical (4 1/2 weeks and 5 1/2 weeks) and here we are now fifth pregnancy at 16 weeks.

I would check with your OBGYN/Doctors and make sure all the basics of testing is done to see if there is a reason why. My friend had it done after her 2nd miscarriage (all the testing) and found out it was due to a blood clotting disorder. She had no problem having the first child but was having problems with the 2nd. She did end up getting and staying pregnant the next time since she was on meds.

And only you can make the call when 'enough is enough'. For me I said one more MC and I'm done. I cant' keep going through it. It didn't do damage to me physically but mentally I kept going into a very very bad place. I wish you the best in whatever path you take. *hugs*

Thank you so much with for your support. I will try to get some answers. No matter how we decide to proceed I would really like to know why I am losing this one. As of now, I am still waiting to miscarry and I have the feeling it will take a looong time since my hcg levels were still going up and reached very high numbers (145000 last time they checked). Then we will decide. The thing is, because of my tubes we will probably have to do another IVF and it is so darn expensive ....

Best wishes to you!

 

[eabwhab]

Sis4us, so sorry about all your losses You had a tough journey. Your numbers seem to go down nicely now. Well, clearly because of my history I am paranoid so I would make sure they go back to zero.
Will you keep ttc? Is there any solution to MTHFR?

After my first ectopic, the HSG showed a healthy right tube with no scarring. Nonetheless I eventually ended up having an ectopic on that side too. I needed another surgery to remove the ectopic and that left my tube scarred. After performing surgery the doc said that the cilia (the hair-like structure which should push the egg down the tube) are a bit slow. I dont know why. So we opted for IVF. Got pregnant first time, HCG crazily high (nurses thought of twins...) just to find out there was no hb, while my hcg keep going up. Anyway I really want some answers on why I cannot make it to see the hb. I want to have genetic testing done, but do not want to have D&C. Did you get one when they did genetic testing or did you save the pregnancy tissue? I do not want to have a D&C but my RE said that if the results come back female and genetically normal they will not know if the results refer to me or not. I don't understand why. I think I can recognize the pregnancy tissue. Sadly I have some experience.
As for testing, last year after my first loss, I had the following done:
-cardiolipin antibody IGG IGM panel
- high specificity antiphospholipid antibody panel
-factor V Leiden mutation panel
-TSH
-lupus anticoagulant panel

Everything came back normal. I am not sure whether I should have them tested again.

I found this website where they seem to list many more testing: https://www.rialab.com/miscarriages_prevented.php

What tests have you had done? That would help me a lot. I am a bit lost, but I want to go to my consultation appointment in a month as prepared as I can.

Sorry for such a loooong post. I really appreciate any information.
Let me know how things go with you.

 

[Sis4Us]

I was scheduled for a DNC w my loss in March but I starts MC natuarlly on my own and my dr was sure if he would be able to get enough tissue to test so I decided against it!!

DH and I just had Chrmosone genetic testing Via blood sample!!

I take baby Asprin and folate and methyl B vitamins for my MTHFR which may be why we r getting PG now and weren't the years before but I'm not certain as my DH had sperm issue but we have corrected those w vitamins too!!

Where r u located as I've learned that they test differently in other countries than they do in the states!!
I would consider getting tested for MTHFR
Also get a smear or scrape of your lining to test for any issues read on the silent C I think it's called
I found a Thread about it a long time ago basically it's treated w a high dose of Antbiotics!!

My numbers are dropping I can tell cuz I'm getting headaches but my dr wants to repeat beta on mon

 

[mowat]

Were you on prednisone with this pregnancy eabwhab? That seems to have done the trick for me this time around. Although I've never found out what my problem is exactly.

I'd try the recurrent miscarriage thread as well. The thread is for people who have had 3 or more losses so people know alot about testing and treatments.

Anyone heard from Barb?

 

[butterflywolf]

I have not heard from Barb and been doing as much stalking as I'm able to. I'm really hoping she had her little boy and all is well!


(quick post busy doing house work boo -_- )

 

[barbikins]

That's cuz I had a baby!!
Check out my blog for details BUT here is Owen James born December 27th at 9:58am after four hours of really intense labor!
He weighs in at 7lbs...such a little guy.

 

[barbikins]

Sis I'm so sorry love! I'm glad you have some answers but it's just awful.
I'm thinking of you! Xo

 

[Nikki1979]

awww very cute baby...congrats!!

 

[butterflywolf]

Wow I was only one day off for when your little guy would come XD Not too bad.

And OMG what a handsome little guy!!! I am holding back tears cause I am SO happy for you Barb. I will have to read your blog a little later. God I'm so happy.

 

[eabwhab]

Were you on prednisone with this pregnancy eabwhab? That seems to have done the trick for me this time around. Although I've never found out what my problem is exactly.

I'd try the recurrent miscarriage thread as well. The thread is for people who have had 3 or more losses so people know alot about testing and treatments.

Anyone heard from Barb?

Thank you for the info. No I was not. I will looking into it and will certainly check out the recurrent miscarriage thread. Why did your doc decide to put you on prednisone?

