~*Mamas of Reflux Babies*~

So sorry, ladies. It's a constant battle until it's finally over :nope: :hugs: Isn't it absolutely enraging how usually we just pop an antacid and it's done? I sure wish they'd hurry up and make some for kids!!! :nope: Hang in there!:hugs:


Here's a pic of my lo taken this week. He's going through a phase of wanting to stand up constantly lol

Dawwww how cute is he?! Hehehe. My lil one is like that too. Does your kiddo love to bounce? Nathan is always trying to bounce around. I think he'd go crazy in a Jumperoo thing. :flower:

Also does this ever happen to any of you? ......

Hell be drinking and struggling badly then suddenly he will seem to katch on better or something then finish the rest of yhe bottle calmly!

Finaly got him to finish a bottle, i know he wants the whole thing but sometimes he struggles to bad

Also does this ever happen to any of you? ......

Hell be drinking and struggling badly then suddenly he will seem to katch on better or something then finish the rest of yhe bottle calmly!

Finaly got him to finish a bottle, i know he wants the whole thing but sometimes he struggles to bad

Yeah my lil guy does that quite a bit. I just let him do his thing and let me know when to proceed. :haha: Maybe it's a lil wind or something. I know my lil one also completely stops, to check that it's not hurting, and then starts again. :flower:

___________________

Nathan had his first shots yesterday. I was sooooo scared. I absolutely hated when he cried :cry: I was a bundle of nerves all week, trying not to think of it but preparing for the worse in case. Aside from being a tad fussy last evening, he's been perfectly fine. Now, I'm certainly not complaining... Just a lil surprised really... :haha:

Took a cute video of my lil guy having quite the major chat earlier this afternoon, if anyone is interested... (He really starts up around 3:30:haha:)

https://www.youtube.com/watch?v=ya90OpFFdso&feature=youtu.be
 
Wat a little chatterbox he has such a personality!
My boy has his chatter first thing in the morning like hes saying mummy its morning get up lol
 
Cant take much more!
When will this ranatidine work? Or wont it?
Day 8 and i cn literaly hear stuff coming up into his mouth
Hes constantly squirming n it takes me an hour to get 4oz in him, even this looks like im force feeding him but i know he would have more if he could :(
I dread feeding him in public

When will this get better :'(

Im going to see a cranial osteopath tomorow, heard good and bad reviews but i need to do something while im waiting to see a paediatrician

Ill persevere then, i checked how much he can have for his weight as he has gained and he can have up to 2.7ml a day.

Im trying him on 1.4 half of that. The do. Had me on 0.9 which i feel is far too little! CAnt wait to see a pedi they surely will know better

Can u give ranatidine with every feed so its in their tummys longer?
I was thinking of giving him 0.2ml per feed (he has 7)

Or shouod i stock to 0.5 3 times a day?

I was giving him gaviscon but trying without now az its starting to constipate him which inturn causes more gas argh

He seems to be drinking less this week, either he wS going through a growth spurt before or comfort eating or mYbe hes to uncomfortable now im just not sure. What do you think?

I think the Drs prescribe the lowest possible doses. Aiden weighs 16lb and they said to give him 0.5ml 3 times a day. I've upped to 0.7ml. What does your lo weigh?

Not too sure about the drinking less. From my own personal experience after about 2 days without gaviscon to thicken his feed Aiden really starts to struggle drinking his milk, pulling away, arching his back and crying, he went from drinking 6-7oz to 2-3 oz a time x
 
Aww Nela, he is really cute 😊

Yeah, he loves bouncing and trying to take little steps. I was going to get him a Jumperoo for Christmas but I think he's ready for one now.
 
Hes 10lb so lowest dose is 0.3ml 3 times a day

Im trying 0.4 - 0.5

Hes on nutramagin lipil and the gaviscon thickens it in a weird way so i was doing it for breastfed babies with a syringe.
You reckon i should continue like this then? Maybe a day off will mean he poos better now
 
oh what a day we've had - i attempted mother and baby group but i arrived to find a ton of ladies caked in make up it was like a fashion show, i turned up hair all scraggy and no make up , leggings and t shirt ha ha (i thought id get more friends if i looked like shite) but two people spoke to me, i didnt really get that involved as he was just too small and no where to perch him on. two of the ladies were oh yeah reflux mine had that you just need to keep them upright (made me feel like i was making mountain out of mole hill) so left and thought not going there again

