Recurrent Miscarriage Thread

[Tasha]

21 is the full blood tests for recurrent miscarriage girls. If you didn't have that many then I'd suggest you have some missing xx

 

[Trying4first1]

Thanks Tasha. Thats good to know x

 

[theiska]

I'm not sure how long it will take for results. My follow up appointment is Feb. 9, though. I imagine the results will come in before that. I didn't have to have a follow up first, because the MW verified the MC in office and prescribed the misoprostol. They are pretty great about letting the patient guide care. With my history of anxiety, even before the miscarriages, they understand my need for urgency. I literally wouldn't be able to function if I didn't have testing underway right now. I hope you are coping ok, Trying. I have zero support IRL except for my SO, and he seems more shattered than I am this time. You ladies help a ton. I hate that anyone else has to deal with this, but it's good to not be alone.

 

[theiska]

Tasha, thanks for all the info. I hope you're right about there being no greater risk of miscarriage after 2 consecutive ones. I have read a few things since my last post, which agree with your statement. I don't feel like this is normal for me though. I'm going with my instinct. I do think there's something off with me physically (not just mentally, haha) .

 

[Trying4first1]

I'm not sure how long it will take for results. My follow up appointment is Feb. 9, though. I imagine the results will come in before that. I didn't have to have a follow up first, because the MW verified the MC in office and prescribed the misoprostol. They are pretty great about letting the patient guide care. With my history of anxiety, even before the miscarriages, they understand my need for urgency. I literally wouldn't be able to function if I didn't have testing underway right now. I hope you are coping ok, Trying. I have zero support IRL except for my SO, and he seems more shattered than I am this time. You ladies help a ton. I hate that anyone else has to deal with this, but it's good to not be alone.

Hi theiska
I think that your results should be back before your follow up appointment. The 9th isn't too far away now which is good. It prob helps knowing that things are being looked in to. I think I will feel like that, knowing I am going to be getting support will help a lot. Feels like things are moving in the right direction at least.
It's great that your anxieties are taken seriously and they understand your urgency. Here I just feel like anxiety is not taken seriously at all. I was so anxious this pregnancy and I dont feel that I got the support I needed.
Thankfully I have some support IRL but I find that unless others have been through it they don't really understand. I do worry about DH as I feel that he feels he has to be strong for us both. I ask if he is ok and he doesn't really say much.
I am so thankful to all the ladies such as yourself for the support, but it is a shame that so many others go through this too.

 

[dairymomma]

I haven't had that many drawn at once but I know I've had more than that done overall. My dr didn't order all the usual RMC stuff at once because my issues pointed more towards the progesterone being the problem at first and we've done testing here and there since. I'm curious as to what my hematologist will order up when I see him though and if I'll have any more blood tests done.

 

[theiska]

Hetero mthfr c677t. That's the only odd thing.

Also, just when I thought I had stopped bleeding I passed more tissue and more bright red blood. So over this mess. :/

 

[ReadynWaiting]

Theiska sorry you are still going through this. Are they monitoring ur hcg or scanning to see if anything remains?

I saw the naturopath today...what a difference in care! She spent 90 mins getting a complete detailed over view of me and my body from childhood on. Questions about health, diet, emotional health...and so on. She is treating me with herbs and acupuncture and trying to balance my body as a whole rather than a 'one size fits all' fix. I finally feel like I'm getting somewhere rather than the specialist who just wants to chk my egg reserves and treat me with clomid and progesterone based on an assumption. Feeling hopeful!

 

[theiska]

I'm working with a naturopath as well! My midwife ordered my blood tests, but he will be reviewing them, too. I'm hoping he has some more insight for me.

 

[dairymomma]

Theiska-I'm homozygous for MTHFR C677T and from what I understand this is the worst case because you don't process folate hardly at all leading to major deficiency. With hetero, I think it can vary but you will likely have a mild deficiency in folate because of the bad copy of the gene but it's nowhere near what I am dealing with. I'd at the very least ask about taking high dose folate (and make sure it's folate, not folic acid) as this will help.

