Reflux Help & Support Thread

I've just noticed your little girl is only 3 weeks old? I think they don't recommend soy for babies under 6 months?

I put her back on soy (prosobee) just 1 daY back on milk based her nose started running alot shes constantly tense and very fidgety from being uncomfortable..

n the cans say 0-12 months.
i know sooooo many ppl that were soy formula fed from birth that are perfectly normal. hit puberty at normal tmes n everything. im not concerned. ive done alot of research.
it seems to sit very well with her..

she was on alimentum before the reflux was diagnosed.. she just does NOT tolerate milk based i guess.. im happy shes okay with soy... as a single mother i cant afford the alimentum.
 
Chelsea.ann1,

My son was on soy for 8 months. While it is not recommended, it was the only thing that helped. I also notice you have "attachment parenting" on your signature - I must say, using AP methods was the best thing I ever did when dealing with such a difficult reflux baby. You can't go wrong. I can see amazing benefits now as a toddler, and it will help you bond.

Unfortunately, those of us in Canada or the US (like Chelsea.ann1 and me), are often refused prescription medications for reflux. It just isn't done here. It's awful. Sometimes we have to take the lesser of the evils.
 
Chelsea.ann1,

My son was on soy for 8 months. While it is not recommended, it was the only thing that helped. I also notice you have "attachment parenting" on your signature - I must say, using AP methods was the best thing I ever did when dealing with such a difficult reflux baby. You can't go wrong. I can see amazing benefits now as a toddler, and it will help you bond.

Unfortunately, those of us in Canada or the US (like Chelsea.ann1 and me), are often refused prescription medications for reflux. It just isn't done here. It's awful. Sometimes we have to take the lesser of the evils.

Yea.. sometimes the benefits outweigh the risks.. heavily.. and I'm glad to hear that about AP.. I really really do believe that that's the reason she calms down at times.. and feels better.. :hugs:

She's been prescribed zantac to start with.. so I am able to get a prescribed medication for it.. aww you poor thing that you can't though, that'd be horrible :(
 
I'm glad she is better on soy. I haven't researched it much myself as Katerina is allergic to it. You are doing the right thing! :thumbup:
 
I'm glad she is better on soy. I haven't researched it much myself as Katerina is allergic to it. You are doing the right thing! :thumbup:

Thankyou! :hugs:

I am so surprised my daughter doesnt seem to be as shes sooo sensitive to everything! Even alimentum!
 
Hi everyone, my 3 week old daughter has been diagnosed with reflux today :cry: She was very relaxed for the first 2 weeks of her life but the last week has been a nightmare :cry:

She's really irritable and distressed after feeds and is terribly sick.

We've been given infant gaviscon which we started tonight but she was sick straight after her feed as usual. I feel so sorry for her.. She's very clingy now too and won't go in her moses basket anymore.

I'm breastfeeding so it's hard to get the gaviscon into her. Any tips from anyone?

Also, is there any more advice anyone could give? Do I need to adjust my diet?

Thank you :flower:
 
Hi everyone, my 3 week old daughter has been diagnosed with reflux today :cry: She was very relaxed for the first 2 weeks of her life but the last week has been a nightmare :cry:

She's really irritable and distressed after feeds and is terribly sick.

We've been given infant gaviscon which we started tonight but she was sick straight after her feed as usual. I feel so sorry for her.. She's very clingy now too and won't go in her moses basket anymore.

I'm breastfeeding so it's hard to get the gaviscon into her. Any tips from anyone?

Also, is there any more advice anyone could give? Do I need to adjust my diet?

Thank you :flower:

Sorry roxyroo :( My boy is 16 months and had bad reflux from 0-14 months, only an occasional episode now.

Some recommendations:
Wear her/feed her upright in a proper sling/wrap, it was a lifesaver. Yes, you'll be vomited on, but it will greatly reduce her pain.
You might want to try a syringe with the gaviscon or even a little cup instead.
Most women find gaviscon useless unfortunately. If you don't see improvement, try and see about something stronger.
Stick with BF as much as possible - formulas are a nightmare and often make things worse (we ended up with soy formula ourselves, it hurt him but it was the lesser of all evils)
Prop up her basket by 45 degrees
Diet- "elimination diet", dairy and onions tend to be the biggest culprits. Dairy exists in so many products you wouldn't even realize- search a vegan website or non-dairy website for specific product lists.