then to see consultant at hospital, we sat down straight away she said his 1.5 ml 3 times a day was too much, and that she was adding domperdone, didnt explain why, what it did, didnt even weigh him,
i explained that he is very windy and that his poos start out firm then drift off to a wet foamy liquid and that he squirms and writhes when hes moving his bowels but she didnt seem to care and completley out and out dismissed allergies or intolerence. and that his development was in line, hes thriving so hes ok (he was asleep on my shoulder how does she know how hes developing)
i mentioned the heart murmer but she said she hadnt allowed time to listen to it,
but then couldn't find it, so therefore there isnt one.
and when i wanted to understand why we were adding more drugs she kept interupting me and telling me to ignore his bowels and all babys grow out of that sort of thing, again i tried to recap my understanding of the situation and again she started telling to me ignore the bowels. so and i cant believe i did this but i put my finger to my lips and just went shhhhhhhhhhhhhhhhhhh she looked at me completely shocked, and then i finished what i needed to say, and then she confirmed my understanding.

i asked about follow up appointment she told me this was it and to go back to my gp, (oh right the gp that takes 5 weeks to listen, over prescribed medication for him, and refuses to refer him to paediatrician)

why does it feel that if as a parent you want to have an understanding or involvement in a care plan you are deemed as a fussy mother and over reacting

needless to say there was a 25 minute wait at the pharmacy and hubby had left to go to work so i went back up and complained they then confirmed the care plan, confirmed that she was a locum and that they would book me in for 2 week review with a doctor permanently there, where they will confirm the heart scan, oh and he got weighed too funny that!

grrr, so came home and left him in the car seat a sleep (naughty) but he looked cosy and i jumped in the tub, when he woke up i got him in with me and we had the most amazing bath together it was soo amazing and i washed away my day

**oh i recently downloaded a lullaby for baby cd from itunes, i have it on my phone all the time, he nods off to it a treat, it doesnt irritate you and its really calming and i think its working on me too as im not as stressed, its like lullabies to the sounds of a facial. HIGHLY RECOMMENDED
 
Well the last 2 days here have been really good. Medication seems to be working for him. He's on 3.3 mls of ranidirine (sp) and anti reflux milk and things are good. Only prob now is the constipation. I've been giving him some cool boiled water so fingers crossed as he was crying this morning trying to poo. Anyone recommend some other remedies for constipation ? X
 
Well the last 2 days here have been really good. Medication seems to be working for him. He's on 3.3 mls of ranidirine (sp) and anti reflux milk and things are good. Only prob now is the constipation. I've been giving him some cool boiled water so fingers crossed as he was crying this morning trying to poo. Anyone recommend some other remedies for constipation ? X

Greatnews things are better!

Vegazbaby - i feel for you!

My boys no better sat here in tears as i cant face another day but have no choice

One thing tho... What bottles do you use? I tried a tomme tippe anti colic one last night and he seemed to drink better :s just about to try it again
 
I've only ever used the Dr Brown bottles so I have no comparison.

Still trying to make a decision on weaning. Lo is 18 weeks and now guzzles 8oz every 4 hours day and night. HV said to think about it when he reaches drinking that much milk. He definately waking up at night in hunger rather than habit as he is drinking every oz. Has anyone else weaned before 6 months? X
 
Wat a little chatterbox he has such a personality!
My boy has his chatter first thing in the morning like hes saying mummy its morning get up lol

Thank you. He certainly is a chatterbox :wacko: As for personality, you should see him when he's telling me off! Why couldn't he take more after Daddy? :haha:

Aww Nela, he is really cute 😊

Yeah, he loves bouncing and trying to take little steps. I was going to get him a Jumperoo for Christmas but I think he's ready for one now.

Thanks! Haha yeah, those things must be massive fun for them. I wonder what age is safe for them to actually use those things. I know they say they shouldn't have weight on their legs so young but Nathan bounces himself all the time. :shrug: I'm sure Nathan would love one. If you get your kiddo one, you'll have to film him to show us! :winkwink:

Hes 10lb so lowest dose is 0.3ml 3 times a day

Im trying 0.4 - 0.5

Hes on nutramagin lipil and the gaviscon thickens it in a weird way so i was doing it for breastfed babies with a syringe.
You reckon i should continue like this then? Maybe a day off will mean he poos better now

Can you go over a few details with me, please? One, isn't nutramigen for a cow milk protein intolerance? If so, would you need to thicken it? If it's a protein allergy that he has and you remove the allergen, that should be making his condition loads better no? I'm not sure a true cow protein allergy would need to be treated with thickeners, medications, plus a different formula since the formula itself would be the main culprit. Nutramigen is said to have a very different taste so perhaps, that is why he's so difficult to feed? Maybe he doesn't like it? Was your little one ever diagnosed with a cow protein allergy? If not, that might explain why it's not working because the milk itself might just not be to his liking.