Ready-that's why I like my naturopath as well. He's always looking for the source of my issues, not treating the symptoms alone and we found many puzzle pieces clicked into place when we found out about my folate deficiency. He's always testing me for supplements to make sure I'm on the right ones and at the right dosages. And what I like the most, he always double checks the supplements, herbs, and oils I'm on to make sure they are pg safe in case we have an 'oopsie' and if they aren't safe, he lets me know so I can time when I take them. Physically, mentally, and emotionally I feel stronger than I have in YEARS. My OB is great and I love him to death but he gave up testing me a few years ago after my clotting testing came back normal. I love that my naturopath has never stopped looking for the answers.

 

[Tasha]

What dairy says is true in general but there are always cases that don't follow the general rule. I'm hetero with MTHFR and the doctors have said it is the reason I need blood transfusions every year or so (I usually have between five and eight units). So def get checked for deficiencies.

 

[Trying4first1]

Well ladies ....
Had my first appointment today was so brief.
I am having a hysteroscopy at the end of May (ages away I know) but they are trying to bring it forward.
Bloods are all ok. Just waiting for genetics still.
So just a case of sitting and waiting. So no TTC for us until the summer now if all is ok.
Looks like we will be an unexplained case. My DH wants to try again. I said one more time and if it fails again I'm not sure I can keep going. The thought of trying again is just awful. The stress of the BFN each cycle and the timing. I really don't want to do it anymore. I know I will change my mind after having a nice break from it. But at the moment I really can't be bothered with It all. Especially knowing that it could very easily happen again.
Feeling slightly deflated this evening

 

[petitpas]

Trying4first, sorry but I was just popping by and couldn't help but reply to your deflated post. I'm actually a graduate of this thread.
I see that you are 'unexplained'. I'm all for getting all the normal tests out of the way (did they do a full thyroid panel, too?) and getting the hysteroscopy to make sure there is nothing wrong structurally. If everything comes back as normal, would you consider going the immune route? I think you mentioned in an earlier post that you had looked at Mr Shehata's clinic. I can definitely recommend him. If you have already suffered three losses then I strongly believe something is wrong and trying again without changing anything is just going to give you the same result again.
I was seen at my local hospital, at St Mary's and then by Mr Shehata. Many women who's stories I followed online ended up with him or Prof Quenby. Every single one of them eventually had a baby.
Don't give up but also make sure you change something next time round Xxx

 

[dairymomma]

I really don't want to do it anymore. I know I will change my mind after having a nice break from it. But at the moment I really can't be bothered with It all. Especially knowing that it could very easily happen again.
Feeling slightly deflated this evening

Oh, I feel like I could have written this post myself.

More than once.

I'm so sorry you feel so deflated and defeated at the moment but I can honestly say that it does get better with time. I've been in this same exact position more than once as I mentioned and I'm currently there right now really. I'm waiting til my appt with the hematologist in April and we'll go from there with testing and such but I'm fully expecting to be wtt til early summer at the earliest. While it's a bummer to have to wait when we've already been waiting for nearly a year, it's been amazingly therapeutic for me too. I've had time to distance myself from the pain of recurrent miscarriages that were happening way too quickly for me to recover from normally, I've had time to think honestly about where my future is going, and I've also had time to work on my physical health as well.

I won't lie. I'm still abso-effing-lutely T.E.R.R.I.F.I.E.D. of going through another miscarriage and I still have days where I think of how easy it would be to call up the dr & schedule a tubal ligation rather than go through another loss. And another loss, in my case, is the better likelihood than another success unfortunately. But I also feel very strongly that I NEED to give this pregnancy thing one last go, one last Hurrah!, where we throw everything including the kitchen sink at this. I also feel more capable of dealing with whatever the outcome may be-even if it is another miscarriage-and I know it's because I had this time to process everything I've dealt with in the last 8 years.

So I hope you find this break healing and helpful and they can get your testing moved up to a closer date.

