Molar and Partial Molar Pregnancy Support Group

[vegasbaby]

Ece: although I can't remember my numbers, I do recall that I thought they were high, yet everything seems to be fine. They even tripled in 48 hours. I ended up with an ultrasound at weeks 6,7 and almost 10 weeks to rule out a repeat molar. If your doctor will do that for you it will give you a lot of peace of mind. Being pregnant after a molar is scary at first, but I will pray that all will be fine and that this is your rainbow.

 

[ece77]

Vicki - I am really struggling to be hopeful and enjoy this pregnancy but it is very very hard. With a history of molar, at the age of 36, with no previous child and a very high hcg so early on, it's not easy to be very optimistic unfortunately. That said, I'm beginning to realize, every day will bring more worries and they will most probably quadruple when/if I have a baby. So I guess you are more than right, I should relax but first I need to learn how.

Jacky - I will have another draw on Tuesday and will have a scan on Friday. Hopefully we'll be able to see the sac and at least the yolk. Twins do not run in either families but who knows? I'd be delighted.

Vegas - I actually looked up your numbers and they are way lower. 744 at 17dpo! I may be at most 19dpo, and almost 4000

I tried to search online but many threads are left after a while, and it is impossible to guess what happened. Some say they had high hcg which turned out to be multiples, some say it doesn't have to be strictly so. None seems to end up with a molar, although they don't exactly mention a history of such.

So I'm confused and worried but since all I can do is wait until Friday, that is what I will do. And I will try to find some ways to relax myself. Maybe try out yoga or meditation?!

 

[ihave5boys]

I had very high hcg with i think my 5th but that was before molar and i never even thought about it. Mine was like if i remember right 18,000's in the first 5 weeks or something. I was scared of twins. But it was a normal single. And as i said that was before molar so that did not even cross my mind. However my cmp my levels were low and did not double after 48 hours or they just barely doubled. So i feel hcgs are not a defginite of molars. Prayers for you and baby and also for your piece of mind no matter what happens.

Vicki

 

[jacky b]

Ece, my initial hcg with my pmp was very low like Vicki - they even said I was 4 weeks behind. My levels doubled in less than 24 hrs with Marcy early on (and only her ). Good luck Tuesday and Friday xx

 

[B&LsMom]

Laura either your little lady is a chunk or our Drs scales are wrong but Lukas on Thursday weighed in at 16lbs 1oz. And he is now 28 inches long!

 

[Mummy2Corban]

Ece I found it very difficult to enjoy it.... I felt a sense of dread before every scan. I relaxed a lot after my 20 week scan so it does become easier. It's hard not to worry with knowing hcg numbers. Good luck with your next draw and scan. Keep us updated.

Tina indie is a chubby one!!! Just looked at corbans red book and he was 16lb 2oz at 12 weeks!!! Haha!!!!

Xxx

 

[dan-o]

Ece, congrats on the bfp!
Re hcg levels: mine were just over 100,000 at 6w with Vincent! Mega high!
Don't worry, you'll be fine! X

everyone else, sorry been super slack with coming online recently x

 

[ece77]

Thank you all girls. I'm trying to be more optimistic...

 

[tung]

Hi ladies! sorry, it's been a long time since i've been on here. How is everybody doing?

My little one is now about 7 months. In canada we get 1 year mat leave. So I still have about 5 months to go. I've told the hubby that maybe we should have a 3rd so that I don't ever have to go back to work... haha...

 

[vegasbaby]

Ece: like the others I too found it hard to relax, heck I'm 25 weeks pregnant and even though the threat of this being a repeat molar has passed, I still worry. Just take it one appointment at a time. I also bought a cheap doppler that gave me some reassurance until I could feel baby moving. I pray that all goes well for you.

 

[ihave5boys]

Tired of the headaches ( a little over a week and daily.) tired of the swelling in hands, feet, ankles,legs. ( had swelling in hands usually do in het. But fel and ankles and legs started yesterday. They a little stiff from it.)

Vicki

 

[ece77]

My second beta came as 13143, at what can be at most 22 dpo. Doubling time is ~40 hours. Progesteron is quite high too at 53. I don't know what to think, in fact I really do not want to think at all. My appointment is on Friday morning and now it's just a waiting game. Wish I could just close my eyes and open them 3 days later....