You said the Gaviscon was constipating him right? How bad is the constipation? If the constipation is bad, it'll make him really gassy and probably not want to eat. That might be another reason why he's giving you such a hard time when feeding. Ranitidine can also have such side effects so that would be something to keep an eye on.

From what I have experienced, the only way to actually get the reflux better is to juggle his digestive system as a whole. So if he's gassy and/or constipated, it'll be really hard to control that reflux.

Had you tried comfort milk without gaviscon but with keeping up Ranitidine?

Also, how is he doing emotionally? My lil guy became very anxious from all the discomfort/pain. He developed minor feeding aversions but luckily, we seem to have found things that are working at the moment so he's not as bad anymore. He doesn't nap at all though so he gets extremely fussy in the evening, making his reflux a whole lot worse then just because he's so tired and cranky.

I hope things settle down a bit so you can catch your breath! :hugs:

oh what a day we've had - i attempted mother and baby group but i arrived to find a ton of ladies caked in make up it was like a fashion show, i turned up hair all scraggy and no make up , leggings and t shirt ha ha (i thought id get more friends if i looked like shite) but two people spoke to me, i didnt really get that involved as he was just too small and no where to perch him on. two of the ladies were oh yeah reflux mine had that you just need to keep them upright (made me feel like i was making mountain out of mole hill) so left and thought not going there again

then to see consultant at hospital, we sat down straight away she said his 1.5 ml 3 times a day was too much, and that she was adding domperdone, didnt explain why, what it did, didnt even weigh him,
i explained that he is very windy and that his poos start out firm then drift off to a wet foamy liquid and that he squirms and writhes when hes moving his bowels but she didnt seem to care and completley out and out dismissed allergies or intolerence. and that his development was in line, hes thriving so hes ok (he was asleep on my shoulder how does she know how hes developing)
i mentioned the heart murmer but she said she hadnt allowed time to listen to it,
but then couldn't find it, so therefore there isnt one.
and when i wanted to understand why we were adding more drugs she kept interupting me and telling me to ignore his bowels and all babys grow out of that sort of thing, again i tried to recap my understanding of the situation and again she started telling to me ignore the bowels. so and i cant believe i did this but i put my finger to my lips and just went shhhhhhhhhhhhhhhhhhh she looked at me completely shocked, and then i finished what i needed to say, and then she confirmed my understanding.

i asked about follow up appointment she told me this was it and to go back to my gp, (oh right the gp that takes 5 weeks to listen, over prescribed medication for him, and refuses to refer him to paediatrician)

why does it feel that if as a parent you want to have an understanding or involvement in a care plan you are deemed as a fussy mother and over reacting

needless to say there was a 25 minute wait at the pharmacy and hubby had left to go to work so i went back up and complained they then confirmed the care plan, confirmed that she was a locum and that they would book me in for 2 week review with a doctor permanently there, where they will confirm the heart scan, oh and he got weighed too funny that!

grrr, so came home and left him in the car seat a sleep (naughty) but he looked cosy and i jumped in the tub, when he woke up i got him in with me and we had the most amazing bath together it was soo amazing and i washed away my day

**oh i recently downloaded a lullaby for baby cd from itunes, i have it on my phone all the time, he nods off to it a treat, it doesnt irritate you and its really calming and i think its working on me too as im not as stressed, its like lullabies to the sounds of a facial. HIGHLY RECOMMENDED

Sorry to hear about your day :hugs: I hate meeting new people :haha: The Domperidone was most likely added to help prevent him from bringing the milk up. The ranitidine only neutralizes the acid but doesn't stop the reflux. However, I will ask this: If the acid is neutalized, it shouldn't hurt to spit up. Is it better then to allow the spit up or better to prevent it but risk tummy issues from the Domperidone? I took Dom. to stimulate my breast milk. I was constipated within a few days and I do not constipate easily. (it can have opposite effects as well) So this is all a good discussion to be had with your pharmacist. Pharmacists are usually the best people to ask about the medications (how they work, effect, interactions) as they know them best. If you go at a quiet time, I am sure they would help you out. Just tell them you've been prescribed stuff but you have no idea why, and the doc rushed you out. I think they tend to like having their jobs valued as being more than just 'medical cashiers' so they like when you actually turn to them about the medicine. :winkwink:

Well the last 2 days here have been really good. Medication seems to be working for him. He's on 3.3 mls of ranidirine (sp) and anti reflux milk and things are good. Only prob now is the constipation. I've been giving him some cool boiled water so fingers crossed as he was crying this morning trying to poo. Anyone recommend some other remedies for constipation ? X

Great news! :flower: I hope it continues that way! Any poo yet?
 