 

[Hope39]

Trying4first

I have to agree with petit pas, I wouldn consider immune treatment . I suffered 6 first tri miscarriages before seeing mr shehata, his treatment plan then got me to 27w for my next pregnancy where I then suffered an abruption and lost my little boy after 3 days in nicu. We then tried again with mr shehata treatment plan and finally brought my rainbow baby home in September last Year

Xx

 

[Trying4first1]

Trying4first, sorry but I was just popping by and couldn't help but reply to your deflated post. I'm actually a graduate of this thread.
I see that you are 'unexplained'. I'm all for getting all the normal tests out of the way (did they do a full thyroid panel, too?) and getting the hysteroscopy to make sure there is nothing wrong structurally. If everything comes back as normal, would you consider going the immune route? I think you mentioned in an earlier post that you had looked at Mr Shehata's clinic. I can definitely recommend him. If you have already suffered three losses then I strongly believe something is wrong and trying again without changing anything is just going to give you the same result again.
I was seen at my local hospital, at St Mary's and then by Mr Shehata. Many women who's stories I followed online ended up with him or Prof Quenby. Every single one of them eventually had a baby.
Don't give up but also make sure you change something next time round Xxx

Hey! Thank you for your reply. So lovely that you are a graduate of this thread. Really hope I will be one day too
I am all for getting the basics out of the way and am willing to give them a go.
Yes I mentioned about Dr Shehata as my cousin used him. She had 3 losses and all is now well with her 4th with his help. She had high NK cells.
Something does need to change for next time that's for sure. We can't just try again with no treatment what so ever.
My gyne wants me to stay clear of Dr Shehata. I get the impression that they have completely different views. So I've had two conflicting views. Need to carry on with my research and make a decision if all comes back clear with the NHS tests.
I know that my cousin highly recommends him as without his treatment she may not be cooking her rainbow baby right now X

 

[Trying4first1]

Trying4first

I have to agree with petit pas, I wouldn consider immune treatment . I suffered 6 first tri miscarriages before seeing mr shehata, his treatment plan then got me to 27w for my next pregnancy where I then suffered an abruption and lost my little boy after 3 days in nicu. We then tried again with mr shehata treatment plan and finally brought my rainbow baby home in September last Year

Xx

Thank you so much for sharing your story with me Hope 😊 Congratulations on your little rainbow. What a beautiful blessing.

If you dont mind me asking, what treatment did you have with dr Shehata? X

 

[Trying4first1]

I really don't want to do it anymore. I know I will change my mind after having a nice break from it. But at the moment I really can't be bothered with It all. Especially knowing that it could very easily happen again.
Feeling slightly deflated this evening

Oh, I feel like I could have written this post myself.

More than once.

I'm so sorry you feel so deflated and defeated at the moment but I can honestly say that it does get better with time. I've been in this same exact position more than once as I mentioned and I'm currently there right now really. I'm waiting til my appt with the hematologist in April and we'll go from there with testing and such but I'm fully expecting to be wtt til early summer at the earliest. While it's a bummer to have to wait when we've already been waiting for nearly a year, it's been amazingly therapeutic for me too. I've had time to distance myself from the pain of recurrent miscarriages that were happening way too quickly for me to recover from normally, I've had time to think honestly about where my future is going, and I've also had time to work on my physical health as well.

I won't lie. I'm still abso-effing-lutely T.E.R.R.I.F.I.E.D. of going through another miscarriage and I still have days where I think of how easy it would be to call up the dr & schedule a tubal ligation rather than go through another loss. And another loss, in my case, is the better likelihood than another success unfortunately. But I also feel very strongly that I NEED to give this pregnancy thing one last go, one last Hurrah!, where we throw everything including the kitchen sink at this. I also feel more capable of dealing with whatever the outcome may be-even if it is another miscarriage-and I know it's because I had this time to process everything I've dealt with in the last 8 years.

So I hope you find this break healing and helpful and they can get your testing moved up to a closer date.

Hi Dairymomma

Thank you for your reply 😊 Sorry you are also in this boat. Not the best place to be but we will get to the other side one way or another.

