Molar and Partial Molar Pregnancy Support Group

[HaleyDavid334]

Hey everyone,

I found out at my normal checkup appointment on Wednesday that my baby's heart had stopped beating. It was told that it could be a partial but my doctor wanted me to see a high risk just in case. After spending all day in the hospital Thursday it was determined that it was a PMP and I had a D&C. I have no idea why this happened to me and I'm sure I'll never understand. I'm only 23 and have perfect health and at the beginning of my pregnancy I was old I was low risk. Regardless I know it's something I cannot change...and even though I know that I'm having the hardest time. I physically and emotionally feel empty. The only bit of hope I had was getting pregnant again but the high risk doctor told me to wait 6-months to a year. After reading many stories online, I've come across quite a few that have had another PMP and now I'm terrified that I'll never have a normal pregnancy. I guess I just am looking for advice on how to deal with all this and reassurance that I could have a normal pregnancy. Thanks.

Haley

 

[Lozwife]

So I posted about a month ago being cautiously excited about being pregnant and hearing the heart beat. I guess it was for good reasoning because Monday my world shattered around me at 10w2d when the ultrasound tech told us the baby's heart stopped sometime around 9 and a half weeks. I had my d&e yesterday and I go for my follow up in 2 weeks. I'm praying the pathology report isn't another PMP. Once I have my follow up they want to refer me to a maternal fetal Medicine specialist to check for any possible causes for this. Both of my pregnancies have bee missed miscarriages so it's making me all nerves.
Sorry. I'm very scatter brained. Anyways. I hope all is well with you ladies. I'll check back in after my follow up. Thank you for any input you might have.

 

[Rebaby]

I'm so sorry for your losses Haley and lozwife

I just found this thread and thought I would introduce myself as I had a partial molar almost exactly two years ago (12/10/13) and we are just now considering the possibility of trying again.

I have had two previous miscarriages as well and each of those times, the only thing that really helped me to move on from our loss was getting pregnant again (and having our sons) so I think molar pregnancy is especially cruel as that hope is dashed when they tell you that you need to wait at least 6 months before that is even a possibility

Fingers crossed for your pathology report lozwife, and I hope the referral helps. I too was referred following our PMP, but as we had decided not to try again in the end I cancelled the appointment (something I now wish I hadn't done, as it would have been good to have answers, even if they weren't necessarily good ones, if that makes sense?!)

 

[Jbaby90]

Hey everyone,

I found out at my normal checkup appointment on Wednesday that my baby's heart had stopped beating. It was told that it could be a partial but my doctor wanted me to see a high risk just in case. After spending all day in the hospital Thursday it was determined that it was a PMP and I had a D&C. I have no idea why this happened to me and I'm sure I'll never understand. I'm only 23 and have perfect health and at the beginning of my pregnancy I was old I was low risk. Regardless I know it's something I cannot change...and even though I know that I'm having the hardest time. I physically and emotionally feel empty. The only bit of hope I had was getting pregnant again but the high risk doctor told me to wait 6-months to a year. After reading many stories online, I've come across quite a few that have had another PMP and now I'm terrified that I'll never have a normal pregnancy. I guess I just am looking for advice on how to deal with all this and reassurance that I could have a normal pregnancy. Thanks.

Haley

Welcome to the thread Haley, I'm so sorry you have been through this. Remain hopeful though as I was 23 when I had my pmp and now at 25 I have a happy healthy 8 month old daughter! I know it's hard to see the light at the end of the tunnel but you will get there! Xx

 

[Jbaby90]

So I posted about a month ago being cautiously excited about being pregnant and hearing the heart beat. I guess it was for good reasoning because Monday my world shattered around me at 10w2d when the ultrasound tech told us the baby's heart stopped sometime around 9 and a half weeks. I had my d&e yesterday and I go for my follow up in 2 weeks. I'm praying the pathology report isn't another PMP. Once I have my follow up they want to refer me to a maternal fetal Medicine specialist to check for any possible causes for this. Both of my pregnancies have bee missed miscarriages so it's making me all nerves.
Sorry. I'm very scatter brained. Anyways. I hope all is well with you ladies. I'll check back in after my follow up. Thank you for any input you might have.