Im stressed in general my heads killing i cant atop crying and i can barely get an oz in jadon without him crying and pulling away from the bottle. I cant even feed my baby!! Nothing i do is helping him i dont know wjat to do anymore

We tried comfort formula this didnt agree with him, constipation is ok now hes pooing great

At first nuetramigin worked a treat then it got worse again

He wants his bottle so bad but he literalu cant drink it coz hes in pain and discomfort!
Im about ready to go a n e with him as im sick of this
 
Oh no! So sorry you're having such an awful time! I know you've been on here a bit recently but can't remember what you've tried. Just wanted to say that we're now on a med called losec MUPS (omeprazole) and I wasn't sure about such heavy duty meds at first but it has changed out lives completely. LO is such a different child, so happy now. If you do get help today maybe suggest trialling it if you haven't already. It works by stopping the stomach producing acid at all.

Big big hugs and hope you do get some help today in some form or other. Let us know what happens. Xxx
 
Well we are on our 4th good day in a row. Lo is taking ranitidine really well, he tries to grab the syringe to put it in his mouth himself lol. I'm not sure if it's down to the meds and reflux milk or if it's just as he's getting older but he's hardly passed wind this week and when he has done it hasn't bothered him. This morning he woke up at 6am, babbled to himself for 20 mins then had a poo (he's the noisiest poo'er), where as usually he would wake up thrashing about and crying an hour before having a poo.

And for the first time possibly ever he wasn't sick after his night feeds last night!!

I really hope it lasts although I know things can quickly change with ranitidine.

I'm feeling abit more human aswell as I finally have him taking his daytime naps in his cot for 2 hours in the morning and 2 hours around 12. Just struggling to get him to have his 4pm catnap.

Think I'm going to introduce baby rice next week. Last night he went less than 4 hours between his feeds and drank the lot...greedy boy. He used to do a lovely 7 hour stretch but that's a distant memory lol.
 
Im stressed in general my heads killing i cant atop crying and i can barely get an oz in jadon without him crying and pulling away from the bottle. I cant even feed my baby!! Nothing i do is helping him i dont know wjat to do anymore

We tried comfort formula this didnt agree with him, constipation is ok now hes pooing great

At first nuetramigin worked a treat then it got worse again

He wants his bottle so bad but he literalu cant drink it coz hes in pain and discomfort!
Im about ready to go a n e with him as im sick of this

Sorry to hear things are bad. I would follow you're instincts and seek medical advice. Lo may need to try different meds if the ranitidine isn't working. He may be having discomfort in his tummy and throat from the acid. If he's refusing bottles you need to keep an eye out for dehydration also. Good luck if you go to A&E Hun x
 
Im stressed in general my heads killing i cant atop crying and i can barely get an oz in jadon without him crying and pulling away from the bottle. I cant even feed my baby!! Nothing i do is helping him i dont know wjat to do anymore

We tried comfort formula this didnt agree with him, constipation is ok now hes pooing great

At first nuetramigin worked a treat then it got worse again

He wants his bottle so bad but he literalu cant drink it coz hes in pain and discomfort!
Im about ready to go a n e with him as im sick of this

Ladybrock :hugs:

Trust your instincts, mama. Bring him in if things are so out of control. Perhaps his throat and/or ears are irritated and hurting. Perhaps the meds aren't agreeing with him or perhaps the reflux has gotten worse. Either way mama, that's the doctors jobs to figure out what is wrong and how to fix it. We take so much upon ourselves but it is dang time that we put back the medical part on the doctors' backs. If they need to admit him to observe him and see it for themselves, so be it. If you have to have a meltdown for them to take it seriously, so be it. But whatever you do, don't settle for things like this now if you aren't accepting things as they are. If your gut tells you nothing is working, then that's something to take seriously. :hugs: Perhaps your hubby should come home today and help you out. It's Friday anyway. Maybe make him come, go to consult with you, and then help you out some. Perhaps, if kiddo settles even a little and hubby can deal, you can go soak in a tub, or do something for yourself. You're important too. You can only be so strong for so long before your superhero attitude is replaced by your human capacities. :flower:
 
Well we are on our 4th good day in a row. Lo is taking ranitidine really well, he tries to grab the syringe to put it in his mouth himself lol. I'm not sure if it's down to the meds and reflux milk or if it's just as he's getting older but he's hardly passed wind this week and when he has done it hasn't bothered him. This morning he woke up at 6am, babbled to himself for 20 mins then had a poo (he's the noisiest poo'er), where as usually he would wake up thrashing about and crying an hour before having a poo.