Glad your appointment isn't too far away now. Taking a break does sound like a great opportunity to heal and to have time away from the whole ttc and miscarriage issues. It's lovely to hear that it has been therapeutic for you. I'm hoping that me and DH find it the same. We have planned some trips away se we have those to look forward too. We are spending one with those who matter too. Sadly we have lost some friends on this journey which hurts especially as some were what we thought were good friends. But we are seeing this as a good thing as we don't want those people in our children's lives if we eventually have children. True friends always stick around in the hard times. Others do not.

Like you I will also be terrified. But I sometimes get the sense of we need to give it one last go. I am no where near ready yet but when I am I want to give it our all. I know what you mean about if it's another loss you will be able to deal with it. I feel the same. I just feel so numb now that I almost expect it. This last MC I just knew again that it would all go wrong. So it wasn't a shock at all. Sad how we feel that way.

Thank you so much again. I also hope they you continue to enjoy your break. Good luck for your appointment in April. Hoping that we both get the answers that we deserve very soon X

 

[blueblue]

Trying4first, sorry but I was just popping by and couldn't help but reply to your deflated post. I'm actually a graduate of this thread.
I see that you are 'unexplained'. I'm all for getting all the normal tests out of the way (did they do a full thyroid panel, too?) and getting the hysteroscopy to make sure there is nothing wrong structurally. If everything comes back as normal, would you consider going the immune route? I think you mentioned in an earlier post that you had looked at Mr Shehata's clinic. I can definitely recommend him. If you have already suffered three losses then I strongly believe something is wrong and trying again without changing anything is just going to give you the same result again.
I was seen at my local hospital, at St Mary's and then by Mr Shehata. Many women who's stories I followed online ended up with him or Prof Quenby. Every single one of them eventually had a baby.
Don't give up but also make sure you change something next time round Xxx

Hey! Thank you for your reply. So lovely that you are a graduate of this thread. Really hope I will be one day too
I am all for getting the basics out of the way and am willing to give them a go.
Yes I mentioned about Dr Shehata as my cousin used him. She had 3 losses and all is now well with her 4th with his help. She had high NK cells.
Something does need to change for next time that's for sure. We can't just try again with no treatment what so ever.
My gyne wants me to stay clear of Dr Shehata. I get the impression that they have completely different views. So I've had two conflicting views. Need to carry on with my research and make a decision if all comes back clear with the NHS tests.
I know that my cousin highly recommends him as without his treatment she may not be cooking her rainbow baby right now X

I'm sorry it's so hard, I'm also a graduate of this thread, I had four early miscarriages before having my little girl.

There's some controversy about some of the treatments and some doctors like yours don't recommend further treatments as they don't believe there is enough evidence. However, I've seen lots of anecdotal evidence on here and there was a trial that showed the immune treatment worked (I'll try and find it, it was using progesterone, steroids, clexane I think). I also feel that we need to try different things, it's so heartbreaking to keep going through the same thing over and over without trying something new. Like you, I had unexplained losses and had all the tests after the third one and was told it was just bad luck - my doctor (who was a very lovely man but unsure about treatments) didn't even think I needed progesterone. I went on to have a fourth loss and decided I was going to start throwing everything at it - immune treatment would have been the next step, but I went on the Response trial using a version of G-CSF (or placebo) and had acupuncture

Losing friends is tough, it's hard enough coping with loss without that, I wish people could be more supportive. I found it also it shattered some relationships x

Dairy - hope time flies until your next appointment x

 

[blueblue]

This was the study for steroid treatment:

Fertil Steril. 2006 Jul;86(1):145-8. Epub 2006 May 23.
A combination treatment of prednisone, aspirin, folate, and progesterone in women with idiopathic recurrent miscarriage: a matched-pair study.
Tempfer CB1, Kurz C, Bentz EK, Unfried G, Walch K, Czizek U, Huber JC.

https://www.ncbi.nlm.nih.gov/pubmed/16716321