I'm so so sorry to hear Hun! I had multiple miscarriages as well as my pmp and was told it was all just "bad luck" it sucks so much! I hope you get some answers soon xx

 

[Jbaby90]

I'm so sorry for your losses Haley and lozwife

I just found this thread and thought I would introduce myself as I had a partial molar almost exactly two years ago (12/10/13) and we are just now considering the possibility of trying again.

I have had two previous miscarriages as well and each of those times, the only thing that really helped me to move on from our loss was getting pregnant again (and having our sons) so I think molar pregnancy is especially cruel as that hope is dashed when they tell you that you need to wait at least 6 months before that is even a possibility

Fingers crossed for your pathology report lozwife, and I hope the referral helps. I too was referred following our PMP, but as we had decided not to try again in the end I cancelled the appointment (something I now wish I hadn't done, as it would have been good to have answers, even if they weren't necessarily good ones, if that makes sense?!)

Welcome and good luck with ttc again!! Are you just going to take it as it comes or are you using ovulation tests, etc?

 

[HaleyDavid334]

Thank you so much. I'm just patiently waiting for my levels to drop. They have gone from 172000 to 9129 in just one week so I'm hoping it keeps going down quickly. May I ask how long you waited before trying again? I know my doctor recommended 6 months to a year once you reach 0..but I've read so many different things and I'm actually my doctors first patient with a PMP in her 15 years of practice.

Hey everyone,

I found out at my normal checkup appointment on Wednesday that my baby's heart had stopped beating. It was told that it could be a partial but my doctor wanted me to see a high risk just in case. After spending all day in the hospital Thursday it was determined that it was a PMP and I had a D&C. I have no idea why this happened to me and I'm sure I'll never understand. I'm only 23 and have perfect health and at the beginning of my pregnancy I was old I was low risk. Regardless I know it's something I cannot change...and even though I know that I'm having the hardest time. I physically and emotionally feel empty. The only bit of hope I had was getting pregnant again but the high risk doctor told me to wait 6-months to a year. After reading many stories online, I've come across quite a few that have had another PMP and now I'm terrified that I'll never have a normal pregnancy. I guess I just am looking for advice on how to deal with all this and reassurance that I could have a normal pregnancy. Thanks.

Haley

Welcome to the thread Haley, I'm so sorry you have been through this. Remain hopeful though as I was 23 when I had my pmp and now at 25 I have a happy healthy 8 month old daughter! I know it's hard to see the light at the end of the tunnel but you will get there! Xx

 

[Rebaby]

Welcome and good luck with ttc again!! Are you just going to take it as it comes or are you using ovulation tests, etc?

Thank you We're not actively TTC, or even NTNP yet...only just really coming round to the idea of it all. After the molar I really couldn't see us trying again ever, but after the 2 year anniversary of our loss last week I finally had to admit that I'm just not ready to give up on the idea of having another, even though it feels like such a risk to try again I know the chances of it happening again are low but it's still such a worry.

May I ask how long you waited before trying again? I know my doctor recommended 6 months to a year once you reach 0..but I've read so many different things and I'm actually my doctors first patient with a PMP in her 15 years of practice.

Glad to hear your levels are dropping so quickly Haley. I'm not sure how it works there, but here I was told that if my levels returned to zero within the 6 months it would be fine for us to try as soon as we reached the 6 month mark, if they didn't then we would need to wait 6 months from the point at which they *did* reach zero (if that makes sense?) So we were officially given the all-clear in May 2014 which would also have been our due date.

 

[HaleyDavid334]

Yes it does make since!
Thank you!