Also 21 days is a prime growth spurt so she will require cluster feeding/be very clingy, this is normal even for non-reflux babies, just try to SURVIVE, good luck
 
I have a few questions please:

What gestation were your LOs born at? :shrug:

Did you have heartburn/reflux in pregnancy? If so, what did you take?
:shrug:

Did you LO get hiccups alot in the womb? :shrug:

37wks; bad heartburn; loadsa hiccups; gaviscon liquid


Just a little update, Nims still on Losec (20mg a day) and EleCare.

Shes totally refusing anything that will hide the granules now (puree, porridge, soy yog, jelly, jam) so we are struggling - I did try letting her self wean from it but she was in hysterics within 48h and refusing to drink and eat again
So I went to the Dr and demanded a oral suspension, which is gross (its a bi-carb suspension :sick:) but made up in a 10mg/ml concentration so at least she only has to take 1ml twice a day and its easier to get that down her.

Shes settling again back on that, not perfect but better

Back to see her paed at the end of the month

Awww, poor nim - hope she does well on the suspension. Soph scoffs her omepr every time ( i mix with shop bought apple sauce - full of sugar, but i dont care!), even though the granules are really bitter.
I know the liquid's supposed to be 'good' for 14days, but seen lots of comments that it really starts losing potency after 7days. Jst thought i'd give you the heads up in case it becomes an issue for Nim
 
I have a few questions please:

What gestation were your LOs born at? :shrug:

Did you have heartburn/reflux in pregnancy? If so, what did you take?
:shrug:

Did you LO get hiccups alot in the womb? :shrug:

1. 40+5 (induced, aspirated a lot of meconium although I don't think that matters?)

2. None at all

3. None that I noticed
 
Hi everyone, my 3 week old daughter has been diagnosed with reflux today :cry: She was very relaxed for the first 2 weeks of her life but the last week has been a nightmare :cry:

She's really irritable and distressed after feeds and is terribly sick.

We've been given infant gaviscon which we started tonight but she was sick straight after her feed as usual. I feel so sorry for her.. She's very clingy now too and won't go in her moses basket anymore.

I'm breastfeeding so it's hard to get the gaviscon into her. Any tips from anyone?

Also, is there any more advice anyone could give? Do I need to adjust my diet?

Thank you :flower:

Welcome, adn so sorry your havin to deal with this. My dd, Sophie, suffered terrible acid reflux and is till exclusively bf (one yr old yesterday). Spot on info from Aliss.

For Gaviscon:
Give gaviscon BEFORE feeds (not after).
To mix it pour the sachet into an eggcup: no corners where the meds get stuck
Fill a 5ml syringe with cooled boiled water: if its still hot jst run the filled syringe under the cold tap to cool it really quick. The syringes that come with 'nurofen' are great cos you can sterilise them and they're not 'pointy' at the end
Add 3mls of the water to the gaviscon and mix until smooth, then add the rest of the water - if it still goes lumpy jst leave it a couple of minutes and the lumps will disolve
Draw all the 5mls back into the syringe: you DONT need to mix it with 15mls as directed - I checked this with a few different pharmacists who all said 5mls was plenty!
Put syringe into babies mouth & release the gaviscon slowly - make sure you aim the meds at the inside of baby's cheek, rather than pointing it
towards the throat
Offer bf immediately

Also, I used to mix a couple of syringes of gaviscon and take them upstairs to use for night feeds (i put them in a long toothbrush holder to keep them clean) - i know they recoment you make it up immediately b4 giving to baby, but worked ok for us!!

DEFO keep up the bf if you can - it is MUCH easier to digest than ff which can cause more pain. Have a look at this article here: https://www.reflux.org/reflux/webdoc01.nsf/(vwWebPage)/Breastfeed.htm?OpenDocument

CMPI/ MSPI (cows milk protien intolerance / milk soya protien intolerence) is the most common allergy in babies and can cause severe reflux. Excluding dairy from your diet can make a huge difference if this is the case. Have a look here https://www.refluxrebels.com/Acid_reflux/Acid_reflux_medication.html to help you decide if this may be an issue for your LO (quiz menu at top). This is a list of ingredients to avoid if avoiding dairy: https://www.kellymom.com/store/freehandouts/hidden-dairy01.pdf

This book saved my sanity (best £6 I ever spent - just read the reviews by other parents): https://www.amazon.co.uk/Colic-Solv...0681/ref=sr_1_1?ie=UTF8&qid=1319413881&sr=8-1

Feed your lo while they're half asleep

Put your baby to sleep on their tummy. I started this at 5 wks cos my LO could not lie on her back at all. At first i only did it during the day so that i could keep an eye on her, but after a week i did it at night too cos it was the only way any of us could get some sleep. I was terrified of SIDS at first cos tummy sleeping is a major factor in cot death, but when i researched it i found that it was almost always in combination with other factors. Have a look at the SIDS website b4 using tummy sleeping s o that u can take every possible precaution.

