Reflux Help & Support Thread

[gilz82]

Are any of your LOs on Nutramigen girls?

Noah started this on Tuesday after the gastro paed at Yorkhill adding CMPI to his list of problems. I'd say on the whole the spontaneous vomitting is much better although he still vomits anytime you move him, that sounds more reflux related to me though.

The gastro paed said that the CMPI was primarily to blame for Noah's horrendous sleep problems at night and that Nutramigen would help. Now I know it's only been four whole days of new formula but he's developed a new problem which he's never had. Now when I put him down at night he's screaming within two minutes and it takes 20-30 minutes for me to calm him and get him to sleep. This is totally new. He's always self settled like an angel within 10 minutes max and has never cried.

Is it possible that Nutramigen is responsible for this? Or is it just a horrible coincidence?

Hope everyone is well as can be

 

[aliss]

We didn't use nutramigen but I would not say that is a coincidence - mine had the same reaction to Enfamil Soy. If your gut tells you it's the formula, I would go with it.

 

[gilz82]

Thanks Aliss I've to phone the dietician on Monday with a progress update so I'll bring it up then.

I just wondered if it was too much of a stretch to blame the formula if he's only worse at night.

 

[aliss]

Thanks Aliss I've to phone the dietician on Monday with a progress update so I'll bring it up then.

I just wondered if it was too much of a stretch to blame the formula if he's only worse at night.

I find that if something is bothering LO, it causes problems at bedtime too. They KNOW it's bedtime and it's like they aren't prepared to do it if they know something will cause them pain, acid reflux babies tend to develop aversions to many things (ie the breast, bottle, bed)

 

[gilz82]

I find that if something is bothering LO, it causes problems at bedtime too. They KNOW it's bedtime and it's like they aren't prepared to do it if they know something will cause them pain, acid reflux babies tend to develop aversions to many things (ie the breast, bottle, bed)

That actually makes complete sense! Thanks Aliss

 

[happyface82]

Hi hunny sorry I've just seen your post. Katerina is on Nutramigen. It could be that Nutramigen does not agree with him for some reason. We were at some point put on Neocate which is impossible to have a reaction to and Katerina didn't do well. After months of treating everything well she was still not doing great and I have this feeling that its the milk. I changed her back to Nutramigen and she's been great ever since. Maybe worth asking to switch to Neocate see if it helps?

 

[gilz82]

Thanks happyface I'm going to ask the dietician on Monday. He was horrendous last night finally napped for half and hour then awake for an hour then napped 20 minutes awake an hour repeated all night til I has enough at half 5 ands just got out.

I was just reading a post elsewhere about a mum who says that omperazole made her babies sleep problems worse and now I'm wondering it that could be affecting it too.

 

[happyface82]

We've never had problems with omeprazole but then every baby is different! But if it got worse with the milk then I would definitely be questioning this.

 

[gilz82]

Thanks and apologies I just re-read my last post and holy typos bad combination of sausage fingers on iPhone and tiredness

 

[happyface82]

Thanks and apologies I just re-read my last post and holy typos bad combination of sausage fingers on iPhone and tiredness

awwww i-phone! Katerina broke mine 10 days ago and I feel lost without it!

 

[gilz82]

It's bad isnt it. I honestly don't think I'd have another type of phone again

 

[prgirl_cesca]

Hi girls

Quick question, those of you giving ranitidine three times a day...what times do you do this? My friend who is a pediatric nurse told me to space out over 24hrs but this means giving one dose when Luca is asleep at night. It is horrible - i aim it in his cheek so he doesn't dribble but his eyes shoot open in panic and he struggles to breath until he has swallowed it. He goes back to sleep but it is traumatic for me and i hate interrupting his sleep cycle.

Any ideas? Shall i give it before bed? But that will only be half hour after his feed so not sure if it will be effective?

 

[gilz82]

Prgirl_Cesca we were told by neonatal and then paediatrics to leave 6hrs between doses so we gave it at 7am 1pm and 7pm which worked nicely with when we got up and Noah going down.

All we were ever told other than was just to make sure there were no more doses than the 3 within a 24 hour period.

I hope the ranitidine works for you and if it does you need to bug your paediatrician or gp at least once a month to get the dosage upped in line with your LOs weight. Personally it never helped us but Noah has reflux disease and nothing has helped him so far but I've spoken to plenty of people who really saw a difference with the ranitidine.

 

[prgirl_cesca]

Oh that's interesting! I may try that then.

The ranitidine is working very well thanks, his feeding is so much better now and we've had a good few weeks of taking his bottle and no puking!!

 

[aliss]

Wow a few weeks without puke! That's quite impressive at your LO's young age. We've been puke free for about 1 month (bar 1 incident) and wow what a difference in the laundry

 

[gilz82]

Oh I long for the day where we get one puke free day! My poor washing machine doesn't know what's hit it.

 

[prgirl_cesca]

Oh he still possets on his clothes but its barely a teaspoon whereas before it was whole bottles. Because of the neocate though it stinks!!

 

[gilz82]

Oh Noah is on Nutramigen but I think he needs Neocate as he seems to still be reacting to the small amount of protien in it. Nutramigen also smells rank it's so horrible.

I'd be happy with posseting too we've never managed to get to that stage. I sometimes get a lot or if I'm really lucky it's almost the bottle full back at me.

Bizarrely it gets worse as the day goes on, so I do wonder if the protein builds up over the day and effects him more.

 

[prgirl_cesca]

Nutramigen smells like death, horrible stuff!!

We were put on neocate, then at our review when I said how much better Luca had been on it they decided to put him on nutramigen. Probably because it's cheaper *rolleyes* He had one day on it and was so uncomfortable on it that I went mad and made my doctor give me neocate instead again. I'm very lucky that my Dr is a softy! Then I went back to the hospital for his reflux again and they asked why he wasn't on nutramigen and I said it wasn't my fault they put him on the good stuff (neocate) first and my son wasn't for them to experiment on anymore. If something is working I am not changing him back! haha!

 

[gilz82]

Yeah I reckoned that's why they had started Noah on the Nutramigen rather than going straight to Neocate, although weirdly our gastro paed agreed to keep giving us omeprazole solution because Noah can't take the tablets and it's £150 for 150ml.

Im really hoping once I speak to the dietician tomorrow she'll get Neocate or Nutramigen AA sorted for us because the little protein that is in Nutramigen is causing serious problems for Noah.