Maddison has 3 heart defects. To put it plainly, her 2 tubes are the wrong way round, she has a large hole in her heart and one of the tubes is no good......
They are saying her outlook is "fair", but also, with every open heart surgery, there carries huge risks (going on the bypass machine has the biggest risk
) - I don't think anyone can say for sure what the future holds
Her diet is a learning curve for me..... She is on special high calorie milk, and when I give her solids, I have to add butter/cheese/cream/oil etc to it to boost the calories. We have even been told that after 6 months, we should start to offer her fried finger foods!!!
As you can imagine, it's a bit bizzare, as I would never have done anything like this with my older girls!!
Maddison often turns blue or has trouble breathing, and at first it was really scary, but now it's become a way of life and although it's still scary, we know what's going on and we don't panic quite so much!
Her next surgery will be when she is around 1yr old, and I'm not looking forward to that one bit
, although I know she will be in the best hands.
To look at her, you would never know she is so seriously ill! She has hit all her milestones so far (she finds sitting hard though as it makes her puff) and I just hope and pray she will continue to amaze us.
Sorry for the ramble!!
I'm just curious.
I'm so sorry you have to go through this. 
Hope you all enjoyed yours. 