Trust your instincts and do what works for you and your baby - if the only place she can sleep is a bouncy chair then do it.

There are meds out there that can really help. Usually they start with gaviscon, then move onto ranitidine (zantac), then omeprazole. It can be a battle getting the docs to take you seriously, and a constant battle getting them to increase dosages or change the meds, but stay polite, firm and insitant. If your daughter is really distressed goto the nearest childrens hospital, or at least one with a paediatric unit and keep pushing un til someone helps her.

sorry so long, but i felt I needed a lot more detail in the beginning than i could find!!
 
Happy Birthday Sophie - 1yr old!!!! Cant believe how well my dd is now, and what a difference the meds have made. If only they'd given her the right treatment much earlier and I;d known then what I know now !!!
 
I have a few questions please:

What gestation were your LOs born at? :shrug:

Did you have heartburn/reflux in pregnancy? If so, what did you take?
:shrug:

Did you LO get hiccups alot in the womb? :shrug:

Born at 36 weeks and was a small baby due to IUGR. Didn't have any heartburn at all but LO did had hiccups a few times.

I think there is definitely a link to prematurity and reflux. So for those with refluxers that we born on time I guess it is just bad luck!!! :nope:
 
I have a few questions please:

What gestation were your LOs born at? :shrug:

Did you have heartburn/reflux in pregnancy? If so, what did you take?
:shrug:

Did you LO get hiccups alot in the womb? :shrug:

Born at 36 weeks and was a small baby due to IUGR. Didn't have any heartburn at all but LO did had hiccups a few times.

I think there is definitely a link to prematurity and reflux. So for those with refluxers that we born on time I guess it is just bad luck!!! :nope:

DS1 was 10 days late & DS2 was due date...Neither had reflux

DD was a week early & she suffered with reflux

Im just trying to decide if I can ask the hospital to let me go until my due date? :shrug: But as im on 4th csection, I dont know if they'll let me? :shrug:

Im getting myself all in a 'tizz' with worrying about this LO having it too :wacko: It was hard enough with DD & both my Boys were alot older, so that was easier

This time, DD will be only 14 months old when this LO arrives & im anxious :baby::baby:
 
Why won't they let you go to 40 weeks? Is there a risk? I know I worry about it too, not sure what I would do if my next baby had the same problems. Well at least I would know how to help him/her a lot quicker than what I did with Katerina!

I know there is a link for premature babies and reflux but they wouldn't class 1 weeks early premature so maybe do some research and if you find something to support it then take it with you when you ask them?
 
Why won't they let you go to 40 weeks? Is there a risk? I know I worry about it too, not sure what I would do if my next baby had the same problems. Well at least I would know how to help him/her a lot quicker than what I did with Katerina!

I know there is a link for premature babies and reflux but they wouldn't class 1 weeks early premature so maybe do some research and if you find something to support it then take it with you when you ask them?

They usually book you in a week early, so you are less likely to go into labour :baby:

I do need to do some research :coffee: Can you please suggest where I should start? :shrug:
 
I'd say start with google and maybe try looking what comes up under scholar. See if you can find something a bit more scientific rather than just a website. Don't have any links at the moment but can have a look tonight when I have a bit more time.
 
I'd say start with google and maybe try looking what comes up under scholar. See if you can find something a bit more scientific rather than just a website. Don't have any links at the moment but can have a look tonight when I have a bit more time.

Thankyou so much :flower:
 
There is an link just due to reflux being a symptom of an immature digestive tract (same as with delayed gastric emptying) but its one of those things - some people have babies at 37 weeks that were the same size as or bigger than mine, some go to 41 weeks and have a smaller baby. Some early babies need SCBU and CRAP but others dont, yet some termies need it due to issues.

I guess what im saying is that its about development at time of delivery, and while getting as close to DD might help its not a reliable answer. One of the worst reflux babies I can think of was 40+6 and huge. Yet my friends little 6lb nothing 36 weeker has never refluxed (lucky cow!)
 
Kelly, I'm with Farie n theres no point stressin cos it aint gonna make a blind bit of difference, try to jst wait n deal with it if it happens. Plus, u have a head start this time if there is a problemcos u already know so much and you woll jst get through it (there's no other option). Sophie really bad, but both my others had reflux too but i've only realised that in retrospect. DS1 i thought had a bit of colic which wasn't too drastic n DS2 was a 'happy spitter' and thriving so no issues there. Pls steal yourself n try not to worry too much, you'll be a fab mum whatever happens x
 

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