 

[Mummy2Corban]

After the molar it's extremely hard to not worry and think the worst. I'm sure all is ok lovely even though that won't settle your worries. Have everything crossed for you for Friday

Xxx

 

[tung]

I bought a doppler from ebay as well after my molar. I used it everyday and it was reassuring.

I also kept asking my doctors for a requisition for ultrasounds... I think I had about 3 done in the first 12 weeks. It's hard not to worry. But stay positive and think positive!

 

[Mummy2Corban]

I borrowed a Doppler too but only allowed myself to use every few days so I didn't obsess about it. I had extra scans too.

Tung post a picture of your rainbow!

Xxx

 

[jacky b]

Ece, good luck for Friday. I had lots of early scans too. I also found it hard to be excited until I felt movement and we had got the all clear from our morphology scan. Praying this is your rainbow xx

Tung, welcome back and congratulations on your rainbow xx

I got Marcy weighed yesterday for her 8 months. She had put on bit over half a kilo in a month and grew 2 cm! Very awesome for her. Was very excited! Was good to get that fat on before I have trouble getting her to put on weight now she is crawling. Its so cute she has the fat lines on her wrists. So cute

 

[tung]

Hi ladies, here he is!!

He weighs 17 lbs now and is 68cm long.

 

[Mummy2Corban]

Beautiful tung! What's his name? Xxx

 

[dopechick]

I JUST posted this in gestational complications but thought I should post it here:

Good Day,

When I was 6 weeks I had my first ultrasound and the sonographer found a mass inside the gestational sac. First they told me the baby died but then she put sound onto the sac and heard a heartbeat. She thought it was a fibroid and I would follow up with my doctor. My doc sent me to have another ultrasound a week later and then he said it's a partial molar. Doc said the baby isn't viable. I was so so sad. I had blood drawn at about 8 wks and my HCG levels were 224k. He referred me to have another sonogram at the hospital with a specialist in a week. In the mean time I started doing my research. I had the sonogram done at the hospital but never saw the specialist. I guess he was just going to give his opinion to my Doc. I had my follow up with my doc but he just seemed like he had no hope. He made me feel like I was crazy to want to have further testing to see if my baby really wasn't viable. He had no bed side manner at all. When I asked more questions about the partial molar he became annoyed like I was digging too deep but it's my body, my baby. I have every right to do so. Mean while he never read the results, just wrote my baby off.

So he referred me to a genetics counselor since I had a strong desire to keep my baby. I've read many stories where babies survived and some stories where the baby died before the 2nd trimester. But I believe in God, and I trust in him whole heartedly. I met with the counselor and she told me the report says it could be a partial molar or a thick blood clot. So I asked is there anyway that I can meet with this specialist. She was very helpful and set up the appt for the following week but he wanted me to have a ultrasound before the appt.

I met with the specialist and he was very pleasant, answered all my questions and he told me the baby seems to be a viable baby but the high HCG level and and mass concerns him. He is the head of obstetrics/gyn and maternal and fetal medicine in the hospital and he has never seen something like this. I knew God had put me in good hands. I had also given blood and my HCG levels dropped a tad to 184k (which he said he expected) The specialist told me I can have a CVS done when I am 12 weeks. He explained everything and I agreed to it. I had it done Aug 16th. I was so nervous because I watched the procedure on YouTube which is a horrible idea. It hurt a little but it was fairly quick.

The genetics counselor called me the following Monday with preliminary results. With a partial molar the concern is the baby is a triploidy (69 chromosomes) but the baby in fact shows normal 46 chromosomes and genetic abnormalities (as of yet anyway). She said the full report comes back in another 2 weeks. I'm still waiting....

God is good, I prayed and prayed that he would work a miracle on my situation. I just have to keep waiting which is horrible. But I faith that everything will be alright

I am now 14 weeks, during my last ultrasound (during cvs) he says the baby was measuring a week ahead and is developing as a normal fetus should. The NT scan was also normal. I felt the first kicks yesterday.

I wanted to share my story, just continue to have hope. Even if your doctor seems to be giving up on you... you don't give up on you.

xoxo

Noelle

 

[tung]

His name is Carson. and my name is Cathy. I don't think I revealed my name before on this forum. haha...

Dopechick - thank you for your story. I believe god has a plan for each and everyone of us. I've read stories in the past of this kind of thing happening. I think ultrasound techs should never tell us anything and should just leave it to the doctor. I also believe that we should always get a second opinion if you do not feel confident. Thank you again! every baby is a miracle and blessing!