Migraine Sufferers - sympathy to anyone with migraine and small children!

[LucindaE]

When I have a migraine, and the Head Down the Loo syndrome for two days, I always remember how difficult it was when my daughter was younger. She's older now, so if I'm pole axed it's not much of a problem to her, except that OH forgets to do the washing.

When she was little, if I had one when OH was at work, I used to wonder how I'd ever get through the day.

It's awful letting them down, too. I had one on Christmas Day, once, and had to go to bed after she'd opened her stocking.

I had one on her fifth birthday had to run to the loo to be sick every half hour.

I tried chiropractic (that helped a bit but was terribly expensive) homeopathy, pizotefen, beta blockers, diet, relaxation tapes - you name it.

Some people swear by the 5HT drugs, but I just found that they put the migraine off by twenty-four hours. They were useful for special occasions, but my doctor was pretty mean with them.

So, to those poor Mums struggling with bad migraines and small kids, I do feel for you. It is truly awful, and people think you've just got a headache.



LucindaE
XXXX

 

[Katieeeee]

Oh yeah it's AWFUL, especially when you're a single mum and can't get anyone to look after baby! I have hemiplegic ones so I go totally blind when I get one, it's PETRIFYING! xxx

 

[RainbowMum]

My girlfriend has a migraine at least 5 nights out of 7 and she's even had surgery for it, so it's really not just a strng headache in her case. She's had them since she was very little.
I sometimes worry how she's going to cope when we have a baby, we won't be able to afford a big flat, so she will hear the baby when it's crying. Also because I earn a higher wage I might not have a long maternity leave and ideally she would look after LO...
Guess we'll see when it happens

 

[Justme]

I suffer with them too.They vary in severity but they are awful.I often think its a good job im not driving or something when 1 starts to attack,I wouldnt be able to see properly as I get the fuzzy eyes and blurry spots.

 

[LucindaE]

My goodness, Katieeeee, and Rainbowmum, those sound worse than mine!

Rainbowmum, I am so sorry that your girlfriend has them so much. It will make things hard, but it wouldn't be fair for her to miss out on having a baby.

Sarah2323, I am glad that they at least vary in severity, because they make driving impossible.

I was wondering if a support thread would be a good idea to anyone? It is such a lonely condition.

Let me know what you think.

LucindaE
XXXX

 

[pinkycat]

to u all. Migraines are awfull. I usually get 2 or 3 really bad migraines a month (Im ok 4 a couple of wks then hav 2 in a wk)
Its terrible (sp) wen you hav young children 2 look after.
Does anyone know wot triggers their migraines?
Mine is if i hav a couple of bad nights sleep with the kids i always get one, and if i eat a lot of chocolate i get a bad one the next day x x

 

[LucindaE]

Sorry to hear that yours are so frequent. to you. With small kids it is horrendous to have one.

Mine are hormonal, I think - used to be round my period, now come during
ovulation sometimes, too. Never been able to work out a dietary trigger - but stress can make them worse. Also, I also get one with any other illness, ie a bad cold..

Gave up chocolate and cheese, red wine and oranges for years, but have had them no more often since having a little of them.

Wish you a migraine free month, or two, or three...

LucindaE
XXXX

 

[pinkycat]

Thanks. Not had one 4 a while so due a bad one soon

xx

 

[DizzyMoo]

Thank god this thread is here, I've suffered with migraines since being in high school, The sitting in the dark, every moment pounds even if its your little finger wiggling, sometimes physically sick, i never used to have a problem with vision but now i get a funny vision hard to describe but its like objects kinda disappear & all the colours merge & it looks fuzzy, im sick with this & cant walk coz i cant see . I find it really hard as i've 2 boys & not 1 person who'll help me so i have to suffer & continue the day, I can explain to josh now & he'll play upstairs sometimes so i get a bit of peace but with now having jax its not that easy. I end up with a migraine for days on end & by the end of it im so wasted its untrue. Ive been to the doctors about it & have not once been given anything, they are to quick to blame it on stress, my thyroid & the fact im a single mum...baring in mind i was a teenager when they started!
So i take 2 30/500mg cocodamols when i feel one coming, or if it comes on i ask my auntie to give me 1 of hers, she gets max alt melt on prescription for migraines .

 

[LucindaE]

Ah, DizzyMoo, I can't believe that your doctors won't give you anything.

Would it be worth changing doctors, if possible, just to see if the new ones might prescribe something that might possibly help? Or going back and telling them that you can hardly keep going with two little ones?