QUOTE=Rebaby;36367813]

Welcome and good luck with ttc again!! Are you just going to take it as it comes or are you using ovulation tests, etc?

Thank you We're not actively TTC, or even NTNP yet...only just really coming round to the idea of it all. After the molar I really couldn't see us trying again ever, but after the 2 year anniversary of our loss last week I finally had to admit that I'm just not ready to give up on the idea of having another, even though it feels like such a risk to try again I know the chances of it happening again are low but it's still such a worry.

May I ask how long you waited before trying again? I know my doctor recommended 6 months to a year once you reach 0..but I've read so many different things and I'm actually my doctors first patient with a PMP in her 15 years of practice.

Glad to hear your levels are dropping so quickly Haley. I'm not sure how it works there, but here I was told that if my levels returned to zero within the 6 months it would be fine for us to try as soon as we reached the 6 month mark, if they didn't then we would need to wait 6 months from the point at which they *did* reach zero (if that makes sense?) So we were officially given the all-clear in May 2014 which would also have been our due date.[/QUOTE]

 

[ihave5boys]

So sorry to all the new people here. Rach glad your numbers are down. Hopefully you can figure out the headaches and the councler will help.

Afm big news. Liam was born 10-15-15 he was 34.6 weeks. He weighted 8 # 1.8 oz. Was 20.3 inches. I had high bp, started swelling really bad (gained 18 lbs in a week) and my blood sugars were dropping on their own, so dr decided after the big weight gain that it was time to deliver. He has been in nicu and his only issue at this point is his oxygen. They mentioned if he still on it next week they may think about sending him home on it.he is 2 weeks old. And he is now up to 8# 9.2 oz. He is determined to come home weighting 9 lbs..

Vicki

 

[Jbaby90]

Haleydavid- as my level dropped to 0 quite quickly (3 months) my doctor was happy for me to start ttc straight away so we did and fell pregnant the first month but that was a chemical pregnancy then I skipped a month to let my body have a rest then fell pregnant with our beautiful Layla that next month!

Vicki - congratulations on the birth of Liam!!! Wow good size for being that early! Hopefully he confines to improve and will be home with you soon! Big hugs xx

 

[rachieroo]

Wow congratulations Vicki. Hope he improves enough so you can leave the oxygen at the hospital!

Welcome new ladies so sorry for your losses.

How is everyone?

Afm the councillor was brilliant. She came to my house and I literally just vented for 45 mins. I thought it would be awkward moaning about everything to a stranger but she was fab and asked all the right questions (obviously why she does what she does lol) we come to the conclusion that one of my biggest upsets was that me dh were in a different place with regards to ttc. I was mentioning it far too much which was pushing him further away from it. I backed off completely and am happy to announce that we are officially in out 1st month of ttc!! Yay. Xxx

 

[ihave5boys]

Congrats rach. I am glad you are getting the help.

Liam has been home for 2 weeks now. He did come home without oxygen. Which suprised everybody. Even drs. He cant be in his carseat for more tgen an hour. And he very much loved between all his brothers and sisters. He is now 5 weeks old tomorrow. And i am still very exhausted. Plus now dealingvwith another sore tooth and lost my voice.

 

[frieda]

I found out I was 1-2 weeks (that's what the test said) "pregnant" around the end of July 2015. We were extremely excited, in fact I think that would be an understatement.
Within a few weeks I was extremely sick. Everything I consumed came right back up. Smells would have me running to the restroom. I was miserable, but everyone kept saying it will be worth it in the end which I completely agreed with.
When I went for my first appointment (September 29) I could tell by the lady's face who was doing the ultrasound that something wasn't right. The doctor told me this looks like a complete molar pregnancy and explained what that meant and how it would be treated. He highly advised that I didn't look online, but I wish I had so I would have found a group like this sooner. We scheduled my D&C for the following week on October 5th.