 

[eabwhab]

I was scheduled for a DNC w my loss in March but I starts MC natuarlly on my own and my dr was sure if he would be able to get enough tissue to test so I decided against it!!

DH and I just had Chrmosone genetic testing Via blood sample!!

I take baby Asprin and folate and methyl B vitamins for my MTHFR which may be why we r getting PG now and weren't the years before but I'm not certain as my DH had sperm issue but we have corrected those w vitamins too!!

Where r u located as I've learned that they test differently in other countries than they do in the states!!
I would consider getting tested for MTHFR
Also get a smear or scrape of your lining to test for any issues read on the silent C I think it's called
I found a Thread about it a long time ago basically it's treated w a high dose of Antbiotics!!

My numbers are dropping I can tell cuz I'm getting headaches but my dr wants to repeat beta on mon

Hey Sis4Us,

I hope your beta is back to zero so that you will be done with it. I have had my test today hoping that it is finally decreasing, but I have a bad feeling. If not decreased doc will suggest D&C or induce mc
Do you remember anything else about silent C. I tried to google it but couldn't find anything.

We will probably start the testing in a bit, once my body is back to pre-pregnancy status. I am in the US.

 

[mowat]

Amazing Barb! So happy for you!

 

[mowat]

Prednisone is one of those drugs doctors seem to be trying for unexplained losses. I asked to have testing done for killer cells, but the tests are difficult to get here and crazy expensive. Prednisone is the treatment so it made sense to take it.

 

[Sis4Us]

Awwww Barb he's perfect !!!!!

I'm go for a beta in the Am if I really want to I really hate wasting my time and gas for bad news it's pointless to me my test is lighter so I'm sure all is down!!
I just don't see it dropping and rising twice so I'm sure all will be done soon!!

 

[eabwhab]

Awwww Barb he's perfect !!!!!

I'm go for a beta in the Am if I really want to I really hate wasting my time and gas for bad news it's pointless to me my test is lighter so I'm sure all is down!!
I just don't see it dropping and rising twice so I'm sure all will be done soon!!

hey sis4us, did you get your test done? How are you doing? I am still waiting to bleed. I wish it would just happen now. My hcg barely went down from 145000 to 143000.

 

[butterflywolf]

Hey Sis, how are things going?

Eabwhab, at least your numbers started to fall which means your body is recognizing the miscarriage. With my first miscarriage/BO I'm pretty sure my numbers started to fall a few days before we found out. At that time when we did get my blood drawn for HCG they were almost 9,000. A week later they where in the low 100's and the following week down to 8. My doctor said my body already started to go through the process of realizing what was going on and he never suggested a D/C.

Hopefully your body starts to fully realize and things will be done with soon enough.


Barb, I know you probably are only checking this every few days but hope all is going well with your son! I still can't get over how cute he is.

Mowat, hope all is going well for you.

For me not much going on. A little over 2 weeks before our big scan. Finding myself more anxious on knowing everything is all right with little cub than knowing the gender. Which if that's the case I know I will be near panic attack mode again the day of. I'm at that point where I'm just being a worry wart and back to using my Doppler every other day to make sure little one still has a heartbeat. I can't believe I'm this paranoid over it again. I'm starting to feel more and more movement mainly at night but there are days I don't feel which is what has me paranoid. Blah. I can't wait to start feeling baby every hour.

 

[nimbec]

OMG Barbs i'm SO SO happy for you!!!!!!!!!!!!! Congratulations!! xxx

 

[mowat]

CAn't believe you're 16 weeks already Butterfly! And so close to your next scan. I know what you mean about the panic setting in---I always get really bad in the waiting room right before a scan.

How's wee Owen doing Barb? Such a cutie.

Hi NImbec!

Did you do a beta SIs?

Another scan tomorrow. They're moving like crazy so I'm not really worried about that. Looking forward to seeing them again and hoping we're measuring where we should be.

Really getting huge all of a sudden. My ankles are enormous pretty much all the time now and I'm getting out of breath really quickly. I'm wondering how long I'll be able to work. Saw my new doctor the other day (my original one went on maternity leave) and I hated her---she hadn't even read my file. Fortunately she's only around until the end of February so I'll see more of the other doctors in the group closer to my due date.

 

[nimbec]

Hi ladies & welcome eabwhab so sorry to hear what you are going through

Gosh ladies you are all getting so far into these pregnancies where on earth has that time gone?!!

sis hope you are oj sorry you are going through this

Mowat blimey sorry you are struggling i remember the feeling well and that was with only one! Hope you can get some help.

Barbs read your blog awwwww he's o cute!!!!!

hi to everyone else hope you are all ok!

Update from me - I am starting IVF yay!!! We have opted for a 2 cycle package and I start my northesterone on day 21 (day 12 today so countdown has begun!) ready to start my antagonist short protocol Egg collection on the 9th Feb - can't believe its actually happening after all this time eek please keep EVERYTHING crossed for me & Mowat, Barbs any tips for me??