Recurrent Miscarriage Thread

[Hope39]

Sweet - has anything been found that's wrong? Nk cells etc?

What meds have they tried you on?

X

 

[SweetV]

She has run every test and everything has come back normal, the only thing remaining is to check genetics of sperm for which she quoted me $2000 and not covered by insurance. After my still birth I had one blood test that showed low protein C but she indicated that something seemed off with the test (I'm sorry I don't remember) as there was another factor that came in normal, so she had it redone and it was perfect. We have been through karyotyping and have one very healthy living child that was a textbook 40 week, zero issue pregnancy. He is 6.
For my last 2 pregnancies I was put on aspirin and progesterone although my progesterone levels were in range before supplements and the aspirin was only a precaution as well. I have been pregnant 5 times in the last 2 years, 4 mmc and 1 preterm at 25 weeks (no cause given and baby passed during birth). In June I had a sono that showed adhesions and I had those removed in December although they indicated that the scarring looked fresh and was probably not a cause in the previous losses.

 

[mowat]

Your doctor didn't mention trying prednisone? I think that has made the difference for me this time. I also have one completely normal pregnancy and child, and then multiple miscarriages with no explanation.

 

[floridamomma]

I'm sorry eab. Are you going to have any testing done on yourself?

yes, I have talked to a reproductive immunologist and sent blood sample. I have a follow up consultation in 10 days to see if anything came up. Fiancee and I have already got blood drawn to have our kariotype checked. That will take some time. 4-6 weeks. BTW it was me, I think, that you were going to ask about. I live in Oklahoma.

Other than that, I am feeling extremely down. HCG still at 9000, although they have gone down from 120000 two weeks ago. So I guess that is fine.

What if nothing comes up with the testing? Should I really go thrugh another IVF?

What was your diagnosis?

BTW very best wishes for your IUI!!!! oh, and enjoy the cruise

Doc said he's making a call will let you know ASAP!

 

[Tasha]

sweet, I've had sixteen miscarriages and a stillbirth recurrently (previous to this I had two living children, a stillbirth and then another living child), no one has ever said to me to consider a gestational carrier. We have had failed protocol's so we kept trying new things. I'm 16+6 now and hopefully this is my rainbow.

Honestly, to me it sounds like your doctor is out of ideas and so said that. I would try seeing someone else, research your area and find out who is good. There are girls on here who've had recurrent miscarriages that are unexplained and have gone on to have their rainbow by having progesterone, blood thinners, aspirin and steroids. There is so much about miscarriages they don't understand, same with blood clotting disorders (they say there are probably lots that are yet to be discovered) and the same with autoimmune issues. Sometimes they just need to throw everything at it, even if they don't understand x

 

[floridamomma]

Sweet I second what Tasha had said. I've had 5 mc after having 3 children without issue. My specialist can't find anything so now my protocol is iui with progesterone 400mg daily, lovenox, extra folic acid, prednisone, I also take omega 3 b12 vit d and I think that's it.Your specialist should try other things not just write it off. There are many ladies who've had mc and gone on to have rainbows. Sometimes it seems that they do that because it's easier than actually continuing to figure it out

 

[SweetV]

Thanks ladies. When I told DH last night what they had said his response was "we will just have to wait for grandchildren!". I was so upset I just tried not to cry.
My mom seems to think what you ladies do that they have just run out of options and look at me as a somebody that will make them $$. I've got my determined face on and I'm not ready to give up.
The weird part is that my body refuses to give up. I carried my last pregnancy to 16 weeks even though baby had passed at 7. I tried misoprostol (2x) before finally signing myself up for D&C #8. Her issue is how many more I can safely have.

You ladies give me so much hope and I can not thank you enough.

 

[floridamomma]

We are all here for you! Hugs to you hon

 

[eabwhab]

Floridam, thanks so much for your very kind words. Your reply brought tears to my eyes. I am amazed how people you do not even know personally can care so much and help you so much! THANK YOU!!!
I hope your IUI went well and that this is your month. I am glad to hear that you are on a protocol. Hopefully this is going to make a difference.

