Reflux Help & Support Thread

[gilz82]

Well I've spoken to the dietician and consultant and Noah has now to try Neocate. Hopefully we'll manage to get it tomorrow and see if that makes a difference for him combined with his reflux meds. If there's no improvement even a small one in a week he'll have to have the endoscopy.

 

[prgirl_cesca]

Great news!!

 

[gilz82]

I just hope it helps and we can avoid the scope procedure. The thought of him having to get an anestetic terrifies me.

 

[happyface82]

I'm sure it will do the trick!! Good luck! Let us know how it goes!

 

[gilz82]

Blooming gp would only prescribe 3 tins even though the consultant put 1month supply on repeat on his prescription order. Basically means that if it works I'll need to re-order on Thursday to get the prescription on Monday and get the pharmacy to order it for Wednesday.

 

[happyface82]

You are kidding! I would go to the gp and not leave until he prescribes it if it is the consultant's order!

 

[gilz82]

They are obviously pissed off as it'll come out of their prescribing budget. They moaned everytime I re-ordered Enfamil AR which Noah used to be on and Neocate is more expensive than that.

If the first few days go well I'll speak to a gp when I'm taking
Noah for his jabs on thursday.

 

[happyface82]

I know its very expensive! Its just when its their health at stake and we have it so difficult trying to help them its frustrating! Katerina is having a few really bad days/nights with her allergies so I'm oversensitive about it all now!

 

[gilz82]

You are allowed to be sensitive anytime hon, I'm exactly the same. Fingers crossed it helps and then the scroogey gps will do what they are told and give me the formula!!

 

[michelle82]

Ladies with fellow chuckers, do you find that when your babas get hiccups they're not sick afterwards?

Leo is sick all day everyday, but whenever he gets hiccups, no sick

Just find it strange?? xx

 

[gilz82]

Oh no Noah gets about 15 bouts of blooming hiccups every day. I wish that meant no sick but frequently even having the hiccups then makes him sick.

 

[michelle82]

Thanks for replying, must just be Leo then. I find myself getting excited when he gets hiccups!!

Must mention it to the doc today x

 

[gilz82]

I hope in your case the hiccups continue It's weird the things that start make you happy when you are the mum of a refluxer.

 

[happyface82]

I can't say really as Katerina suffers from silent reflux so she is not sick as much!

gilz82 how are you getting on with the new milk?

 

[prgirl_cesca]

I'll see Luca go as if he's about to be sick and the acid will like bubble up in his throat and then he'll get hiccups! So that doesn't make him sick but it makes him quite frustrated. I think they lied when they said that hiccups don't bother babies!

We had a really good couple of reflux weeks with Luca - he was drinking 5oz in the day and 6oz before bed, burping well, only being a little bit sick after his bottles, happier etc etc but I as usual with the reflux rollercoaster we've had a bit of a rough few days. He's gone back to refusing any more milk after burping, although now I can get a good 4oz in him before he needs to burp whereas before it was only about 2oz. I'm just being calm and going with it and not fighting with him with the bottle and sometimes he'll make up for it later in the day with a bigger bottle. He's still sleeping through.

I'm sad though as he's still only on the 9th centile for weight, in fact he was teetering just above it and now he's back on the line. This was after his mammoth 2 weeks of eating loads so I thought he'd weigh more. The HV aren't concerned and he's very happy, producing wet nappies etc and gaining weight, but he's just so little. He's the 2nd eldest baby in my group of mummy friends but he is the smallest. I'm quite petite though so maybe that's it.

 

[gilz82]

Sorry Luca isn't gaining weight as you'd hoped hon. In that respect I suppose I'm lucky that Noah was a reflux comfort eater for 8 weeks before he started refusing feeds so he's on the 25th percentile.

Happyface things are slightly better with regards to the cmpi. Neocate is slowly making the difference but his reflux meds still aren't right. They asked us to wean at 17 weeks which made things worse. I tried again at the weekend and he has a reaction to something in the baby porridge no idea what it was though. So don't know whether to wait til I see the specialist or try fruit puree again.

 

[happyface82]

Sorry Lucas is not gaining much weight but the most important thing is that he is not in pain! He can catch up on the weight later on if needed!

Gilz82 this is tricky. What was in the porridge? Maybe just give him a little bit fruit, one at a time to see if he will ok with that? What meds is he on for reflux?

 

[aliss]

Sorry Luca isn't gaining weight as you'd hoped hon. In that respect I suppose I'm lucky that Noah was a reflux comfort eater for 8 weeks before he started refusing feeds so he's on the 25th percentile.

Happyface things are slightly better with regards to the cmpi. Neocate is slowly making the difference but his reflux meds still aren't right. They asked us to wean at 17 weeks which made things worse. I tried again at the weekend and he has a reaction to something in the baby porridge no idea what it was though. So don't know whether to wait til I see the specialist or try fruit puree again.

Our boy had the same reaction to porridge but did much better on mashed banana. It may be a case of finding the right food/consistency. Some parents unfortunately find that early weaning can make it worse, not better.

 

[gilz82]

Gilz82 this is tricky. What was in the porridge? Maybe just give him a little bit fruit, one at a time to see if he will ok with that? What meds is he on for reflux?

It was cow and gate banana strawberry porridge. There are only two porridges that I can find that don't have milk in them. It was banana, strawberry, rice, corn and semolina I think. He's had baby rice and it didn't agree with his reflux but it took a couple of hours to start refluxing. The rice percentage of the porridge was only 5% I think so much less than pure rice and he started reacting within 25 minutes. He's on 20mg of omeprazole for the reflux. The gastro paed seems to think it won't work properly until the CMPI is under control but at this stage who really knows

Our boy had the same reaction to porridge but did much better on mashed banana. It may be a case of finding the right food/consistency. Some parents unfortunately find that early weaning can make it worse, not better.

That's my worry Aliss that things are going to get worse. We saw the gastro paed on the day Noah turned 4 months. He said he wanted us to start weaning straight away even though cmpi had just been diagnosed along side the reflux disease. I tried for a three days but I couldn't tell whether the weaning was making him worse or it was the nutramigen. Stopped weaning the screaming continued so decided it was the nutramigen. Spoke to the dietician she agreed so we've been on neocate for a fortnight. I'd love to just leave things as they are and try to get a bit more settled before weaning again. But the gastro guy has made it clear he won't try anymore treatment or adjust Noah's dosages until we've tried weaning. At the moment the cmpi symptoms are getting slightly better but the reflux side is consistently bad and on a good day we have 1 whole bottle type vomits and a bad day I get all 4 bottles hurled back at me, to the point I now feed Noah surrounded on the floor surrounded by bath towels.

Maybe I should try again and just skip out porridge/rice all together for moment and stick to banana mush and fruit purée.

 

[lilbumpblue]

knock knock please can i join in? X