Recurrent Miscarriage Thread

[mandy1971]

Right, I'm sorry I seem to have upset people unintentionally. It was not my intention. I think I will give this site a break for a while too. Thank you all for your support xxx.

Lee you've not upset anyone.dont leave, your input is extremely relevant.. xxx

 

[daviess3]

Morning ladies i hope we all had a good nights sleep an feel bit better today! As i have only just had my 3rd mc im still waiting for all my blood test forms etc to be sent through feels like forever! I have heard a lot that prednisoline is used what is this is it a tablet or injection? An for what reason do you take it? Soz if this has been asked before but i tend to not take things in at the moment!!! xx

 

[stardust22]

its a steroid used for the natural killer cells, you may or may not remember us talking about that last week, but I know its quite a lot to take in. It comes in the form of tablets (please corrent me anyone if I am wrong!!!)

I am having this nkc test next week privately, I hope to have my results by friday next week or monday.

Does anyone on here know if you have nkc, is it already too late this pregnancy (im 5 weeks) if i have this? I dont know when it can attack and if I was on medicatiion from 6 weeks if its could avoid miscarriage? I dont really know anything about this.

 

[mandy1971]

replying to your post stardust.

]its a steroid used for the natural killer cells, you may or may not remember us talking about that last week, but I know its quite a lot to take in. It comes in the form of tablets (please corrent me anyone if I am wrong!!!)

I am having this nkc test next week privately, I hope to have my results by friday next week or monday.

Does anyone on here know if you have nkc, is it already too late this pregnancy (im 5 weeks) if i have this? I dont know when it can attack and if I was on medicatiion from 6 weeks if its could avoid miscarriage? I dont really know anything about this.[/QU

have a look at my earlier post quoting the email from applegirl . she started the steroids as soon as she got her bfp and now has a bouncing baby....

if you manage to get them prescribed honey.,you will need to be closely monitored, there are side effects such as developing diabetes, although it doesnt happen often. google steroid therapy. examples of people who take steroid therapy are asthmatics and cancer patients... xxxx

 

[hopefulmama2b]

I also think it's ok for LeeC to comment on the fears of those of us who have no kids have. This does not AT ALL minimize the losses of those with live children. 9babies you are obviously one strong woman- I can't begin to comprehend what it's like to have experienced so many losses. I have "only" had two and I feel like my world has been ripped apart.

I also liked the article posted because it just kind of showed what fears someone who have never had a baby have- I constantly wonder what it will be like to carry a baby past 9 weeks. What does it feel like to actually be pregnant? What will I look like? Will they have dark hair like us or will that red-headed gene emerge? Can I even have kids? If I choose to adopt will this hole that I feel be filled? Will I still always wonder what a biological baby of mine may look like? What their personality will be like? Will my husband kiss my belly and talk to his baby? How will my friends and families faces look when I get to tell them I'm pregnant with a healthy baby and not that I'm pregnant and going for a D&C tomorrow? I have a million questions like that that run through my head every day.

I know that those who have children have different fears, but since I have never experienced that I don't know what those are. Why don't you share them with us. We do care. My sister in law has one baby and now 3 mcs. I don't think I have it "rougher" than her. I just think it's a different path.

 

[padbrat]

Hey Petitpas. Quick question if I may, though of course feel free to not answer or PM me....

I am on progesterone and heperin and aspirin too... what doses were you prescribed?

 

[stardust22]

OMG hopeful mama to be, your post just had me crying my eyes out!! wow such powerful words and I could of written that myself. I am 5 weeks pregnant and for the first time have chosen to not tell anyone, not my parents or sister and brother, who I am really close to. I remember my first announcement on xmas day 2009, I was 10+5 and had seen babys heartbeat week before and all was wonderful. everyone was delighted and first baby in the family. I found out 2 weeks later that baby had died and my world fell apart, Since then each time I get pregnant, I tell my family as I feel its best because of everything and not once out the past 3 have I been congratulated. just a look of pity and wonder on when I will lose it this time? I just pray I get to say my news and followed by a smiles, I know its not their fault but I just feel so sad when i should feel so happy,

Sorry, feeling a bit low today. cant be confident and cant embrace it anymore
x

 

[smidgen]

Stardust - I don't know if its too late to start the steroids. I was under Mr Shehata and he prescribed 25mg prednisalone from ovulation until positive pregnancy test then increase to 40Mg until week 12 and then wean myself off by reducing dose by 5mg every 3 days. In addition to this I was also on 75mg aspirin, 5mg folic acid and Vit D3 (these were started 3 months prior to conception).
Once I got the BFP, I had to increase the prednisalone and also start 400mg cyclogest (progesterone pessaries). I also had to have an intralipid drip infusion every 4 weeks up to 12 weeks.

I never got past 9 wks with my other 4 pregnancies - so the NKCells were attacking my babies from the start. Apparently the NKCells will continue to be active throughout a pregnancy, although treatment is only necessary up to 12 weeks - after this, your placenta takes over and looks after the baby...

Hope this helps x

 

[stardust22]

Hey Petitpas. Quick question if I may, though of course feel free to not answer or PM me....

I am on progesterone and heperin and aspirin too... what doses were you prescribed?

I have all of these meds and I am on the following
75mg asprin once a day
0.4 ml syringe of clexane (once a day)
400mg progesterone pessary once a day.

not sure this helps much but thought I would tell you anyway

 

[stardust22]

Stardust - I don't know if its too late to start the steroids. I was under Mr Shehata and he prescribed 25mg prednisalone from ovulation until positive pregnancy test then increase to 40Mg until week 12 and then wean myself off by reducing dose by 5mg every 3 days. In addition to this I was also on 75mg aspirin, 5mg folic acid and Vit D3 (these were started 3 months prior to conception).
Once I got the BFP, I had to increase the prednisalone and also start 400mg cyclogest (progesterone pessaries). I also had to have an intralipid drip infusion every 4 weeks up to 12 weeks.