HGC LEVELS:
9/29/15 (before D&C): 467,202
10/29/15: 1,738
11/5/15: 2,235
11/9/15: 1,913
11/12/15: 2,389

On 11/17 I got a referral to an oncologist. I am very nervous.

Is this normal? My doctor told me it should be going down by 15% every time. To the people who have had to go down the chemo path; what were your levels like?

I'm very scared. I never imagined being in a position like this.

 

[HannieB]

Hi ladies,

I'm not really sure how to start...I'm so thankful for all of your honesty and bravery in talking about your horrible experiences and I'm so sorry for all you've been through and are still going through. I found reading your stories so helpful (although saddening) so i'm going to try to write my story below in case anyone finds it useful. It's long, so don't feel you have to.

DH and I were ttc from Dec 2014, and as I had really irregular periods with very long cycles we thought it would take a while/ we didn't even know if we'd be able to conceive. But after 6 months of trying, we found out i was pregnant in June this year. We were over the moon! After a very little bleed we went and got an early scan at around 5 weeks. We were told all looked normal for this stage, no sign of anything being wrong (but all you can see is a gestational sac) so to come back in a couple of weeks to check again. During the next couple of weeks I started to feel VERY sick, which we wrongly took as reassurance that everything was going well. When we went back for our next scan we were told the yolk sac was an irregular shape and they couldn't tell me what it meant. My sonographer actually told me she'd never seen that before. There was a little heartbeat flickering away on the screen though, so we took some comfort from that. But we were told to come back again the following week to see how things developed.

That's when the nightmare began. 27th July 2015. We were told there was no heartbeat anymore. What followed is a bit of a blur. I knew it was very likely from the previous scan that we'd lose our baby, but you all know that no amount of preparation can actually prepare you for a miscarriage. We had to do a lot of waiting around because so many different people needed to talk to us. When the nurse mentioned molar pregnancies we were so confused. We'd never heard of it before. She tried to explain, but I didn't understand how it could be possible- we'd seen a heart beat! She then explained the possibility of a partially molar pregnancy and that i'd need to have a D&C to remove the pregnancy so they could do a histology to check. When the results came back positive I was devastated. I felt like a freak and like nobody would understand and of course the idea of waiting at least 6 months to be able to try again made it all the more painful.

We were actually very fortunate and my numbers dropped very quickly- back to normal within 3 months. So we got the all clear to try again in October. We were still (and still are) grieving the loss of our first little one, but we decided to try and see what would happen. I didn't expect to fall pregnant again any time soon, as it took so long the first time.

Yet here I am, 5 weeks pregnant again. We are obviously thankful and aware of how easy I've had it in comparison to lots of other ladies out there. But I am terrified of what happens next. I can't get excited about this baby yet because I know there's so much that could go wrong and having had one partially molar pregnancy, there's a greater risk of it happening again. Our local early pregnancy unit have been fantastic and let us go for an early scan yesterday. They could confirm that we've got the beginnings of a baby and all looks okay for the gestational age, but of course we'd need to come back. So now we have 2 weeks of waiting and trying not to worry. Does anybody have any advice on how to cope in these early days? I'm so scared and confused about what to think. And silly pregnancy hormones are not helping! I'm an emotional wreck.

Love to you all xx

 

[HannieB]

Hi, just wanted to say thanks so much for setting up this group and sharing your story. I know it's years since your PM, but I'm hopeful my story will end up like yours! xx

 

[mitchnorm]

Hi ladies,

I'm not really sure how to start...I'm so thankful for all of your honesty and bravery in talking about your horrible experiences and I'm so sorry for all you've been through and are still going through. I found reading your stories so helpful (although saddening) so i'm going to try to write my story below in case anyone finds it useful. It's long, so don't feel you have to.

