Mayhem Babies! May 2011 mummies and babies

mummy- i sent in a referral to a program we have called Help Me Grow. then a service worker from there came over on thursday. she asked me tons of questions, did a little check list. and kinda watced milo a little, tried to interact with him (which he wasnt interested in! lol). she called to get an evaluation set up for Early Intervention. they'll be the ones to diagnose him. i have no idea what happens after that :?
 
Milos- Connor was in early intervention. They have you get an evaluation in a few different areas, Connor's concern was speech. He passed all the evals except the speech one so someone from early intervention would come to our house twice a month to play/encourage words. Connor was not talking by two but a couple months later he just took off. He was just a late talker as was his father. When he started speaking it was in full sentences.
 
lucky - i'm hoping it doesnt take long to get milo to start talking. but if he is diagnosed with ASD, i have no idea what those therapy sessions are like.
 
Seems you guys went about it a different way. We got a referral for Ruaridh to the developmental pediatrician (same as Eilidh's:thumbup:) She did the assesment then gave us a referral for occupational therapy for him and the number for the special needs preschool, where he's going on the 27th july. His speech is good, he started at around 18m/2 years but he's very matter of fact lol. She did say he had good language but he had psychological issues:wacko:

I need go read through this now. Today has been interesting. There was a huge cockroach in the bathroom at dennys :sick: we got a new sectional couch:happydance: and im having carrot cake and ice cream atm!
 
Wild, wow you're gorgeous!!

Brandi, dont get yourself sterilised for anyone but yourself:hugs: Hope Zoe is feeling better?
 
I need a break. Someone come save me please.

I went to check on Zoe this morning at 4:30am because she had a fever the night before. I walked in to her bedroom in the middle of a complex partial seizure. I tried to get her to respond, and it wasn't happening. Today was the first time I had ever needed to use a rescue medication. When she came out of it, she started going on about a pink something-or-other and would not answer my questions, so I checked her temperature, 104F, and I took her to the Children's hospital. It was there that they decided to do a urine sample and did it via catheter. They told me there was 3+ blood in her urine, whatever that means, and sent us home with a prescription for antibiotics to cure a bladder infection. Skip ahead to 3:30pm and a scary moment. Zoe seized again. But this time, it wasn't a CP. She came out of it on her own after 45 seconds and I checked her temperature again. 104 again. I dosed her with Advil and she fell asleep for two hours. 5:30pm she woke up and I could feel the heat coming off her from across the room. She was 105F now, so I piggybacked with Tylenol and we went straight back to the hospital. I told the nurse that Zoe has trouble with her fevers responding to medication because of her medical condition and the idiot triage nurse tried to tell me I was underdosing Zoe and that was why her fever wasn't responding. She wouldn't even listen when I tried to explain what we knew of Zoe's condition. She even argued with me. telling me that Zoe was not microcephalic because she didn't look like a micro kid. Zoe's head hasn't grown in 2 years. It's the average size of a 14 month old, but I digress...

And Zoe decided to show off and have yet another seizure while at the hospital.

We're at home now, with a new prescription. Turns out, she has a bad case of strep throat that is worse for her because of her tonsil issue. How strep throat was misdiagnosed as a bladder infection is beyond me.

3 seizures in a day is enough for me. I'm exhausted. I'm going to bed.
 
<<<< has been up waaaay too long thanks to baby Anya! Today is definately going to be a coffee day. *yawn*
 
I need a break. Someone come save me please.

I went to check on Zoe this morning at 4:30am because she had a fever the night before. I walked in to her bedroom in the middle of a complex partial seizure. I tried to get her to respond, and it wasn't happening. Today was the first time I had ever needed to use a rescue medication. When she came out of it, she started going on about a pink something-or-other and would not answer my questions, so I checked her temperature, 104F, and I took her to the Children's hospital. It was there that they decided to do a urine sample and did it via catheter. They told me there was 3+ blood in her urine, whatever that means, and sent us home with a prescription for antibiotics to cure a bladder infection. Skip ahead to 3:30pm and a scary moment. Zoe seized again. But this time, it wasn't a CP. She came out of it on her own after 45 seconds and I checked her temperature again. 104 again. I dosed her with Advil and she fell asleep for two hours. 5:30pm she woke up and I could feel the heat coming off her from across the room. She was 105F now, so I piggybacked with Tylenol and we went straight back to the hospital. I told the nurse that Zoe has trouble with her fevers responding to medication because of her medical condition and the idiot triage nurse tried to tell me I was underdosing Zoe and that was why her fever wasn't responding. She wouldn't even listen when I tried to explain what we knew of Zoe's condition. She even argued with me. telling me that Zoe was not microcephalic because she didn't look like a micro kid. Zoe's head hasn't grown in 2 years. It's the average size of a 14 month old, but I digress...