Sweet, I second what other ladies said. I think you should really look for a different doctor. It is a tough journey, but you sound determined!

As for me, my mc seems to be over. I am barely spotting now. I have an ultrasound scheduled for next thu to make sure uterus is clean. I can't wait for my hcg to be back to zero so that I can have the remaining testing done.

Hello to everybody!

 

[dairymomma]

Sweet-I def agree with the other ladies. I had a doctor who had been super supportive and encouraging through several losses and 2 successful pg before she suddenly started getting confrontational with me. After she gave me a very harsh lecture on how I was going to miscarry the pg I had called her to confirm, I switched to my specialist for OB care. I was bleeding, scared, and 5 weeks pg without a period after my latest loss (my 8th m/c overall) yet she pretty much told me it was my fault because I got pg too soon. We hadn't been trying and I even told her we were preventing but it made no difference. My current dr was so encouraging and so excited for me despite my issues it made me feel more confident about the pg, especially when scan after scan showed baby was hanging in there. LO was born 7 months ago proving that first dr wrong. Looking back on it, I now see that my dr was just so frustrated because she had run out of things to do for me and she hated seeing me go through m/c after m/c. I understand that, but I don't condone what she said to me and I won't see her anymore as a result. I just had my 9th m/c and my OB was just as encouraging and hopeful for my future pg as he has been through all of this. He is running out of things to test me for but if I ask for something he doesn't normally do, he usually does it so he's pretty open to new ideas. I can tell you it makes a world of difference if you have a doctor who is supportive and willing to listen.

 

[SweetV]

Mowat - I have never been offered steroids, other than during preterm labour.

Tasha - you are such a strong lady! 16 miscarriages. What did you do differently this time? I agree that she is out of idea's. She also kept stating that she was afraid for my physical and emotional well being, but I think I should be the one that draws that line.

Florida - I also take the same supplements, just not the steroids. Is it something you take all the time?

eabwheb- good luck with your ultrasound

dairy - I think I will start looking. I just want a high risk specialist that will allow me as many ultrasounds as makes me comfortable. Congrats on your rainbow!

afm... I think I'm just going to keep on with ntnp, whatever happens happens!

 

[Tasha]

I totally agree that it's your line to draw. I've said in here previously that a doctor said to me about my emotional wellbeing but what they don't understand is stopping, never having a rainbow, will be more emotional damaging to me.

I'm on folate (5mg), iron, vit d, aspirin (150mg), anti malaria tablets, clexane (160ml), and I was on prednisone (steroids). The anti malaria tablets are new, the Clexane is a much higher dose (was on 40).

 

[eabwhab]

I totally agree that it's your line to draw. I've said in here previously that a doctor said to me about my emotional wellbeing but what they don't understand is stopping, never having a rainbow, will be more emotional damaging to me.

I'm on folate (5mg), iron, vit d, aspirin (150mg), anti malaria tablets, clexane (160ml), and I was on prednisone (steroids). The anti malaria tablets are new, the Clexane is a much higher dose (was on 40).

Tasha, I think I missed that you had 16 mc. Indeed you really are a strong lady!! Is your protocol due to any specific diagnose? Best wishes to you

 

[floridamomma]

Mowat - I have never been offered steroids, other than during preterm labour.

Tasha - you are such a strong lady! 16 miscarriages. What did you do differently this time? I agree that she is out of idea's. She also kept stating that she was afraid for my physical and emotional well being, but I think I should be the one that draws that line.

Florida - I also take the same supplements, just not the steroids. Is it something you take all the time?

eabwheb- good luck with your ultrasound

dairy - I think I will start looking. I just want a high risk specialist that will allow me as many ultrasounds as makes me comfortable. Congrats on your rainbow!

afm... I think I'm just going to keep on with ntnp, whatever happens happens!