DH and I were ttc from Dec 2014, and as I had really irregular periods with very long cycles we thought it would take a while/ we didn't even know if we'd be able to conceive. But after 6 months of trying, we found out i was pregnant in June this year. We were over the moon! After a very little bleed we went and got an early scan at around 5 weeks. We were told all looked normal for this stage, no sign of anything being wrong (but all you can see is a gestational sac) so to come back in a couple of weeks to check again. During the next couple of weeks I started to feel VERY sick, which we wrongly took as reassurance that everything was going well. When we went back for our next scan we were told the yolk sac was an irregular shape and they couldn't tell me what it meant. My sonographer actually told me she'd never seen that before. There was a little heartbeat flickering away on the screen though, so we took some comfort from that. But we were told to come back again the following week to see how things developed.

That's when the nightmare began. 27th July 2015. We were told there was no heartbeat anymore. What followed is a bit of a blur. I knew it was very likely from the previous scan that we'd lose our baby, but you all know that no amount of preparation can actually prepare you for a miscarriage. We had to do a lot of waiting around because so many different people needed to talk to us. When the nurse mentioned molar pregnancies we were so confused. We'd never heard of it before. She tried to explain, but I didn't understand how it could be possible- we'd seen a heart beat! She then explained the possibility of a partially molar pregnancy and that i'd need to have a D&C to remove the pregnancy so they could do a histology to check. When the results came back positive I was devastated. I felt like a freak and like nobody would understand and of course the idea of waiting at least 6 months to be able to try again made it all the more painful.

We were actually very fortunate and my numbers dropped very quickly- back to normal within 3 months. So we got the all clear to try again in October. We were still (and still are) grieving the loss of our first little one, but we decided to try and see what would happen. I didn't expect to fall pregnant again any time soon, as it took so long the first time.

Yet here I am, 5 weeks pregnant again. We are obviously thankful and aware of how easy I've had it in comparison to lots of other ladies out there. But I am terrified of what happens next. I can't get excited about this baby yet because I know there's so much that could go wrong and having had one partially molar pregnancy, there's a greater risk of it happening again. Our local early pregnancy unit have been fantastic and let us go for an early scan yesterday. They could confirm that we've got the beginnings of a baby and all looks okay for the gestational age, but of course we'd need to come back. So now we have 2 weeks of waiting and trying not to worry. Does anybody have any advice on how to cope in these early days? I'm so scared and confused about what to think. And silly pregnancy hormones are not helping! I'm an emotional wreck.

Love to you all xx

HannieB I could have written this!!!!! I had my d&c 20th July and after numbers dropping quickly I was given the all clear last month and here I am 5 weeks pregnant!!! I have a doctors appt next Wednesday when I'll be 6 weeks....getting her to refer me to epu for an early scan next week. I am going to request another one at 9 weeks (as that's when my baby's by stopped last time).....that'll be Christmas eve :-/

Fingers crossed for us both..... X. X

 

[mitchnorm]

Had my second scan on Xmas eve at 9 weeks and was told again no heartbeat.....baby measured 8 weeks 6 days.....AGAIN!!!! I am so flipping sad and worried for another pmp...give me hope please!!????

Here I sit 3 days later....drinking wine though still feeling nauseous.... life sucks!!!! D&c scheduled for Wednesday...I prefer to get it done but don't want them to test tissue for molar. I don't want to know ...I'm 42 and can't wait weeks/months for all clear again

Please keep everything crossed that it a not a molar xx

 

[agg2012]

I popped up pregnant in August while using IUD as birthcontrol My husband and I were shocked but still happy for whatever God was bringing us. On my first visit, we were told there were nothing but a sac. I had a D&C in September.

I continued to have abdominal pain and my HCG levels never dropped below 3,400. I had another D&C in November and they found some molar tissue and diagnosed a possible partial molar pregnancy.

We've been tracking my HCG since then and they dropped from 1,026 following the second D&C to 441 last week. They increased this week to 472. I'm starting the methotrexate shots and am curious how many shots were required for you ladies.

Any information on the methotrexate shots appreciated!

 

[agg2012]

How have your treatments gone? I'm in a similar boat starting methotrexate shots soon.