prgirl_cesca
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Hello ladies, can I join you?
My son has been in and out of hospital since he was 4 weeks old...he's now 13 weeks. They have now finally diagnosed CMPI (we were very lucky to get Neocate first based mainly on the fact that I had a dairy intolerance as a baby and his symptoms were common), Silent Reflux and Laryngomalacia (floppy windpipe). All seems to be lumped together and one thing aggravates the other.
He is on Neocate formula and 1ml Ranitidine x 4.
We're 'lucky' because he's not a crying kind of baby, he really shows his discomfort in other ways. This started by being sick (although not LOADS) and generally being very uncomfortable after feeds or when on his back but I could deal with these. Then his breathing problems started He frequntly stops breathing during feeding and sounds horrific during and after feeding, this is mainly because of his laryngomalacia but the reflux makes it painful.
He's generally fed well despite all of this but recently he's started refusing feeds And I'm now having to hold him down and pretty much force feed him which is horrible. í've tried just letting him let me know when he's hungry but he will quite happily go 11 hours overnight without a feed but refuse his bottle in the morning. Some feeds are fine though. Also, once he burps he just gives up (I think it's because he double burps, one is normal, the 2nd sounds like the acid coming up and going back down) so I can only get 2oz into him if he takes the bottle in the first place and the rest is such a fight.
I'm just getting so sick of hearing that because he's putting on weight I shouldn't be concerned or upset about his obvious pain & discomfort when the only reason he is putting on weight is because I literally will sit there for an hour with him forcing him to drink. Should I just let him feed little bits with 5+ hours between and let him deteriorate then?!?! Also sick of hearing "oh Francesca he's just not hungry!" Grrrrr. Although he will take feeds from me eventually, with anyone else 9 times out of 10 he will refuse completely or end up vomiting everywhere, including my husband. This is very upsetting for all of us.
We are very lucky because we got seen by paed consultants very quickly after our GP sent us straight to hospital because of his breathing problems and I know some mums fight for months to get their LOs on neocate & ranitidine but *sigh* I just feel so helpless and frustrated with it all!!!!!!!!!!
My son has been in and out of hospital since he was 4 weeks old...he's now 13 weeks. They have now finally diagnosed CMPI (we were very lucky to get Neocate first based mainly on the fact that I had a dairy intolerance as a baby and his symptoms were common), Silent Reflux and Laryngomalacia (floppy windpipe). All seems to be lumped together and one thing aggravates the other.
He is on Neocate formula and 1ml Ranitidine x 4.
We're 'lucky' because he's not a crying kind of baby, he really shows his discomfort in other ways. This started by being sick (although not LOADS) and generally being very uncomfortable after feeds or when on his back but I could deal with these. Then his breathing problems started He frequntly stops breathing during feeding and sounds horrific during and after feeding, this is mainly because of his laryngomalacia but the reflux makes it painful.
He's generally fed well despite all of this but recently he's started refusing feeds And I'm now having to hold him down and pretty much force feed him which is horrible. í've tried just letting him let me know when he's hungry but he will quite happily go 11 hours overnight without a feed but refuse his bottle in the morning. Some feeds are fine though. Also, once he burps he just gives up (I think it's because he double burps, one is normal, the 2nd sounds like the acid coming up and going back down) so I can only get 2oz into him if he takes the bottle in the first place and the rest is such a fight.
I'm just getting so sick of hearing that because he's putting on weight I shouldn't be concerned or upset about his obvious pain & discomfort when the only reason he is putting on weight is because I literally will sit there for an hour with him forcing him to drink. Should I just let him feed little bits with 5+ hours between and let him deteriorate then?!?! Also sick of hearing "oh Francesca he's just not hungry!" Grrrrr. Although he will take feeds from me eventually, with anyone else 9 times out of 10 he will refuse completely or end up vomiting everywhere, including my husband. This is very upsetting for all of us.
We are very lucky because we got seen by paed consultants very quickly after our GP sent us straight to hospital because of his breathing problems and I know some mums fight for months to get their LOs on neocate & ranitidine but *sigh* I just feel so helpless and frustrated with it all!!!!!!!!!!