I never got past 9 wks with my other 4 pregnancies - so the NKCells were attacking my babies from the start. Apparently the NKCells will continue to be active throughout a pregnancy, although treatment is only necessary up to 12 weeks - after this, your placenta takes over and looks after the baby...

Hope this helps x

Thank you so much, this is exactly what I was looking for. I am just petrified now that I have this and now this pregnancy is doomed. I have to wait a least a week before I know and then i will be 6 weeks so the whole things is really worrying. I have this awful feeling I am going to be told next week I have NKC and will have to wait for a miscarriage to happen! that is just the worst thing possible. I could end up going to 12 weeks like the first one. if its going to end I would prefer sooner rather than later and it all be over at home. I know I am being so negative but I cant see that its anything else that would cause 4 miscarriages now.

 

[petitpas]

Hey Petitpas. Quick question if I may, though of course feel free to not answer or PM me....

I am on progesterone and heperin and aspirin too... what doses were you prescribed?

I have all of these meds and I am on the following
75mg asprin once a day
0.4 ml syringe of clexane (once a day)
400mg progesterone pessary once a day.

not sure this helps much but thought I would tell you anyway

2x baby aspirin (75 or 81mg each)
2x 4,500 units of tinzaparin (a low molecular weight heparin)
5mg folic acid

Based on my last TEG test the doubling up of aspirin and tinzaparin might not be entirely necessary, we just tried it to be doing 'something different' with each new pregnancy.

 

[smidgen]

Stardust - I know its not easy to stay positive, but please try. You never know, Mr Shehata may give you the prednisalone as a precaution until the results come back as he would have had you on the lower dose from ovulation anyway.

Fingers and toes crossed for you xx
[/QUOTE]

Thank you so much, this is exactly what I was looking for. I am just petrified now that I have this and now this pregnancy is doomed. I have to wait a least a week before I know and then i will be 6 weeks so the whole things is really worrying. I have this awful feeling I am going to be told next week I have NKC and will have to wait for a miscarriage to happen! that is just the worst thing possible. I could end up going to 12 weeks like the first one. if its going to end I would prefer sooner rather than later and it all be over at home. I know I am being so negative but I cant see that its anything else that would cause 4 miscarriages now. [/QUOTE]

 

[petitpas]

Stardust, sending you big fat

 

[padbrat]

Stardust and Petitpas, thank you for your replies. I am on:

400mg of cyclogest 2 x a day
5000 uig Fragmin, once a day
75mg aspirin
5mg Folic Acid

isn't it wierd how we are all on the same thing, but it is different?

BTW Stardust, I feel exactly as you do. After out first M/C we never tell anyone.... kinda sad really.

 

[LoveLost]

Hey ladies I thought I would join you again if I can, I just had my 3 miscarriage, I am devastated of course, I just don't know what else to do. All my blood work came back fine, they did put my on progesterone this cycle but obviously that didn't work either. I just don't understand if there is "nothing" wrong with me why does this keep happening?

Anyone else in this situation??

I am wondering if they damaged me delivering my son (who passed away due to the force they used). And if there would be anyway of even finding that out.

 

[dairymomma]

So sorry to hear about your losses LoveLost! Is there a specialist you can see? Once I had my 3rd m/c, I was referred to a high risk OB who gave me a list of tests I could have done and treatment options. It was enormously helpful to be able to ask specific questions about what each test was for and what could be done. I was also told that some women have unexplainable problems getting or staying pregnant. I was initially told that because my test results came back normal but I've since been diagnosed with a thyroid problem because I kept pushing for answers. I also looked into alternatives. My hormone imbalance (linked to my thyroid condition) was diagnosed by my nutritionist because my doctor missed it initially. Hope you get some answers soon!

 

[ovenbun]

Hey ladies I thought I would join you again if I can, I just had my 3 miscarriage, I am devastated of course, I just don't know what else to do. All my blood work came back fine, they did put my on progesterone this cycle but obviously that didn't work either. I just don't understand if there is "nothing" wrong with me why does this keep happening?

Anyone else in this situation??

I am wondering if they damaged me delivering my son (who passed away due to the force they used). And if there would be anyway of even finding that out.

love lost im so sorry for your loss how alwful for you I come on hear to moan about myself and then you hear such stories which can break your heart. I'm sure if there where any structural damage caused you would know or it would be seen on a scan if you havn't had one which i am sure you have i'd try to organise one.
i've had 3 and no know cause yet i have been at my local clinic and have now being waiting to be seen at a hopital in london i think i have POC and my first consultant missed it but we'll see.

 

[ovenbun]

,,

 

[stardust22]

Lovelost, so so sorry hun. I really hate to see new people joining this thread, If you know what I mean.

Make sure you push for aswers and tests, as ovenbun said, I am still worried about miscarrying as my history is 4 so far and I am only 5+2 now.

 

[LoveLost]

Thank you ladies, Stardust congrats!! I know it's so hard to get excited when you have been faced with so much loss. I think all you can do is take each day as it comes and cherish the moments that you have. I am wishing you a happy healthy 9 months.

I did have a scan with my last mmc thats how I found out I had lost the baby. But I don't know if they were looking for anything else because it was to be a routine dating scan. I am going to ask these questions next time.