Nothing works for me, but I do know lots of people who have been helped by medication.

That is one happy baby in your atavar, so you must be doing pretty well...

Keep me posted as to how you are doing.

and sympathy.

LucindaE
XXXX

 

[LucindaE]

How are all the migraine stricken parents out there?

I've had a about three in the past five weeks, unfortunately, and been out for the count or with my head down the loo but as my daughter is no longer small I don't have to worry about her so much when I'm not functioning.

Still, that is a lot better than when she was little and I had to stagger about doing things.

LucindaE
xx

 

[LucindaE]

Whoops, managed to double post!

How are all the migraine stricken parents out there?

I've had a about three in the past five weeks, unfortunately, and been out for the count or with my head down the loo but as my daughter is no longer small I don't have to worry about her so much when I'm not functioning.

Still, that is a lot better than when she was little and I had to stagger about doing things.

LucindaE
xx

 

[hypnorm]

My migraines started in my 20s, about 6 months after i had started taking the pill.
it got to the point where i was getting a couple a week. (very depressing) i would worry that i had fogotten painkiller when i went out. Doctors were usuless and i just took syndol but they knocked me out. I moved and changed doctors what a difference where as i had been told there wasnt much i could take he kept trying different medication. i stopped taking any sort of contraception pill as they just messed me up completely.
medication would work for a while but then not so good.
When i got pregnant i had the worst mirgaine ever and one of the girls from work drove me home, after the head nurse said .. Go lie down for half an hour you'll feel better, (she never had a migraine!!) i was sick in the car afew time on the way home and was off work for a couple of days.

Pregnacy was hard as all i could take was paracetamol but some how it seemed to work and the migraines lessened.

With my second pregnancy i had another unusually bad migraine - (OH knew i was preg when he saw the migraine i had!) kept getting headaches up untill about 16 weeks then they went.

Robynis now 13month and i can't remember the last time i had a migraine..(touches wood!) paracetamol is enough to kill it now, though i still get nasty tension headaches.

I hate taking soluable paracetamol now and hate some of the 'melts' that i tried.
i also had sickness tables to put on my gums.. foul

I was being treated for a prolactinoma so i don't know if that had anything to do with the migraines.. we will see once i stop breast feeding.

anyway sorry for the missive! but people think you can carry on wokring with migraines... they've obviously never had one!

There is a migraine association i'll dig out the link for you.

 

[hypnorm]

https://www.migraine.org.uk/

 

[LucindaE]

Thanks, hypnorm, for the link. Sorry you had such foul migraines in pregnancy. Nice for you that they've gone, that's wonderful! You need to be healthy with small kids more than anything, particularly without much support.

Thanks for the link. They might be able to suggest something.

Do you know, I even had surgery to fill in a hole in the heart as part of an experiment done to see if there was a link between that and migraine as it worked for some people...didn't work for me. whinge, whinge...


LucindaE
xx

 

[xJG30]

I've been suffering with migraines for the last year and a half.. I've been having alot of time off work due to them.. and only now are they sorting me out to see a specialist.

 

[hypnorm]

I live n fear that they might come back, so i am trying to avoid going on hormonal contraception, though i might try the mirena coil as its a lower dose rather than the pill.

 

[Kitten]

I'm very lucky to have not had one since Theakston was born. Not sure why, I used to get them quite frequently. I get mine from hormones (like around my period), certain foods, stress, or blood pressure. I too have tried diet, standard migraine drugs, beta blockers, homeopathy etc. and I find if they come they come! Nurofen migraine pain are the best for helping me get to a stage where I can sleep it off though. They've changed too. When I was younger it was literally just the headache but as I got older I got more aura. Now I stumble over my words, lose my balance, get nausea, confusion, sometimes I just get the aura or the migraine shows up the next day. Can't say I miss them or looking forward to having them when looking after Theakston. Thankfully I don't get vomiting so I could just lie on the floor while he plays and sit while he nurses then go to sleep when he does.

 

[hypnorm]

At one point i could eat very little cheese, milk, chocolate, coffee, coke before giving my self a migraine.
Lived off Soya milk for a couple of years.

 

[LucindaE]

Not been able to get on the site for some days - I managed to get into difficulties logging in - accused of impersonating myself - that could only happen to me.

Gemlou, that is so frustrating that you have had to wait for so long for the migraines to be taken seriously.

Kitten -and hypnormThere does seem to be a huge link with hormones.

I didn't used to puke with mine until I had a run-in with Hyperemesis. That seemed to set it off! Horrible...

LucindaE
xxx