And Zoe decided to show off and have yet another seizure while at the hospital.

We're at home now, with a new prescription. Turns out, she has a bad case of strep throat that is worse for her because of her tonsil issue. How strep throat was misdiagnosed as a bladder infection is beyond me.

3 seizures in a day is enough for me. I'm exhausted. I'm going to bed.

How scary! Can I ask why she has the seizures? I remember from my cousins how awful they can be.

It's good that they finally got to the bottom of the infection. Doctors have a frighteningly great knack for missing diagnoses.

I hope you manage some sleep
 
Aww Brandi! Poor Zoe :hugs: I hope you both get some well deserved rest!

Dylan slept in til 7am!!! It might be cos the cheeky monkey woke up in the middle of the night to play with toys though :rofl: We turned his light off at 9pm after he fell asleep and it was on again this morning at about 5am. He is playing in his room at the moment, I think he likes all the effort I went to yesterday moving it all about and sorting out his toys. It looks fab in there now.

I'm going to have a nice relaxing day today, it is mega hot in this flat again I am sweating my head off. Someone PLEASE send wind and rain this way, there is a very real danger that I will melt! :rofl:
 
HellBunny, Zoe is considered medically fragile. She has microcephaly, complex partial epilepsy and a chromosome translocation. Her head (brain) isn't growing as it should and is missing crucial pieces to function normally.

www.zoemeszaros.com for more indepth information (and it's newly updated too!)
 
Helloooooo oops can't remember what i've read?
Had a busy wk end, nice weather & bbq's yum!
My 7 year old has changed she's so mouthy & horrible sometimes :( Want my sweet little girl back sob sob!
On a brighter note Livi slept all night for the first time yey x (Well from 11-8 anyway) xx
 
Brandi. :hugs:

Just off for my six week check.... xx
 
Really Wiggler? lol

That's some post-baby brain you got there :rofl:

I was discharged two weeks ago!
 
Yea I keep forgetting, I'll book it when I'm down the docs on wednesday or when I'm out tomorrow, I refuse to ring them, they have this horrible system where you have to listen to a robot before they connect you to the receptionists and they are bitches over the phone.

I just put Bethany down for a nap in my room for the first time ever!! She fell straight to sleep, bless her. I know I'm onnly in the next room but I miss her like mad already! I think Dylan does too, I just caught him trying to sneak in there :rofl:
 
My 6 week check isnt for another 2 weeks i dont think :rofl:

Wud, I am so glad that Im not alone with a changed child. Joshua was lovely until half way through being 7, then it went down hill and hasnt climbed back up yet! Im off to speak with a parent tonight, the one who kicked off last Friday, she said some more stuff on Sunday, but none of it to me, and insinuated I didnt care what Joshua gets up to!!! - This has really wound me up, because i have done everything to rain Joshua back in - even got the police to come visit him and row him about lies etc! If I know what the problem is I can try and deal with it, if she bitches to other parents about me then I cant sort it. So tonight Im going to call by her house after school, no prewarning, I want to be the one in control and see what she has to say. If we dont get it all out then the kids are going to suffer, which is stupid because they are good friends. I know Joshua is no angel, but he isnt a bad lad either, and so far all i can see he has done is stupid normal 8yr old boy stuff!

brandi, I hope you and Zoe manage to get some rest and she is feeling better soon :hugs:

Wild awesome signiture!!! You are such a cute and adorable family :)

I forgot what else I read lol, Im still freshly wound up about all this bitching!
 
OMG new - I would be fuming! I hope you manage to get it sorted. :hugs:
 
OK, naptime in my room didn't work, she woke up hysterical and calmed down as soon as I picked her up, Bethany doesn't really cry often and she had tears and everything :cry: I'll try again in a week or two
 
Thanks hun! OH tried to help calm me down - but totally riled me up lol he was trying to be diplomatic - but I needed to vent so Im calm before I speak to her. Bless him he quickly realised he needed to shut up before we fell out too pmsl I did calm down though and told him I wasnt mad at him at all, he was just the only one there and listening - which he replied, no Im not listening Im watching the sports - but do carry on venting till you feel better - I couldnt help but laugh and all was fine and happiness restored lol 15 minutes until i picked Joshua up, then Im going to go round. Im nervous and worried, I dont want an arguement but I just have a feeling she is going to say something about Joshua that going to make me blow lol

id persevere with the naps in your room hun, she may just have woken up from a dream, or draft etc if she settled and slept well I'd try again with her :hugs: Glad she calmed down for you though xxx
 

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