charlottecco2
Mummy of 2
- Joined
- Dec 9, 2007
- Messages
- 2,560
- Reaction score
- 0
I am so glad there is this section on the forum now, I just wanted to have a quick rant now.
As many of you know my baby was born with total kidney failure and was in hospital for 4 1/2 months and has to be hooked up to a machine for 10hours a night along with medication 4 times a day, injections twice a week, and continuously fed through a nasal gastric tube..... along with many other daily procedures, all to keep him alive.
This is very hard work and is 24/7, the machine beeps every 30 minutes at night and i have had hardly any sleep for the last 6 months.
But don't get me wrong i love my little man to pieces and he is worth every second and more, and i would not change him for the world.
I have had to come to terms with the fact my baby had a chronic illness, so why do other people feel the need to make me feel like a bad mum.
Everyday is the same, i take Jaiden out in his pushchair and we are continuously stared at and i have to put up with ignorant peoples hurtful comments.
Jaiden visually looks totally healthy apart from the tube that is up his nose and stuck to his face, due to the fact he does not eat.
I don't mind people asking me questions if its done in a polite way, although it would be nice to be able to go out with my baby just once without being stopped every 2 seconds with a question (i can't even go to the supermarket quickly)
I find it hard enough having to insert the god damn tube in through my babies nose and into his tummy, it really hurts him and its a horrible process, but its feeding him and helping him grow, so thats all that matters.
But i really don't know what gives someone the right to make a comment such as "don't you wish that you and your partner had been genetically tested, so this (pointing at Jaiden) hadn't happened"
THIS HADN'T HAPPENED!!!! HOW DARE HE. "THIS" is my beautiful baby you are talking about and "THIS" is not genetic.....just a 1 out of 4million chance of having Jaidens condition and i was that unfortunate 1.
No one is to blame.
I'm sorry i am just so hurt by the comment, i need positive comments not horrible ones like the ones i get, i know its just people being ignorant and not actually understanding Jaidens condition,,,,but as i have always been taught
"if you don't have anything nice to say, don't say anything at all"
Thanks for letting me rant. xxx
As many of you know my baby was born with total kidney failure and was in hospital for 4 1/2 months and has to be hooked up to a machine for 10hours a night along with medication 4 times a day, injections twice a week, and continuously fed through a nasal gastric tube..... along with many other daily procedures, all to keep him alive.
This is very hard work and is 24/7, the machine beeps every 30 minutes at night and i have had hardly any sleep for the last 6 months.
But don't get me wrong i love my little man to pieces and he is worth every second and more, and i would not change him for the world.
I have had to come to terms with the fact my baby had a chronic illness, so why do other people feel the need to make me feel like a bad mum.
Everyday is the same, i take Jaiden out in his pushchair and we are continuously stared at and i have to put up with ignorant peoples hurtful comments.
Jaiden visually looks totally healthy apart from the tube that is up his nose and stuck to his face, due to the fact he does not eat.
I don't mind people asking me questions if its done in a polite way, although it would be nice to be able to go out with my baby just once without being stopped every 2 seconds with a question (i can't even go to the supermarket quickly)
I find it hard enough having to insert the god damn tube in through my babies nose and into his tummy, it really hurts him and its a horrible process, but its feeding him and helping him grow, so thats all that matters.
But i really don't know what gives someone the right to make a comment such as "don't you wish that you and your partner had been genetically tested, so this (pointing at Jaiden) hadn't happened"
THIS HADN'T HAPPENED!!!! HOW DARE HE. "THIS" is my beautiful baby you are talking about and "THIS" is not genetic.....just a 1 out of 4million chance of having Jaidens condition and i was that unfortunate 1.
No one is to blame.
I'm sorry i am just so hurt by the comment, i need positive comments not horrible ones like the ones i get, i know its just people being ignorant and not actually understanding Jaidens condition,,,,but as i have always been taught
"if you don't have anything nice to say, don't say anything at all"
Thanks for letting me rant. xxx
XxxX
you were blessed with a beautiful baby boy who loves you more then anything , god made him the way the is because he knew that his mommy would be there every step of the way no matter what goes on .