And for the first time possibly ever he wasn't sick after his night feeds last night!!

I really hope it lasts although I know things can quickly change with ranitidine.

I'm feeling abit more human aswell as I finally have him taking his daytime naps in his cot for 2 hours in the morning and 2 hours around 12. Just struggling to get him to have his 4pm catnap.

Think I'm going to introduce baby rice next week. Last night he went less than 4 hours between his feeds and drank the lot...greedy boy. He used to do a lovely 7 hour stretch but that's a distant memory lol.

Sezz, your post made me smile. I am thoroughly overjoyed to hear that things are working over there for you guys. I am crossing everything in the hopes that it stays like this! :happydance:
 
Ladies,

I updated the first post to make it a lot more informative for any new victims we might drag into our little club of horrors :haha: I have not yet gone through the entire thread to pick out things (I'm juggling typing, chicken wing eating, and feeding baby right now :haha:) so it still needs some editing and I figure you all might have more to add so we can edit it as much as we want. Let me know what you girls think when you have a chance!

:flower:

Btw...

'Happy' one month to our group!

:happydance:
 
I'm wondering if things are also improving at my end due to sticking to a pretty rigid daytime routine. I've done a bedtime routine foe a while now and he settles really well for bed. This week I've hardly left the house trying to figure out a daytime routine, its been a very boring week but I think my lol is much happier on a predictable routine.

Our day roughly is:

6.30am - wake up, poo, meds and bottle.
8am - nap
10am - wake (will introduce baby rice next week). Get lo dressed
11.30- bottle
12pm - nap
1.30/2pm - awake, meds, go out for a hour or so/ bottle
4pm -30-40min nap in pram weather permitting.
6pm - meds, play with daddy for abit.
6.15pm - naked time
6.30pm - bath
6.45pm - bottle
7-7.15pm sleep
2 night feeds

He's tending to pretty much stick to the routine himself, might be half an hour different depending on his wake up time. Once his awake times extend I'll start going to baby groups again. They are bit stressful at the minute as he gets tired so quickly and goes from happy smiley to cranky and screaming in minutes lol
 
I'm wondering if things are also improving at my end due to sticking to a pretty rigid daytime routine. I've done a bedtime routine foe a while now and he settles really well for bed. This week I've hardly left the house trying to figure out a daytime routine, its been a very boring week but I think my lol is much happier on a predictable routine.

Our day roughly is:

6/7am - wake up, meds and bottle.
8/8.30am - nap
10/10.30am - wake (will introduce baby rice next week). Get lo dressed
11/11.30 - bottle
12/12.15 - nap
1.30/2pm - awake, meds, go out for a hour or so/ bottle
4pm -30-40min nap in pram weather permitting.
6pm - meds, play with daddy for abit.
6.15pm - naked time
6.30pm - bath
6.45pm - bottle
7-7.15pm sleep
2 night feeds

He's tending to pretty much stick to the routine himself, might be half an hour different depending on his wake up time. Once his awake times extend I'll start going to baby groups again. They are bit stressful at the minute as he gets tired so quickly and goes from happy smiley to cranky and screaming in minutes lol

Routine and sleep definitely help. The sleep helps enormously because they are able to deal so much better with everything when they aren't exhausted and cranky. They just are generally less sensitive then.

Does he also sleep when you are out? My kiddo loves to sleep while out. He's having a mad chat beside me again now that he's just awaken from his nap. :haha:

Oddly enough, he's slept all day today whereas I've been fighting with him constantly to sleep more than 10 mins at a time during the day. Nights aren't an issue, he sleeps great at night, although he does go to sleep a little late. I am hoping the Moby wrap and more rigid routine will help us as well.

Yeah, the baby group probably didn't help if he was too young. It probably just made him overstimulated more than anything. I hope it will be better this time around :flower:
 
Nela -
In regards to weight baring. My lo has also loved it from being tiny. I've never really stopped him, he's really strong now. Easily rolls over and is trying his hardest to crawl ( more like a tummy shuffle at the moment lol), can sit unaided for 10 or 20 seconds and tries to bounce and take steps when he's standing supported by us. H/V has always encouraged us as he's had a strong neck/legs from the start :)
 

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