The steroids are new. They gave it to me because they can't find anything. Praying that's what I need. They said the only other possible explanation is something auto immune Andy body is attacking the babies. I started it from cd1.

 

[floridamomma]

Floridam, thanks so much for your very kind words. Your reply brought tears to my eyes. I am amazed how people you do not even know personally can care so much and help you so much! THANK YOU!!!
I hope your IUI went well and that this is your month. I am glad to hear that you are on a protocol. Hopefully this is going to make a difference.

Sweet, I second what other ladies said. I think you should really look for a different doctor. It is a tough journey, but you sound determined!

As for me, my mc seems to be over. I am barely spotting now. I have an ultrasound scheduled for next thu to make sure uterus is clean. I can't wait for my hcg to be back to zero so that I can have the remaining testing done.

Hello to everybody!

Anytime hon. Hugs

 

[Tasha]

Tasha, I think I missed that you had 16 mc. Indeed you really are a strong lady!! Is your protocol due to any specific diagnose? Best wishes to you

Yes sixteen miscarriages, a stillbirth at 24+3 and a stillbirth at 36+6 in total. I've a clotting disorder called Factor V Leiden, one called MTHFR and elevated natural killer cells x

 

[petitpas]

My favourite doctor also once suggested giving up because she had nothing else to give me and using the same recipe again and again seemed like a stupid thing to do. We sat down and went through all the tests I had done, including those in London. I knew I had a clotting disorder even before my first pregnancy and had been treated so that wasn't what was causing my losses.
In the end she asked about nkcells, which is not something the nhs will test for and is somewhat controversial. It was the only thing I hadn't looked into so we decided to give it once last shot and get referred to another specialist. In addition to my usual aspirin, heparin, progesterone and high dose folic acid I was put on steroids (plus extra vitamin D and omega 3) as well as a higher dose of heparin and voilà, my ds was born! After a blighted ovum we followed the same recipe and I now have a dd, too. They are both my steroid babies

Nobody can say when you should stop. I know I was at my limit but it seemed reasonable to give this new treatment one more shot. Even if the testing process is controversial, the treatment itself for unexplained RPL seems to be successful! So, I would try getting your doctor on board for a new protocol. Otherwise, start looking for a doctor who is more open to steroid treatment. Testing can be expensive and isn't always conclusive but the treatment itself is cheap some doctors prescribe the steroids without testing, which may be an option, too.

 

[floridamomma]

After 5 mc I can say I'm glad I have a great dr in my corner. Where I was ready to quit she pushed me to go to the specialist. She said she'd give me steroids but The specialist could and would monitor me in ways that she couldn't being an OB and having so many patients. Also she told me that he would do test and have unconventional ideas that she couldnt do. She is very supportive and once I am clear from the specialist at 12 weeks God willing I will be going back to her. Also she told me that she once I start getting pregnant she believes I'm not gonna be able stop popping babies out lol. she's very supportive. I say that to say this having the support of your doctor makes all the difference. the previous place I was going to wouldn't even see you before 10 weeks even though I kept miscarrying g on top of that I set out in the waiting room bleeding and miscarrying and they let me sit there for two hours I left and miscarried at home. the way that your doctor is there for you and believing you makes all the difference though my OB realize that she couldn't make things happen for me she didn't tell me quit she sent me to somebody that she believes can make it happen for me

 

[SweetV]

petitpas - I will have to ask my Dr. when I go at the end of Feb. if testing is something that they will do for me or if they will even just consider the steroid shots without testing. I asked her about my tests when I was there the other day and she said she was out of options. I think I need to ask her for a more detailed list of what I have had done.

florida- that's why I love the doctor that I have now as the last place wouldn't see me before 12 weeks. All my mc have been mmc and having to wait until 12 weeks to even see a doctor was torture. The doctor I have now was amazing and supportive for my last 2 pregnancies, that's why I was so surprised when she told me to just give up.

 

[Tasha]

It's not shots sweet, it's daily tablets x